Last one wins PG version 2.0

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Status
Not open for further replies.
Sorry you are having such a hard time getting your prescription for LDN, Cat. Regarding the craft room, I think both of us are not hoarders, we just need bigger houses, right? (After all, a three bedroom house for the two of us that share the same bedroom is surely not big enough, is it?:ylol2:)
 
Jammer is more precious with each photo! We are moving within the same city, just a newer house and a quieter neighborhood. Currently we are in the middle of a blizzard with fierce winds and snow.
 
Yep, my GI is trolling me. He just responded to my email, saying that he's very busy this week but he's "looking into" LDN. Um, just prescribe it, dude! If you have time to send me an email then you have time to send a prescription over to the compounding pharmacy! Why is this so difficult? Ugh! I wrote him (yet another) email saying I don't understand why there are all the delays and asking what he still needs to look into - I mean, he already agreed that I can try LDN, we discussed dosages at my last appointment (starting at a very low dose and working my way up to 4.5 mg which is the recommended ideal dose for LDN) and his nurse recommended a compounding pharmacy in town. Sooo, I can't think of anything else he'd need to do other than just write the stupid prescription already.

Sandy, I'm honestly fine with my house being small - that prevents me from hoarding too much. :p If I had a bigger house I'd just fill it with more craft supplies and more pets, ha ha.

Shanen, yikes, I hope that blizzard misses us! We've had snow flurries here today briefly but fortunately no blizzard. We've only had one snowstorm so far, which dumped 5 inches of wet & heavy snow on us on Sunday, but that's been it so far for snow (knock on wood!). I hope the blizzard doesn't impede your moving efforts too much!
 
The forecast is calling for our second snow storm of the season to move in later this afternoon. Temperature on my car's thermostat was only 17 F this morning. High temperature will be under 32 F today. It is getting downright cold here.
 
It's going to get cold here too. It's currently 34 and sunny here (the flurries went away and the sun came out!), but it's going to get colder after today. It's supposed to be in the 20s, then the teens, and the 10-day forecast is currently predicting a high temp of 4 degrees 10 days from now. Eek, brr! So I'm going to take a walk outside today while I still can without freezing. At least it's 4 degrees above zero and not 4 below? But when it gets that cold I don't know that it makes a lot of difference. Stay warm, Doug and Sandy! And Shanen! And everybody else in cold climates!
 
Oh, was it cold outside? I didn't notice.:eek2:
Back from cardio appt. The good news is I don't have heart valve blockages. The not so worried about by the doc's office news is that I have some premature heart beats in addition to my supraventricular tachycardia. The not so sure how much to worry news is that I have "mild pulmonary hypertension", (pulmonary hypertension is high blood pressure in the arteries of the lungs. It makes the right side of the heart work harder than normal), not to be confused with regular hypertension, and how much to worry depends on the cause. It can be really scary, even if just in mild stages at present. More tests coming, lung function tests Thursday, leg ultrasound to check for deep vein thrombosis (DVT) next week.
 
And I guess it was cold outside. There is an area in Utah that has one of the coldest locations in the contiguous United States, called Peter Sink. It is a (large) naturally occurring sink hole, where trees can't even grow at the bottom (the bottom is where cold air gets trapped). Today it was -46F.
Screenshot_2016-12-06-23-32-24-1_zpsim0rbtuy.png
 
Yep, it gets cold there, but the temp at the bottom of the sink hole and on top of what they call an air "lake" can be as much 70°F. It's crazy.
 
Temps up by 10c since the weekend !!!! what's going on here ?
I too have a little house.Well it's a flat (apartment) actually.We sold our house 7yrs ago as it was far too big for two.We live directly opposite and the new people have let the place go to wreck and ruin.We were there almost 30yrs and had it just as we wanted.
This place is big enough to manage BUT we do have an attic which is steadily filling up.One day soon it WILL be sorted,maybe that will be my new years resolution instead of growing my hair.......Naaah !!!
 
Interesting info re the sink hole Sandy.

Carol that must be hard to watch.

Soon Jammer and I get to spend a couple of weeks with Steve in the South Island that will be good.
 
Sandy, that made me so cold just reading about it! Brr!

Carol, that's got to be so frustrating. I'm in sort of the opposite situation - the people who used to live in our house, they did not treat the house well at all. They were apparently chain-smokers (it took ages to get the cigarette smell out), they did very shoddy or questionable repairs (a door was nailed shut rather than put a deadbolt on it, instead of insulation they stuffed a blanket into one wall, etc), and the house itself was hideously ugly. The previous owners apparently loved pink - the outside of the house was pink (we've since painted it tan), many walls inside the house were pink. The kitchen was hideous with old broken appliances and dark green walls that made it feel even smaller than it was. We knocked out some walls, got new appliances, new cabinets, built a mantle in the living room, painted, made a lot of updates and proper repairs. There's still work to do (the bathroom is still pink & brown), but we've turned a very ugly house into a very cute little home. I kind of wish the previous owners would come by sometime so that we could show them how nice of a house it is with some proper care and work put into it. (And less pink!)
 
