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Morning all,Trysha and Kirsty,I can't add anything more to what Sandy said except I felt quite upset when reading your posts.Big hugs from me too.
I'm off to the dentist for my 6 monthy check-up.I really feel like cancelling and re-booking,but I'll go and get it over with.Might have a wander to the weelkly auction too.
Back later,be good.
 
Good luck with rehab, Trysha. And Carol, with the dentist ( I faint easily when having treatment). Dentists always comment on the state of my Crohn's disease mouth lol. Am just about to cancel my colonoscopy. Yes, they're agonies, especially when they try and ram it through a stricture. The bleeding afterwards just isn't worth it.
 
Sandy, did you mention that to your doctor? I had a flexible sigmoidoscopy a couple years ago where the sedation failed and I was awake & talking the whole time - I don't remember most of it, but I do recall that I was trying to see what was happening on the monitor, but I didn't have my glasses on, and the sedation made me so loopy that I was drunkenly yelling, "I can't seeeeeeeeeee!!" :p I apparently annoyed my GI to the point that he wrote in my file that I get to have full anesthesia for all future scopes (and I did have anesthesia for the scope that I just had done while in the hospital back in August). If you're awake & talking, alert, uncomfortable, in pain, anything like that - tell your doc your experience and they should offer you anesthesia next time. I wasn't in any pain nor discomfort, at least not that I recall - it just felt like I was really drunk and I don't remember most of it, I was basically just loud and annoying and silly. Even so, I think for my GI's benefit as much as mine, he'd like me to have anesthesia from here on out. And I'm okay with that, I'd rather not be conscious during scopes.

Umm, so different topic - has anybody had luck finding belly-friendly food at sporting events? I'm going to a football game on Sunday and I'm looking at the menu options in the stadium, but it's all things like pizza & burgers (which I cannot have). I'm thinking I'm going to just not eat while I'm at the game, ugh. No outside food is allowed in, either, so I can't bring my own food (can't even bring a water bottle!). I'm excited for the game and I guess I'll just eat something before/after the game. Hmph.
 
What about fries Cat ? I mean stuffing your face is half the fun at events eh.? Or could you not sneak some nibbles in camouflaged ? Maybe in your hat or gloves ?

Diane,you're not really going to cancel your colonoscopy are you ?

As for me,small filling needed next Wednesday.I should say small expensive filling needed'

I think it's £54 ish.I rather wait and have a BIG filling and get my monies worth.
 
I have my G.I. appointment today. Followup on the prometheus test and my colonoscopy.
Will find out if I need to go to weekly Humira injections. The colonoscopy found an ulcer at my surgery site that may be a result of active Crohn's disease.

Then tomorrow I get to go to the Dentist and get new fillings! Double whammy this week.
 
My colonoscopy is done under GA. It doesn't please them at all cos I protest at the pain and I can get quite vocal. Sedation has little effect on me.

I have my mammogram the day before and i'm not taking the citramag whilst out.
 
To all my crohnie family:

Get well,get well,whatever you have
We miss your great charm and fine wit
There's plenty of time to be ill later on
So let's see you back well and fit.....:rosette2:......:dusty::dusty::dusty:



and don't forget training for the London Marathon begins in the New Year !!!

:thumright:
 
I went to see my G.I. this morning. The Prometheus test came back showing a Humira level of 2.1. My level should have been at least 5.0 for a therapeutic level. The good news is I have not built up the antibodies against the Humira. We are moving to weekly injections. My G.I. gave me a sample Humira Pen, which I will use next Tuesday. Then I will have my next refill come in. Hopefully in 3 weeks my insurance will have approved the move to weekly injections.

The biopsies from my colonoscopy show inflammation is occurring. The ulcer at the anastamosis site is a result of active Crohns. Not a very fun time here.
 
Hey humira buddy, we get to do weekly together too[emoji16]. I go to the chemist today to get more humira. I'm on weekly for three months.

Give Sandy a big hug from me

Time for me to feed Jammer.
 
Carol, apparently security is very tight at these games so I don't even want to try to sneak in food (I also don't want to get kicked out and forfeit the $300 ticket!). Fries are safe-ish for me. The grease doesn't make me feel great, but it also won't actively make me ill the way that a burger would. So, we'll see. I guess if I get hungry enough then I'll opt for fries. I'm thinking that since kick-off is at 3:25 PM, I'll try to eat a substantial & belly-friendly lunch beforehand and that will hopefully get me through until dinner. Not sure when dinner will be though - the game will end around 7 PM and then we'll get the fun of fighting our way back to the car and then fighting traffic to get out of town. Maybe I'll bring some snacks to have in the car while we're stuck in traffic...
 
