Hi I am new to posting
My wife has crohn's and has suffered so badly over the last two years.She was diagnosed six years ago with U/C and for the the last two years I have been banging my head telling the medics that she has crohn's.Well after being admitted with cronic abdominal pain they removed her Gall bladder.She was released but went down hill from there and was re addmitted and kept for over three weeks.She lost 2.5 stone and started showing signs of mental health issues.They found a tumor that turned out to be benign (thank god ).They gave her Infliximab which sent her blind in one eye.Retro bulba neuritis.The neurologist said it was not the drug and we should carry on it only effects 0.7% or 9 people in the world.The Gastroentarologist said no way .She had another stay in hospital and I persuaded her to consider surgery.The consultant said ok thats fine and got her in just before christmas (last ).This was to remove the transverse colon about half a metre.This was done laproscopically.The operation went to plan,However two hours after she went down hill fast and the surgeon called at home to return asap.When they opened her up ( this time with no messing )they found the main artery in her leg was gaping and she lost 97% of her blood.She stayed in ITU for four days and had problems with her circulation in her leg.We went back two weeks ago ( so three months post op ) and she described how ill she feels and said could the crohn's be back.He stated that she would have to be the most unlucky person in the world.Guess what !its back now just inside the back passage.She is a serving police officer and now they are trying to medically discharge her as she has had 18months off.Hope you understand why i am ranting thanks Dale (loyal husband)
My wife has crohn's and has suffered so badly over the last two years.She was diagnosed six years ago with U/C and for the the last two years I have been banging my head telling the medics that she has crohn's.Well after being admitted with cronic abdominal pain they removed her Gall bladder.She was released but went down hill from there and was re addmitted and kept for over three weeks.She lost 2.5 stone and started showing signs of mental health issues.They found a tumor that turned out to be benign (thank god ).They gave her Infliximab which sent her blind in one eye.Retro bulba neuritis.The neurologist said it was not the drug and we should carry on it only effects 0.7% or 9 people in the world.The Gastroentarologist said no way .She had another stay in hospital and I persuaded her to consider surgery.The consultant said ok thats fine and got her in just before christmas (last ).This was to remove the transverse colon about half a metre.This was done laproscopically.The operation went to plan,However two hours after she went down hill fast and the surgeon called at home to return asap.When they opened her up ( this time with no messing )they found the main artery in her leg was gaping and she lost 97% of her blood.She stayed in ITU for four days and had problems with her circulation in her leg.We went back two weeks ago ( so three months post op ) and she described how ill she feels and said could the crohn's be back.He stated that she would have to be the most unlucky person in the world.Guess what !its back now just inside the back passage.She is a serving police officer and now they are trying to medically discharge her as she has had 18months off.Hope you understand why i am ranting thanks Dale (loyal husband)