It got up to 15c today,very pleasant but weird for December.We had a walk into town as it's viewing day at the weekly auction house.There is an immaculate sofa bed,very comfy to sit on too.Les is going to bid for it tomorrow.He needs a new sofa and it would be useful for Scott when he comes to stay.We have a spare room but we use it as a dressing/ ironing/office room.We bought a double air bed for him last time and had some fun with it going down and squeaking when he moved position.So watch this space,I hope to get a bargain.We could have left a reserve price on it but we might get it cheaper if we bid.I'll be so disappointed if we don't get it,but we can get a new one in the January sales.
 
Good luck Carol! I have similar plans. I'm moving all my craft things into our "office" (a third bedroom space) or downstairs if not used much, and changing the craft room into guest room myself. It might have to hold a craft table tho, no room in the office with other things already there or being moved there. But at least we'll have a guest room (and have a futon stored downstairs we can move up to use as a bed.)
 
My wife and I would like to downsize our living conditions. Our house is too big for us and our two dogs. She has been designing it for some time, not a microhouse, but small.
We want to sell our current house and have a less labor intensive place. Not so much upkeep would be good. I feel I've been working on this house for a hundred years. I enjoy DIY, just don't have the energy anymore.
Season's greetings to all.
 
Good luck, Carol! I hope you win the auction and get your sofa bed! That definitely sounds better than an air mattress. Last time I stayed over at my parents' house, they offered me an air mattress, but I said I'd prefer to just sleep on the couch (just a sofa, not a sofa bed) instead. I am not a fan of air mattresses.

Sandy, we have a 3-bedroom house as well, and one of the bedrooms was at one point a guest bedroom. It's slowly morphed over time into a home gym. So it's got a futon and a dresser for guests, but it's also now got a treadmill and an exercise bike and a weight bench and lots of smaller things like dumbbells and resistance bands, etc. Guests can technically still stay over in that room, but at this point we have to lug the treadmill out of the way to fold down the futon into a bed. :p Which I guess isn't totally a bad thing because I don't really like having guests! At some point when we put more work into our basement, we might put a home gym down there and then we could have a proper guest bedroom, but for the time being that room is about 75% gym and 25% guest bedroom.

I almost laughed when you said you were moving your craft supplies to another room - there's no way I could do that, I've got WAY too many craft supplies, they really do need their own whole room. I have 2 sewing machines and I'm getting a new one for xmas, seriously. (I swear I will get rid of one of my existing machines once I get the new one!) And my craft room does house some of my pets and their supplies, as well. I have 2 gerbils, so their cage and all their accessories occupy part of that room. My cat's food dish and litterbox also are in that room (we have a baby gate over the door which the cat can get through but my dog can't, so the dog cannot get in to eat the cat's food/poo). So I guess technically it's a craft and pets room.

Dave, sometimes I fantasize about moving to one of those micro/tiny houses one day (maybe downsize to one in a few decades if/when I'm able to retire?) but with my pack rat (okay, hoarding) tendencies, I don't know if I could ever realistically make that work. I like stuff too much. :p Out of curiosity, how small is the house you're designing? My house is a little less than 1,000 square feet, and I don't know if I could realistically go any smaller than that.
 
Just got back from my G.I. appointment. My Dr. has already filed an appeal to the insurance company. If we win the appeal, weekly Humira is what I'll do. If not, then we will move to Entyvio. Hopefully, I will have heard by the end of the week. In the meantime, he is supplying Humira samples so I can have the medicine to inject weekly.

If the insurance denies the appeal, then we will look at changing to Simponi or Entyvio.
 
Hi Dave, very nice to see you. That would be awesome to design your own place, and make it more maintenance free. We enjoy having a house but can't keep up with the projects ourselves right now, tho trying to catch up a little, hoping being more organized helps. Cat, my craft room was already overflowing with nothing else in it like pet needs. I think you would be aghast at what I actually have (and a lot more stored downstairs.) I'm getting rid of some stuff, (a lot actually), but also just redistributing between several places the other things.
We do need a guest room for when Doug's brother comes to visit for about a week at a time every year or two, or a very occasional overnighter by our former foster son. (Putting them on the couch is getting old.) We are anticipating the foster son staying with us on Christmas Eve this year, as he often has. Even tho he is now in his thirties, he's like a kid because of disabilities, and it makes Christmas fun having a "kid" around (if he doesn't get too excited and bounce off the walls to the point of bad behaviors.)
Hope you all are as well as can be. :ghug:
 
Got that Kirsty,thanks so much.I'm smiling like a fool !!!!


