Humira Club Support Group

Crohn's Disease Forum

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*pounds forehead against the wall* So the Humira was working great. There were days I actually forgot I had Crohn's. Then last Sunday I woke up with a 104 fever and something strange happening to my skin. To make a long story short, I ended up with Sepsis, the dreaded blood infection. They think a fistula was trying to form and I ended up with cellulitis. They took me off my Humera and after five days of more antibiotics than I knew were out there, they let me go home.

Has anyone else encountered Sepis while on immunological drugs? I can't take anything right now.

*heavy sigh*
 
Getting my second loading doses at the end of this week (2 syringes) and then after that i'm self-injecting every 2 weeks.

Just have a few questions for people in the UK who use it...

1 - when you get your prescriptions, do you pick the humira up from your pharmacy or does it have to be delivered? I was just wondering how it is kept cold between picking it up etc.

2 - regarding sharps bins..once filled where do you take it? back to the pharmacy or GP surgery? do they give you a new one?

thanks
 
Had a quick question for Humira delivery...how long is the package supposed to stay cold if left unopened?

I just got a new job and won't be at home anymore when they deliver my package. The UPS sorting facility is right down the street from us, so I typically get my package somewhere between morning time and early afternoon. With my new job I won't be home until 5:30 pm.

Should it be alright on my doorstep until then? It's a covered porch area without direct sunlight. I thought about the possibility of having it delivered to my work, but the faculty refrigerators are not full-size fridges and wouldn't feel comfortable putting my medications in there with other people's food.

I would think it would be fine sitting on the doorstep until 5:30, right? Just wanted to see if anyone knew how long those packages stayed cold. Thanks!
 
Well, I jumped ship, I'm now a Hemi and not a Remi any more. 3rd failed attempt at Remicade, so now will be starting Humira in 2 weeks. Give me the good, the bad and the ugly. I am an army combat medic and have no problem sticking myself, more concerned about any adverse side effects I should know about ahead of time. Thanks in advance. Looks like a "new club" for me with you all now!
 
bc* You may never see your Humira prescriptions. Mine go direct to Healthcare At Home who deliver the drugs in their refrigerated vans, they also give you and collect sharps containers. Since you are asking I'm wondering if there has been a breakdown in comms, perhaps you need to contact your IBD nurse/consultant.

Marissa, dont know, different country :) but they must have thought of that in doing the packaging?

Gunny, it's good stuff. Maybe give you a headache/tired for an hour/day/week after the injection, or not. Often need weekly injections to get into remission.
 
Marisa, could you hide a cooler with some ice in it and ask the UPS man to put it in there? Just leave a note on the door he usually comes to.
 
beth said:
bc* You may never see your Humira prescriptions. Mine go direct to Healthcare At Home who deliver the drugs in their refrigerated vans, they also give you and collect sharps containers. Since you are asking I'm wondering if there has been a breakdown in comms, perhaps you need to contact your IBD nurse/consultant.
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Thanks for the reply :)
Heh, yeah, got my next appointment for Humira on friday so was going to ask the nurse questions then but I thought it might be useful to ask on here first in case there was anything I could do or arrange beforehand to save me waiting around longer than necessary! haha.
 
forum contributor said:
I started Humira today... 3 shots in the stomach and only 1 in the leg because OMG the leg hurts like hell!!!!!!!!!!!
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i did exactly the same lol! I thought both places hurt but theres less fat on my legs so i thought it hurt a little bit more! Def going with the stomach from now on lol!
 
Did some searching on my speciality pharmacy's website and it says their new packaging guarantees cooling for 36 hour. So, I think I'm good. ;) Got home today and my Humira had been delivered. Still cold! :)
 
Hi. I just started Humira, and omg it hurt like hell! I hope it works. Remicade worked for a while, until I developed antibodies. Does anyone know why it hurts so bad? I do my second loading dose next week.
 
Did you do it into your belly?? If so I find that if you do it either side of your belly button it really stings, if you do it lower then no probs. Reckon we must have a lot of nerve ending around the belly button area. And are you leaving the pen out to warm up for about 12mins?? That helps a great deal.
Rgds
Grant

1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection
Currently got yet another stricture.