Oh, the football food brings back memories! We've smuggled our own food in before, but it gets rather tricky for most people. We had one advantage though, I always used a wheelchair at games because of the amount of walking required, which gave me additional bags and places to hide things, plus they are not as apt to search thoroughly a person in a wheelchair! I usually had the food sitting right beside me in a small plastic container on the chair under a scarf or in the shadows slightly under my legs. Of course, this is just college ball, but same rules apply. And we ate the food while sitting in "wheelchair row", the same level where everyone comes in to walk up or down a few rows to get to their seats, and right where stadium officials stand guard. They were clueless, tee hee.
Regarding letting them know I was awake during colonoscopy, I was awake and aware, but afraid that just like happens often with my narcolepsy while waking up, for a time, I couldn't move or speak, literally paralyzed. I did start moaning, which got louder and louder until I heard them say I needed more sedation, so yes, they were aware in a way. When in the recovery area and after, I didn't think to say more, and have never had that problem since (and with different doc now). I woke up after one scope clawing at the air in front of my throat where I had to have assistance breathing, but the doc was right there and explained the breathing tube was just removed and I calmed right down, remember feeling a sense of relief it was out. Then, of course, there was the time I had four seizures while waking up, gave the doc a little scare, not what he usually sees. Doug wondered why I was taking so long in recovery. I guess I've had my share of excitement during scopes, but the only one that really bothered me was when I woke up.
Of course, I couldn't wake up for Doug's appt this morning, but you all heard his news. I'm glad the doc checked his levels, hopefully he will avoid having as many crohn's flares with the additional meds.
Gotta go, I have an appt for a massage, my aching back and neuropathic legs and other aching joints really can use it right now. I just wished it helped slightly naseous tummies.
 
Oh peeps, a weary time of it most of us are having... iv had the runs after my mri scan yesterdays oh joy . Its nowt compared to some of you guys tho ...

By the way my friend i were talking last nite n she said about artificial bowels being possible at some point..behold !! I googled it and it is in process via stem cell growth,that in a few years they may be doing human trials..could this be a cure in the not to distant future ???. ☺

Get better soon all those feeling rough and keep well if you are well. Big hugs to all and love n support to all 💖💟💞💕 :ghug:
 
Sandy, on the subject of you sneaking in snacks on your wheelchair, I was actually just doing some browsing on Amazon earlier, and I saw a cane that has a hidden compartment (which obviously is very long and thin) where possibly small snacks could be hidden in. ;) Hmm! Think I'd get kicked out of the game if they noticed me pouring m&ms out of my cane? Ha ha.

Mandy, I've seen similar things online with regards to creating a new bladder - I have bladder issues too and I saw an article a little while back which was talking about how they can take your own cells (stem cells I guess? or maybe it was bladder cells?), place them on a bladder-shaped thing, and somehow use them to grow you a whole new bladder. It was fascinating! I think that technology was still a few years in the future, too, but it's amazing what they'll (hopefully) be able to do relatively soon. I'd like to sign up on the waiting list to just get all new insides, please! A lab-grown intestine and bladder can't be any worse than the ones I've already got!
 
Hi cat ..the future holds many possibilities it seems. I hope we can benefit from these advances in the not to distant future. Heres hoping :drink:

Best wishes to you Ron.
Love to all 💕💖
 
Minor vent for today: They've decided to bring in free food to work next week Tuesday. Sounds good, right? But it's tacos. I can't do beef, I have a hard time with spices, and I'm lactose intolerant. So I thought, I could still do chips and guacamole. But no! They're apparently ordering pre-made tacos, not a taco bar, so now I won't even get my chips & guac. Gee thanks. Anybody else get very annoyed when there's free food but you can't eat it? I just want some stupid chips and guac! :( I feel like I'm not asking for much here. But it makes me grumpy when I can't even get the bare minimum. I'm going to have to go to the store and buy my own chips and guac, and I will not share them with anybody else. Hah!
 
