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I have severe small bowel Crohn's and it usually presents as discomfort and blockages when active so not everybody with severe Crohn's presents with extreme urgency or cramping which I think is something GI's need to keep in mind. I am on Stelara and it is working well. All the best with the...

@MelonyB I just had resection surgery 8 weeks ago also for strictures, one in the Terminal Ileum and several short ones higher up in the ileum. I had two anastamosis sites and luckily didnt require a stoma. I have recovered very well and am back to a fairly normal diet - still am careful about...

Thanks for the kind words @Delta_hippo! Since stopping the antibiotics my stools are finally trending towards normal! (almost a 4 on the bristol chart!!!) and only 3-5 times a day :) of course sometimes I still get some looser movements if my healing intestines get irritated by something but...

Hi All! So far recovery seems to be going ok. Unfortunately they had to take my ileal cecal valve. I lost 10 cm of bowel in that area (TI, ileal cecal valce and cecum) as well as 25 cm higher up in the ileum. I am having about 4-7 not fully formed, mushy stools a day (around a 6 on the...

@Delta_hippo thanks so much for all the suggestions! Yes, my mom makes a really good dairy free coconut milk pudding that I lived off of after my last obstruction as well as scrambled eggs and mashed carrots and potatoes. I am hoping to have my mom bring me these things as well as smoothies...

Hi All, As you know, I've been having trouble off and on with bowel obstructions due to stricturing. At first they thought I only had one fibrotic stricture and that the other two problem areas were mainly inflammation. However, after my recent MRI it looks like I have two significant...

Hi All. So the type of Crohn's is diffuse jejunoileitis and it has been very hard for my doctors to get it under control which (from everything I've read in medical journals is very common as this is a very uncommon and complicated type of Crohn's). It usually results in surgery at some point...

Just wanted to give an update that I ended up having another bowel obstruction due to inflammation (this time in the beginning-mid ileum rather than the jejunum) so am back on Prednisone and getting a re-loading dose of Stelara next Thursday (March 5). My injections will then be moved to every...

@my little penguin No he hasn't but it wouldn't be a bad idea. To be honest, his GI and GP don't seem that competent. I would agree with them saying its IBS except that IBS doesn't cause inflammation as far as I know but correct me if I'm wrong. Any ideas on what else might cause...

Hi All, My brother has been struggling with symptoms off and on for the last couple of years. Endoscopy and Colonoscopy as well as CRP and fecal cal have all been normal however some mild inflammation in the small intenstine (I'm assuming the jejunum or ileum like mine) showed up twice on MRI...

@crohnsinct Sorry O is still having trouble. Hope she has success with SCD. That is the diet I am looking at but I definitely agree that I don't want to do it without the help of a knowledgeable dietician. I'm already on Restoralax to try and help keep things moving better but it is...

Hi All, I've been extremely frustrated as you may have gathered from my previous posts. My current GI suspects that I have SIBO (most likely methane dominant) due to my motility issues from areas of narrowing in both the jejunum and ileum. Rather than dealing with the structural issues with...

@my little penguin @emmaaaargh @Guerrero @crohnsinct @Scipio any thoughts? Do you know who on here has dealt with SIBO or done low carb diet?

Argh. Very discouraging appt today with my GI. Basically told that my gut microbiome is altered and likely my symptoms are caused by SIBO (which I probably developed from the stricture) and that she didn't think that surgery would fix all my symptoms. Basically I've been told to take a...

Thanks so much Emma for the reply and encouragement. I've done some reading on strictureplasty and definitely want to bring it up at my appt, however I think from what I've been told in the past, my affected areas may be too far apart for this to be a good solution but I'll find out at my appt...

Yes. I had obstruction at diagnosis almost three years ago and again this Spring. Been on Stelara since the beginning of August and it is my second to last med available for my type of Crohns. Unless I'm really careful and 100% perfect with my diet I get structure pain and I'm just finding...

I am going to ask my GI to test for SIBO since strictures can lead to this and I am having trouble with fructose especially and bloating and cramping are symptoms of SIBO. I am also still experiencing debilitating fatigue despite taking B12 and Iron (with vitamin C for absorption). Can...

Hi All. I have some upcoming appointments with both my GI and Surgeon next week and was hoping for a little advice. At the beginning of the month I did a fecal cal test that according to what my GI told the MOA was essentially normal (I'll find out the number at my appointment) which means...

So my GI has now put me on a low fodmap (so canned peaches and applesauce are out), low carb (due to bloating and gas), low fibre diet and I am like, what am I supposed to eat?????? Any advice would be helpful. I'm thinking a little bit of orange juice, eggs, banana chocolate peanut butter...

Anybody else here have Turner's Syndrome and diagnosed with IBD after starting HRT? I'm almost positive that my HRT is having a negative impact on my Crohn's and would like some advice on what other options for HRT others might have found that were less harmful than straight up birth control...