Been on Azathioprine & Pred
Currently on Entocort 9mg every day
Humira 40mg every two weeks
Calcichew
Pentasa 4gm daily
3mthly B12 Jabs
 
It takes Humira a while to build up and have an effect. I have just got through the loading doses. Tomorrow is my first single injection every two weeks. I have noticed the "D" has almost come to a end and I am having 1 or 2 BM's every day instead of 10-20. I also have noticed that my BM's are not as narrow as they were a few weeks ago. Hopefully the inflamation at my surgery site has gone down.

So far, Humira seems to be doing well for me.
 
dreamintwilight said:
I've been seeing more Humira commercials lately. Now I'm seeing them advertised specifically for treating psoriasis! Pretty cool :)
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I noticed the commercials for Humira all talk about RA and Psoriasis. There is also an add that refers people with Crohn's disease to a website. In the small print it says "sponsored by Abbott". Man, why can't they talk about our disease like they do the others?
 
DougUte - I have also been seeing commercials lately specifically devoted to Crohn's disease. Slowly but surely more and more awareness is making its way into the public :)
 
ok gang, I started my first 4 doses on last Thursday and so far so good. No major or even minor side effects. Tried the stomach and the leg, neither really hurt as long as you pucker up the skin and make sure the alcohol dries before you inject. One of them the alcohol had not completely dried on my skin and that one burned. Hope you all are doing well!
 
Well done Gunny. Nothing to it!

My Crohn's is doing fine but it's all the other crap in Life that's getting me down.
 
My son is tolerating the injections in his legs much better now that he has been on it for a couple of months. He is such a trooper for an 8 year old!!

Are any of you on methotrexate as well as humira?
 
Started Humira for a Perianal Fistula this morning, went to the Hospital to see the IBD nurse, she opened up the package and it was Humira syringes not the pens, and my God it was painful, more so in the tummy than the thigh, she assured me that in two weeks when I see her again, the Pens are far less painful.

I feel a little woozy, and my thighs feel chaffed like I was rubbing sandpaper on them but other than that I feel grand.

Who would have thought such a itzy bitzy syringe could be so painful, haha.
 
I know. Such a tiny amount of medicine can sting like the dickens. Your next round will be only two injections, so it'll hurt less by half. The pens may also hurt less. At any rate, the pen takes 10 seconds or less. You watch a little, yellow bar go down inside the pen. It's usually in before 10 seconds are up, but I count to 10 all the same.

Thighs are better for me than belly, too.

Are you noticing improvement with fistula? I hope it works for you and heals them. I've had perianal fistula for most of my 20+ years with Crohn's, but I don't have any right now thanks to Humira. (I do have scarring from previous fistula/surgeries.)

Have you ever seen the Jason Bourne movies? It's a trilogy of action-packed drama about conspiracies and racing all over the world, trying to figure out identity and place in the scheme of things. There are a few scenes where the main character gives himself injections. When I'm fearing the sting, it can help to pretend I'm that guy and have to quickly get the med in before the enemy shows up. LOL Or I just growl a little when it stings. You do what you can.

I can tell you that it doesn't necessarily help when your child wants to watch you inject Humira for the sole purpose of being amused and finding your reaction funny. Kids.
 
When I think of the injections I think of a videogame called Metal Gear Solid 4 where the protagonist has to inject himself a syringe that looks exactly like the Himura pens or else he'll die of a virus that the the medication in the syringe is suppressing.

Shit, hopefully I don't forget to take it!! haha

http://www.youtube.com/watch?v=_WUlWWsIuRs&feature=related

Check out the first 11 seconds or so of the video, ignore the rest because I have no idea what the creator of the video was thinking, lol.
 
Hi all, I'm also new to this site but nit crohns!

I have been on Humira for over 4 years now. Found it great in beginning but now that have been on si long Drs are worried it's not having same impact, 3 new fistulae had to be operated on last week and scope showed large bowel disease. But having said that gave had nearly 4 years without much problem thanks to it.