Two cannibals were eating a clown and one said to the other "does he taste funny to you "?
 
Carol, glad you are smiling. People that drive past or those we walk past smile and laugh too.
 
Chooks are good, laying varies a bit at the moment. About 4 eggs a day now. Mentally I'm good, physically I'm stuffed. Still on low residue diet, abnormal bloods is my new norm I didn't have a normal test for the whole of 2016. I fixed the vacuum yesterday, now it goes like New. Bugger really, as I want a new battery Dyson stick.
 
Chooks are good, laying varies a bit at the moment. About 4 eggs a day now. Mentally I'm good, physically I'm stuffed. Still on low residue diet, abnormal bloods is my new norm I didn't have a normal test for the whole of 2016. I fixed the vacuum yesterday, now it goes like New. Bugger really, as I want a new battery Dyson stick.
I think our son might get my wife a Shark vacuum for Christmas. Not sure. I go back to the surgeon today. Hope he takes all the bandages off. Glad my wife didn't marry me for my hair. 😊
 
I don't care what vaccum,I just want someone to do it.

Kirsty sweetheart,lifes such a struggle for you sometimes eh ? But you never seem to let it get you down,or do you keep it to yourself ?
Ron,I married for money....but he was lying.And he's got very little hair left.
 
My husband also has very little hair left. He looked into hair plugs, but when he found out how much they cost, he invested in some nice hats instead. Ha ha.

Sandy, I think you would be equally aghast at how many craft supplies I have. Like I said, I have 2 sewing machines and am getting a new one. I have 2 large totes of fabric plus a large box with scraps of fabric, a laundry basket with more fabric, oh and another basket with fleece fabric. I had a basket for my yarn and then I got another basket for yarn and then a 3rd basket for that which is now full to overflowing, and now I also have a utility cart to put my yarn on so that I can wheel my crochet projects around the house and work on them either on the couch or in my craft room. I also have a utility cart for sewing projects. I had one tote that I filled with sewing patterns, then that got full so I got another box to put patterns in, and when that was full I got a crate to put patterns in (that's also now full). I have several small totes full of thread, including 2 that I inherited from my grandma as she's no longer sewing. I have enough sewing needles to supply an army (if armies do sewing?). And I have so many containers full of random things like beads, rhinestones, clasps, clips, broken jewelry, jewelry-making components, jump rings, chain maille rings, glue, pens, pencils, markers, feathers, faux flowers, scrapbook paper, stickers, you name it and I've got it. I have a dress form and 2 mannequin heads. I have literally anything and everything that could possibly be used for crafting. It amuses me when my hubby is working on an art project of his own and he asks me, "Honey, in your craft room, do you have...?" It doesn't matter how that sentence ends, the answer is yes. :p
 
Oh, Kirsty, that was awesome! Both of your "boys." I've never seen a cat stay walking so willingly with its owner (and with a dog, on top of that!) You definitely have a magnetic personality. :)
Today is lung function test day. I wish I could be more like you Kirsty, all my medical things turning out more and more abnormal, but I'm am emotional wreck.
 
I didn't see your post, Cat until after I had posted mine. I guess I will acquiesce and say we're both hoarders.:ylol: You do have more yarn, because a lot of mine got destroyed in a flood in the basement, but everything else sounds like we are in about the same boat. Maybe I have more of one thing and vice versa, but sounds very similar.
(Allie is giving me dirty looks because my alarm keeps going off telling me it's time to get ready for my appointment, and she still wants to sleep, but it's hard with that thing making noise so close by. Ok, Allie, I turned it off.)
 
Oh, and I completely forgot to mention in my post above - buttons! I have so many buttons! Maybe 15ish years ago, my grandma said she wanted to give me her collection of vintage & antique buttons. She had about 10 checkbook boxes full of buttons. We sorted through them - many were broken, rusty, etc so we threw some away and I ended up with 4 checkbook boxes full of buttons and figured that was that.

Nope! Maybe 5 years ago, my grandma came to me and said she wanted to give me her collection of vintage & antique buttons. I was confused and said she had already given me her buttons. She sheepishly confessed that she had a lot more. How much more? Oh, about 10,000. Literally. She had a banker's box full to the top with buttons. I put the box on my bathroom scale at home and it weighed 45 lbs! It took a long time to sort through all those, and I estimate there were at least 10,000 buttons in there. I've been slowly putting some on etsy and selling them off, because even I know that I do not need 10,000 buttons. :p (I kept some for myself, but the vast majority are slowly being sold off.)
 