Cat-a-Tonic said:
Minor vent for today: They've decided to bring in free food to work next week Tuesday. Sounds good, right? But it's tacos. I can't do beef, I have a hard time with spices, and I'm lactose intolerant. So I thought, I could still do chips and guacamole. But no! They're apparently ordering pre-made tacos, not a taco bar, so now I won't even get my chips & guac. Gee thanks. Anybody else get very annoyed when there's free food but you can't eat it? I just want some stupid chips and guac! :( I feel like I'm not asking for much here. But it makes me grumpy when I can't even get the bare minimum. I'm going to have to go to the store and buy my own chips and guac, and I will not share them with anybody else. Hah!
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Last Friday we had the fall social at our church. Sounds nice, but it was a Chili Cookoff! So everybody was making the hottest, spiciest chilis possible! Got around this by Sandy cooking a very mild chili. But even with that I still had problems for a few days after the fall social. I just wish the Crohn's would not be so disruptive of life.
 
It's not asking much to be able to enjoy food occasionally is it ? especially free food. It's a "human right" hahaha.Unfortunately, we are sensible enough (mostly) to consider the consequences,instead of just getting "stuck in".......
Had a good hour on the bike today.Went along the coast and back.It was a bit cold and damp but enjoyable.Hope it's fine tomorrow, as I really need to build my fitness levels back up.I feel much better mentally too.
 
Hey Doug how big is Utah? I just saw an extreme tubing video on Facebook, it looks like fun, it's in Utah somewhere.
 
Utah probably has the population in NZ in it, but hey still looks like fun.
 
Ron, I think it took about a week for me to hear back when I was tested for c diff. I hope yours is negative! (Mine was negative, thank goodness.)

Doug, eek, I think chili would be even worse for me than tacos! Beans give me reflux, tomato-based sauces give me a LOT of reflux, and as I mentioned earlier, I can't do beef. So I feel your pain, I'd probably skip that meal altogether myself! Glad to hear that Sandy was able to make something that was reasonably safe for you to eat.

As for with tacos, I can make them belly-friendly at home, using goat cheese and ground turkey or lamb (yum!). So I might just do that, have a tummy-safe taco dinner that night and scarf down much better tacos than what my co-workers will be eating.
 
Good plan Cat..im sure yours will be much better anyhow hun. Belly safe is much more enjoyable,as you know you wont be suffering later 😨💕
 
Aura, I'm at work so can't view your video, but I think I saw the same video on my facebook feed this morning - it looked terrifying! Like, if you wiped out, that would REALLY hurt and at minimum you'd lose a lot of skin if not break bones. I am not that adventurous, that tubing video that I saw was just not for me! Eek!

Carol, glad to hear you're getting back on your bike. Once again I'm jealous, exercise has been elusive for me lately, but like you said it always makes me feel a lot better mentally (and I also need to get my fitness levels back up again too). I've had a few gym sessions lately, but I hurt my toe (I now have "turf toe") and I had a bad arthritis day earlier this week, so my body is not allowing me to exercise as often as I'd like right now. It's a bit frustrating but I'll get there, someday.

The good news is, when I do get to the gym to lift weights, I still have almost the same amount of strength that I had prior to this flare. I was afraid this flare, particularly the weight loss and then the pred, had robbed me of a lot of my muscle mass, but it seems to still mostly be there thank goodness (right now my muscles are apparently just hiding under a layer of pred flab, ha ha). My stamina, however, is not so good these days. I find I get winded quite easily and need to rest more in between exercises. So a bike ride would surely have me tired out in about 5 minutes! I'm jealous of your hour-long ride, wish I could do that too. Sadly I think my bike is now put away for winter and won't come out again until spring, sigh.
 
Aura said:
Hey Doug how big is Utah? I just saw an extreme tubing video on Facebook, it looks like fun, it's in Utah somewhere.
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Utah has a population of about 3 million in 2016. So not as big in population as New Zealand. Utah is 84,899 square miles, which makes it the 11th largest state in the U.S. (geographically).

i tried the link you posted but it is not working for me. I would think the extreme tubing might be on something like the Colorado River. That river is known world wide for its rafting and rapids.
 
DougUte said:
Utah has a population of about 3 million in 2016. So not as big in population as New Zealand. Utah is 84,899 square miles, which makes it the 11th largest state in the U.S. (geographically).



i tried the link you posted but it is not working for me. I would think the extreme tubing might be on something like the Colorado River. That river is known world wide for its rafting and rapids.
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It's nearly got as many people as NZ [emoji3]

It was at Utah Olympic Park, extreme tubing sitting in a tyre and going down a hill. Cat was right though, if you come off you would have a body graze.

