Functional Disorder
- Thread starter Jerman
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Hi Jerman permission to rant
well my consultant says it shouldn't effect my worklife! but it does actually! Doc.
working in a school isn't the ideal environment, but he told me it isn't a disability, but it is, it's disabling!
And where do you draw the line? cos whilst filling in an application form for a mortgage, I had to declare my Crohns in the medical/disabilities bit, then the premium went up 50%! So I am disabled?
So. are we disabled or not, do we also qualify for a disabled parking badge?
Interesting too, that here in the UK, we have Disability Living Allowance, so I wonder if Crohns patients can get on that? Through an intense medical to prove whether you need help with toileting, dressing, everyday life, yes some of us do actually.
They are the people who'll decide whether we are disabled, because of course, it involves money!
So Jerman, I don't know, disabled or disabling?
Prognosis, I suppose no one knows for sure, my consultant hasn't mentioned it to me yet!
best wishes
Joan
well my consultant says it shouldn't effect my worklife! but it does actually! Doc.
working in a school isn't the ideal environment, but he told me it isn't a disability, but it is, it's disabling!
And where do you draw the line? cos whilst filling in an application form for a mortgage, I had to declare my Crohns in the medical/disabilities bit, then the premium went up 50%! So I am disabled?
So. are we disabled or not, do we also qualify for a disabled parking badge?
Interesting too, that here in the UK, we have Disability Living Allowance, so I wonder if Crohns patients can get on that? Through an intense medical to prove whether you need help with toileting, dressing, everyday life, yes some of us do actually.
They are the people who'll decide whether we are disabled, because of course, it involves money!
So Jerman, I don't know, disabled or disabling?
Prognosis, I suppose no one knows for sure, my consultant hasn't mentioned it to me yet!
best wishes
Joan
Definitions of "Disability"
"Disability" under Social Security is based on your inability to work. We consider you disabled under Social Security rules if:
* You cannot do work that you did before;
* We decide that you cannot adjust to other work because of your medical condition(s); and
* Your disability has lasted or is expected to last for at least one year or to result in death.
http://www.ssa.gov/dibplan/dqualify4.htm
(BELOW IS FOR CALIFORNIA - LAW VARIES FROM STATE TO STATE)
Who qualifies for a Disabled Person (DP) Parking Placard or DP License Plates:
You can get a DP placard or DP plates if you have impaired mobility and a licensed physician, surgeon, physician’s assistant, nurse practitioner, or certified nurse midwife certifies your condition. You may also qualify if any of the following conditions exist:
* Heart or circulatory disease.
* Lung disease.
* A diagnosed disease or disorder that significantly limits the use of lower extremities.
* Specific, documented visual problems, including low-vision or partial-sightedness.
* The loss, or loss of the use, of one or both lower extremities or both hands.
NOTE: You do not need a medical professional’s certification if:
* You have lost a lower extremity or both hands, and you appear in person at a local DMV office.
* You currently have a California Disabled Person (DP) Placard, or Disabled Person (DP) or Disabled Veteran (DV) license plates assigned to your vehicle, and the license plate number is entered in part “B” of the Application for Disabled Person Placard or Plates form (REG 195).
Who can get Disabled Veteran (DV) License Plates
A veteran who, as a result of an injury or disease that occurred while on active service with the U.S. Armed Forces, qualifies if any of the following apply:
* Has a disability rated at 100 percent by the U.S. Veterans Affairs or the military service that discharged the veteran due to a diagnosed disease or disorder that substantially impairs or interferes with mobility.
* Is so severely disabled as to be unable to move without the aid of an assistant device.
* Has lost, or lost the use of, one or more limbs.
* Is permanently blind, as defined in §19153 of the Welfare Institution Code.
http://dmv.ca.gov/pubs/brochures/fast_facts/ffvr07.htm
A disability, under Federal disability discrimination law, is a physical or mental impairment that substantially limits one or more of a person's major life activities (for example, caring for one's self, speaking, breathing, or learning). A disability need not be obvious; such conditions as learning disabilities, psychological illnesses, asthma, or infection with HIV (the virus that causes AIDS) may qualify as disabilities under the law.
http://www.dol.gov/wb/faq8.htm
"Disability" under Social Security is based on your inability to work. We consider you disabled under Social Security rules if:
* You cannot do work that you did before;
* We decide that you cannot adjust to other work because of your medical condition(s); and
* Your disability has lasted or is expected to last for at least one year or to result in death.
http://www.ssa.gov/dibplan/dqualify4.htm
(BELOW IS FOR CALIFORNIA - LAW VARIES FROM STATE TO STATE)
Who qualifies for a Disabled Person (DP) Parking Placard or DP License Plates:
You can get a DP placard or DP plates if you have impaired mobility and a licensed physician, surgeon, physician’s assistant, nurse practitioner, or certified nurse midwife certifies your condition. You may also qualify if any of the following conditions exist:
* Heart or circulatory disease.
