Search results

Thank you. Any help would be greatly appreciated 🙏

Hello everyone Crohns for 22 years and got my first fistula which is turning out to be a pain in the ass. I have a fistula from bowel to skin, under my belly button. I was operated on twice to get drains in but the CT showed today that the abscess “Mush” as the surgeon described it is still...

Hi everyone I’m just wondering if anyone else on here is taking modulen and experiencing diarrhoea (green) it’s happening between 5-7 times a day.

Hi everyone my GI wants me to try Vedolizumab to try and get my Crohns under control as my MRI revealed some patches through my small intestine. Has anyone tried this drug and if so what were your thoughts? thanks Andy

Hey guys sorry for the delay (6years) 😂 I’ve had to Be cardioverted twice now by shock and once by medicine due to atrial fibrillation and they still don’t know what’s causing it. I’m now on meds for it. Was in hospital last week and potassium levels were borderline along with my magnesium...

I've been med free for a year now but at my last blood test my GI Noticed my CRP was 17 I told me to start a course of pred for two months starting at 40mg and reducing 5mg per week. This will be the first time since 2014 since I've been on it, I'm reluctant to take it due to my heart going in...

Hi I'm looking for advice about my medication,I've been on mercaptopurune for 5 years but this year I've struggled with infections and have been hospitized a lot due to this. My local gp has said it's probably due to my medication so I stopped my meds for a week to try and give my body a chance...

I had an MRI a few weeks ago that revealed burnt out Crohn's disease,the doc says this is the cause of me getting blocked up and causing me colicky pain. The other thing I want to ask is what can I eat to stop this happening and what meds can stop me getting blocked up? Any feedback would be...

Is it possible for adhesions to cause me pain 8 years after abdomanal surgery?

This year I've had a lot of problems with bloating,sickness,fever and right side pain around the bottom of my rib cage and the only thing that helps is morphine. I've had about 10 admissions to hospital this year and had so many tests MRI scan 2x ct scans Colonoscopy Endoscopy Abdomanal X-rays...

After about 10 admissions this year my GI thinks it's not crohns causing problems it's adhesions. Is there anything I can do to help myself?he said the risk of surgery is causing more adhesions. Any info would be appreciated

I've been having problems with Crohns since the start of the year with right side pain,bloating.I was just released from hospital after a 3 day stay where the only gave me tramadol for pain. This has been on going for nearly a year I've had ct scans and colonoscopy and now waiting for an MRI. My...

Was rushed in again Monday with severe pain and vomiting bit was discharged due to my crp going down on ots own,probably because I wasn't eating when I was in hospital. The nurse in the ward mentioned that was the 9th time this year I was admitted,I'm now waiting for an xray of my small bowel as...

No word yet I'm going to see him in a few days so hopefully find out and get started on something soon. It's getting to the point where I'm willing to try anything,I can't eat anything without causing pain I'm pretty much on a liquid diet at the moment.

I've been on steroids for most of this year on and off but every time I start to reduce the dose my symptoms return,sickness,bloating,and really bad stomach pain. I had a colonoscopy and gastrocopy on Saturday where I have inflammation around the join from previous surgery and a hiatus hernia...

Got it done just home it was all good,some inflammation around the join from previous surgery in 07 right hemi.

Today I've been drinking klean prep for my colonoscopy tomorrow morning,I've drank 3 and a bit litres of the 4 I am supposed to but I fee horrid and sick.My bowel motions are like water and I'm wondering if I will get away with just drinking the 3 and a bit litres or will I have to finish the 4...

Thanks for the fast reply. Is it that good?He said it's very expensive but due to the Crohns being the way it is he wants me to try it.

Hi guys my GI told me today he wants to try biological medication due to my Crohns not settling. How many of you are on these meds and are they working for you?

Been back and forward to doctor he's waiting for my GI to give him the go ahead to prescribe potassium pills. Levels are up and down have been for years they say but due to the pred it's getting worse.