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That's good Ron...hope the ride gets organized soon for you
Sandy that's good news and so nice to see you sooner
Madhu thanks for the encouragement...my delay is because of an adverse reaction...the replacement went well in itself and I'm just playing catch up now
 
Hi, I'm just waiting for the pillcam to exit the building, so to speak.

Our immigration requests have risen by 2500% over night.
 
Hi all hope everyone has a good day..im up for my 2nd 12hr day at work today.. so glad the extra hours meant i could have yesterday off. I slept most of the day and slept well last night. Really needed it and the complete rest(no housework etc).

Love n best wishes to everyone 💕💝
 
Sandy,Sandy,Sandy.... sigh.What are we to do with you ??? Your poor body (and Hubby).
It must be very stressful,not knowing what's going to happen next.Big Hugs to you and respect for your tongue in cheek cheerfulness.If I didn't know better I'd suspect you were trying to wangle out of marathon training.
Trysha,get home soon or your apartment might be commandeered for US.immigrants.
The web site went into meltdown yesterday.
 
f7b6cae32e6d332795e78c7f74c496a6.jpg


a90e090935802f00c22ffc84d00d28a9.jpg


Jammer and Wolf getting closer to each other.
 
Aura, I didn't even think about New Zealand, thanks for the idea! I think most of us here in the US who are thinking about moving are thinking Canada first, just because of the close proximity. NZ is so far away in comparison. UK is probably out because we're not sure what's going on with the Brexit stuff, but NZ and Australia are probably next on the list after Canada in terms of fantasizing about moving away.

I likely won't actually move. I'm a homeowner and I have a job and my family is all here, I have roots here. I am terrified all the same, though. It's definitely a big fantasy right now to move somewhere else, somewhere not so stupid. So I will keep NZ in the back of my mind. And thank you for the pictures of Jammer, I need all the puppy photos I can get right now.
 
Carol, never fear, come hell or high water I'm going to be there for that marathon. Also, come hell or high water I'm going to continue to reside in Utah for the next four years, minus scenic tours to various destinations (and a marathon) in my fantasy world.
Looooooove the pics Kirst. And Cat, I keep forgetting to mention, a post in reply to seeing your pics disappeared, but I tried to say "there she is. Hello lovely lady." It is nice to put faces to names.
 
Jammer and I have the same hair colourings. Wolf is a bit darker. But they all have a lot of hair just like me [emoji16]
 
Sandy, people think I intentionally picked pets with similar fur colors (and similar names!) too, but for me it was a total coincidence. I got my cat, who is black & white, and named her Lydia. That was in 2003. In 2010, I was looking for a dog, and ended up finding the perfect one through a lady at work who could no longer keep her corgi. That's my Lily, and she's also black and white. :p She came with the name so we didn't change it. Lily and Lydia, both black and white, totally not planned that way but sometimes things just work out like that. :)

I went a bit crazy at the craft store just now. I bought a whole bunch of yarn and 10 sewing patterns (hey, it was all on sale). Right now all I want to do is craft and avoid TV and avoid facebook. I got enough yarn to make a new blanket - I got the most calming colors I could find, cool soothing blues and greens. I just want to get lost in yarn and fabric and forget about everything else.
 
Ah well thats the two 12hr days done for now. (Till next year anyhow).
I surrived them Ron ☺ just...thanks for concern mate. Its not to bad really as it is just dressing up and milling around to help customers if they need it. Glad its over tho 😊
Aura how cute ..wolf n jammer getting along well.I see that they give you joy and you cant beat that can you..☺

Cat you lose yourself in yarn etc ☺

Love to all 💞💝💝
Sorry to those iv missed but my keypad on my phone keeps disappearing 😡
 
Morning all....off for a bike ride soon.Perfect day for it (could be a few degrees warmer though).....back later.
 
Thanks Ron,I really enjoyed it.We went along the coast a few miles then turned inland.
Very wet and muddy,but good fun. I can no longer walk the miles I cycle on little blackie.
I know walking is a better weight bearing exercise,so I hope the extra miles on two wheels make up for it....Lazy afternoon ahead with my book.
 