It's my jab night tonight. The drug company approved my GI request for three months compassionate Humira so I can do weekly jabs. In NZ it's only funded for fortnightly use.

I'm so tired today, all I've done is take a Jammer for a short walk. I have managed to test, insulin, eat, test.

I feel like roti and satay for tea tonight, I wonder if that is low residue?

I'm going to look at Utah in a map now, catch you later.
 
Aura said:
It's nearly got as many people as NZ [emoji3]

It was at Utah Olympic Park, extreme tubing sitting in a tyre and going down a hill. Cat was right though, if you come off you would have a body graze.

It's my jab night tonight. The drug company approved my GI request for three months compassionate Humira so I can do weekly jabs. In NZ it's only funded for fortnightly use.

I'm so tired today, all I've done is take a Jammer for a short walk. I have managed to test, insulin, eat, test.

I feel like roti and satay for tea tonight, I wonder if that is low residue?

I'm going to look at Utah in a map now, catch you later.
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The Olympic Park is near Park City. That must have been on the Ski Jump or on the bobsled track. Either one would be quite scary. AWESOME.
 
Getting a bit better now and walking better.
I like following all your post....it tells me that life goes on regardless.
You are all so great keeping chins up can't understand why bad things happen to good people....low is a godsend for support at our lowest ebb.
I can see a glimmer and know once the narcs are reduced and eliminated I will be a different person
Currently a bit of depression hit me....one of the occupational therapists really upset me with her attitude
Some of our professionals are government pawns and she kept stressing I had ten days left in rehab and then home regardless.
The other professionals have kept me reassured that home is out of the question if I don't pass all their tests which is how it should be.
The drug haze gets me down as it is but underneath all that I know I have improved one hundred percent and had started looking forward to being home....no place like it
Then she starts bullying...she has only just met me and whatever she wants me to do I will end up being better at it than she is.
Does anyone have an address for the Wizard of Oz?
I would like to spin some gold...
It's enough feeling like the scarecrow when he said during the wash and brush up...whoops...there goes another piece of me as he retrieved some straw and pushed it back in
 
Oh Trysha, as I have said so often, how I wish we could trade places with some of these so-called "health care practitioners" for a time. But yet again I like the Oz approach even better. Even in your drug induced state you are ever the poet with your symbolism and word useage and wit. I am glad there is improvement, even if there seems to be a Nurse Ratchett everywhere.
And lol, even when Doug told me about your post Kirsty regarding "extreme tubing" (we often discuss posts we find interesting), he had river rafting in his mind and I was picturing tubing down a white snow covered slope. It's funny how two minds can hear the same words and picture two different things. There are a lot of extreme winter sports around here, another thing Utah is proud of is our powdery snow and good ski slopes.
Well, Doug has paused a TV program for me and waiting to start it, so I'll just take this win and run.
(After I run to the bathroom :rof:)
 
Trysha so glad things are improving for you hun. Ignore that nasty nurse and just concentrate on getting better and out of there. Home is waiting for you...big hugs💕

Ron dont tire yourself out on the polls .💖

Big loves n hugs to all..keep your chins up ☺💞💝💋💋
 
Cold 8c but cloudless blue skies so we're off to the Marina up river with the bikes.We can get 5-6 miles in.mostly on the flat.I might have to push little Blackie up a couple of banks.
It's been on my mind lately to do some home decorating,but I'm really not in the mood.I'll wait until after the hols as Jan. & Feb. are horrible,depressing months.That way,we'll be all done for spring & summer.That's the plan so far,but watch this space.
Trysha,I wish I could take you for a "backa" that's a ride on my bike behind me,then we could stop for coffee and cake and look at the boats.Maybe next week ?
 
Trysha, I'm sure if you just head to Emerald City, you'll find the Wizard. Can you ask him for some ruby slippers for me? I'd like ones where I can tap my heels together and say, "There's no place like remission, there's no place like remission!" ;)
 
Cat-a-Tonic said:
Trysha, I'm sure if you just head to Emerald City, you'll find the Wizard. Can you ask him for some ruby slippers for me? I'd like ones where I can tap my heels together and say, "There's no place like remission, there's no place like remission!" ;)
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Me too.
 