Claire, I do sometimes get joint ache but have always thought that was the crohns rather than humi. I wonder, as you said can only get at hospital, if you are getting enough. I'm on 40 mg per week. Would def ask dr bout the pain, I did this end was referred to a r.a specialist.

Has anyone been on Humira for a long time and thought that they have become resistant to it?

Paddy
 
joining the humira club thursday.. hoping it works cause pentasa had no effect and imuran gave me pancreaitis which was a mentioned side effect...
 
Kieran85 said:
joining the humira club thursday.. hoping it works cause pentasa had no effect and imuran gave me pancreaitis which was a mentioned side effect...
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Good to see a fellow Irishman on the forum, I'm sure it will work, and hopefully it works for years to come, good luck mate.
 
Went today to do the two Humira pens and the pain is nowhere near as bad as the syringes, stung a bit when I injected my thigh, and I hardly felt it when I injected into my abdomen, never using the syringes again!!

Pens FTW!!! ha
 
Hi folks.
I've been taking Humira for 3 years, do think it helps. It is my understanding it works best for those who take it early on in the disease. I had Crohm's for 36 years before I started. Anyone else with longterm Crohn's? Am I the only old person? lol
 
had 4 jabs of humira last thurs. went grand. no pain. small bit in one thigh but other than that was a ok.
anyone have any advice for drinking on humira? is there side effects?
 
In the leaflet I got it said there are no known interactions between Humira and alcohol, I should know, I drank way too much on the weekend. lol


:eek2:
 
ya saw that too. i was on imuran and ended up in hospital for 5 days after a heavy session. they blamed the drink but i know it was the imuran that did it. im off it now a month but by god id kill a pint. said id give it a few weeks just to get started on humira or if ireland win the world cup haha
 
Need info

I was diagnosed with Crohns in Dec. 2010 and it's been horrible since.
Was supposed to start Simzia this week but insurance denied it and will approve Humira instead. Any advice/side effect info on Humira ?
I'm on Entercort, prednisone , inh, 1200 mg iron, vit b........but it's still not under control. Since December I've been hospitalised 6 times. Getting really discouraged/frustrated :yfrown:
 
Gutlesswonder said:
Hi folks.
I've been taking Humira for 3 years, do think it helps. It is my understanding it works best for those who take it early on in the disease. I had Crohm's for 36 years before I started. Anyone else with longterm Crohn's? Am I the only old person? lol
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Hi Gutless :mario2: Welcome.

I was diagnosed at age 48, but I think I had first symptoms about 25 years before that. Humira is doing wonders for me. My "D" has mostly disappeared. No more pain. Nothing else has worked, so glad I finally got approved for Humira.
 
Looks like I am joining the humira club as well, I had a very bad reaction after my second infusion of remicade. It started to attack my muscles and paralyze me. I asked my doctor what the chances of having the same reaction on humira would be and all he would say is all drugs have side effects. Has anyone had a bad reaction to Remicade but Humira is working for them?
 
amw165: chances are you wont have a reaction to Humira, which is fully humanised as opposed to Remicade which is chimeric mouse/human.

Some people have come over from Remicade happily and get a good response to Humira. You've just to try it and see I'm afraid.
 
Just Getting Started

Took my my first set of shots almost two weeks ago and getting ready for the second set tomorrow. My husband (he's a nurse) will be giving me the injections as I am terrified of needles. But even if I wasn't, there is no way I could leave the pen on long enough for all the medicine to go in if I was self-injecting. The stinging is BAD!!! The infusion nurse that showed my husband how to do the injections, told me to cry, curse or scream if I needed to. She knew it was painful. She even said that one time she was doing the initial dosage to a very church-going Christian women, and by the end of the 4th shot, she had said a few choice words.

:lol:
 
Are you leaving them out of the fridge for 20mins before injecting? helps to bring the pens up to room temp.
Good luck.
 
Joined the club about 2 months ago during my last hospitalization. I was on Prednisone (40mg) and all my other meds and still had a massive flare up which caused me to bleed profusely.