* Lung disease.
* A diagnosed disease or disorder that significantly limits the use of lower extremities.
* Specific, documented visual problems, including low-vision or partial-sightedness.
* The loss, or loss of the use, of one or both lower extremities or both hands.
NOTE: You do not need a medical professional’s certification if:
* You have lost a lower extremity or both hands, and you appear in person at a local DMV office.
* You currently have a California Disabled Person (DP) Placard, or Disabled Person (DP) or Disabled Veteran (DV) license plates assigned to your vehicle, and the license plate number is entered in part “B” of the Application for Disabled Person Placard or Plates form (REG 195).
Who can get Disabled Veteran (DV) License Plates
A veteran who, as a result of an injury or disease that occurred while on active service with the U.S. Armed Forces, qualifies if any of the following apply:
* Has a disability rated at 100 percent by the U.S. Veterans Affairs or the military service that discharged the veteran due to a diagnosed disease or disorder that substantially impairs or interferes with mobility.
* Is so severely disabled as to be unable to move without the aid of an assistant device.
* Has lost, or lost the use of, one or more limbs.
* Is permanently blind, as defined in §19153 of the Welfare Institution Code.
http://dmv.ca.gov/pubs/brochures/fast_facts/ffvr07.htm
A disability, under Federal disability discrimination law, is a physical or mental impairment that substantially limits one or more of a person's major life activities (for example, caring for one's self, speaking, breathing, or learning). A disability need not be obvious; such conditions as learning disabilities, psychological illnesses, asthma, or infection with HIV (the virus that causes AIDS) may qualify as disabilities under the law.
http://www.dol.gov/wb/faq8.htm
- Joined
- Feb 8, 2010
- Messages
- 98
Jerman, Hello!
I Googled, Crohn's Disease and disability. Look it up.
There is advocacy sites there to. I wouldn't know which one to recommend.
Here where I live there is a, Local Handicap Council. Check in your vacinity?
I can tell you if you have other Issues besides Crohn's it WILL help!
Good luck
I Googled, Crohn's Disease and disability. Look it up.
There is advocacy sites there to. I wouldn't know which one to recommend.
Here where I live there is a, Local Handicap Council. Check in your vacinity?
I can tell you if you have other Issues besides Crohn's it WILL help!
Good luck
soupdragon69
ele mental leprechaun
- Joined
- Dec 7, 2006
- Messages
- 1,377
Hey Jerman,
I read this post a couple of days ago but only got a chance to post today - sorry!
On the functional disorder side IBS is classed as functional for instance. Its to do with HOW the bowel functions i.e the mechanics of it. As opposed to inflammatory disorder. Does that make sense?
So yes I guess it could be classed as a disability if your bowel is unable to "function" appropriately and say you are unable to get to the toilet in time due to extreme urgency or inability to prevent incontinence due to weak sphincter muscles etc. Sometimes it comes down to slowing down the speed of the gut or easing spasm so you get the benefit and a chance to absorb rather than it zooming past.
The reason I ramble is I went through it all a couple of years back post crohns flare and still running to the loo multiple times a day, still exhausted etc etc and was in hospital at the time. Thats when they figured out I had severe IBS on top of it all. My scans on admission where inflammed whereas 2.5wks down the line they were clear and they were able to see it was functional rather than inflammatory issues.
They also told me that crohns can trigger IBS flares also and I do find this. I can also now tell the difference "for me" between the two.
Hope my waffle has helped a bit...
I read this post a couple of days ago but only got a chance to post today - sorry!
On the functional disorder side IBS is classed as functional for instance. Its to do with HOW the bowel functions i.e the mechanics of it. As opposed to inflammatory disorder. Does that make sense?
So yes I guess it could be classed as a disability if your bowel is unable to "function" appropriately and say you are unable to get to the toilet in time due to extreme urgency or inability to prevent incontinence due to weak sphincter muscles etc. Sometimes it comes down to slowing down the speed of the gut or easing spasm so you get the benefit and a chance to absorb rather than it zooming past.
The reason I ramble is I went through it all a couple of years back post crohns flare and still running to the loo multiple times a day, still exhausted etc etc and was in hospital at the time. Thats when they figured out I had severe IBS on top of it all. My scans on admission where inflammed whereas 2.5wks down the line they were clear and they were able to see it was functional rather than inflammatory issues.
They also told me that crohns can trigger IBS flares also and I do find this. I can also now tell the difference "for me" between the two.
Hope my waffle has helped a bit...
Last edited:
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- May 27, 2009
- Messages
- 1,035
Thanks Soupdragon,
The strange thing about the functional disorder is that nothing showed up on any test except a consistently elevated white blood cell count. I do not have the coils or the strictures that some people have when they get the butt scope. I do have the alternating D and C, and pain in my abdominal area that is at times disabling.
