Welsh-bird is having surgery again!

Crohn's Disease Forum

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Thanks for the update, Dusty :-( So sad to hear this, Welshy. You so deserve a break. I hope it comes soon. Hang on in there, girl x
 
Just picked up this thread today.

Love & hugs to you Andrea, get well soon hunny :)

Paula
xxxxxxx
 
Oh Andreaaaaaaa. Sorry to hear you're still in that hell hole.

Just think how amazingly nice your bed will feel when you get home! I know it feels never ending right now. But things WILL pick up and I know it.

Try and stay positive!! We're all thinking of you xxx
 
Update on Andrea

Andrea was very poorly today, so they've took her into surgery, again!
They decided that the Febrin glue hadn't worked, so the fistula has been removed.
And they've took some small bowel too.
Andrea is in recovery and all's well.

Julien is questioning whether this procedure should've been done in the first instance?
I really hope this current surgery is the last and they give this poor kid a break!
Andrea, all our thoughts, prayers and messages to Yoda are with you today!
Get well soon and I will speak to you soon, you brave, lovely girl, know that all your friends are rooting for you
Love you tons
Joan xxxxx
 
Oh dear poor Andrea. My God why cant she get a break?

Andrea, we love you hun. Please get well soon and keep fighting.

Keep at it Andrea, please, please you cant give up.

Love you,
Misty
 
Thanks for the update...so sorry to hear Welshy isn't feelig too well - and yes, hoping this surgery is the LAST!.....
 
I'm so sad right now I can't even think of anything to say. It's just not fair. My heart is breaking thinking of you having to go thru another surgery. Please know we all love you and are just praying that this is going to do the trick and make you feel better.

Hugs across the pond, Welshy, hang in there. xo xo xo -Ames
 
Keep up the good fight Andrea! Glad you got the fistula removed and that it wont be causing you anymore trouble and I wish you a speedy recovery from the surgery! I really do hope you get out of there soon so you can fawn over them rugby boys the proper way. :)

Thank you for all the updates guys. What a great forum! :D
 
Blimey this Lady has been through the Mill reading this thread, sincerely hope thats her last surgery & things improve from here on in.

Grant

1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection

Been on Azathioprine & Pred

Currently on Entocort 3mg every other day
Humira 40mg every two weeks
Calcichew
Pentasa 4gm daily
3mthly B12 Jabs
 
Ah Andrea, I am so sorry you are still in there.
Let's hope and pray that this operation does the job for ya.
Healing Hugs~Nancy
 
Hey Andrea...

now is not the time to be a loner :) I think we ought to all just show up and break you out of there :)

...thinking of you - you still didn't send me a copy of your thesis!!! I need a history lesson!!!
 
Update

Welshy has had a comfortable night in ICU and she remains stable.
She is is sleeping soundly and her doctor is happy with her progress thus far.
The plan is to move her back to the ward later today.

We are thinking of you mate and hoping, wishing and praying that all continues to go well! You so deserve it buddy! It's your time!

Onward and Upward! To infinity and beyond!...:Karl:
Dusty. xxxxxxxx
 
Glad your doing well after surgery and continue getting better and get out of the hospital soon! Sending you happy thoughts! *hugs*
 
Andrea is back on the ward and is ok.
Very exhausted and feels a bit sick, but she's doing ok.

You take it easy ya Welsh Bird!
Phone you tomorrow when you feel a bit better.
xxxxxxxxxx
 
Glad to hear she is stable now. I think ICU was a good thing for Andrea considering all she's been through. I hope she gets back to the ward soon and she continues TO REST and recuperate. So she's back on her feet giving the Dr's hell!!

Welshy....I have 10 new grey hairs now! You have to get better soon! We're all worried sick!

Love ya!
Misty
 
I feel really bad for not knowing any of this was going on :( I'll be keeping Andrea in my prayers. Hopefully this will be the last of the surgery and setbacks and real recovery is underway!

Keep fighting, Andrea! :)
 
Andrea,
Just wanted you to know that you are in my thoughts and prayers. Hang in there!! You are one very strong lady.