Really enjoyed my bike ride.About a mile inland from the Marina is a lovely park.Lots of green space,3 duck ponds,bridges over streams etc. and the best bit,we had it all to ourselves.Took a thermos of hot Bovril (beef extract) and sat watching the ducks in the sunshine.Didn't want to come home,so did another couple of laps 'round the Marina then home, to home made soup and crusty bread.The same soup that caused my back problems last Friday hahaha.The pain is now down to a low grumble thankfully. Enjoy your day my friends.
 
For those who are in the US: Is anybody else REALLY nervous about the election? I'm feeling highly stressed out about it. I think it's affecting my guts (that, and/or I ate something that didn't agree) because I just had a bad bout of d. I haven't had to take any imodium in weeks but I just had to take one now. I feel very stressed and nervous and worried. I don't want to get too political or anything, but if a particular candidate whose name rhymes with "rump" should win, that's just honestly terrifying to me. I don't think he'll win, but until the election is over, I'm apparently just going to be a nervous wreck.

Carol, your bike ride sounds lovely! I should go to a park and watch the ducks, that sounds like a good way to de-stress a bit.
 
Carol, it does seem like the whole world is watching this election (because it will indeed affect the whole world depending on who is elected). It's a scary and stressful time. I really hope it will be okay in the end and that the US will elect the right person. I'm definitely going first thing Tuesday morning to get in line to vote. The polls close at something like 7 PM Tuesday evening so I'm going to be very stressed until then waiting to hear results!
 
I just looked at sewing patterns online and I feel a bit better now. :p Shopping and crafting are two of the things that make me happy, so shopping for crafting supplies is definitely a good thing (as long as it doesn't turn into hoarding). I think I'm just going to craft a lot this weekend (when I'm not at the football game). Maybe I can just sew and crochet away the time until after the election is over!
 
Cat-a-Tonic said:
For those who are in the US: Is anybody else REALLY nervous about the election? I'm feeling highly stressed out about it. I think it's affecting my guts (that, and/or I ate something that didn't agree) because I just had a bad bout of d. I haven't had to take any imodium in weeks but I just had to take one now. I feel very stressed and nervous and worried. I don't want to get too political or anything, but if a particular candidate whose name rhymes with "rump" should win, that's just honestly terrifying to me. I don't think he'll win, but until the election is over, I'm apparently just going to be a nervous wreck.

Carol, your bike ride sounds lovely! I should go to a park and watch the ducks, that sounds like a good way to de-stress a bit.
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Both sides are terrifying to me! Yes, this is very stressful. Pray for our country, that is all I can say.
 
Praying for America to make the righ choice. Sorry but Trump is the right name for him as he is full of hot air from what iv seen. Makes ours look good n thats saying something😕
 
Hi everyone. Long time no see. I couldn't login for a very long time, it wouldn't accept my password. No clue why! I see I missed out on a lot. But hope you are all doing okay. I missed you guys :)
 
I was just in a very reflective state for awhile, pondering why so many of us seem to have to endure so much. Of course, I am only human and have only my limited insights, but I look at how strong each and every one of you are, and how compassionate when many would tend to be bitter, and I just have to say I'm glad you're my friends. You have all taught me so much.
Ok, enough of the mushy stuff. I want my prize now. Winning.
:medal1:
 
Madhu is back! Yay! (And yes, the upcoming election is terrifying. Let's see, do we want someone in office that will alleniate every foreign ally and is a total narcissist and masoginist and not too bright, or do we want someone we know is totally corrupt, in it just for the power and money (and married to a masoginist and a bully to her husbands victims)? Either one of them having power and control over any aspect of our military, foreign relations, policy making sends shudders up my spine.
 
Aww thanks guys. It's true Sandy, when we see how strong these people are it puts me to shame. You are all my inspiration everyday :) The election gives me the chills. I have no idea how the US is going to choose the lesser of the two evils. Praying for the country!
 
