I don't know if there is a thread for this. I was diagnosed finally last summer, though I'd been suffering for a long time. I'm currently not working, and I'm concerned with working if I get a job.
I'm constantly tired, and doesn't matter how much I sleep, what I eat, if I work out, vitamins, etc. My joints and muscles ache and feel tight. I have constant night sweats where I wake up in puddles. I'm nauseated a lot, but push through that and stay hydrated. I have low blood pressure (always have), but the dizzy spells or spinning when I get up or walk is getting worse. I get cold easily, however it had become worse this past year. It can be 20℃ outside, and I'll be in pants and a sweater. I also don't produce enough heat, but I think that's a basic crohns issue?! My hands are like icicles, and can have a blue tinge. I always need to have a sweater on, and use a blanket to trap heat. I don't have enough energy at times to enjoy little things I love like reading, watching TV, or playing video games. I don't have the cognitive energy to stay focused. With that, I find I can pass out anywhere.
I'm just frustrated, because apart from the fog brain and normal "alien" stomach and pains I get... I can't function because I'm physically and mentally exhausted all the time. I do take iron supplements, since I've been considered anemic for a decade... But wouldn't that help with the cold/etc? Some days I can fight through it or push myself to do physical stuff (can't let it stop you), but I feel like a zombie or have been hit by a Mack truck. When I do physical work around the house for even 1-2 hours, my muscles and joints are worse... And it takes a day or two for me to recover. (I used to be an athlete and little things like this would be nothing to me. So, I guess I won't go back to instant recovery?) My crohns isn't going into full flair up right now (yey), but it keeps changing and my abdomen (even muscles near my ribs) is sore, painful inside the colon (no matter the stool type), mucus, bloating (I've actually gained about 10lbs thus past few months), and joints ache (inflammation sometimes). I know it's bad, but I find I rely on coffee or energy drinks just to give me enough energy to do basic tasks through out the day. I'm also tired of being stuck on the toilet for hours at a time.
My specialist said in December, my levels were fine and issues should be taken care of. She said me my symptoms shouldn't be as bad as what I'm experiencing based on my test results. So, what's the issue? I have GERD/acid reflux (pantoloc), ibs, and crohns (mezavant), anxiety (effexor xr), vitamin D, iron (60mg absorption), omega 3-6-9, b-complex, zinc, and Reactine (allergies - indoor and outdoor).
I'm curious if anyone has this experience, deals with this currently, or has any suggestions? Is this all associates with what I've been diagnosed with, or is there something else that could have been overlooked?
Sorry for the long message. Any help or suggestions would be greatly appreciated. I'm new to this, and I'm tired of feeling like it's just in my head. Thanks.
I'm constantly tired, and doesn't matter how much I sleep, what I eat, if I work out, vitamins, etc. My joints and muscles ache and feel tight. I have constant night sweats where I wake up in puddles. I'm nauseated a lot, but push through that and stay hydrated. I have low blood pressure (always have), but the dizzy spells or spinning when I get up or walk is getting worse. I get cold easily, however it had become worse this past year. It can be 20℃ outside, and I'll be in pants and a sweater. I also don't produce enough heat, but I think that's a basic crohns issue?! My hands are like icicles, and can have a blue tinge. I always need to have a sweater on, and use a blanket to trap heat. I don't have enough energy at times to enjoy little things I love like reading, watching TV, or playing video games. I don't have the cognitive energy to stay focused. With that, I find I can pass out anywhere.
I'm just frustrated, because apart from the fog brain and normal "alien" stomach and pains I get... I can't function because I'm physically and mentally exhausted all the time. I do take iron supplements, since I've been considered anemic for a decade... But wouldn't that help with the cold/etc? Some days I can fight through it or push myself to do physical stuff (can't let it stop you), but I feel like a zombie or have been hit by a Mack truck. When I do physical work around the house for even 1-2 hours, my muscles and joints are worse... And it takes a day or two for me to recover. (I used to be an athlete and little things like this would be nothing to me. So, I guess I won't go back to instant recovery?) My crohns isn't going into full flair up right now (yey), but it keeps changing and my abdomen (even muscles near my ribs) is sore, painful inside the colon (no matter the stool type), mucus, bloating (I've actually gained about 10lbs thus past few months), and joints ache (inflammation sometimes). I know it's bad, but I find I rely on coffee or energy drinks just to give me enough energy to do basic tasks through out the day. I'm also tired of being stuck on the toilet for hours at a time.
My specialist said in December, my levels were fine and issues should be taken care of. She said me my symptoms shouldn't be as bad as what I'm experiencing based on my test results. So, what's the issue? I have GERD/acid reflux (pantoloc), ibs, and crohns (mezavant), anxiety (effexor xr), vitamin D, iron (60mg absorption), omega 3-6-9, b-complex, zinc, and Reactine (allergies - indoor and outdoor).
I'm curious if anyone has this experience, deals with this currently, or has any suggestions? Is this all associates with what I've been diagnosed with, or is there something else that could have been overlooked?
Sorry for the long message. Any help or suggestions would be greatly appreciated. I'm new to this, and I'm tired of feeling like it's just in my head. Thanks.
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, also for arthritis.