I think the main key is that you do exercise, Carol. Just a funny little tidbit, when my SUV was newer, i called it "black beauty."It's too faded and old to call it that now.
Winning then going back to sleep. ... zzzz ....
 
I made it through the flight across the US for my niece's wedding. I'm afraid of heights and claustrophobic so that's huge for me! (Ok, leftover Lorazepam from my MRI made me able to get on the plane without a meltdown) Day 2 with mother-in-law, sister-in-law, 2 brother-in-laws along with spouses and various pets sharing the same house and we are all still alive. Two days to go so stay tuned. It's warm (70ish) so my fingers, toes and nose are so very happy.
 
I need to whine (again). I apparently just cannot taper off of pred. I had to go back up to 20 mg recently. Tried tapering to 15 mg yesterday, today felt horrible and had to go back up to 20 again. Ugh ugh ugh. This is like the 4th time in a row that I've failed to taper. I am afraid I'm going to be on pred forever or be in this flare forever (or both). I hate this! Was hoping to get my dog out for a walk in the woods this weekend, but now it's looking like I just need to rest and heal and recover from my latest taper fail. Not happy! (Good thing I bought all that yarn yesterday!)
 
Cat, I hated pred. Was nightmare to be on it so you have my sympathy.
My car is called the Blue Angel. Never had a name for my bikes though. My campervan is called Franz-Fritz cos he's a German VW.
Don't think I could win anything on a day like this. I mean i'm going to sit and read all snuggled up lol.
 
Spooky1 said:
Cat, I hated pred. Was nightmare to be on it so you have my sympathy.
My car is called the Blue Angel. Never had a name for my bikes though. My campervan is called Franz-Fritz cos he's a German VW.
Don't think I could win anything on a day like this. I mean i'm going to sit and read all snuggled up lol.
Click to expand...
Enjoy,
 
Spooky, that's pretty much my day as well. Curled up in my pajamas and a blanket, and I'm reading "Wild" by Cheryl Strayed. What are you reading?

I also have named my car. She's a Japanese car so I named her Yumi. :)

And yeah, I'm not sure which is worse, being stuck on pred or being stuck in this flare. Either way I'm really stuck! :( I see my GI on Monday, fortunately. Hopefully he'll have some ideas (I want to try LDN, and he wants to do more testing).
 
Lol, it's funny how many of us name our transportation. Doug's car is a hybrid Honda Civic, and because they have done what they can to keep the gas mileage economical, I called it "the gutless wonder" much to Doug's chagrin at first, but he has since acquiesced and calls it that himself occasionally.
Cat, I'll be thinking of you Monday while your at your GI. That also happens to be the time I see my cardiologist's office. Hope we all get some answers and you get your LDN. I haven't felt exactly right the last couple days myself, and Doug isn't well either. I wonder what it would be like if we could just all get well for awhile? Every one of us! Hope you're surviving your visit Shanen. And Trev, don't you have anything to say for yourself these days? I miss the days when you would stick around a little more. Trysha, the release date is getting ever closer! Everyone else, well, all of you, hang in there. I'm off to find that yellow brick road myself...
 
Sandy, Doug and Cat I hope you all start feeling better soon. You remind me that my grandfather referred to his cars as Bessie.
 
Hi all iv not named my car yet..tho i have reffered to it as bertie bagwash on occassion. Why i dont know!!😕
Aw Cat,Sandy,Doug. I really hope you feel better soon my friends..big loves n hugs 💕💕
By the way im having a touch of trouble withe the site im having to log in nearly every time n i didnt used to and im took to page 83 tho at to mo we are on 85 ??.. i can live with it but finding it a bit of a pain. Any one else having this happen ?.
:ghug:💕💕💕
 
Feel better soon Doug and Cat. What a nice thing to have happen Ron. I had an old yellow truck once I called "The Banana Wagon". The wedding today was beautiful with the ocean in the background and flowers still blooming.
 