Carol..that sounds delightful ...used to be an avid sports cyclist and I had the loveliest bike...alovely heliotrope colour and went like the wind.
A colleague at that time also had a speedy sports bike and we would race on the way to and from work
One morning he was late and it turned out he'd been stopped for speeding .....Kirsty..any news from the wizard yet
Thanks Ron Mandy and Cat and Sandy for all the support your are very kindhearted all of you and it make me feel better with all the help and comments
It's time to get out of this place but I must add that most of staff have been lovely and very helpful...only takes one.....
I feel tons better but the big ache just started again
I had intensive physio today so it brings the pain....but then no pain no gain.
I must keep exercising the leg with bed exercises....it's beginning to pay off but can't yet lift my leg off the floor.i have to do it otherwise it will not straighten in the future.
The nurse just brought the lovely not pills we all have to take
 
I found it Trysha


Dorothy's House and Land of Oz
Address:

567 E. Cedar St. (Yellow Brick Rd.), Liberal, KS
Directions:
East edge of town. One block north of US 54, at the corner of Virginia Ave. and Cedar St./Yellow Brick Rd.
Hours:
M-Sa 9 am - 5 pm, Su 1-5 pm; closed Mondays off-season (Call to verify)
Phone:
620-624-7624
RA Rates:
Major Fun
- See more at: http://www.roadsideamerica.com/story/2815#sthash.OukeB4Sk.dpuf
 
I'm nearly over my colonoscopy. I will ask gastro what went wrong on Tuesday when I swallow the pill cam.
 
I too loved my little racing bike. nothing better than getting the wind through the hair. Not so good for rainy days, and the pain in the terminal ileum when pushing on the right pedal was always a bit of a nightmare. think the dihydracoediene (sic) and steroids helped me cope thought ;-) I too hoard art craft stuffs, but worst of all is my dearly beloved books, I have way to many of them.

Cancelled my colonoscopy and stricture stretch for now. Gastro bloke phoned me up and we discussed me having the low profile tube again as my freka peg tube has kinks in it from the clamp. He said I could eat anything I wanted if I had my stricture dilated, so I said how does that make me become gluten, lactose and fructose tolerant. He admitted it wouldn't and didn't realise I had intolerances. I really can't stand this gastro bloke. First time I've had anything bad to say about one.

Hope you are all recovering from your ills at the moment. Get snuggled down and art/crafting, or be a bit of a bore like me and read loads.
 
I too am a book freak,I have about 30+ "must reads" stashed.I cannot walk past a book stall.It's a horrible day here,wild wintry showers,so might get some reading done.
Trysh,there's no chance of me getting done for speeding.My "little blackie" is a mountain bike and I can manage 8-10 mph on the flat,quite enough for my advanced age,me thinks.
Madhu,lovely to see you back.Techno glitches seem to be common.
Kirsty,so glad you're recovering from your trauma.I accidentally came across a tv program on the gut the other day.A doc.had the pill cam in full view of an audience.He prepped first,so that he was clean,swallowed the cam. and we saw it's passage into the stomach, then he ate a meal etc. an we saw the digestion process, all on camera.Then they showed fresh pig innards ,they are very like human innards.They even showed the feaces developing,but luckily stopped the filming at the illimination.It was mesmerising,but I'm easily entertained.hahaha.
 
good morning everyone from a sunny bright Dublin City , I'm feeling great and could be released from hospital by early next week , hope everyone else gets the great improvements I have had in the last 48 hours .
 
Hi Tony,good to hear you're doing OK,may it long continue.Bear in mind that the temps have dropped since your incarceration so make sure you wear your wooly vest when you get home.
 
Hey Tony, great to hear from you. Glad you are feeling so good [emoji4] big hugs [emoji847] and listen to Carols advice.
 
scottsma said:
I too am a book freak,I have about 30+ "must reads" stashed.I cannot walk past a book stall.It's a horrible day here,wild wintry showers,so might get some reading done.
Trysh,there's no chance of me getting done for speeding.My "little blackie" is a mountain bike and I can manage 8-10 mph on the flat,quite enough for my advanced age,me thinks.
Madhu,lovely to see you back.Techno glitches seem to be common.
Kirsty,so glad you're recovering from your trauma.I accidentally came across a tv program on the gut the other day.A doc.had the pill cam in full view of an audience.He prepped first,so that he was clean,swallowed the cam. and we saw it's passage into the stomach, then he ate a meal etc. an we saw the digestion process, all on camera.Then they showed fresh pig innards ,they are very like human innards.They even showed the feaces developing,but luckily stopped the filming at the illimination.It was mesmerising,but I'm easily entertained.hahaha.
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I am also an avid reader
 
My son's girlfriend just invited us to their place for Thanksgiving. It made my day. Remember Daylight Savings Time
 
Tony n Trysha keep improving you guys.. you got this !!💕💕

Oh yes its gotten chilly now as Carol n Diane says..im now in the cant get warm stage of the seasonal cycle..need some extra blubber. If anyone got any spare can you please post me some. Im not one to beg but in this case im begging...I NEED BLUBBER NOW PLEASE 😆
Hope everyone has had a good day n tomorrow is even better. Big hugs n loves 💕💕💋💋:ghug:
 
ronroush7 said:
My son's girlfriend just invited us to their place for Thanksgiving. It made my day. Remember Daylight Savings Time
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That sounds really nice Ron , great to be with family on the holidays and its something to look forward to .
 