I have about 25k in bills and have an interview today working at a place for troubled youth. This may be a very physical job and I am concerned about that as well, sometimes just a stretch or a turn of my trunk with cause the pain spasms to start.
One of the tricky parts is that once they stop I cannot move until it passes.
This may be more than I can handle but its and interview and i need a job. I am concerned that if i have to do a therapeutic restraint to assist the person with calming , I may hurt myself.
The strange thing about the functional disorder is that nothing showed up on any test except a consistently elevated white blood cell count. I do not have the coils or the strictures that some people have when they get the butt scope. I do have the alternating D and C, and pain in my abdominal area that is at times disabling.
I have about 25k in bills and have an interview today working at a place for troubled youth. This may be a very physical job and I am concerned about that as well, sometimes just a stretch or a turn of my trunk with cause the pain spasms to start.
One of the tricky parts is that once they stop I cannot move until it passes.
This may be more than I can handle but its and interview and i need a job. I am concerned that if i have to do a therapeutic restraint to assist the person with calming , I may hurt myself.
I understand that people need to make money and that finding a new job can be very hard (I'm in the same boat) but I don't think anyone should willingly put themselves in any dander that they could prevent (minus jobs that are going to be life threatening to anyone, health condition of no). To each their own I guess.
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- May 27, 2009
- Messages
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CrabbyRelish said:
Not really sure how you meant this Crabby but I would never put anyone I worked with professionally at any level of risk. As for myself, I think that part of trying to beat these diseases is seeing how far we can push ourselves (akin to playing "Hurt"in a football game). I have a responsibility to my wife and 4 children to try to find a way to provide for them and make a living of some substance.
- Joined
- Mar 2, 2010
- Messages
- 11
This has been one of the most frustrating battles I have been fighting. I pushed myself for 18 years working 40-70 hours a week- going to work even when sick...basically working myself to death..I never wanted to tell employers nor use it as an excuse. Been fighting this disease for 37 years. Now it has come to a head where I can get around but have days where I don't sleep or I am just tired and stay in bed. I was put on long term disability by my company and have been stuck there since...all other benifits have been cut off. Had to go on wife's medical benifits. Going back to school but missed 14 weeks of school last year. Who will hire someone knowing how much work I may miss. I have lawyers working on my disability claim. Not being able to maintain a consistant work schedule...very very frustrating...not disabled enough to get SSD but to sick to work consistantly.
Hang in there bro.
Fighting mad,
John C
Diagnosed in 1973
Prednisone 20 mg
Humira 40 mg (injection every other week)
2 resection (1987 & 1999)
liver damage found 2008
Hang in there bro.
Fighting mad,
John C
Diagnosed in 1973
Prednisone 20 mg
Humira 40 mg (injection every other week)
2 resection (1987 & 1999)
liver damage found 2008
Hey Jerman,
I was diagnosed last summer with ulcerative colitis and was in a 7 month long flare. I am now on remicade and 6mp but I am still suffering from severe abdominal pain. My doctors, however, cannot find any physical source in any of my scopes to explain the pain. First they diagnosed me with IBS on top of the UC, and then with a functional disorder in my stomach.
it has been like a death sentence to me. i have been in pain for months on end and none of my doctors will prescribe me any kind of pain medication because they have deemed it "chronic". Even when I had a spike of inflammation and started bleeding again, my doctor still would not give me any medication for my pain.
I wish i had some advice but at least know i'm there with you. Hope that this will figure itself out for both of us.
courtney
I was diagnosed last summer with ulcerative colitis and was in a 7 month long flare. I am now on remicade and 6mp but I am still suffering from severe abdominal pain. My doctors, however, cannot find any physical source in any of my scopes to explain the pain. First they diagnosed me with IBS on top of the UC, and then with a functional disorder in my stomach.
it has been like a death sentence to me. i have been in pain for months on end and none of my doctors will prescribe me any kind of pain medication because they have deemed it "chronic". Even when I had a spike of inflammation and started bleeding again, my doctor still would not give me any medication for my pain.
I wish i had some advice but at least know i'm there with you. Hope that this will figure itself out for both of us.
courtney
- Joined
- May 27, 2009
- Messages
- 1,035
Thanks for the post and welcome to the forum. It is a very frustrating deal no matter the variety of symptoms that we have. My recent visit to a surgeon after a hida test has me going in friday for a catscan for my gallbladder. I hope that is what it is and that it can just be taken out. these conditions can do irreparable damage to the whole mind, body, spirit connection. Because of this damned disease my mind & spirit are all screwed up. So ironic that they can diagnose so quickly depression and anxiety disorders but don't really have a clue what is wrong with the butt or the gut.. I hope you are quickly able to get the right treatment and start to feel better soon. Take good care.
