Folds?

[Keona]

Thanks everyone. Dusty, I would prefer that a GI does a bowel resection if one needs to be done.... I am thinking she would leave that for him anyway. He spoke about it last GI visit so I would hope they communicated with each other.

She is doing a laparoscopy and is removing all the adhesions and "chocolate spots"..or "chocolate ulcers" from my organs... she brought up the resection because my MRI came back again with 2 strictures. So, this surgery is for endometriosis but they will be doing the biopsies for Crohn's. I asked if the GI could be there since they are both in the same hospital and he cant be.

Thanks Marisa and Dex, the appointment went really well. It took a long time (4 hours) and there is the prep the night before. I think the nerve wracking part is not knowing what they are doing exactly, I dont think they know except diagnostic and to release my organs from my pelvic wall. I didn't get a chance to speak to the surgeon and will the day of.
I cant express how much I wish I had answers. I am again hoping that this will give me some.

 

[Keona]

well, I just got off the phone with the reception from the GI office to refill a script and I inquired about my MRI. Remember the first one came back 2 strictures, the second came back with thickening of the bowel wall and now the 3rd one has come back normal. Im happy but confused at the same time. Maybe all the pain is endometriosis however endometriosis does not cause thickening of the bowel wall. Since the first 2 were abnormal but non-definitive of Cohns, the GI wanted me to have a CT. When I asked about the CT she said she didnt know. So, Im not sure whats going on anymore. I feel like I am being run around in circles. Last appointment he was talking about a resection and short bowel syndrome and now everything is normal?
Do MRI's come back normal when there is abnormalities??
I am guessing they do as he wanted a CT scan because the MRI's were Blurry and non definitive.
At least during surgery I will have biopsies for Crohn's.

I am confused more now than ever.

 

[DustyKat]

Man Wendy that is frustrating!

I know Sarah's CT came back normal when she had gross abnormalities. Maybe the problem is the MRI images being blurry and the CT will clear the confusion up especially when they know what they are looking for.

See what the gynae says post op and then push for the CT to be done.

Good luck hun!

Thinking of you, :hug:
Dusty

 

[Crohn's Mom]

Man Wendy I am sorry they are running you in circles and driving you crazy! That must be so hard !

Has anyone mentioned (or have you had already) and MR enterography? It's basically the MRI but scans the digestive system. That is the last scan Gab had done before her surgery that really showed (almost) everything that was wrong. The CT scans and MRI's she had done previously all had different and confusing results like yours seem to have.

I sincerely hope you get some answers soon !!
:hang:

 

[Astra]

Hiya Wendy

Remember I told you that I had both?
Chicken and Egg, which came first?
But your gynae will do a clean sweep of endos and both specialists will/should liaise with each other, then decide what to do for the best.
Wishing you the best of British and hopefully you'll get your answers soon.
xxxx

 

[Keona]

Thanks you guys. The only thing I am worried about was when the reception read my report, she said they don't recommend further follow-up. Where the other ones recommended another MRI...
so I hope this doesn't mean I just get dropped from my GI's caseload.
Crohn's Mom, yeah..I have been having MRE's. I was a little concerned b/c the woman who put in my IV's...and 6 tries later decided to call an IV nurse. The IV nurse told her basic tricks to get my vein to come out of hiding... the first nurse was the same nurse who did my MRE's... I remember thinking in my head then, "SHES doing the scan???"....
but... you guys are right, I have the biopsies to have done and I am hoping I am having the CT scan still. I just found it extreme talking about going on prednisone and having a resection and SBS in one appointment one week and then being told over the phone the next that the MRI is normal.
You're right Joan... they can do the clean sweep and then go from there.
I'll take my own advice now... one step at a time..

 

[Dexky]

Wendy, I hope it is just the endo and this surgery gets you the relief you deserve. I guess with all the back and forth from the tests you've had all you can really do is wait. I hope years go by and one day you think to yourself, "hey, I forgot what it feels like to feel like **** all the time!!". Then, you'll finally know for sure!!! And then, you can start that world photography tour and I can live it vicariously on fb

 

[Keona]

HAHA Dex...
I am hoping the surgery gives me relief as well. It is crazy that I am taking all this dilaudid.
I have a feeling though that it is more than endometriosis. Food doesn't interfere with endometriosis and it doesn't cause thickening of the bowel wall either. This is what my GI told me. I think I am just being really impatient because of the pain and well, because I am going on year 3 of trying to figure this out. It would be awesome if it were just endometriosis...! and maybe it still is... I will let you know after the 5th...then I should be getting a lot of answers... in all honesty... I am looking forward to going back to work... I need to fill my days with something constructive and it has been a long time since I was working full-time...
..THEN you can live vicariously though my photos

 

[ameslouise]

I found ya and am bumping ya to the top since your surgery is TOMORROW!!!

Good luck!

xo - Ames

 

[Keona]

HAHA amy thanks.. I did start a new thread called surgery.
getting nervous... but it will all be good... I hope... no, it will.... lol...

 

[Astra]

You're gonna be just fine Wendy!
I lived to tell the tale!
Good Luck, fingers crossed for you
xxxx

 

[Terriernut]

Wendy, wishing you the very best! One dog crazy to another! I hope that things turn out for the very best for you, and you have the answers you seek afterward.

Good luck and huuugggggggggggssssssssss,
Misty

 

[Dexky]

I'll be thinking about you tomorrow Wendy!! I hope it's the beginning of a very long period of feeling good for you. You deserve the best!! Good luck!!

 

[Keona]

Thanks Joan, Misty and Mark

It will all be fine. I am looking forward to hopefully feeling better and answers... cant get them any other way so this should open lots of doors.
Thanks for the well wishes. I will let you know what happened.
I really do appreciate all the nice thoughts
Wendy