Last one wins PG version 2.0

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Status
Not open for further replies.
Hi Emma, welcome to last one wins! Sorry to hear you're flaring. I'm not a student, but I work full-time, and I've been dealing with a flare since last July and have been slowly clawing my way back out of it ever since, so I know how hard it is to try to focus and function and just live your life while flaring. I hope you can get things under control soon. Your sig says you're on Aza and Pentasa - are those currently the only meds you're on? I wonder if you might need a course of steroids to get things under control, or maybe add a biologic to the mix? What has your doctor said about your current flare?

I love the stuffed colon toy in your avatar pic! I have the same one, and sometimes I punch it when I'm feeling angry. :p Take care of yourself, I hope things get better soon.

Trev, I don't know about any of the technical stuff, but a weather station sounds like a fun project! I also get bored easily and need a lot of projects to keep my mind occupied, but most of my projects involve things like crocheting, sewing, etc.

Aura, that sucks. :( It's often a big mess to clean up, too. I'm somewhat fortunate, my bathtub is directly opposite my toilet, so if need be, I can keep my butt on the toilet and puke into the tub. I've done that a few times in the past. I always have to clean the tub immediately afterwards, though, so it's not really ideal. I hope you feel better soon!

Madhu and Trysha, good luck at your appointments!

I'm feeling pretty bleh today. Having some lower abdominal pain. I'd been doing pretty well the past few days, so it's frustrating to have pain. I think stress is the cause. My company's new regional president is in the office today and I haven't met her yet so I'm worried. I'm sort of awkward in real life and I want to make a good impression on her. So I'm nervous and I'm sure that's what's causing my guts to flip out a little bit. I just need this day to be over!
 
emmaaaargh said:
Hi everyone!! I've been reading this thread for a while now and I love how positive and supportive it is in here. I could use some of that myself so I thought I'd come and say hello.

I'm slowly sliding into the spiral of a flare now and it's getting harder and harder for me to concentrate on my uni work thanks to pain and brain fog. I'm in the library right now trying to get as much work done on this lab report today as I can. It's raining horribly outside... really, the only reason I made the journey to the library is because my flat won't have any power for six hours today, thanks to maintenance on the electricity. Still, it's forced me to get out and to the library and get some work done, so I suppose it's a blessing in disguise!

Hope you're all doing well! :)
Click to expand...
Welcome.
 
Hi, Emma! Welcome to LOW! We're more than happy to have you join us! I'm not in university yet, but it sounds that you're going through a lot. Hope things settle down for you and may your flare subside soon. Feel free to post whatever you want here :D

(Oh, I'd love to have a toy colon! Where'd you get it from? Looks so cute!)

Hey Trysha and Madhu, all the best for your appointments. I hope all goes well for the both of you. I'd be thinking of you ^^

Aww, hope you feel better soon, Cat. Tomorrow's a brand new day, and I'm sure things will get better. :hug:

And for the rest of you here, I wish you all great pain free days ahead! :ghug:
 
Hey Trysha and Madhu good luck with the GI appointments tomorrow , funny enough I have a appointment with my surgeon (the first since surgery , my fault not his)
The only problem I have really had since surgery is when I reduce the pred to below 10mg my remaining piece of colon (stump) flares up , apart from that everything is great , eating like a horse and will need to control that soon ,

Kristy and Emma , hope you feel better soon , Cat and Ron hope ye are doing ok ,

Mandy hope you are doing well and CYY great that you are out of hospital , just make sure that you take the folic acid , hope everyone else is doing well or at the very least hopeful of doing better .

and not forgetting CMACK

winning
 
Holy cow, it's been a stressful day. It's fortunately almost over! I need a bath and some chocolate. How is it only Wednesday?

I'm being such a good adult today though. :p I bought myself a new vacuum cleaner and a couple of new bras, ha ha. Usually when I buy myself presents, I am not nearly so mature and adulty about it. I'm getting to be downright boring!
 