Thats good not a long trip that will tire you out.. so Ron i hope you'll be having major fun at thanksgiving 😆
 
fuzzy butterfly said:
Tony n Trysha keep improving you guys.. you got this !!💕💕

Oh yes its gotten chilly now as Carol n Diane says..im now in the cant get warm stage of the seasonal cycle..need some extra blubber. If anyone got any spare can you please post me some. Im not one to beg but in this case im begging...I NEED BLUBBER NOW PLEASE 😆
Hope everyone has had a good day n tomorrow is even better. Big hugs n loves 💕💕💋💋:ghug:
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thanks for all the support

I dont think my wife will let me out without thermal underwear , shes gone into mama bear mode in the last few weeks ,
I need blubber too , I got the go ahead from the dietitian to do my best to increase mine with all the good stuff I normally would have to skip

meat all good and fried not grilled
all white bread just no greens and grains for a while , basically the opposite of a healthy diet until I regain the weight I lost ,
I was weighted today and i was 68 kilos , I need to get to 75 to be happy .
 
Tony H said:
good morning everyone from a sunny bright Dublin City , I'm feeling great and could be released from hospital by early next week , hope everyone else gets the great improvements I have had in the last 48 hours .
Click to expand...

Let's have a race Tony and see who gets out first...you or me.....maybe a tie....

Cheers!

Trysha
 
Kirsty..thank you for the address to Dorothy's house. I went fora visit...lovely.
Carol I could use one of those mountain bikes........
Spooky thanks for the support...
Winning.....
 
fuzzy butterfly said:
Tony n Trysha keep improving you guys.. you got this !!💕💕

Oh yes its gotten chilly now as Carol n Diane says..im now in the cant get warm stage of the seasonal cycle..need some extra blubber. If anyone got any spare can you please post me some. Im not one to beg but in this case im begging...I NEED BLUBBER NOW PLEASE 😆
Hope everyone has had a good day n tomorrow is even better. Big hugs n loves 💕💕💋💋:ghug:
Click to expand...
Mandy
Blubber is something you have to make...or visit the arctic and catch a whale...
What a tale
Might be easier for you to get some wool clothes..".
Actually if you keep you head covered and your feet warm the heat should stay in.
Feel warmer soon.....
 
I feel like I'm venting a lot lately. I'm having a rough time lately though. Yesterday and today it's been d, nausea, cramps, no appetite. I think I ate something that really didn't agree - I had a sandwich with a bit of lettuce on it, how silly of me. I *really* need to be feeling better by tomorrow though! Tomorrow's when I go to the football game. It's something like a 2.5 hour drive to Green Bay, although the drive will be broken up a bit (it's 1.5 hours to my parents house where I will meet up with my dad, and then about an hour from there to get to GB). My dad wants to take me to lunch before we head to the game and I'm thinking that either that's not happening, or I'll go but just order something really small, like mashed potatoes and just pick at it a bit. Food is so not my friend today, I can't imagine it'll be on great terms with me tomorrow. Ugh. I just need to survive this! I really want to see and enjoy this game, I hate when my stupid broken body has extremely poor timing like this. I will load up on zofran, imodium, bentyl, etc if need be tomorrow, I just have to be functional. Wish me luck! I'm going to need it.
 
Yes well I did visit the Emerald City...toured around quite awhile...soory your request was mis timed..Cat.
.next time I visit I'll look for some and get them for you.
 
It is bad to suppress ur laughter....it only goes back down to your hips.......
 
Trysha said:
Let's have a race Tony and see who gets out first...you or me.....maybe a tie....

Cheers!

Trysha
Click to expand...

I just hope both of us get released soon , my surgeon is suggesting Monday, I'm just praying I can continue with my progress ,
I took a chance earlier and went to the restaurant within the hospital and had a panini with cheese and ham , I think I have never tasted anything so so good ,
the hospital is great but the food leaves a lot to be desired esp the taste .
 
