Feeling like sometimes noone else understands then i found this forum

[hannaho]

I was diagnosed with crohns a year and a half ago and have been in and out of hospital on and off steroids. Had surgery nearly died from a realy bad flare that caused my bowel to perfurate so therefore had emergancey surgery. I have had lots of time of school and lots a few friends in the process, i sometimes feels so lonely and feeling like i should just be worrying about boys and fashion but i have so many other problems. its great to know everyone on hear has and is going through the same kind off things..#It would be lovely if anyone could comment and let me know if they have ever felt the same!!! Thank u alll in advance!!!x

 

[Blue]

Hey,
I've just been diagnosed with Chron's (a few weeks ago) and found these forums tooo - seems like a lot of people here know a lot bout this disease so im glad i found this site and a lot of people to talk t about the disease

~Blue

 

[hannaho]

Yh its really great everyone i hhave spoke to on here is lovely and has so much advice.
Had u suffered with crohns symptoms for a while ,i was ill for about three four years till i was diagnosed..so fustrating!

Are u on any meds to control ur crohns...?
Thanks for commenting.x

 

[Blue]

I had like random abdominal pains every now and then, and then gradually they had been getting worse and worse >.< And i always eat a hell of a lot, yet put on no weight at all.. I guess i'd been having weird pains for about a year or 2.

atm im on 40mg of prednisone per day, some vitamin/calcium tablets i think its 1mg per day, and pentasa which i haven't started yet but apparently i should have.. im still getting used to it all ^^ Only got diagnosed last week lol

sooo many tablets.. they better help

 

[hannaho]

It is so overwhelming when u are just diagnosed as the amount of tablets is so vast. u will get used to taking the tablets and the amount will just become normal, i hope they start working soon.xxx

Good luck..x..x

 

[Charlotteee]

Yeah, I think it's really good, because at first I thought I wanted sympathy, and I got a fair amount but it didn't really make be feel any happier, but it's so much better to talk to people who are going through the same thing as you. The only pills I had was omeprazole in March because the rest of my medication has been a liquid diet, I would recommend it as a good alternative to steroids because it has no side effects, only issue is it takes ages to stop the D.
Charlotte xxx

 

[LaurieBird]

I've been diagnosed for a decade now, and I'm sixteen, so I've pretty much had Crohn's my whole life. Don't worry, it gets easier. I'm on prednisone at the moment and look like someone took a halo pump to my face. I hate it, but basically have learned to accept it. You should talk to those friends who you think you have lost. I did not tell anyone about Crohn's for a really long time, and when I told my best friend she basically thought I was lying and trying to get out of doing stuff with her. We stopped hanging out for months, until I just told her the full story. I could tell she felt horrible about not believing me and I think we are now even closer friends than before.

Hang in there, it gets easier.

 

[RissaIUP2016]

I had like random abdominal pains every now and then, and then gradually they had been getting worse and worse >.< And i always eat a hell of a lot, yet put on no weight at all.. I guess i'd been having weird pains for about a year or 2.

atm im on 40mg of prednisone per day, some vitamin/calcium tablets i think its 1mg per day, and pentasa which i haven't started yet but apparently i should have.. im still getting used to it all ^^ Only got diagnosed last week lol

sooo many tablets.. they better help

I have had the same symptoms as you. For the same amount of time. I just got diagnosed back in october and i am doing better, im on so many pills though.