Tony hope your appointment goes well... 🍀. I am doing okay thanks my friend. Glad you are eating like a horse, I wish I could, so need to gain weight. I have to be careful not to fall down the grid irons at present 😕😀

Cat you boring... Never girl ☺

Kirsty hope your feeling better now :hug:

.Emma welcome to LOW.. Sorry you are feeling unwell. I hope you can feel better very soon. Crossing my fingers for you hun. 💕

Hope you all have a good day /evening.
Much loves n many hugs 💖💕💗💞:ghug :
 
Thank you, Mandy. :) I felt super boring when I was bra shopping, that's for sure. I'm sure this isn't just me, but I absolutely hate shopping for bras! They're such liars, ha ha. They look so pretty on the hanger but then so horrible on me! :p I have to try on a zillion just in the hopes of finding one that fits. And I've gained some weight thanks to pred, so I couldn't even go off of what my previous bra size was. I apparently went from a B cup to a C! I did fortunately eventually find 2 that fit and are pretty and don't look horrendous, so I was more than happy to buy them and get the heck out of the store. Hopefully they last me for a LONG time because I'm in no rush to go bra shopping again any time soon.

Sorry for the menfolk who had to read that. :p You guys have no idea how easy you have it!
 
Haha i hate bra buying to Cat..same reason as you. I struggle to find one that fits n is comfortable that doesnt look like its for carrying bricks in..😃😃😆
 
We met the GI and he wants to do colonoscopy and endoscopy next week. He is also increasing remicade infusions and making it more frequent until we can get back on track. He thinks it could be a flare or an infection (caused by eating at chipotle 3 weeks ago) that could have triggered a flare.

Sad part is, we NEVER eat at chipotle. And the one time we do... oh well!
 
Oh madhu bummer on the eating out n suffering for it...😯. Hope the upping of meds gains control again for hubby hun. :hug💕💕
 
Oh, Madhu, that stinks! Whether it's a flare or an infection, I hope they can figure it out and get him feeling better quickly. I never eat at Chipotle either and I definitely won't go there in the future! Keep us posted on how the scopes go next week. Are they also doing stool tests to check for infection?
 
Cat-a-Tonic said:
Oh, Madhu, that stinks! Whether it's a flare or an infection, I hope they can figure it out and get him feeling better quickly. I never eat at Chipotle either and I definitely won't go there in the future! Keep us posted on how the scopes go next week. Are they also doing stool tests to check for infection?
Click to expand...
Yes Cat. They are checking blood and stool too. And guess what? His stool test in December showed elevated inflammation. So his GI asked us to do the yearly MRI asap. We did it in Jan and it was perfectly clear. Within a span of 6 weeks, he started showing symptoms. I asked the Dr if it's common to flare just 2 months after a clear mri report. He said unfortunately yes, this disease can progress rapidly and at any time. I wish they would just find a cure already.
 
Madhu, yes, unfortunately I know first-hand how quickly things can flare up and get out of control. I had my worst flare ever last year. My grandpa died in May, and in June we had to put my grandma into a care facility because she has dementia and was not able to care for herself. That was a very emotional and stressful time. I'm sure the stress and grief is what caused me to flare - I started flaring in July. And by late August, I couldn't digest anything, I had lost 17 lbs in a month, and I could barely function (couldn't sleep due to pain, was using the bathroom 20+ times a day, couldn't eat anything). So at that point I had to be hospitalized. It's crazy how fast it all happened, but I guess that is just the nature of the illness sometimes.

I am glad that your husband's doctors are acting quickly on the scopes and are increasing his Remicade. Hopefully that will be the ticket to getting back into remission.
 
Oh boy, that must have been so horrible for you. Glad you have improved. Hope your tummy is being good now.

Thanks, Cat x
 
Sounds as if you are moving along the right track Madhu....good to get these appointments over and done with...even though it's going to happen again...and again...hoping for an early resolution for your husband and no more complications. Tell him to get well soon because spring is around the corner and we must get ready to enjoy it.&
I met with my GI today and guess what....he scheduled a colonoscopy and gastroscopy for the beginning of June and a whole slew of bloodwork.He does not want to do scopes sooner because. of my recent surgery ....
which is healing quite nicely but still needs more time.His mood was more upbeat this time...back to his old self..
Sufficient unto the day is the evil thereof....
Thank you all so much for the generous support you have all given.
Winning......
 
Last edited:
Madhu,

This disease is a sneaky little son of a B! I also wish for a cure. I feel for you.

I wish for an end to this horrible thing. It doesn't even deserve a name.


Thinking of your family,

cmack
 
On a lighter note,

I just spent all day downloading and installing new device drivers for the laptop. Tedious but not too terrible. Unlike some of the problems we have in life, at least I can fix a computer. I would hate to pay to have it done. Seems to be working great now. Thanks Windows 10... :)

cheers!
 
I wish for a cure too. Waiting for insurance to give pre-authorization for Entyvio. Barium swallow soon
 
Hoping all goes well for your husband Madhu.