Now my joint pain is worse than it ever was and I'm having a crohn's flare up after tapering to 15mg of pred. I've already been on the Pred for 3½ years straight and cannot be on it any longer because of my health (Kushings). But no, the doctors just keep on putting me back up on a higher dosage. I need to get away from a regular GI and go to a CCFA certified GI.

And now my new Rheumatologist is suggesting I go up from 40mg biweekly to 40mg weekly. This worries me since I always have my sick nieces over at my place....
 
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Sci Fi your right to be concerned @ the usage of Pred, especially for later life & brittle bone. I would seek out a new G.I asap TBH.
Hope things get better for you real soon.
Rgds
Grant
 
I know what you mean breezy, my first four initial shots had to be done at a clinic due to my past reaction to drugs. They burned horribly! I had the nurse do the first two then my boyfriend do the third... I wasnt sure if I could do them and leave them on long enough without instinctively pulling them away. The shot my boyfriend did though did not burn as bad as the first two so I did the last one, figured I should at least know how to do them, and the last one burned just as bad as the first two but I was able to get through it. Now that I am able to do them on my own and not have to go to a clinic I am going to try and leave them out before injecting like people have been saying and I will see if that helps.
 
heya everyone, well ill be new to humira group hopefully this week or next.. im flareing while waiting for this doctor to look at my results of the test and get back to me on when i can start taking my first shots..

what i liked about humira is the fact he told me once im on humira i will be off all other medication even prednisone yayyy.. im so ready to be off of that
 
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Probably the right point to make sure everyone that has started recently, or is about to start, knows that whilst the usual maintenance regime is every two weeks. However, so many of us have come out of remission induced/started by the loading doses at around the 2 - 4 months time, have gone on to weekly injections and gone back into remission that it is worth pushing your doctors for weekly injections if you feel it isn't working anymore. It is, you just aren't getting enough of it!
 
Hi Everyone. I'm supposed to be starting Humira today. About to leave to drive 2 hours for my hospital appointment then drive home again.

I'm 38 and have had Crohn's since I was 15 (just before turning 16). Diagnosed in 1989 but suffered for quite a while before the diagnosis. I also have bad Anaemia which the Doctors have never been able to find a good reason for. I usually have a series of Iron injections once or twice a year.

My father also has Crohn's, being diagnosed in the late 1960's - one of the first ever diagnosed cases in Australia I believe.

My main symptoms at present are joint pains and diarrhea. As far as bowel inflammation and bowel pain goes, I haven't had any for a long time but my Doctor still wants to try me on Humira. I had a large bowel resection about 6 years ago with only the descending colon remaining intact.

I'm pretty worried by all the potential side effects of Humira and am thinking of just staying on my current meds which are 6MP and Allopurinol.
 
Hi Paul G. Give Humira the chance. It is the best thing I have ever done for my Crohns. I plan on being on Humira for a good long time (baring any changes). It has done very well for me.
 
The side effects are rather 'potential', they have to list everything even if it isn't actually caused by Humira - look at the leaflets that come with any drugs these days!
Diarrhea suggests your Crohn's is not currently being controlled, having ruled out other causes. So Humira is a very good next step, or Remicade but I prefer being able to inject myself at home and not have to go into hospital with all the ill people ;)

Don't put up with the D, it's easy to having dealt with it for a long time, but really you will be storing up problems for later.
 
Hi I've been on Humira for just over a year now I use the Pen its a lot easier I take pen out of fridge and leave to stand 30 minutes before it stings less, I prefer to inject in the stomach as the leg kills but as I have Colostomy on the left side I can only inject on the right side then alternate between legs so have to grin and bear it I tend to inject just before going to bed so when I wake up pain gone lol. As of yet I have had no bad side effects and all seems well with the Crohns
 
As of last night, I have officially joined the Humira Club!!! Four pens in the thighs. I didn't find it difficult or painful with the pens. I was just so excited to have new hope (pred didn't do the trick) of remission that I don't think I cared how it felt. Now the wait begins :)

It is so great to hear the success stories on here about Humira! Glad to be a part of the club!
 
