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  1. K

    Mini-vents

  2. K

    Anyone like me out there?!

    Hi, Kim. I have UC and feel really tired a lot too. It must be really hard raising two children when you have so much going on physically. Just wanted to send you hugs and support.
  3. K

    Limbo

    I'm so sorry that you are feeling so horrible! Hopefully the doctors will be able to get your symptoms under control soon. It is hard to stay positive when you are suffering. Have you tried deep breathing or any relaxation/meditation? Sometimes it helps mentally to refocus away from the pain...
  4. K

    Anyone else have bad back pain with Ulcerative Colitis?

    Smaalz, my back and legs hurting are definitely from the flare. When I am on meds. and not flaring, they don't ache. The hair loss is definitely from the meds. I am on Apriso and have lost at least half of my hair from the meds. I never had hair loss before I started taking them. It's all...
  5. K

    Anyone else have bad back pain with Ulcerative Colitis?

    When I am flaring I get horrible back pain. I also get pain in my calves.
  6. K

    What are your symptoms when you are not flaring

    I get some crampiness and soreness (internally), as well as rectal pain that fluctuates.
  7. K

    Hair Loss

    I have been on Apriso for a little over a year and my hair has thinned incredibly. I have lost at least 50% of my hair, probably more. The Apriso helps my UC, so I need to be on it. It is all mesalamine based medications that can cause hair loss, not just Apriso or Lialda. I have started...
  8. K

    Pentasa and hair loss

    I am taking Apriso, which is like Pentasa, and my hair loss is still really bad. I have definitely lost more than half of my hair. It is really thin now. I am very upset about it, but I am not interested in bleeding again, so I continue to take the medicine. I am ready to buzz it and get a...
  9. K

    Who else got a cold already?

    I'm on my second cold and I had a mild (thank goodness) stomach virus.
  10. K

    High Platelet count with 5-ASA meds?

    Thanks, Handle. Was your doctor concerned about your high platelet count? How did you lower it? My iron is low, so that could be part of the problem. The medicine has also made me anemic. I guess it's better than flaring! I am going to see my GI doc next Monday, so I'll ask him about it too.
  11. K

    High Platelet count with 5-ASA meds?

    I am just wondering if anyone has had a high platelet count while on any 5-ASA meds. I just got back my blood work and my platelet count was high (540). I have never had that before. I started taking Apriso about two months ago and am almost certain that is causing it. I have also been much...
  12. K

    Lower left side pain please help

    Also, could it be Crohns colitis?
  13. K

    Lower left side pain please help

    Did your GI ever suggest Rowasa? It's a retention enema that gets to the lower left side of the colon. It really works well for me to stop the bleeding. I have UC. You use it at night and it stays in so the medicine helps the inflammation. It may be worth asking about, especially with the...
  14. K

    Lower left side pain please help

    Hi, Lookame. Lower left side pain is usually associated with UC. Did you have any blood in your stool?
  15. K

    Hopeless, sad, lonely, frustrated....need help

    Oh, I forgot to mention. I take about 1/8 tsp of nutmeg mixed in with equal parts pomegranate juice and water. The nutmeg helps tremendously with nausea!
  16. K

    Hopeless, sad, lonely, frustrated....need help

    I don't know if anyone else has mentioned this, but Zofran can give you horrible constipation. I took it during my second pregnancy for terrible morning (all day) sickness. I was so constipated, that I could only take about 1/4 of the normal dose and had to take stool softeners every day. I...
  17. K

    I'm so over it :(

    Please hang in there!!! I am just getting over a really bad flare that was off and on since February. I have two young children too. Believe me, your children and your husband want you around, need and love you! You will start to feel better eventually. It is a long road when you feel so...
  18. K

    How Severe is my UC?

    Hi, Tom. I started having similar symptoms when I was around your age. I am almost 40 now and still have my colon. If you are seeing blood, you definitely need to have a colonoscopy to determine why you are bleeding. Are you having diarrhea or really frequent/urgent bowel movements? Usually...
  19. K

    The Spoon Theory

    Thanks for posting the article, Cat. What a great way to actually feel the trade-offs we have to make every day.
  20. K

    Hey, ladies.

    I'm on Apriso, which is the same type of medicine as Asacol and a mesalamine enema (also same meds as Asacol) and it has never effected my period. I recently started using a steroid cream, I have still not had my period and it is 2-3 weeks late. I have taken 2 preg. tests and I am not pregnant...
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