Ha, Sandy, I think we posted at the same time. Well, at least we both admit we are hoarders! Admitting it is the first step towards healing, right? ;)
 
Ron,I married for money....but he was lying.And he's got very little hair left.
that's brilliant , I tease my wife by saying i only married her because she was a great cook , she lied as well , her mother was doing the cooking , she just delivered the food , its just as well that I'm quite a good cook and she takes advantage by telling me that all the time but I still love her :heart: after nearly 30 years this January .
 
that's brilliant , I tease my wife by saying i only married her because she was a great cook , she lied as well , her mother was doing the cooking , she just delivered the food , its just as well that I'm quite a good cook and she takes advantage by telling me that all the time but I still love her [emoji813] after nearly 30 years this January .
Terry and I had our thirtieth in September.
 
I think our son might get my wife a Shark vacuum for Christmas. Not sure. I go back to the surgeon today. Hope he takes all the bandages off. Glad my wife didn't marry me for my hair. 😊

best of luck today Ron , hope you get the bandages off ,
I know the feeling about the hair , :lol:
 
I have been wanting a roomba so much, but I fear it will just make me more lazy. I am lazy enough to use the light weight stick vacuum these days
 
Madhu, I'm on my 3rd roomba. :p Old age killed my first roomba and pet hair killed the 2nd one. This 3rd one isn't even a name-brand roomba, it's a cheap made in China knockoff. I will say, one good thing about the name-brand roombas is that they have a sensor that detects stairs - it can tell when it's at the top of a stairway and will not fall down the stairs. So, it turns out that the cheap knockoff versions do not have that sensor. This knockoff roomba that I have now, it's fallen down our basement stairs and landed hard on the concrete floor several times now. To its credit, it still works! But we have to be really careful now about making sure the basement door is closed when it's running.

The other thing about roombas you should know is that they will not replace a vacuum. You'll still have to vacuum, just not as often. Roombas and knockoff roombas are more like sweepers than actual vacuums - they do a decent job of sweeping up little bits of pet hair, dust, dirt, etc from the floor. But they do not have suction like a vacuum does so they will not get the deep-down dirt that gets down into rugs/carpet, they only really get the top layer of dirt and that's it. I have pets, and I find I still have to vacuum every 1-2 weeks even when I'm running my roomba every day. It's a good supplement to getting some of the pet hair and dirt off the floor, but it's definitely far from perfect.
 
Oh wow Cat, I did not know I had to vacuum too with it. Then it definitely won't help me. We live in a small apartment just enough for the 2 of us, with no pets. So no issues with staircase. I guess I just have to stick with my stick [emoji14]
 
I thought a roomba was a dance [emoji2]. Looked it up and could not believe how expensive they are
 
I have an electric carpet sweeper (G.Tech) it's my second one.I should have said re-chargable battery sweeper.I love it.It picks an amazing amount of muck up.I usually only vac.weekly,but the sweeper's used daily.It's very light and manuverable.Cost about £69.
Didn't get the sofa from the auction.Now for plan two.
 
Carol, I've been down all year. I feel everyday is a struggle there is pain, discomfort from one end of Gi tract to the other. I'm tired of low and high sugars, migraines, low sodium and copper. Tired of abnormal bloods. But each day I wake up again, breathing and try to find something to enjoy and be happy about.
 
Tony, that's why I bought a cheap knockoff and not a name-brand roomba this time! The name-brand ones are very pricey. The knockoff that I bought was less than half the cost of what one of the low-end roombas would have cost me. My first roomba I had gotten on ebay for something like $50, and my second roomba was bought highly discounted on sale, so I've never paid full price for one.

Aura, I love your attitude of trying to find something good each day! I need to be more positive myself, I definitely complain too much. I need to look for the good and not just complain about the bad. I've been thinking about starting a gratitude journal - just think of one good thing each day and write a little bit about it. I think that would help me be more positive. I'm sorry you're having such a rough year, I think it's been a bad year for everybody (it has for me; my grandpa died and I had my worst flare ever and first hospitalization). Hopefully next year is MUCH better for all of us!
 
Hi all - no roomba for me. I've thought about it as I dislike to vacuum but haven't purchased one. It'll be 30 years married for hubby and I just after Christmas. Time sure goes by.
 
