- Joined
- Mar 17, 2013
- Messages
- 1,362
D is now down in weight even further. Her GI said she was at the bottom acceptable percentile for her weight but calculated she was barely there. I looked it up to find out she is at the 8th percentile. Probably with the weight loss of the last week she is probably down to 5%. I know I'm doing all I can, & starting EEN is the best thing right now but I can't help but be worried. I finally got D to start using the myIBD app to better track her bathroom trips and it is worse than I calculated. We to
D the doc 12x, she is actually going 17x a day. I suspected she was minimizing the reality because reality stinks, but I didn't realize it was that bad. It is hard to get any food in her cause it just goes right through her or up. Tuesday check in at the hospital can't come fast enough.
I'm either not sleeping or I can't seem to stay awake. I'm either up super early and can't find a nap or sleep or every time I sit down for 15 idle I fall asleep. D asked me to cuddle her and watch Netflix and within 5 minutes I fell asleep. I didn't think the stress of all this was showing and I was managing it well but this must be my body saying it is overloaded.
I thought my 14 year old was managing her sister's latest development but looking at her latest actions she is either getting out of the house away from it all or slipping in school and showing up late. This is an honor roll kid who applied to a prestigious high school program as she is an over achiever. Completely out of character. Every year we go out for my husbands birthday and we normally talk about where we are going to go. His birthday is Monday, none of us have talked about it, and this morning he said he didn't want to go out or even make a big dinner in. None of us are handling the stress well.
I can't seem to fight the feeling of failure. Tuesday will be our 4th hospital trip in just over a year and a half. I have had this feeling we are successfully managing the Crohn's if we are out of the hospital. Even knowing we are only going in for a few days I can't help the feeling of failure even though we are doing everything right.
D the doc 12x, she is actually going 17x a day. I suspected she was minimizing the reality because reality stinks, but I didn't realize it was that bad. It is hard to get any food in her cause it just goes right through her or up. Tuesday check in at the hospital can't come fast enough.
I'm either not sleeping or I can't seem to stay awake. I'm either up super early and can't find a nap or sleep or every time I sit down for 15 idle I fall asleep. D asked me to cuddle her and watch Netflix and within 5 minutes I fell asleep. I didn't think the stress of all this was showing and I was managing it well but this must be my body saying it is overloaded.
I thought my 14 year old was managing her sister's latest development but looking at her latest actions she is either getting out of the house away from it all or slipping in school and showing up late. This is an honor roll kid who applied to a prestigious high school program as she is an over achiever. Completely out of character. Every year we go out for my husbands birthday and we normally talk about where we are going to go. His birthday is Monday, none of us have talked about it, and this morning he said he didn't want to go out or even make a big dinner in. None of us are handling the stress well.
I can't seem to fight the feeling of failure. Tuesday will be our 4th hospital trip in just over a year and a half. I have had this feeling we are successfully managing the Crohn's if we are out of the hospital. Even knowing we are only going in for a few days I can't help the feeling of failure even though we are doing everything right.