Hugs,
 
Update.
Hi all, in view of the emails, texts and calls And has been receiving I thought I should update this on her behalf.
Thank you so much for the Get Well wishes, I know she really does appreciate it. If she hasn't got back to you recently, then apologies but she is trying to keep up with as much as possible.
This last round of surgery has now really taken it's toll on her. She's really down and at times is struggling just to keep ahead of it. Her chemo continues to go well, so that's one good piece of news, but her CD continues to be giving her endless problems.
I have no doubt that thing's will get a lot worse before she will start to get better.
She has a great Gastro team who are doing all they can to help her and keep her as comfortable as possible.

Thanks Dusty and Joan for updating here. Will let you know should there be any new changes. For now though, she remains 'comfortable' and resting.
J xx
 
Thanks so much for the update J.

:hang: Welshy. Thinking of you buddy and sending mega loads of (((hugs))) and healing (((thoughts))) across the way.

Loads of love, :Karl:
Dusty. xxxxxxxx
 
Thank you for the update. Hang in there Andrea. Dont let this MF disease beat you.

Sending love and hugs and healing prayers to you. Actually, I've never stopped, but I'll call in all the troops now.
:Karl::Karl::Karl::Karl::Karl::Karl::Karl:
Love you,
Misty
 
2.jpg

Beyond the blue, there can be heard a quiet whispering of comfort.
It is the sound of love. Holding you in thought and prayer..
Heart Hugs~Nancy​
 
I'm still thinking of you Andrea and wishing you better as soon as is possible. You will get better, you will get over it and you will be smiling again very soon. I hope that your good spirits return quickly it can imagine why you are not feeling so chipper at the moment.
Keep fighting
Much love
x
 
Oh, Andrea, you have been through so much. You are truly one strong lady, and don't you forget it. Keep on fighting!

Sending thoughts and prayers your way.
 
Update

Hey guys,

Andrea wants you all to know that she appreciates all the messages and mails so much. She wishes more than anything that she could come onto the forum and thank you all personally but she still isn't feeling up to it.

Andrea is stable and recovering from her surgery but she still has a lot of hurdles to overcome. Aside from the chemotherapy, further surgery may not be out of the question due to the ongoing problems with her Crohn's. She is feeling very tired and overwhelmed at present

Thinking of you mate and sending you mega loads of love and squishy hugs...:hug:

Much love Welshy, :Karl:
Dusty. xxxxxxxx
 
Coming in a little late in the game but nevertheless, wish you all the best, sending many healing thoughts and hugs your way.

I still remember the "wonderful Sunday" post and I pray that you will be back on that level very, very soon.
 
Here's hoping you don't have to do another surgery. You already had 2! One is bad enough! Thinking of you!
 
She's already had about 7 surgeries by my count since Jan. This is NOT OK. How much can a girl take? I think another specialist opinion wouldnt be a bad idea in your case. I've no doubt they are doing their best, but this is not ok.

If they are not ruling out more surgery, I'd like to know why this wasnt addressed before, and why is the crohns still so bad? I am sorry, I am feeling extremely upset. I want you well Andrea, and so help me, if I could take your pain away so help me God I would.

Please get well Andrea, please.

Love ya,
Misty
 
Just a quickie
Everyone is upset about Andrea, so I wanted you all to know that we chatted on the phone tonight and she's ok.
We talked about future surgery and put the World to rights!
We had a laugh and Andrea's spirit is still fighting good.
It's good to talk and Andrea knows I'm just at the end of the phone if she needs me
Love to you all
xxx
 
Thanks Astra for hte update...many times I'm only able to quickly read through posts but not answer...but I wasnted Welshy to nkow I'm rooting for her! Kick some ass girl!
 
Thank you Joan for the update, I have emailed her but havent heard from her , usually she is so prompt. Hang in there Andrea, we know you can get past this!! Hugs !!!xxx
 
Update..
Hi all, I'm sorry for not having updated for a few days, but can see that both Dusty and Joan have it in hand.
And had a rather good evening last night. Watched a film and eat for the first time in what seems like days. She did again start to say that the pain was returning but could deal with it (!). Anyhow, by 1am today her temp was reaching 39c and her ANC has dropped to 352. She obviously has an infection but none too sure where. Back on the IV antibiotics for now, and will be reviewed later again this afternoon. For now, she remains comfortable and stable (medical jargon!!).
I'm sure she would want me to pass on her thanks for the continued support, emails and texts she's been receiving. They really do life her spirits, and I'm sorry if not all are being responded to just now. Just to say though, they are being read.
Dusty, Joan- thanks so much for everything. Means a lot to all of us here.
Any changes, I'm sure someone will update.
Wishing you all well.
J xx
 
Thanks for the update Julian, I guess with having chemotherapy and active crohn's Andrea is up against it a little with infection.
Andrea,If only we could fast forward time to when chemotherapy is finished and you are out and about and well.
Perhaps I shall have a chat with the man and his tardis.
Thinking of you and really hoping you take at least a couple steps toward feeling better.
 