(Wordy, as usual.)
Several things to say, not in any particular order. Jealous of the button collection, have a smaller one tho, married Doug for his beautiful wavy grey hair and money, but I gave him a lot more grey and spent all his money (and also gave him a few slightly thinning spots as well). I have a shark vacuum just recently bought, love it, would like a Dyson stick as well but no place to keep it plugged in to charge, thought of starting a gratitude journal myself, thankful I didn't pass out in my lung function test today, and thankful for my friend who drove me when I did not feel safe driving (shared some fun stories too). I'm sorry everyone here is dealing with horrible health, glad Trysha said "boo" again (hope you're able to post if you want to), glad I don't have chickens, they scare me. Ever hear of a chicken phobia before?
I hope the moving is going well, Shanen.
Tony, I'm glad you're there because it reminds me not to complain QUITE as much. I know it isn't attactive when someone whines all the time. I remember when you said "pouting is an evil weapon and should only be used sparingly." The timing of you saying that was interesting...
I realized not long after joining this forum how we in the US are perceived internationally as, well, sniveling and spoiled complainers, not so much thru what was said to us directly on the forum, but more thru the strength and lack of sniveling and complaining by others (and little bits of info I have received thru the years in non-forum areas about perceptions of Americans). It made me want to be stronger and not complain so much ... for a while and to a point. Then I realized I couldn't stop being who I was and that my "pouting" as it were was what helped me survive at times. I do realize there are limits, however. Lastweek I watched a PBS program on the telly (lol, I said "telly" automatically, picked that term up here, most USers say "TV") where a professor at a local university who studies the verbage used, words chosen, in same language but different cultures situations. Long story shortened, he explained how some cultures, using the same language, consider one way of expressing oneself as rude while in another culture it is the opposite, and in some cases expected. For instance, in some cultures when someone is expressing something negative (whining), some cultures perceive that as they are asking for help and offers suggestions, while another culture would just perceive that as a form of self therapy, and offer empathy. If the person is expecting possible solutions to their problem, they might consider it rude to only get "I'm sorry" comments in reply, or on the other hand, when someone is only looking for a shoulder to lean on, they might feel offended by "unsolicited advice." Even tho this world is ever shrinking, cultures, and just individual perceptions of the human experience, can make things complicated. This place (the forum in general) has helped me grow a lot. Even if just debating who is the biggest hoarder. And I always like Ron's :).
 
Sandy, I've not heard of a chicken phobia specifically, but I did know someone who had a bird phobia. It was quite bad, he was absolutely terrified of all birds. He wouldn't even mow his own lawn (he made his wife do all the yard work) because he was afraid that a bird might swoop at him. So yes, it's a real phobia and therefore I would imagine a chicken phobia is a real thing too.

Gosh, everyone's been married a long time! That's great, everybody. :) My hubby and I just had our 14th anniversary in September. And if you count dating as well then we've been together for 18 years as of this month.

As for being rude or perceived as rude in other cultures, I'm sure I was so unintentionally rude at times in Japan - I did all sorts of things that the Japanese think are unspeakably rude, like I blew my nose in public, and I laughed with my mouth open. I talked on the train. I probably didn't bow the right way at the right times, and I probably only said the casual "arigato" (thanks) instead of the more formal "arigato gozaimasu" (thank you very much) at the wrong times. I tried not to be rude, but there are always going to be cultural differences and you're always going to end up offending somebody just because of the differences. All you can do is try to be nice and polite and not be a jerk. If somebody thinks you're rude because of some cultural difference but it's not at all that you were intentionally rude, that's just not really something you can help. Sometimes people just like to concoct things to be offended about, anyway (don't even get me started on the whole "merry xmas" vs "happy holidays" nonsense). You can't please everybody.
 
Just clarifying, I think we are all open minded, kind and wise enough here to know that there are a) cultural differences no matter what, and b) no-one in this group has purposefully offended another. And of course, nobody likes everything about everybody, but we all do the best we can. I can also say I have personally never felt offended by anyone here, (did have differences with one person that used to be here in non-forum situation) even in the beginning days of LOW when the norm was to purposefully take little jabs at each other, but these "insults" were all meant in fun and not taken personally. It was all in the spirit of "winning". Kind of like I always tell my foster son, we only tease the ones we love.
 
Cat, my wife and it were married September 13th.
I went back to the surgeon today. I am off a weight limit as far as what I can lift. They have some new policy where after sixty days after surgery you don't have to pay for an office visit.
 
:) I like that, what you told your foster son about only teasing the ones you love.

I like most birds. I had a cockatiel when I was in college and he was quite the character (he loved my roommate though, so he went to live with her when we went our separate ways). But my uncle and aunt had a lovebird who was just awful (fittingly, they called him "Tiny Satan") and my in-laws had a quaker parrot who was a horrible bitey little thing. He bit HARD. I was not sad when that bird passed away.

