Last one wins PG version 2.0

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Status
Not open for further replies.
Hey everyone! Hope you all are feeling better! :)

Came back from my visit to the hospital today. Good news: GI doc said that feeling dizzy after taking Azathioprine is normal in the first few weeks, but I think that the side effects are not as severe as before already. Blood work came back normal, albeit on the low side, so GI doc increased my dose of Azathioprine to 50mg.

Dietitian increased my food intake by twice the amount, so now I'm only doing 31 scoops of Modulen instead of 33.5. If all goes well, I may be able to add some vegetables into my diet after a couple of weeks. I know that my dietitian is just being really conservative, but at least something's better than nothing :')

Hope that everyone here has as great a day as me. If you haven't, I'm sure tomorrow will be better. Keep fighting everyone! :ghug:
 
Some of our trees have tiny green tips and others have tiny leaves.Snowdrops are in abundance, as are crocus,and the daffodils are getting taller each day.Birds are getting ready for the nesting season,so I hope the weather is going to be kind to them.It's been another good winter here so far.We've made the effort to go cycling the last couple of days as it's been cool but sunny.Going to get out every good day from now on,except weekends,when there are too many people about.
 
Here are my attempts at pics
5322525a486664627c8b801802d3698a.jpg
932fca482cb634a3accc1ebe2f8ead99.jpg
 
Had a flurry of snow today whilst at work...then came the rain.😕

The tree of life is cool Dave...even though im not a tattoo fan ☺
 
DAVE.....I like the tatt.but I love the dogs more..They are so beautiful !!! Dobby (GSD ?) looks very like one of my beloved shepherds.It's been many years since they went to wait for me over Rainbow Bridge but it brought a tear to my eye.
 
The tree of life is cool Dave...even though im not a tattoo fan ☺[/QUOTE]
Perhaps you haven't found the right one?
 
Na im a tattoophobe Dave. I love the art work of them dont get me wrong, i just prefer they were on paper. Just my way i guess ☺
 
I've seen too many bad tattoos to trust someone to give me a good tattoo. My hubby is of a similar mindset, he's very artistic and he wouldn't trust anyone besides himself to do a tattoo on him, but it's probably difficult/impossible to give yourself a good tattoo. So neither of us have tattoos. I'm just slightly OCD, and if I got a tattoo and something was just slightly "off" about it, I'd probably go crazy and end up scratching my skin off to get the stupid thing off! So it's best for me to just not get a tattoo at all.
 
Cat,

I am with you on that OCD thing. I have seen some pretty bad tats. Dave's seem to have turned out well though mind you. I would really have to do a lot of research before I would ever dare to get one. I probably never will.

Hope you are feeling better,

cmack
 
Cat-a-Tonic said:
Cmack and CYY, I didn't understand much of anything there either, but I find it fascinating. How did you guys learn to do this sort of thing? Do you take programming classes? I'm sort of obsessed with this robot band from the 1980s (look up the Rock-Afire Explosion on youtube - if you remember Showbiz Pizza, they were the in-house robot band). Sometimes old robots from the band come up for sale online and I have a secret wish to buy one and fix it up and make it work again, so I'd love to learn how to do electronic programming for an animatronic robot. I have no idea where to begin though! Any tips for someone who'd like to learn but is completely clueless?

GI Jane, a canoe is fairly heavy though - I have 2 kayaks, and although one is large and heavy, the other is small and inflatable! I'd go right over the side in a second if I tried "going" on that boat. :p That's the boat that worries me, if I was in the middle of a lake and had to go, I'd really be stuck!
Click to expand...

True dat...I've tipped a few times in my in laws kayaks but they at least live on a lake so easy to take care of when it happens.

My brother was and is into robotics. I remember the first one he did was so not impressive since it was only and arm and box lol.....ya the whole writing code and such dang takes time. Probably not as hard as 10+ years ago when I was doing some of that.....we have a rumba here and it take all self control I can muster to not take it apart to see how it works and they built it....always loved doing that to my mom's heart ache.
 