Thank you for the update Julian. You are a super bro!

Lets all hope her crohns decides its time to take a little rest while she continues chemo. I know its still active, but I can only hope it decides to take a little holiday, as of RIGHT NOW, and give her a break!

Miss you and love you Welshy!!!
:wub::Karl::wub::Karl:
Misty
 
Sending all my love, hugs, prayers and healing thoughts to you Welshy...:hug::hug::hug:

To infinity and beyond!
Dusty. xxxxxxxx
 
Message from Julien

Andrea is very poorly and in ICU.
Hopefully just for tonight to get the additional care she needs to get over this infection.

I don't pray Andrea, but I think it's time I had a little word in His shell like!
So God, wherever you are, whatever you are, give this poor girl a break!
I'm really starting to feel sick with worry.
Please get well, please phone me as soon as.
love you my friend
xxxx
 
Im so so sorry to read this - it just not fair , I really hope things improve and soon. Lots of hugs x x x
 
Thanks for letting us know Julien. I'm with you Joan...just give her a break already!! Get well Andrea!!
 
Thanks for the update. I hope they figure out what's causing the infection soon! Hang in there girl! *hugs*
 
Update

Hey guys,

Welshy still in ICU but things are slowly improving. BP is improving, her temp is coming down and the doc is pleased with her progress!

We're all thinking of ya Welshy and wishing, hoping and praying that you keep improving and will soon be back on the ward! I reckon it won't be long now...Onward and Upward hun...

:getwell::getwell::getwell:

Loads of love and hugs, you too J! :ghug:
Dusty. xxx
 
Keep hanging in there Andrea!!! Your chemo will all be over soon and hopefully that is what is having a repeated impact on your crohns... I am with everyone else and think it sucks that you have to go through all of this...

i really dont know what to say other than I am thinking about you and hoping you get the break you so deserve.

love wendy xo
 
Well Andrea, prayers are coming your way from the Orthodox Jewish community in London. Special prayers were held at 12.00, and now the synagogues are doing a 'mi shebeirach' prayer for you as well. In Israel, they are doing the same.

I'm not Jewish, but it helps to know folks with the ear of GD. These folks sure helped me out when I was gravely ill.

Meanwhile, I'm sending healing energy like a crazy fiend as well.

Love ya toots.
Misty
 
Hi all.Just a quick update to let you know that And is now back on the ward and out of ICU.
Thanks again from us all for your continued support.
For now, she's comfortable and seems to be doing well.
J xx
 
Hi all..it's me!
Forwarning that this post comes with a health warning- I'm bloody miserable and can certainly out do 'Joan the Moan' lol.
To be blunt, I've had enough! Been her almost a month now and am desperate for home. Don't know when that's coming, hell I know sod all these days!
Infections certainly on the mend, cough is slowly going away, and BP remains low but stable. It's my chemo free week, but am dreading starting again next Monday. Cycle 4 of 8 awaits (yes another 13 weeks of this shit to go!), and everyone is now making me feel iller than the last. It's hard to see an end to it all.
I HATE THIS LIFE..I hate being here, I hate CD and I hate cancer. Just wish they would both find another bloody home, its not like they're welcome here!!
If only I could route this hate into fighting these damn diseases then I'm sure I would feel better. I know I need to harden up, get a bloody grip and be greatful that thing's aren't any worse right now, and more so that there are sooo many worse off than me out there, but its hard when you feel so damn tired and nauseous all the bloody time.
If you're still reading this- I did advise that it came with a health warning! lol

Right, before I say anymore and piss everyone right off, I should end this 'poor me' rant, and go get a bloody grip.
Hoping that you're all keeping well, or as well as can be.
Missing you guys,
And, aka 'Mona the moaner' xxx
 
Hey And, quite a scare you've given us! I'd say you have every right and reason for a good moan. I'm just glad you felt up to it!! Gotta be a good sign, I'd say!!! I wish we could fast forward to the successful end of your chemo, but well, you know...