Well I did the Humira. 4 doses - 2 in abdomen and 1 in each thigh.

Injections stung a bit - not too bad but I'm sorer now than yesterday, moreso my abs as they feel bruised! No reactions yet and no burning feelings.

Doctor told me to stay on existing medications as well as now taking Humira? I was hoping to be done with the 6MP, Allopurinol & Celebrex.
 
Just joined the Humira club too. Had 2 pens in the leg and 2 in the stomach and to be honest the sting was not nearly as bad as I was expecting. I found that because I was expecting it to be painful, when it was a bit nippy I wasn't surprised and this probably made it feel less severe. All stinging subsided after about 5-10 mins.

Here's hoping for a positive response and I wish all my fellow Humis the best of luck too.
 
Paul G said:
Well I did the Humira. 4 doses - 2 in abdomen and 1 in each thigh.

Injections stung a bit - not too bad but I'm sorer now than yesterday, moreso my abs as they feel bruised! No reactions yet and no burning feelings.

Doctor told me to stay on existing medications as well as now taking Humira? I was hoping to be done with the 6MP, Allopurinol & Celebrex.
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Welcome to the club Paul! Because Humira needs to build up, you Dr. might be waiting until that happens before reducing your other meds. Or maybe not. I'm not your doc.. Hope it goes well.
 
Well done to those that have just joined our club! The sting isn't too much. I really don't enjoy the injections, occasionally one of them will bl**dy hurt. But I just think of the good times, get it done, and have little treat like a bit of cake afterwards.
Hope it works well for you.
 
Hi all!! I've been a part of the Humira Club since 1/13/11. I prefer getting my shots in my thighs versus my stomach. The actual injection hurts the worst in the thigh, but, I find that the injection site is definitely tender for longer periods of time when I get it in my stomach. I absolutely cannot give myself my shot - I can't even do it with the practice pen that Abbot sent me - and I have to have my partner help me. He dislikes giving me my shots because they hurt so badly, but, he's willing to do it because it helps me so much.
 
How long did it take eveyone on humira to start feeling a difference? I have been on it for 6 weeks now and I still feel horrible, I was been flaring so much in the last few weeks and I'm really hoping that I start to feel better soon, I am not sure that I have many medication options left I have tried a lot and none seem to be working :(
 
amw165 said:
How long did it take eveyone on humira to start feeling a difference? I have been on it for 6 weeks now and I still feel horrible, I was been flaring so much in the last few weeks and I'm really hoping that I start to feel better soon, I am not sure that I have many medication options left I have tried a lot and none seem to be working :(
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It took me somewhere in the proximity of 6 weeks to feel better after starting Humira. I hope that it starts to help or that you otherwise find something else to help soon :(

I know the frustration of having treatments not work out as hoped.
 
Usually, they say that people not responding after 4 weeks should continue the treatment up to 12 weeks. If you don't respond by then there is a possibility that humira just is not working properly for you. I was told to be perseverant through the 3 months as they would not consider it ineffective until then. I hope it does take less time and that it starts showing it's effect soon! Good luck!
 
amw165 said:
How long did it take eveyone on humira to start feeling a difference? I have been on it for 6 weeks now and I still feel horrible, I was been flaring so much in the last few weeks and I'm really hoping that I start to feel better soon, I am not sure that I have many medication options left I have tried a lot and none seem to be working :(
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It should start kicking in soon. I would give it another 6 weeks, but I would also be talking to your G.I.. It took a while for Humira to get its full effect, but it definitely worked well for me. If you don't start seeing improvement soon I would want to be trying something else.
 
There is a percentage of people for whom the biologics don't work, you may be one of the unlucky ones. Or it may be taking its time. Unfortunately just best to keep doing the injections, ask your GI about weekly, and keep your fingers crossed. It's pretty clever stuff, but if you really need surgery then....
 
My Doctor didn't give an indication of how soon it would start working. What he did say was to see it through for the first 12 week cycle. This would ensure, in the event that I did have a 'holiday' period from treatment at all, that I would be eligible to come back on it at a point in the future.