Hello Everybodyi cannot read such tiny print without a magnifier.
What has happened to the website?
Has anyone else noticed the print size has become very small on LOW
 
Trysha said:
Hello Everybodyi cannot read such tiny print without a magnifier.
What has happened to the website?
Has anyone else noticed the print size has become very small on LOW
Click to expand...

I swear most computer sites have tiny print....but I think my meds mess with my vision too.
 
I agree Ron not natural. It's the best way though they say to find out things. Sorry. I cramping so bad right now with my heating pad on my tummy. I made the mistake of saying I'm feeling pretty good today....I think it was the turkey jerky.
 
Hi everyone I just finished working for the day. I found out that I get my first infliximab infusion next Tuesday at 11:30 am. I'm just resting now, today was hard on my brain. I face planted in to the computer today. Now I'm lying on the sofa.
 
Aura said:
Hi everyone I just finished working for the day. I found out that I get my first infliximab infusion next Tuesday at 11:30 am. I'm just resting now, today was hard on my brain. I face planted in to the computer today. Now I'm lying on the sofa.
Click to expand...

Glad to hear your treatment is starting, Kirsty.
 
Mine too Trev.Also my page size increases so that I have to move from left to right and back again to read posts.It usually puts itself right after a while.
 
I'm here. Doing OK. Sandy is getting over broncitis. She went to PT today and I went with her to a cardiac lecture. Her PT was at 7 am. I am pretty sure that she went home and back to sleep.
 
Ron, we've had some storms here too. Yesterday evening we had a very impressive thunderstorm, very heavy rain and tons of lightning! My poor dog was almost too scared to go to bed - when it thunders, she always goes to one specific corner of the living room which we call "the sadness corner". Because there was so much thunder, she didn't want to leave the sadness corner to go into her crate at bedtime. I finally managed to coax her out of the sadness corner with lots of treats and then she went into her crate voluntarily but I could tell she was still scared. Poor Lily.

And today we've had a snowstorm which has gone on all day. It's the pretty kind with big puffy flakes of snow. And fortunately, it's all melting as it hits the road, it's not sticking so the roads are not bad.

Doug, thanks for the update. I hope Sandy feels much better very soon! And oh my, what kind of horribleness is PT at 7 AM!? I am not a morning person and I really would not want to do PT that early, yuck!
 
It was sunshine when I left the house. Then we got rain and wind. Doug, I hope Sandy is well soon.
 
Cat,

When there is thunder, or there are fireworks, my dog runs and hides! I once found her with another dog under the neighbors porch at just after midnight. We were watching the Canada day fireworks and she went MIA. It was scary at first, but kind of cute, they were all snuggled up together. My old mutt with a pitbull. LOL
 
That's a lovely story cmack...and after you rescued your dog what happened to the pit bull?
I know they have a bad reputation but they are not all bad...depends on the training and the trainer...in my opinion .
Did you ever see the old black and white movies of Our Gang?they were a group of kids with a pit bull pet forever....very touching.
Sandy ...hurry up and be well again...
 
Thanks for your concern everyone. Allie and I spent the day on the couch, both of us not feeling well. I'll tell more about it later, suffice it to say for now that being ill sure gets old. But I'm alive and better than even a couple hours ago. Tomorrow I have a regular check up with GP to go over diabetes and a bunch of things.
I loved all the pics, they did do a great job on your tats Dave. Your dogs are so beautiful! When I was a kid I was afraid of dogs, until my uncle who previously lived in New York moved here with his German Shepard and a St. Bernard (and the rest of his family). Those were the first dogs I ever appreciated, but it took me a few more years to really like most dogs (after I moved in with a roommate whose dog adopted me, followed me around, and not the dog's owner so much anymore. :blush:) I don't know what I'd do without them now.
We have had more snow recently, but it was sunny and warmer today, so that was nice. A lot of Utah has had the biggest precip ever on record for the past six month stretch, which is good for our previously drought stricken reservoirs, but a lot of smaller communities have had flooding. We're fine where we are though. I will just be glad when spring is here. On the way home from PT and the lecture, I bought myself a nice bouquet of flowers to add some spring color (well, actually green and purple tones) to my house to remind me of what is not too far off. Thought they were rather pretty.
More later, I hope all of you feel better that aren't feeling well, and stay well for the rest of you.
20170301_215248_zpsluz4qsvp.jpg
 