Aww...Couldn't happen to a nicer person Ron
I have page problems too Mandy and the keyboard covers the writing area so I have to type blindly sometimes
Doug sorry to hear you are in relapsing mode...hurry up and feel better
Carol,Sandy CAT SHANEN...Hope you will soon be better
Just two more days and I will be outta here...can't wait
Yesterday my blood froze ...the site was showing some inflammation...the nurse practitioner
On the ward drew black circles around it and said the surgeon would be up to see it.
So blood was taken...sigh...and the doc did not arrive till next morning.
Fortunately it returned to a nice pink colour by this time....was I relieved....
I have to get home from here it's a better environment in which to recover.
The docs and nurses have done a splendid job now it's my time to finish the healing.
Looking forward to my long walks again in the future as long as no "C" rears its ugly head
as it seems to have done for some of my friends on this site.
You all get better...hear now...
Christmas will soon be here with pretty lights and lots of cheer...
Winning...
 
Oh boy i want one...

Trysha so glad it settled down. Roll on escape day. You will feel better being home hun 💕

Hope everyone feels much better soon. :ghug:
 
Kirsty & Trev., Just got the awful news of the earthquake.
I hope both you and your families are safe.:ghug:
 
We are safe I'm just waiting to see if tsunami is heading this far around from wellington. It was a hell of a quake.
 
Aura said:
We are safe I'm just waiting to see if tsunami is heading this far around from wellington. It was a hell of a quake.
Click to expand...

good to know you are safe , hopefully the tsunami won't be bad , it must be a terrifying thing to experience .

shout out to Layla , hope you are safe and sound as well .:ghug:
 
My parents I think are evacuating for a few hours in Lower Hutt, going up a hill. I've spoken to mum she's scared. But all ok.
 
Kids are so brutally honest, Ron, but that makes good teachable moments for them. Just explain matter-of-factly and they will be fine, and more understanding of what you are going through. Sometimes it helps if you explain it like "how would you feel if...", they tend to develop more empathy that way.
 
Kirsty and Trev be safe....keep safesuch an awful thing to happen to you
 
SandyUte said:
Kids are so brutally honest, Ron, but that makes good teachable moments for them. Just explain matter-of-factly and they will be fine, and more understanding of what you are going through. Sometimes it helps if you explain it like "how would you feel if...", they tend to develop more empathy that way.
Click to expand...
I wasn't sure what to say so I said they were bumps. Hope you and Doug are better.
 
Just a tiny better, but not great. Hope you are feeling better. I know you were worried about being able to make it to church, glad you were able to do that. (We did too in spite of crazy sleep hours for me.) Worried about our NZ friends, hoping aftershocks aren't causing big problems.
 
Hi guys, bit shakey here but we are ok. Talked the doc into giving me a b12 injection today, so hope that helps as they cant find whats causing the bad fatigue. I am on here most days, but dont comment because of the brain fade, dont know whats going on, but been getting worse over the last few months. Doesnt feel like normal crohns fatigue.
 
Glad you're ok after earthquake. Those slips near kaikoura are soooo big. Take ages to shift all that. The road and rail damage is huge too. I'm tired today but mainly cause I didn't sleep last night waiting to see if we needed to get to higher ground. Check out www.stuff.co.nz for latest videos and photographs.
 
I'm glad to know you've been hanging around Trev, but sorry about the fatigue and "brain fade."
Thanks for the link Kirsty. I can't imagine how frightening it must have been for all of you.
 
Glad your ok Trev. Sorry your stuggling with the brain fog n fatigue,i do to but found that my dropping down on the tramadol has helped a bit. Maybe see if any of your meds maybe having an affect. 💕
 
Urg. As I knew I would be, I'm now scheduled for more heart tests, another echocardiogram, a nuclear stress test, and I get to wear a holter monitor (starting Wednesday) for a couple days. Hope your appointment goes well Cat. Hope things aren't so shaky in NZ. Hope everyone else is as well as can be, and you're all still training for Carol's marathon. Trysha, only a day to go before you get to fly the coup!
 
We've had over 800 aftershocks now, I'm just glad you don't feel all of them all of the time, that would make one utterly miserable and stressed. The rain and wind are here now, oh joy! Glad no one was hurt when the Clarence River burst through and created a 15m wall of water running down towards the sea. I really want to know why the rafters and kayakers thought it would be a good idea to be there post earthquake? The rain will most likely create more slips on top of exisiting slips.
 
