Worried

[rustie]

Hi, I have been reading this forum and hoping someone with experience with this disease can offer feedback.
In July, my husband had what we thought was a boil close to his anus. (he had 2 more prior to this and he drained them himself) this one in July was extremely painful and huge. We went to the emergency and the first question they asked was if my husband had Crohns. They cut it open....no freezing..it was absolute hell for him. Sent him home with a follow up appointment with dr. Since then he basically has trouble daily with severe anal pain, a little pus drainage, blood in stool, some cramping ab pain. The doc scheduled him for colonoscopy. They couldn't do it because he a severe right curve somewhere in the colon, lots of scar tissue causing narrowing and he was full of diverticulitus (sp) So now he is scheduled for a barium enema test in the new year. We have changed his diet low fibre, low residue, seems to help. He has been to doc several times but no diagnosis yet. Questions, if he has a fistula from that absess will not treating it make it worse? Should the barium test help diagnose. This all came on very suddenly and we are very worried. Any help would be appreciated!

 

[Crohn's 35]

:welcome: to the forum rustie. Boils are common for some, seems like they can pop any where any time. I dont have perianal disease so I cant help you there. The barium enema should help with a dx but some people are NOT easy to diagnose. I hope he gets some answers, and narrowing is very common. I would suggest he stay away from chew foods, like red meat, and stuff hard to digest. Eat more often smaller portions or he could end up with a blockage, and that aint pretty, let me tell ya. Some have sudden acute pain with no other symptoms so I hope he gets it right away. To help his problems with the perianal Remicade is the main drug that help heal. For narrowing... nothing but depends on why he is narrowed, scar tissue usually means surgery could or maybe in his future.

Stressing is the worst thing, but hopefully he can get help fast. What country are you from? Some others could help you more. Sorry you are both having to go through this. :hang:

 

[rustie]

Hi, Thanks for the information. The doc said the scar tissue so bad that wondered if he had a previous surgery?? We will stick to this diet, small meals and watch for signs of obstruction. Hopefully when we go back to doc in new year we get a diagnosis and treatment plan. Thanks again. We are Canadian too.

 

[Roxymusic]

Barium Enemas aren't too bad

I still have contrast from a Barium enema that leaked out of a fistula in 1984. All my DX xrays for Crohn's & kidney stones show with funky black halos. If I live another 10,000 years the radiation from the contrast will decrease - haha.

The stuff (Chalk) you drink has improved in taste over the years at least.

They would always tell me "You'll be here for three hours" - stuff went through me much faster than that.

Good luck

 

[rustie]

Thanks, my husband will be glad to hear the barium enema isn't so bad. The colonoscopy was pretty rough for him. Crohn's seems so complicated and different for everyone. No quick fix. I appreciate your post. Thanks.

 

[KWalker]

Barium isnt so bad? Is there more than one kind of barium drink? If not, its probably the most disgusting thing in the world! lol