From what I understand, here in Australia you have to 'qualify' on certain criteria in terms of disease activity to be eligible for the drug (through the Public Hospital System). Thanks to our national Medicare system and Pharmaceutical Benefits Scheme the first six doses cost me $35.
 
I'm after some advice...

I have been battling my most recent flare up for the past 20 weeks with varied success. About 10 weeks ago I started on Infliximab, and was taking pred at the same time (35mg daily when Infliximab commenced).

I saw gradual improvement over the first two loading doses of Infliximab (I improved from weeks 1 through 4) but at about the start of week 5 things began to get a little worse. I was tapering my pred down through this period at -5mg/week. I was therefore on 10mg pred daily with 1 week to go before my 6 week Infliximab infusion when things began getting worse. I hope I'm being clear here.

I was given the 6 week Infliximab dose as planned and by week 7/8 I was off pred completely. For the next 4 weeks I got worse and worse to the point where I felt I couldn't go into work due to my symptoms.

I have been classed as a primary non-responder to Infliximab since it seems like the benefit I saw early on was due to pred, and I'm now trying Adalimumab (1st loading dose 24/11/11).

Having only been on Humira for a few days I know I must give it time to take effect. However, I am feeling pressure to return to the office (although my work do cut me a lot of slack, allowing me to work from home when necessary), but I would need to get my symptoms under control first. I am on no meds other than Humira at the moment. I don't take anti-Diarrhoeals at the moment because I don't really want to mask any symptoms, and they tend to just increase my cramps even though they slow my guts down.

So at the moment I am thinking of the following options:

1) Continue with Humira alone, allowing me to properly assess if it is working or not but risk being the same as I am (or worse) for the next three months before it is decided whether or not I continue with it.

2) Commence a course of pred in conjunction with Humira, which will allow me to get back to work quickly but complicate the assessment of how effective Humira is for me.

3) Take anti-diarrhoeals to slow my guts down so I can possibly return to the office and continue with Humira for 3 months to see if it works for me.

4) Another option...suggestions on a postcard please!

I suffer from crohn's colitis BTW.
 
3 months is not long enough to see how effective Humira is for you. There is also the issue of dose. If fortnightly is making a difference but is insufficient to last the fortnight to the next injection, then weekly may well make all the difference - like night/day.

It's a waiting game without rules, what works for others may not work for you/etc. You just have to see how it goes.

Just as important is diet... do you know your intolerances, do you drink tea/coffee and does it affect you/etc.
 
Hi all!
I have joined the club. Got my first 4 loading doses today. Happy to say it was not so bad. :) Now if it heals my fistulas I will be thrilled. They sent me home with a "sharps" container but did not say what to do with it when full. Do you just toss it in the garbage?

-Barbara
 
I don't know what happened but my pen didn't inject last night and I got Humira all over my pants! They are overnighting me a new pair of pens for free. Not one but 2! This is why I love Abbott :)
 
Emily - that is fantastic! Not the "all over your pants" part but the 2 for free part! I have only just started Humira (load doses) but Abbott has been amazing!
 
Suschex, I did that once. I forgot to take the needle end cap off & tried injecting with the cap on. When I realised what I'd done I took the cap off & got squirted.
Rgds
Grant
 
I'll be going in for my loading shots and learn how to do this just in time for x-mas on the 19th of december. SoI'll be joining the club too.

Now, will you please stop talking about how painfull this is! :ybatty::poo:

:ycool:
 
I'm contemplating asking for humira (before trying remicade). Is it best to give yourself the shot at night (when you're done with the "loading doses")? What type of pain are we talking about here? I can handle a lot, but if it hurts to touch the injection sight or something, I'm farged. I got three young kids that jump all over me like a jungle gym! It hurts like a tetanus shot? Would it help to take tylenol a half hour before? Or does it hurt just while you are injecting it?
 
Norseman it's not too bad. I think people make too much of it. It hurts for me, sometimes I swear when I hit a nerve or whatever, but it isn't soo bad.

Once it's done that's it. Have a treat, bit of cake/biscuits/etc, got to bed and sleep off any headache or tiredness. Just get it done, don't elevate it to some massive big deal. It isn't.
 