Aura said:
We've had over 800 aftershocks now, I'm just glad you don't feel all of them all of the time, that would make one utterly miserable and stressed. The rain and wind are here now, oh joy! Glad no one was hurt when the Clarence River burst through and created a 15m wall of water running down towards the sea. I really want to know why the rafters and kayakers thought it would be a good idea to be there post earthquake? The rain will most likely create more slips on top of exisiting slips.
Click to expand...
My best to all
 
Thanks Ron, today the Navy will get to Kaikoura to relocate stranded tourists and relieve hospital and emergency service staff. They also have helicopters going in too. Bless the local marae in kaikoura that accommodated 600 people, local Maori have been awesome in making provisions available, imagine feeding 600 when you didn't plan for it.
 
Can't stop worrying about you all Kirsty.At least you and Trev are safe though,and that's good.Neither of you need the stress on top of everything else.Hugs to you both.:hang:

Trysha,I hope your escape is going as planned.Make sure you pack everything,you don't want to have to go back for anything.I've put a pan of soup in the chiller for you and a nice rice pudding for afters.;):getwell:
 
Trevs area copped the wind yesterday. We got the ☔️ rain. I'm just glad I don't live in the city.

Trysha, I too hope the escape plan is underway.

I'm going back to sleep for a couple of hours, I'm still tired.
 
Keep safe Kirsty n Trev :ghug:. So sorry for all involed it must be horrendous!!!

Big hugs to all. Hope those feeling rough feel better real soon 💖💕💝
Those feeling good hope you stay good. 💚💛💜
 
Trysha said:
Good news at last...estimated discharge date.....November 15....hooray...
Can't wait...
Click to expand...

Hey Trysha , hope the plans for release are going well , hoping and praying for you , once you get home you will feel a lot better .:soledance:
 
Hope you are still improving too, Tony! And I hope all goes smoothly for you Ron. Kirst and Trev, all I can say is to echo Ron's "wow," and apply it in oh-so many ways. You are one strong bunch of people.
 
I'm glad to hear that you NZ folks seem to be okay - stay safe! How very scary! I was in Japan earlier this year when they has those terrible earthquakes, but those were on a different island (I was on the "big island", Honshu, and the earthquakes were on the smaller southeastern island, Kyuushu). It was all over the Japanese news channels and it looked awful. I hope this earthquake isn't as devastating as that one was and that you guys continue to be okay with the aftershocks and everything. Keep us posted!

I had a decent GI appointment today. He wants me to try some med called Lotronex, but if that doesn't work or doesn't work well enough for me, then I get to try LDN!!! Which is what I've been wanting and asking for literally for months. I'm excited! I just have to try this other med first and call my GI next week and let him know how it's going. I'm really hopeful for LDN, I feel like it could be the thing that gets me back into remission. I am putting the cart before the horse, one thing at a time, but I'm just really happy that my GI is open to me trying LDN. :D
 
I've been out of touch and missed a lot here. Prayers to all affected by mother nature and not so great health. I'm happily at home after all the travel and family activities. Stomach bug and diarrhea is working it's way through the wedding party and associated family members. I'm hoping I've escaped it. Onto digging my way out of 3 days worth of accumulated stuff at work tomorrow. Hugs to all. :ghug::ghug:
 
Shanen said:
I've been out of touch and missed a lot here. Prayers to all affected by mother nature and not so great health. I'm happily at home after all the travel and family activities. Stomach bug and diarrhea is working it's way through the wedding party and associated family members. I'm hoping I've escaped it. Onto digging my way out of 3 days worth of accumulated stuff at work tomorrow. Hugs to all. :ghug::ghug:
Click to expand...
Best to you,Shanen.
 
Sorry, I can't stay away from LOW right now. Kirsty, I just saw pics of some of the flooding in Lower Hut (and wellington). Are your parents ok? Did any of you have property damage of your own? Those roads look like a mess.
 