Ron, Sept 7th is my anniversary. :) Glad to hear you're allowed to lift things again!
 
I have personally never been offended here either. Love you all. I don't know what I would do without this group.

Oh, and hubby and I have been married for 3 yrs now. Dated for 7 yrs before that. He was diagnosed with crohn's less than a year after our wedding. It was only 5 months since we had moved to the US. This experience brought us both closer than ever. It also gave me so much perspective and respect to all you brave crohn's warriors :)
 
I think my lung function test played havoc with my lungs. I never want to have that test done again either.
 
Well I can beat you all anniversary-wise.We had our 50th anniversary on Sept.10th.

I've spent the last 3 days on my own trying to perfect the art of escapology....
I really should get out more.
 
Hooray! I just got a call, my GI *finally* sent the LDN prescription over to the compounding pharmacy!!! I'm overjoyed, it seems like I've been waiting forever for this day! And ironically, this isn't even the day. :p I get done with work at 5:30 PM and the compounding pharmacy, which is on the completely opposite side of town, closes at 6 PM. With good traffic I might have a chance of making it there in time, but in rush hour traffic, not a chance. So I will go first thing tomorrow morning when they open. Tomorrow's the day! LDN! :D :D :D

I'm starting at a lower dose, 2 mg to start with, and if that goes well then I'll move up to the normal dose of LDN which is 4.5 mg. Wish me luck!
 
Thats great Cat....at last its sorted. I really hope it does the trick hun. Very best of luck heading your way 💕💕
 
Well I can beat you all anniversary-wise.We had our 50th anniversary on Sept.10th.

I've spent the last 3 days on my own trying to perfect the art of escapology....
I really should get out more.

Carol, Houdini was so good at escapology he's not been seen for years :wink:💕
 
I think my lung function test played havoc with my lungs. I never want to have that test done again either.

Sandy im sorry the test caused you such trouble hun. Hope you feel better soon and you dont have to have a repeat any time soon 💕💕
 
I have personally never been offended here either. Love you all. I don't know what I would do without this group.

Oh, and hubby and I have been married for 3 yrs now. Dated for 7 yrs before that. He was diagnosed with crohn's less than a year after our wedding. It was only 5 months since we had moved to the US. This experience brought us both closer than ever. It also gave me so much perspective and respect to all you brave crohn's warriors :)

Hi Madhu..i agree never felt offended myself and appreciate all the help and support i have recieved here, not to mention the love, care and concern i have been given..i also love everyone here too .
Hope you n hubby are well💕
 
Cat, my wife and it were married September 13th.
I went back to the surgeon today. I am off a weight limit as far as what I can lift. They have some new policy where after sixty days after surgery you don't have to pay for an office visit.

Good news Ron on the weight restriction being over. The 60 days free visits are cool and very handy cash wise il bet....💕
 
Mandy....haven't seen you around for a while.I was about to send out a search party.
I expect you're busy at work helping Santa,while I'm sitting here bored to tears.
Going to the Xmas market in the town square tomorrow to do a bit of "Bah Humbugging"
 
Still not well, can't stop coughing after lung test and heart doesn't really stop racing anymore. But Allie's feeling no pain. (Tee hee, not really Allie, of course, but Boston's can make some funny faces at times.)
IMG_20161210_20628_zpsti21cwbv.jpg
 
Sandy, have you told your doctor that your lungs and heart are still doing these things after the test? I don't know a lot about heart and lung stuff, but that doesn't sound good to me. Hopefully there's something your doc can do to help get things calmed down again.

Speaking of pets on drugs, my cat was recently on prednisone. It was helping with her over-grooming issues (she gave herself huge bald patches and even licked herself so much that she was raw and bleeding in spots, it was not good). The pred fortunately helped her a lot and her fur grew back. But now that she's off of pred, her personality is different. She's SO much more mellow now. On pred, she'd wake us up with meowing at 5 AM for food. Now she sleeps on the bed with me all night and I have to get her up in the mornings. I put food in her dish and she lazily gets around to eating it, rather than immediately scarfing it all down and begging for more. I guess her mellowness is just how she is without pred? It's such a drastic change, though, has me slightly worried. She's 13 and is sort of now looking and acting like an old cat.
 
Sandy,let your doctor know.
Talked to my father yesterday. Caretaker says he doesn't recognize people anymore.
 
Ron, I saw my grandma today, she has Alzheimer's/dementia as well. She still knows who I am but she couldn't remember my name. It's difficult when the people you care about start to forget you, but don't take it personally - it's not them, it's the illness.
 