Hey Sandy good to see you are doing a bit better , hope you get over this bad run of health soon , sending positive thoughts and prayers your way ,
hope everyone else is doing better as well .
 
I know I should be sleeping, someone tell that to my brain and my body!
 
Hi Kirsty....how well I know that feeling...you have my sympathies.I have a pocket radio under my pillow for a sleeping draught....and if that is slow to work I use games on the iPod...both things rock me to sleep sooner or later.feel better soon
 
I think I've mentioned this before K., but have you thought of a night shift job?
We were watching a N.Z TV cop prog. yesterday.10/7 ? I must say I was suprised.I always got the impression that N.Z. was a sleepy,quiet country......but things are getting worse world wide these days......I blame the parents, hahaha
 
Sandy, glad to hear you're feeling a little better. Yes it does get old and some days the little better is huge. I sure miss my dog. He was a wolf/malamute mixture lived 15 years best dog in the world. Never bark just do the growl thing and that wasn't very often so we paid attention when that happened. Take care and praying for good report tomorrow at doctors.
 
scottsma said:
I think I've mentioned this before K., but have you thought of a night shift job?
We were watching a N.Z TV cop prog. yesterday.10/7 ? I must say I was suprised.I always got the impression that N.Z. was a sleepy,quiet country......but things are getting worse world wide these days......I blame the parents, hahaha
Click to expand...

I've been into Midsomer Murders on Netflix and getting sad that I'm on Season 8 with only two more to go....hate it when a good series winds down. Have to search for another one.
 
Trysha,

I knew where the pitbull lived(her name was Lady) she came with me too and I brought her to her owners down the street. They were out looking for her as well, we had to laugh! Tough looking, but just a big fraidey cat.
 
Carol, I think that's just cop TV shows in general. I was watching a Japanese crime drama awhile back and they showed a number of shocking things - domestic violence, suicide, murder. The show made it seem like those things were very commonplace. But before my trip to Japan, I did some reading, and in my reading I found that the crime rate in Japan is extremely low. At most, I could expect that someone might steal my umbrella if I left it outside of a store. I literally read that in Japan, you can be a woman, by yourself, at night, waving around wads of cash and yelling "rob me!" and nobody will bother you. :p They'll think you're crazy, but they won't rob you. And it's true, I didn't try waving around wads of cash, but I had no issues at all and didn't ever feel scared, even in downtown Tokyo at night. And nobody stole my umbrella either. :) So don't believe everything you see on cop dramas, it's not really indicative of actual crimes or the crime rate of a place.

Sandy, good for you for buying yourself flowers! I think I've vented about this before - my hubby used to work in a flower shop back when we were dating, but I can still count the number of times on my fingers that he's sent me flowers, with plenty of fingers left over (and we've been together for over 18 years - 4 years of dating and 14 of marriage). I got sick of wanting him to buy me flowers, so I decided that whenever I want flowers, I'll buy them for myself. That's worked out well for me. I consider it part of my self-care. You need to get yourself presents and that includes flowers. :)
 
Hey! I bought her flowers a couple of weeks ago, for Valentines day. I might not do it very often, but I just did it! OK. Done feeling guilty now.
 