Kirsty good to know you are safe and continue to be safe...thank you for your warm wishes even in the midst of your own trials you found time to wish me well...how kind and thoughtful
Hope Trev is ok too
Tony thank you for the good wishes and the lovely strawberry you sent
Carol..I am really looking forward to that soup as soon as I land home
Sandy...hope all your tests will go smoothly for you...it's no fun having tests requires great strength
Mandy thank you for the kind thoughts and you take care now also
Ron how are you...do you have a surgery date yet
Shanen be sure and outwit the bugs surrounding you....you will escape..staywell
Finally I would like to thank you all so much for the encouragement and support you gave me during this stressful time....I can't believe the day is here well nearly and can't wait to see my own spacious apartment. Not that my hospital digs are small..in fact quite large with a lovely picture window and beautiful views of the Niagara Escarpment plus a walk in bathroom and all mod cons...bit like a hotel suite.....it is an isolation room because they
Gifted me with MRSA........aren't I lucky,, and
Time to sleep....to sleep perchance to dream..... about walking and running...getting ready for 🎄 Christmas
 
The joys of life, check out the flooding www.stuff.co.nz mum and dad are ok [emoji108] the river burst first stop bank but not the second one. Steve stayed home, just as well... Monday you weren't allowed in and today you can't get out. The joys of Spring.
 
Trysha said:
Kirsty good to know you are safe and continue to be safe...thank you for your warm wishes even in the midst of your own trials you found time to wish me well...how kind and thoughtful
Hope Trev is ok too
Tony thank you for the good wishes and the lovely strawberry you sent
Carol..I am really looking forward to that soup as soon as I land home
Sandy...hope all your tests will go smoothly for you...it's no fun having tests requires great strength
Mandy thank you for the kind thoughts and you take care now also
Ron how are you...do you have a surgery date yet
Shanen be sure and outwit the bugs surrounding you....you will escape..staywell
Finally I would like to thank you all so much for the encouragement and support you gave me during this stressful time....I can't believe the day is here well nearly and can't wait to see my own spacious apartment. Not that my hospital digs are small..in fact quite large with a lovely picture window and beautiful views of the Niagara Escarpment plus a walk in bathroom and all mod cons...bit like a hotel suite.....it is an isolation room because they
Gifted me with MRSA........aren't I lucky,, and
Time to sleep....to sleep perchance to dream..... about walking and running...getting ready for 🎄 Christmas
Click to expand...
My stomach is acting up. My surgery is the 23rd.
 
Won't be long then Ron....hope it works it's magic for you
Hugs and prayers for the best outcome
Kirsty see you are up late too...how are the aftershocks...have they subsided yet
Just had some pain Meds...waiting for their magic......
Winning.....
 
I keep getting drawn to that link Kirsty (the one before the cows), that's where I saw the info about your floods and pics of road conditions, etc. (even before you put the link up again today).
My poor baby Allie is a bit unsettled tonight. She's been having "fly bite" seizures, it's a type unique to dogs, they literally look like they are chasing flies only they can see. We described this kind of behavior quite a while back to the vet, actually said it looked like she was chasing invisible flies and he told us it is actually a seizure, literally called a fly bite seizure! Sometimes a soft voice and gentle pets and touches can snap her out of it. It took a little longer tonight, but she finally is sleeping. At any rate, at one point when Allie started moving around, for a split second I thought we were having an earthquake, silly me.
Thank you Trysha for your well wishes on my testing. I think the thought of the testing is why I have been a bit unsettled myself, so just projecting my nervousness on anything else (like earthquakes).
We had one of our hired girls helping with housework today, and that was nice. (Esp since she got more done than I would have been able to.) Then I got the sewing machine out, but couldn't find my foot pedal. Will find it tomorrow. Need to alter some clothes. Maybe I'll even get a craft project out. :)
Those poor cows! Glad they are safe now.
 
So much going on here im afraid i would miss someone out if i did this individualy... so best wishes, big hugs, big loves n support to all my crohnie family. Thinking of you all and hoping for better n happy times for everyone 💗💝💜💕💟💖💞💋💋💋
 
You're right, Mandy. Everyone is going through something big here. Rooting for you all, guys.
 
Hugs to everybody! Group hug!

I'm finally having a better day. Just started a new med (Lotronex) and will start LDN fairly soon if this new med doesn't help enough. Even before starting the new med, my appetite started returning and I've felt more like a human today. Hubby is taking me out for sushi tonight, yum yum! I hope everybody else is having a better day today, too.
 
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