Sandy,let your doctor know.
Talked to my father yesterday. Caretaker says he doesn't recognize people anymore.

Thanks for concern, Cat, Ron, etc.Long story but Cardio's office aware of faster heart, but I was told not to go to ER, was given Rx for additional meds that only make minor difference, but cardio office not aware of cough since lung test. Thought cough was an asthma reaction (apparently potential complication of lung test when looked it up) at first but cough and racing heart (at varying degrees) have continued and now it's the weekend, cardio's office closed of course. I know the tech of lung test was concerned (she of course can't give results, has to come from doc), when she asked if I had someone to drive me home (a friend drove me, I didn't dare drive with racing heart), but that isn't usually a requirement. I know I'm not in good shape, but ER made it clear only to go there with life-threatening condition, which is only time I ever have gone if I felt it was possibility, so now it's hard to know when to go. I've been keeping eye on oxygen levels (I have home oxymeter from when on oxygen) which are mostly ok. I'll go in if heart goes over 120 for any length of time (120 is recommended rate for those with PH to consider emergency, my rate is usually between 100 and 120, occasionally for short bursts lower, occasionally for short bursts higher) or I get too short of breath. Otherwise, will call doc office Monday morning.
 
Last edited:
I have to add my mother with dementia doesn't recognize grandchildren faces if they haven't been around her a lot. So far, she recognizes her own children's, tho. Who she's talked to and when and about what is almost a complete loss, tho.
Allie, who is 13ish and per breed standards has a lot of years left, has also really slowed down, but still has occasional bursts of energy (her heart is good, lol). It's the arthritis, colitis and a common form of doggy seizures that get her. She sleeps a lot, but thinks everyone she meets should let her jump on their lap for ear scratches and belly rubs. She loves everyone,including cats if they let her nearby, but not dogs. And she wants to kiss everyone with her very bad doggy breath.
 
Cold weather has moved in making fingers stiff and toes cold. Making it a bit difficult with so much left to do. Take care Sandy.
 
Yesterday, I noticed bruising on the leg where I had the graft. Today, it seems to have spread. The surgeon wants me to call in the morning.
 
Oh, Shanen, I hope most of your moving chores are indoors at this point. I don't like frozen stiff fingers either. Ron, I hope that bruising is nothing worrisome, but good you are having it checked out.
Today, I'm grateful for animals (I'm tempted to say including Doug here :ytongue:), and pictures of animals that make me smile.
Winning.
Collage%202016-12-11%2016_38_22-1_zps5z8enzjo.jpg
 
Yeah Packers indeed! That was a great game! I'm worried about Rodgers though, it seems like he's injured. Hopefully he's okay by next week...

LDN is going fine so far, no side effects. No noticeable benefits yet either but it takes awhile to kick in.

I'm grateful for my warm, cozy home. We got another bunch of snow (not sure how much, maybe 7 or 8 inches?) so it was a really good day to hunker down in the house. We cooked a turkey in the slow cooker and I'm baking banana bread muffins now, everything here is warm and cozy and lovely. I wrapped xmas gifts and did some sewing too (still have more to do, should really get back to it!). Winning! :)
 
About 1am, back from 3rd trip to ER this month. Good news, no additional testing needed from cardiologist (other than what they are already doing) and not a permanent condition this time. And ER was as nice as they could be (I think it is only the one ER doctor that I've had a problem with.) Apparently after lung function test I developed pleurisy (inflammation of the lining of the lungs), but this too shall pass. Glad to know what it was, and that it isn't more serious.
 
Last edited:
Sandy, that's good that it's something that will heal and go away! 3 ER trips in a month is no fun, though. Hopefully you won't have to go there again for a long while.

I think LDN is helping already! The people at the compounding pharmacy said that, in addition to it helping my IBD, it might help other things as well, so they told me not to be surprised if I find myself feeling better in other ways. And I think that's what's happening - my bladder feels better than it has in a long time. For the first time in a long while, I didn't have to get up in the middle of the night to use the bathroom, and I didn't have to urgently pee the second I woke up this morning, either. I mean, I did have to pee, but there was no urgency, and my bladder feels less irritated than it has in a long time. It almost feels like... a normal bladder??!! Holy cow! I've been taking claritin as well, which has been helping somewhat (apparently allergy meds can help bladder issues, who knew?) but it only helped to a certain extent. There was still some urgency, some irritation. So I don't think this is the claritin. I think this is the LDN!

Also, my guts are way less gurgly. Sometimes they'll go on for a long time just gurgling and bubbling after I've eaten, it's quite loud at times. Yesterday my guts gave one loud gurgle, and I figured, oh here we go. But nope, that one gurgle was it! I don't know if that's LDN's doing or not, it's literally only been 2 days on LDN. If this is LDN helping, then it's absolutely a magical drug! Less gut gurgles and a not-irritated bladder, that's a definite win!
 
