Hi all, I have recently been diagnosed crohns and started diff types of treatments 6 weeks ago. The I was/is that I suffer diahorrea. I could be in work and eat somethign and within 5 mins on the loo. When I get the urge I have to go now and Only have 2-3 mins and thats it. I suffer anxiety over this as often I had to stop my car at the side of road etc and always have a change of clothes with me. Its so embarrassing as I wont travel with anyone etc and in general dont trave. I am off work at the mo but back in January. There are 2 other girls that i work with who also have crohns and never miss a day off work never, always look well and seem to eat whatever they want without suffering the consequences etc. They are also doing social work so are on the road constant and this never seems to affect them. There is no way that I could do this job of driving and I am in so much pain when it happens. I just cant understand it as it looks like im a hypocondriac or something and am always pale and feelign sick etc. Also one of the girls is not taking treatment for hers. My doctor was after signing me out for the past 2 months as I started pentasa and it did not agree with me ending up suffering gastritis etc and am now on questran. Sorry just needed to vent over this.
Vent about work colleagues
- Thread starter minky
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Help Support Crohn's Disease Forum:
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Minky,
I've had tons of issues with co-workers. I've worked one place where another person had Crohn's but was in a remission (We talked about it during lunch one day, where she was eating mexican and i said "wish i could eat that)...anyway, long story short, i get a flare, miss work, and the boss has the nerve to say "well she has crohns and she's doing great, why aren't you?" Needless to say I quit a week later when I came back. Don't feel like a hypochondriac because you have to realize, you are sick...but its something that with the right drug/diet combo, you can beat! I promise that soon you'll be able to talk about BM's like its nothing to family and friends lol. I wish you the best of luck with the questran, and hope remission, or at least some relief is in your near future!
Keep your chin up and don't let people guilt you for having a disease!
I've had tons of issues with co-workers. I've worked one place where another person had Crohn's but was in a remission (We talked about it during lunch one day, where she was eating mexican and i said "wish i could eat that)...anyway, long story short, i get a flare, miss work, and the boss has the nerve to say "well she has crohns and she's doing great, why aren't you?" Needless to say I quit a week later when I came back. Don't feel like a hypochondriac because you have to realize, you are sick...but its something that with the right drug/diet combo, you can beat! I promise that soon you'll be able to talk about BM's like its nothing to family and friends lol. I wish you the best of luck with the questran, and hope remission, or at least some relief is in your near future!
Keep your chin up and don't let people guilt you for having a disease!
That is exactly right - do NOT let people guilt you! You might explain it to your boss like a cancer sort of thing - where some people have very active cancer that they are struggling with and being treated aggressively for - while others who have it may be in remission and not suffering. It is VERY similar!! You are just diagnosed - and I suspect maybe not on the "right" medication to have your disease in a more quiet state to get you more relief. If you can find that balance - it would greatly help your symptoms and allow you to have less of this anxiety. Believe me, I *know* exactly what you are talking about with the anxiety and I'm sorry you have to work and have that all at the same time - it can be miserable. But use it to your advantage with your doctors to make sure you are getting good sound treatment to get your disease under control. Good luck buddy!
Cheers for the replies guys. My God eating Mexican at lunch - if I ate that I wouldn't be halfway thru and on the pot then for the day. I guess everyone has it so differeint. Please God now it will start to get better from now on as I am still feeling crap in my stomach. I only had a colonoscopy but I find I have a lot of bother as regards burning etc so think I should really have an endoscopy or something as well. I am taking protium at the min for my stomach. Oh God I jsut hope soon that things will get better for me!! Thanks for the advice, would be lost without this forum.
farm
Captain Insaneo
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This disease will attack people so differently it is truly amazing.
I can eat whatever I want, Mexican is one of my favorites. I've kept some food journals over the years and no specific food has triggered my flares.
However, antibiotics for sinus infections and such may be a trigger for me.
The ladies you work with sound lucky to me and must be in remission. Hopefully you will be in remission SOON (crosses fingers) and all will be well.
I too am sorry to hear this. I strugle with some co-workers and my boss. I am from the "texting generation" and my boss and others at work seem to think I use the bathroom as a safe zone to text my friends....I've tried politely explaining to them no, this is how it is....I've told everybody at work now and only a few understand. It makes it worse having a guy with IBS at work who is doing very well as he told me but he told me he spends half an hour at a time in there just to kill time....ruined whats actually real for me. My boss told me the other day that I can't spend so much time in the bathroom.....I'm usually quite calm and not outspoken or disrespectful but this one got to me as I do work extremely hard to try and make up for bathroom trips and missed time. (I'm also going for dilation on Janurary 5th because the end of my colon is so dang small I can't pass much so trips to the bathroom take forever!) Anyway, I sorta layed into my boss, that was just last week, he hasn't made a comment since. Tomorrow he is gettting a nice typed and detailed letter about Crohn's on his desk just as a reminder because I did tell him when he hired me so it shouldn't be a problem now.
As for your co-workers I would politely explain to your boss that while they are doing well with it you may not be and they may start feeling like you anyday now or maybe they will be in remission forever. Its just like Peaches said actually. I would tell your boss even before he says anything (if he ever would) just to keep thoughts from coming up. I find "most" people are more understanding when you simply give them a quick run through and explain that your really not looking for a way out of things its just a fact of your life.
Good luck to you.
As for your co-workers I would politely explain to your boss that while they are doing well with it you may not be and they may start feeling like you anyday now or maybe they will be in remission forever. Its just like Peaches said actually. I would tell your boss even before he says anything (if he ever would) just to keep thoughts from coming up. I find "most" people are more understanding when you simply give them a quick run through and explain that your really not looking for a way out of things its just a fact of your life.
Good luck to you.
Thanks for all the replies everyone. Crazycanuk thats absolutely awful your boss saying somethign to you - how dare they?? Oh God I am terrible I often wish someone to have a few days of what we go thru and they might have a better understanding. A doss texting - God unbelievable. Hopefully all will be better soon for all of us. Looking forward to the new year I tell ya!! Better things to come I hope!!