I wasn't blaming you, Doug! I didn't intend for it to sound that way. But, do totally use that guilt and buy Sandy flowers more often. ;) She deserves flowers, she's had a rough time lately. I didn't get any flowers on valentine's day but I did buy myself chocolates and a stuffed animal. :p I think I might buy myself flowers soon as I've had a rough time lately too. In fact, everybody in this thread, go out and buy yourself flowers! We've all had a rough time and we all deserve flowers. :)
 
Hey Doug, my sweetie pie, you buy me flowers just the right amount of times. It may not be often, but it means more that way and it is enough. I wouldn't want it any other way. I just bought the flowers as a treat.
I again had a day I never want to go through again yesterday. I am sure it was a combination of a lot of things, overdoing the day before because pred gives me that occasional extra boost I never have on my own (when I do more then I am used to I always regret it regardless) having to get up earlier than normal for physical therapy, having a few days where I would start to get a migraine aura then it would go away, but was was always threatening, plus as Doug mentioned my three month cough (part asthma and part bronchitis ... I hope not related to heart involvement ... and not as bad with the pred but still there), then yesterday I could feel some irregular heart beats and was tachycardic for several hours even after a nap. Getting up to use the bathroom would raise my heart beat by about 20 beats per minute for about 5 to 10 minutes, so all I could do was lay there. It didn't help that Allie's tummy was giving her troubles and she wasn't eating. And she threw up. So we just hung out on the couch together. If it had lasted much longer I would have had to go to the ER again. But it didn't.
I still haven't been to my doc appointment today. It isn't until 3 and it is only 11 a.m. right now. Will let you know how that goes. Afterward I have one of my girls coming to help clean.
Okay, enough griping for today. Going to see if I can be any productive at all.
 
cmack said:
Trysha,

I knew where the pitbull lived(her name was Lady) she came with me too and I brought her to her owners down the street. They were out looking for her as well, we had to laugh! Tough looking, but just a big fraidey cat.
Click to expand...

Before a fence that you can't see through with put up in place of a chain link fence, Allie used to "guard us" from our backyard neighbors Great Dane. A lot of great danes are gentle giants, but this one was not socialized to people or dogs. It was funny to see this under 20 pound dog of ours try to keep this huge dog at away from the fence line.
 
Alex is a very friendly dog but he will also bark if he hears something outside of the house he doesn't like or if he hears someone he knows and is eager for them.
 
GI Jane said:
I've been into Midsomer Murders on Netflix and getting sad that I'm on Season 8 with only two more to go....hate it when a good series winds down. Have to search for another one.
Click to expand...

I've never watched it,ever.No reason,except there must be something better on another station.I do wonder though just how many murders there can be in one community.
 
My old girl still tries to scrap.(a whopping 20 pounder) She thinks she is a heavyweight! Her scrapping days are over if she only knew it. Silly girl. I think she is better to stay on the leash these days, we don't need a vet bill. LOL
 
GI Jane said:
I've been into Midsomer Murders on Netflix and getting sad that I'm on Season 8 with only two more to go....hate it when a good series winds down. Have to search for another one.
Click to expand...

I know how you feel about your dog GI Jane , 15 years is a long time , and lots of great memories I bet ,
as for Midsomer Murders season 8 is only half way through the series , they are still making it ,

https://en.wikipedia.org/wiki/List_of_Midsomer_Murders_episodes
 
cmack said:
My old girl still tries to scrap.(a whopping 20 pounder) She thinks she is a heavyweight! Her scrapping days are over if she only knew it. Silly girl. I think she is better to stay on the leash these days, we don't need a vet bill. LOL
Click to expand...

some dogs never grow old , in there heads they are still puppies full of life and every day no matter how down or sad you are they find a way to make you laugh ,
a friend of mine left his car door open a few days ago and Joey (my golden retriever )decided he wanted to go for a drive ,

https://goo.gl/photos/an4wZCLYbHssTeed7
 
Tony H said:
some dogs never grow old , in there heads they are still puppies full of life and every day no matter how down or sad you are they find a way to make you laugh ,
a friend of mine left his car door open a few days ago and Joey (my golden retriever )decided he wanted to go for a drive ,

https://goo.gl/photos/an4wZCLYbHssTeed7
Click to expand...