I should clarify, the pluerisy not permanent, the pulmonary hypertension is (but severity still to be determined).
Still, it's a beautiful day out there (tho cold) I have Doug (and dog :)), and I'm feeling a lot more peaceful. It helps that my heart decided to stop racing as fast for no known reason, that part was really getting to me.
I'm so glad your LDN seems to be helping, Cat! There is nothing like a little relief, is there?
The other day I did manage to get out for a short bout of "retail therapy." (I did use one of those electric carts provided as I couldn't walk for more than a minute or two at a time without heart racing even more than already too fast) I bought fabric for a tree skirt for a table top tree I had one of "the girls" put up and decorate, yarn to make a big bow to go on top (my full sized tree toppers won't work) and a handy dandy crochet hook set that folds up like a Swiss army knife. Haven't got very far on any of it (who knows which packed box my crochet hooks are in right now?), but have a couple projects to work on while I recover from the pluerisy.
What does your doc say about your leg, Ron?
How is everyone else?
 
Supposed to talk to him this afternoon. Experiencing some pain especially when my wife puts Vaseline on the area that was grafted.
 
Carol, you're allowed to feel miserable for no reason, sometimes life is just that way. Although if it continues, maybe look into being assessed for seasonal affective disorder. I might have a touch of that myself and I'm looking into buying a sun lamp as I've read those can help.

Sandy, I'm glad to hear you can work on projects while recovering, having creative distractions is always a good thing. I have a few sewing projects that I need to finish up myself - I'm making a pillow for my youngest niece, I got a pattern for a pillow with 4 different pockets. In each pocket I'm going to put a little gift (crayons, mittens, etc). And I'm also making pillowcases for my cousins and my brother - I'm sure I've already told this story, but I can't remember in which thread, so bear with me if you've heard this already. When we were little, staying overnight at grandma's house meant we got to use the coveted Bambi pillowcase. There was only one and you were special if you got to use it, it was a thing of legend amongst the 6 of us. So, when cleaning out my grandma's condo recently, I found not only the pillowcase, but also a Bambi sheet. I'm using that sheet to make pillowcases for all of us. It's a silly thing but it's special to us, we still love that stupid pillowcase. :p So this year, everybody gets a Bambi pillowcase even though we're all adults now. I got all the fabric cut and pinned yesterday (it was almost painful cutting up that Bambi sheet, it felt like I was cutting up a part of my childhood!). And I got 3 of the 6 pillowcases sewn yesterday, so I just have to sew 3 more and then I can mail them out. I know my cousins and brother will be so happy. (And yes, because I'm the one taking on this project and doing all the work, I am selfishly keeping the original Bambi pillowcase for myself!)

Edited to add: I realized that might be confusing, that I'm sewing 6 pillowcases and keeping the original, which makes 7 pillowcases total, but there are only 6 of us grandkids total. My oldest cousin is the only one with kids, he has 2 children, so I'm sending him 2 Bambi pillowcases so that his kids could each use one. Sorry if that was confusing, I should have added that part.
 
I love the sentiment behind that story, Cat! Carol, I just watched a program yesterday about how Charles Dickens "A Christmas Carol" came to be. It was a most delightful story! (And yes, everyone is entitled to a few "bah humbugs.") But don't forget we're having a Christmas party here, and we'll cheer you right up. :)
 
Ron, I can relate, I miss my grandpa. This will be the first xmas without him. I miss my grandma too even though she's still here - I miss the fully functioning person that she was before dementia came in and started stealing away parts of her. But, I feel so fortunate that I was able to grow up with such an amazing grandma. I bet you feel similarly about your father. It's hard to see people who are so severely affected by dementia and not feel sad about how much they've lost, and by association, how much you've lost too.

Sandy, yes, I am excited for our xmas party! I will bring some low-FODMAP snacks (dark chocolate, yum). When do we start marathon training?
 
Hi all...glad that Lnd is seeming to help Cat hope it continues to do so. 💕
Sandy glad you found out the cause of your lung issues and can get better. Hope the racing heart settles soon.💕
Ron glad all is well after your visit to the doc.💕
Carol sorry your feeling down hope you feel brighter soon 💕
Love n hugs to all 💕💝💞
 
I will be glad when I get all my bandages off. The one on my leg keeps coming lose and I have drainage or bleeding issues. I had a lesion removed three years ago and didn't have this issue.
 
Status
Not open for further replies.

Latest posts

Back
Top