For me it is not really the needle that hurts so much as the stuff going in. It burns for five seconds or so.
 
Snickerdoodle and Norseman

I completely agree with Beth! I gave myself the 4 loading doses last week and didn't find it difficult or painful. The next day (I did them at night) I had a hard time even telling where I had injected. The needle is so very, very tiny and the medicine goes in quickly. Shots are shots and if these are going to get me to remission then they are well worth it! I hate that it is painful for some of those having to take Humira and hope you find it to be bearable!

:ghug:
 
suschex said:
I completely agree with Beth! I gave myself the 4 loading doses last week and didn't find it difficult or painful. The needle is so very, very tiny and the medicine goes in quickly. I hate that it is painful for some of those having to take Humira and hope you find it to be bearable!
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I don't really worry about it. With all the needles they have poked me with over the last years, I am beyond caring...lol
 
I am still waiting for mine! I was told it was going to take up to amonth for everything to switch over ( was on remi) GRRRRR! So very very fustrating. I am due like now for my next round of meds, so i am hoping i don't flare up in the mean time while i hurry up and wait!! Been practicing with my practice pen..lol on me, my daughter my cat.. everyone..lol now for the real thing!
 
5 months in the club and the Humira seems to be doing the job. I wouldn't say i'm 100% but there has definitely been an improvement and i think my body if finally setting into the new treatment.

I have recently switched form syringe injections to the pen injections, which I actually prefer despite thinking that I wouldn't.
However the past two times i've injected (with the pen) the next morning I have noticed a small rash (like hives) around the injection site. It goes away after an hour or so, leaving a small bruise, but I just wondered whether anyone else had experienced this?
 
:ybiggrin:I haven't been on here in a very long time, but I have been on Humira now for about 4 years and it stopped working. My doc added Entocort and now I am doing so great. No "D" since I started it. It's been about 3 weeks now and I am doing so much better. I was ready to throw in the towl and ask for surgery, but thank goodness for my new meds. I only average 2x a day now with my BM's. Just so very happy!!!
 
Hi all, I took my first four shots last Tuesday and in the las couple days I noticed my bms have slowed down and firmed up. This morning I woke up feeling great! And hungry it seems my appetite has come back. So excited! I just had to share.
 
im so happy humira is working for you, its great when you can get up without pain, and running to the bathroom in your case every 5 seconds.
 
I was on 6MP and Humira when I had a bad reaction (liver/kidney) to 6MP. I was scared to death to do Humira only and at first I had a difficult time. During my fifth month on Humira, everything, well most everything cleared up. Right now, I'm feeling normal. And that's a place I thought I'd never be again.

I've had two issues with the pen: one time it didn't inject, and the other time the liquid was really cloudy. Abbott Labs was awesome and sent me both replacements over night. The nurse was chock full of information and so helpful for a newbie.

Best wishes to all of you. I don't know how long this will last, but right now, I'm lovin it.
 
hi there i had my injections delivered yesterday.just waiting for nurse to come in next couple days show me what to do .hope no reaction to it as dont tolerate most medications .inflixlab made me come out in rash.
 
Well, just took my 5th and 6th injections (took the first 4 injections two weeks ago) and all went well! Now I just have to wait and hope for some sort of remission! I guess the research studies have shown that with steroid refractory crohn's it takes longer for the Humira to work :-(

Keeping my chin up!
 
If it doesn't work right away don't give up. For me, it was/is worth the wait. I'm so grateful to be off the 6MP. I was so sick. Now I have energy and can move without (much) pain. So hang in there.

I feel so good. Better than I thought I'd ever be at least for now, and now is good enough.
 
carrollco said:
If it doesn't work right away don't give up. For me, it was/is worth the wait. I'm so grateful to be off the 6MP. I was so sick. Now I have energy and can move without (much) pain. So hang in there.

I feel so good. Better than I thought I'd ever be at least for now, and now is good enough.
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so pleased you feeling good hope i get the same effect just finished 2 weeks of predisone my legs aching like mad .consultant wants me to take 6 more predisone on friday before have the humira
 
penny said:
start humira friday not looking forward to it
Click to expand...