That's cool. I like that kind of personal story.
 
Take care Sandy.

I have twin cats who think they're pretty fierce...through a window. When someone comes in the door they loose their footing racing through the house to hide. 😅
 
They will probably send me to the specialist before making a decision but my GI might want to make a change in my medication.
 
Hey Ron , hope they get your meds sorted soon , you really deserve a break from all the problems you are having lately , sending prayers and support to you .
 
My dog still acts like a puppy as well, and she's 8. She also acts so tough sometimes, she's a corgi and she really has to prove herself to larger/taller dogs (which is practically every dog!).

Shanen, my cat also thinks she's super tough through the screen door or window. She'll act like she's going to pounce on birds that she sees. But, if I take her outside on her kitty leash, she's suddenly a big scaredy cat. :p A bird once landed near her, and she freaked out and wanted to go back into the house! Too funny.

My grumble of the day - my heating pad broke! :( I'm having a bad belly morning (I had ice cream, with nuts, yesterday evening and am paying for it now). I thought I'd sit with my heating pad on my belly for a bit this morning. Turned it on to "high" which is usually very hot but this morning it barely even got warm. Oh no! It lasted me for 7 years so I guess I can't complain too much. I ordered myself a new one (thank goodness for free 2 day shipping), hopefully it'll be as good as my old one was.
 
Cat,

Heating pads are great! I wish I could lend you my extra one. Two day shipping has me beat. Hang in there. Do you have a hot water bottle? That's super funny about the bird freaking out your kitty.
 
My husband bought me two dozen red roses, candy and a can of whipped cream for my jello for Valentine's day. I was in the hospital and it was so sweet. It was so nice to something different on my soft diet. Made medical people happy because I had to give most of the chocolates away. He's always been great about bringing me flowers. I'm very fortunate to have a great husband.
 
Cat, if I could I would loan Alex to you. Sometimes, if my stomach isn't well , it feels nice to have his head on my stomach.
I went to my doctor's office this morning. There is a lady there who is somewhere between a nurse practitioner and a doctor. She is going to ask my GI about switching from Humira to Entyvio. She wants me to have the barium swallow on the ninth. Depending on what they find, I might need an endoscopy.
 
GI Jane said:
My husband bought me two dozen red roses, candy and a can of whipped cream for my jello for Valentine's day. I was in the hospital and it was so sweet. It was so nice to something different on my soft diet. Made medical people happy because I had to give most of the chocolates away. He's always been great about bringing me flowers. I'm very fortunate to have a great husband.
Click to expand...

That was very nice of him to do that. I think you are both lucky to have each other. :ysmile:

Good thing I wasn't there or the chocolates might have gone missing!
 
I'm going Monday afternoon to see the GP. I really like the guy. Still, I get really stressed every time I have to go to the hospital or to see any doctor. I think I have a phobia. It is already bugging me. I need to try not to think about it. Easier said than done!
 
Cmack, I had a hot water bottle but it got a hole in it. I do have a couple of those microwaveable stuffed animals that can act as a heating pad - they hold their heat for up to an hour or so. I also have a crappy heating pad that I inherited when my grandpa died, but it's not great and it has a 1-hour auto shutoff, so I end up getting annoyed with it because it seems like it's constantly turning itself off. The new heating pad that I ordered has no auto shutoff, so I can keep it on for as long as I like. That's a definite upgrade.