Moan away please!!!!
 
Dex, I don't think you have enough time in the world right now if I got started! lol

I'm sure I've complained above and beyond all expectations recently. I do need to get a bloody grip...
 
Andrea, if anyone deserves a moan right now it's YOU. I would do anything in my power to take away your illness and pain,emotionally and physically. The only thing you can do is look towards the end of chemo. Your half there now. Keep crossing off the days. You can get through this, you is a tough cookie!

By the way, I'm glad you feel well enough to moan!!!
Love ya, xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
 
Moan away, you have well and truly earned that right!

We're always here if you need anything.

Please take care, rest lots and hope you feel better soon.

Love

Treena x. :ghug:
 
Really good to hear from you! Quite happy that it's as Mona ;)
No one on here would blame you fron having a right good moanfest.
We are all here for you and we all know how much you are going though so just get it all off your chest. I am sure just doing that will be cathartic and make you feel just that little bit better.
I too wish that we could fast forward to when all of this is over for you but for now we can look forward to that day I guess
Much love
x
 
I think you have every right to be pissed off and have a good old moan. I feel fed up enough with just a flare and chest infection so can't even begin to imagine how utterly pissed you must feel. Try and make the most of your pre chemo time. Try to rest, winge whenever you feel like it and you should't worry about complaining on here...it's just nice to hear from you!
 
Andrea, We are just glad you are back here. The moan and groan is what support boards are for. If you can't moan about it here..... where are you going to? It's OK.
 
I'm so glad to hear you're improving. If you didn't "moan" I'd be even more worried about you. I can't wait until the 13 weeks are up and you can see the light at the end of the tunnel. It's there, it's just very faint right now. Sending lots of love and comforting/healing thoughts your way. I know there's not much I can do from here but you have my support for whatever you need.
 
Hi Andrea! Don't mention moaning. You go right ahead, sweetie! You've been through the wringer. We are here for you. :)
 
Ah come on welshy, you more than anyone deserves the freedom to moan as much as you want !!

You keep on hanging on matey !!

Lots of love

Bruscar

XX
 
Thanks for updating us, Andrea. And feel free to moan, rant, and rave! You've been through so very much and have every right.

I sure hope you can get home soon. I think it will do you some good. Crossing my fingers for you!
 
Update on R Andrea!

I've just spoken to Andrea and she's doing great!
She meets with her team tomorrow and if all's well they said she can go home Tuesday!
So, fingers crossed everyone that they release her from her prison hell!
Yay!
xxx
 
Whoooooooooooo hooooooooooooooooooo!!!!!!!!!!

Fingers and toes are crossed they let you out of Bedlam!
 
Hello there..
Thanks again for your continued support.
The GOOD news is, I'm outta here tonight. WOOHOO! A month and a half without my own space, bed and shower. I'm going to feel spoilt rotten just sleeping all night!!

Hope you're all keeping well
And xx
 
Good news all around. So sweet to hear that you are finally on the up and up again .... keep going, girl .. and have somebody take pictures of graduation and post them. :)
 
Wow, Andrea, I've been in hospital and missed the horror show that has been your life for the past month. What an ordeal, and how demoralizing it must have been to hope to go home only to find more setbacks.

I'm sure all the despair you felt while in hospital will lessen now that you're in your own bed, with your own pillows and duvet! Oh, and to finally get the rest that one never seems to get while in hospital.

Wishing you a much-needed speedy and uneventful recovery.

Warmest regards,

Kismet
 
Bad news I'm afraid

Andrea is back in hospital. She visited the GP this morning with her discharge notes and the doc examined her. Andrea said she had some pain in her back. The doc took a urine sample and this came back positive for blood in urine.
Andrea has had a kidney x ray and is awaiting the results.
She has to stay in tonight and not sure when she'll be home.
I've spoken to Andrea and she sounds really good considering. Naturally, she's pissed off!
She said she'll phone me tomorrow with an update.
I will post as soon as I know anymore
 
Peel the walls with expletitives Andrea! After that, fingers crossed they figure out what it is and fix you up! After all, you have things to do already!
By the way, the orthodox community hasnt stopped praying, and they wont. Not till I tell em you've climbed Everest. Of course that will after we go on safari.
:Karl::Karl:
 
Hope it will be an in-an-out kinda thing and they can send you home with some pills or somethin'...
Take care!
 

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