Hello

[cherie]

Hello everyone, Ive had Crohns for 15 years. I have an ileostomy since 1992. Just recently had a flare up with Crohns and spent 2 nights in the hospital. I started taking Pentasa on Monday and had to empty my bag like 7-10x that night and at least 6-7x times that morning then started vomiting. They had me on 500mg of Pentasa. I called the doc on Tuesday with my symptoms and they had me admitted into the hospital that Tues night. They told me there was nothing wrong with me. I had severe pain on side and they just gave me pain meds and drew blood and did x-rays and kept me on IV's for 2 days. I haven't had a flare up for so long I forgot what it felt like. I still think I had a reaction to the meds that I was on. So I stopped taking the Pentasa and feel great. Has anyone had a reaction to Pentasa?
Thank you in advance for any feedback,
Cherie

 

[Dexky]

Hi Cherie, welcome. Did the docs not even entertain the possibility that you could be having a reaction to Pentasa? They don't hook people up to IV's and keep them in the hospital for 2 days if nothing is wrong. Someone on here will have experience with Pentasa. Good luck!!

 

[Crohn's 35]

Hi Cherie and welcome to the forum. Yes, anyone can have a reaction to meds. I am on Pentasa now and I dont have any side effects from it and it is a mild drug. Having said that, I do know everyone is different with meds and their disease, since you stop taking it and it settled, that could be the reason, not sure. The problem is most of us have to be on something.

Others will come and put their opinions on here, glad you are here, wecome aboard!

 

[Astra]

Hi Cherie
and welcome

sorry you're going thro a rough patch at the mo
500mg of Pentasa? Are you sure, have you mistyped a 0, that's not a lot. I'm on 4000mg! which is 500mg x 8 per day!
I've been taking this dosage for 5 years, no side effects, it's very mild whilst in remission as a maintenance drug but no good if you're flaring.
hope you get some answers soon and some appropriate meds too
glad you found us, lots of support and friends here for you
lotsa luv
Joan xxx

 

[reidyjo81]

Hey Welcome,
Sorry your having a bad time at the moment, never nice. I am the same I am on Pentasa and don't have any side effects, but like said, everyone is different. Hope you work things out x

 

[cherie]

Thank you to everyone that posted. I just went back to my doctor today and he is now sending me to GI doctor. He is all out of options that he could recommend. I asked him if he could go in and take out the part that has the crohn's on it and do a resection. He told me that would be my last resort, since I have had 9 operations. He is uncertain on how much of my small intestine is in there and he told me that if he would operate I would be on TPN for the rest of my life. I'm only 36 and very active and he litterly scared the crap (no pun intended) out of me. I've been very upset all day and feel like crohn's has the best of me this time. Ive been in remission for 10 years. So now I get to go and see a GI doc and spend more money on prescriptions and doc visits. He mentioned something about Humeria. Has anyone been on this before. I just want to thank everyone for there posts. Its nice to know that I'm not the only one out there having issues.

 

[Dexky]

Hey Cherie, there is a Humira discussion on here at...

http://www.crohnsforum.com/showthread.php?t=6500

Good luck!!

 

[Aussie]

Hi Cherie,

If your doc doesn't know how much small bowel you have left, how can he possibly tell that you'd get short bowel syndrome with a further operation?

If your Crohn's has been in remission for 10 years, then you get a few days of vomiting and diarrhoea, sounds more like gastroenteritis rather than a flare of CD.