I remember awhile ago we were talking about gratitude in this thread and saying the things that we were grateful for. I'd like to start doing that again. Today I'm super grateful for my co-worker. I told her I wasn't feeling well, and she offered to take on part of a project that I was working on. She made my day easier and was so nice about it. And I'm grateful that the sun is shining and it's almost springtime. Surely things will get better and easier once it's springtime. And, this is silly, but I'm thankful for Korean skincare products. :p My skin has been not so good lately thanks to pred but I've tried a few Korean skincare products and I love them. An under-eye cream that comes in a bottle that looks like a panda? Um, yes please! :)
 
I guess I missed seeing this whole page of posts. :p Ron, my pets really comfort me too. I have a dog and a cat and they both mean so much to me. My dog is a comedian, she always makes me laugh, and my cat is my comforter. She'll just sit near me and quietly purr when she knows I'm not feeling well, and she follows me into the bathroom too.

Cmack, I get stressed as well when I have to go to the doctor. I try to buy myself a present afterwards to reward myself for getting through it. So get yourself something, even if it's small/inexpensive, that makes you happy. For the longest time, I would buy myself a new nail polish after every test or appointment. They're pretty and sparkly and don't cost much and make me happy. But then of course I ended up with wayyy too much nail polish. :p So now I keep it fresh and buy myself different things so that I don't end up with tons of one thing. Get yourself something, a book or some new music or a movie, something that makes you happy, after your appointment. If you have something in mind, that'll give you something to look forward to and you won't be as stressed.
 
Cat-a-Tonic said:
I guess I missed seeing this whole page of posts. :p Ron, my pets really comfort me too. I have a dog and a cat and they both mean so much to me. My dog is a comedian, she always makes me laugh, and my cat is my comforter. She'll just sit near me and quietly purr when she knows I'm not feeling well, and she follows me into the bathroom too.

Cmack, I get stressed as well when I have to go to the doctor. I try to buy myself a present afterwards to reward myself for getting through it. So get yourself something, even if it's small/inexpensive, that makes you happy. For the longest time, I would buy myself a new nail polish after every test or appointment. They're pretty and sparkly and don't cost much and make me happy. But then of course I ended up with wayyy too much nail polish. :p So now I keep it fresh and buy myself different things so that I don't end up with tons of one thing. Get yourself something, a book or some new music or a movie, something that makes you happy, after your appointment. If you have something in mind, that'll give you something to look forward to and you won't be as stressed.
Click to expand...

Good Idea! Now to figure out what I want. Hmmmmm....
 
I'm thankful and anxious re starting remicade on Tuesday. But I hope I get some energy back. I'm so fatigued at the moment. I could spend my whole day sleeping.
I'm thankful for Steve and Jammer and for my mates here, and my healthy mates that stick by me and care even though they don't understand it.
 
Thank you for the world so sweet
Thank you for the food we eat
Thank you for the birds that sing
Thank you Lord for everything
Thank you for each happy day
For fun and friends and work and play
Thank you for the love and care
At home at school and everywhere
 
There is a flock of sparrows near me that make their homes in the small bushes outside the shopping square.
During winter I feed them each day when I can get out...which is now almost daily.
If you study them their plumage is quite beautiful...they are not just the common sparrow it is so difficult for them in winter with the cold snow and ice...
The guardsparrow lets out a call of excitement when he sees me arriving.
Someone else ties a seed bell to a nearby smal tree...they just love it..
 
I'm thankful to be able to go to our little A-frame cabin on the mountain for the weekend with my husband.
 
At the moment I'm just thankful that my stomach seems to be settling down, after wearing a path in the floor going back and forwards to the bathroom since 6am (12 noon now)There are lots I'm thankful for,but It'll have to wait for now.
 
Status
Not open for further replies.

Similar threads

L
The decision : On Biologics or Not
Replies
18
Views
3K
NeverBeenEasier
N
A
What would you do?
Replies
22
Views
2K
Delta_hippo
D
valleysangel92
Hello Old Friends
Replies
1
Views
288
my little penguin
my little penguin
K
This has destroyed my life.
Replies
27
Views
2K
kephra
K
Crohn2357
GUT STERILIZATION FOR CROHN’S DISEASE (THEORETICAL CURE)
Replies
2
Views
1K
cheka
C

Latest posts

Back
Top