Penny - What part is it that makes your feel that way? The fact that it is an injection? The fact that it is a biologic drug and the possible side effects? I'm sorry you are feeling less than happy about starting Humira.

I took the 4 loading doses almost 3 weeks ago and then the last 2 loading doses this past week. I used the pens and injected in my thighs and found it to be bearable with very little discomfort and no negative reactions. I know it is different for everyone and that my experience will not take away how you feel...feelings are just so very real...but wanted to at least share with you what my experience had been in hopes that it might ease a little of your concern.

I hope Humira works for you quickly and with no discomfort...hang in there! :)
 
Is there anyone who have stopped Humira,and had to start it again?

I first started Humira 2008,it worked great for me and firrst time i feel like healthy people! I take about 6 months before it start to kick. My doctor decide that we try if i can make without it and i stopped Humira march this year. Slowly i started to feel worse and now i have rectum inflamed and small bowell too. Feeling awful. I have perianal proplems too. Now i satr Humira again, last friday i take those 4 doses. Would it be as helpful to me, that it was in the first time?
 
penny said:
so pleased you feeling good hope i get the same effect just finished 2 weeks of predisone my legs aching like mad .consultant wants me to take 6 more predisone on friday before have the humira
Click to expand...

I was SO happy to get off prednisone. I hurt all over from that stuff and for some reason I would get these horrible muscle cramps. I hope never to see it again.

Just remember it takes time. I did have some immediate effects, within the first few days, and then it was like my body was at war--sometimes symptoms--sometimes not-- for months, but that could have been the 6MP, it's hard to be sure since I was so sick.

That said, you couldn't tear my Humira pen from my hand. :heart:
 
Jimena said:
Is there anyone who have stopped Humira,and had to start it again?

I first started Humira 2008,it worked great for me and firrst time i feel like healthy people! I take about 6 months before it start to kick. My doctor decide that we try if i can make without it and i stopped Humira march this year. Slowly i started to feel worse and now i have rectum inflamed and small bowell too. Feeling awful. I have perianal proplems too. Now i satr Humira again, last friday i take those 4 doses. Would it be as helpful to me, that it was in the first time?
Click to expand...

That is a worry I have. I wonder what will happen when I go off. I suppose at some future time I will have to. I really hope you start to feel better soon. I had those problems too, ended up in the hospital with sepsis and THAT is not something I want to go through again.

My very best wishes for you.
 
Hi guys, I am due for the second part of the loading dose on Tuesday. I have a bit of a head cold. If it is still bugging me do I have to delay the shots?
 
Well, even though you are off of it, I would still very much like to join the club! Been on Humira since 2009. Was put on it b/c Remicade infusions stopped working! Goodbye Remi, Hello Humi and Metho.
 
Jimena: It's not a good idea to stop and start any of the biologics. Although you are more likely to get away with it on Humira than Remicade - you may produce antibodies to the medication which means when you re-start it doesn't work as well, or you get a severe allergic reaction to it.

Sailorluna: What has your prescribing doctor told you, and what does the petient information leaflet suggest.... Is your temperature up, have you measured it, how well do you feel...

Meg: good luck!
 
You probably dont need to delay then. I have occasionally delayed a day when my temperature has been up but I fight off things very quickly so haven't needed much more than a day before I'm feeling better. Talking to your doc or specialist nurse if you have one is wise.
 
Well, I had my four loading doses yesterday, so I thought I would join the club! Have my next 2 injections in 2 weeks time, and having a blood test the day before. Is this standard having blood tests before each dose for the first few doses?

I actually did not find the pain too bad. The first one was the one that hurt most, which was the one the nurse administered. I then did the next 3, one in the other side of my stomach, and in each thigh. I would not really call it pain, more like high pressure.
 
Hi Harry. It's quite normal to have blood tests while taking any of the biologics. My GI insists on me having tests done every 6 weeks or so.

Agreed, tha "pain" of the injection is nothing compared to the pain of Crohn's.

I hope Humira works for you.
 

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