Cat-a-Tonic said:
I feel like I'm venting a lot lately. I'm having a rough time lately though. Yesterday and today it's been d, nausea, cramps, no appetite. I think I ate something that really didn't agree - I had a sandwich with a bit of lettuce on it, how silly of me. I *really* need to be feeling better by tomorrow though! Tomorrow's when I go to the football game. It's something like a 2.5 hour drive to Green Bay, although the drive will be broken up a bit (it's 1.5 hours to my parents house where I will meet up with my dad, and then about an hour from there to get to GB). My dad wants to take me to lunch before we head to the game and I'm thinking that either that's not happening, or I'll go but just order something really small, like mashed potatoes and just pick at it a bit. Food is so not my friend today, I can't imagine it'll be on great terms with me tomorrow. Ugh. I just need to survive this! I really want to see and enjoy this game, I hate when my stupid broken body has extremely poor timing like this. I will load up on zofran, imodium, bentyl, etc if need be tomorrow, I just have to be functional. Wish me luck! I'm going to need it.
Click to expand...

really sorry that you are suffering so much , over such a lot period of time , makes my troubles small in comparison ,
hope you are able to eat and enjoy some food and get to see and enjoy the game , luck and prayers your way

Tony
 
Thanks Tony, I'm mostly just a whiner - and your troubles are not small at all if you're in the hospital! And I'm slightly jealous, I didn't get to eat any of the food when I was in the hospital (colonoscopy prep followed by EEN when I was in, so I had Golytely which tasted like seawater, followed by Vivonex which tasted like wood chips). My hospital actually has a pretty decent cafeteria, too, and I didn't get to partake of any of their offerings. Glad you got to enjoy your sandwich! I'm going to attempt to eat some french fries when my hubby gets home from work.

Trysha, you sound like you're in much better spirits! I'm so glad to hear it and I hope both you and Tony get to go home very soon!

I'm happy to send both blubber (of the pred variety, so chubby cheeks and a chubby tummy) and warm weather to whoever needs it. It's sunny and gorgeous and almost 70 degrees F here which is unheard of for November. I need to hoard the nice weather for myself for tomorrow, because I'm not going to sit out in a football stadium in bad weather - but after tomorrow, I will try to share the nice weather with you guys!
 
Thanks Doug and Ron. I still don't feel well. I just took an extra 10 mg of pred in the hopes that it gets things calmed down (I also emailed my GI and will be calling him on Monday - and I have an appointment with him a week from Monday). I'm getting really anxious. I tried taking a nap a little while ago, but lying down made me too nauseous so I had to sit up. Ugh ugh ugh. I tend to over-worry, so now I'm getting worried that the flare is coming back and I'm going to end up back in the hospital. I REALLY don't want that to happen. But first things first, I somehow have to get through hours of driving and a football game tomorrow... it sounded so fun and like such a good idea when I asked my dad to take me to the game for my birthday. I just hate this! I want to go, I want to enjoy it. Right now I'm crying and don't enjoy anything and am just so sick of feeling sick. Sorry for venting, again.
 
Cat-a-Tonic said:
Thanks Doug and Ron. I still don't feel well. I just took an extra 10 mg of pred in the hopes that it gets things calmed down (I also emailed my GI and will be calling him on Monday - and I have an appointment with him a week from Monday). I'm getting really anxious. I tried taking a nap a little while ago, but lying down made me too nauseous so I had to sit up. Ugh ugh ugh. I tend to over-worry, so now I'm getting worried that the flare is coming back and I'm going to end up back in the hospital. I REALLY don't want that to happen. But first things first, I somehow have to get through hours of driving and a football game tomorrow... it sounded so fun and like such a good idea when I asked my dad to take me to the game for my birthday. I just hate this! I want to go, I want to enjoy it. Right now I'm crying and don't enjoy anything and am just so sick of feeling sick. Sorry for venting, again.
Click to expand...

vent away Cat , venting is like having a good cry , you feel tired afterwards but it takes the pressure away and generally you feel a bit better .
 
Please try not to stress Cat.I know it's easier said than done BUT we all know stress is a no-no.Try to put your enjoyment first,and please,please be careful with those meds.!!!

Mantra.....I can and I will enjoy this day,x
 
another bright sunny day in Dublin and I'm feeling good ,, listing to some good music and relaxing looking at the leaves falling from the trees .
 
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