Trysha good luck with your scopes and investigations.

Just drinking tea and eating plain biscuits today. Muscles are sore from yesterday. But no more vomiting today. Still regular to the bathroom [emoji372]
 
cmack said:
CYY,

You out here bud?
Click to expand...

Yup, here I am! :D

Took some folic acid yesterday. Still feeling a little tired today, but I guess life goes on as per normal ._.

I hope your husband feels better soon, Madhu. Eating out can be really trying at times, but it's good that the doctors are running all these tests to determine whether your husband is in a flare. Sending virtual hugs your way :hug:

All the best for your appointments, Trysha and Ron! I hope all the tests come back normal and show no signs of inflammation anywhere! :smile:

Oh, and I really do wish that scientists will find a cure for Crohn's within all of your lifetimes. You all are such nice people and don't deserve to suffer so much from this terrible disease! :ghug:
 
I also hope for a cure. And in the meantime, I hope for more and better treatments. And more knowledge about the illness, like figuring out why some people are so hard to diagnose, or figuring out why dietary changes help some people a lot but don't seem to help others much at all. There's still so much they don't know about IBD, I hope that more info comes to light that helps us in our daily lives while we are waiting for a cure.

Thank you, Madhu. I am doing a lot better than I was. I'm still on pred, it's been a very difficult med to try to get off of. My guts are mostly good these days, and I'm on LDN, and I hope I'm moving in the direction of remission. I gained my weight back and then some (I'm actually at my heaviest weight ever right now, I honestly could stand to lose a few lbs! But I'd rather be chubby & healthy than thin & sick). I can eat and work and exercise and just generally live my life again, so for the most part I'm pretty happy and doing well. I just would like to be off of pred. I'm getting there, I started at 40 mg and now I'm down to 6.5 mg as of today, I'm trying to taper by 0.5 mg per week.
 
When I asked the Dr how far a cure is, he said he doesn't see a cure in the foreseeable future. But they are trying to treat the disease without suppressing the immune system, like the biologics do now. He considers that a big success in itself. Well, whatever helps is progress!
 
I just wanted to express my condolences on the events in London yesterday. I just heard on the radio that one of the dead was from West Bountiful, Utah. That is just a few miles from our home in Kaysville. He and his wife were in London for their 25th wedding anniversary. He died in the attack and his wife is in serious condition in a London hospital.
My heart goes out to all those affected by this act of terrorism.
 
Just called my insurance. They have not received anything from my doctor's office concerning pre-authorization for Entyvio.😕
 
Being a native Londoner having been born raised and educated there and also worked there. It was a shattering sight on the news yesterday.
Some of my family live in suburban London and do travel there on business so there were some anxious moments till I heard that everyone was ok.
My nephew runs a taxi service there....a proper English taxi and owns a classic original taxicab sometimes used in films....he was ok.
The taxi drivers in that area were driving people home away from the terror and making no charges for their services.A bit like the wartime blitz where everyone helped each other.
What is the world coming to ....
 
Upon Westminster Bridge
Earth has not anything to show more fair
Dull would he be of soul who could pass by
A sight so touching in its majesty
This City now doth like a garment wear
The beauty of the morning silent,bare
Ships towers domes theatres and temples lie
Open unto the fields and to the sky
All bright and glittering in the smokeless air
Never did sun more beautifully steep
In his first splendour,valley rock or hill
Ne'er saw i,never felt a calm so deep
The river glideth at his own sweet will
Dear God! the very houses seem asleep
And all that mighty heart is lying still
 
This poem was written in 1802 by William Wordsworth
On that day Dorothy Wordsworth wrote:"We left London early Saturday morning.It was a beautiful morning.
The City, St Paul's, with the River Thames and multitude of little boats made a most beautiful sight as we crossed Westminster Bridge......
 
Trysha said:
Being a native Londoner having been born raised and educated there and also worked there. It was a shattering sight on the news yesterday.
Some of my family live in suburban London and do travel there on business so there were some anxious moments till I heard that everyone was ok.
My nephew runs a taxi service there....a proper English taxi and owns a classic original taxicab sometimes used in films....he was ok.
The taxi drivers in that area were driving people home away from the terror and making no charges for their services.A bit like the wartime blitz where everyone helped each other.
What is the world coming to ....
Click to expand...
Thanks for sharing about the taxi drivers
 
Moi aussi.....catching up with previous episodes of Downton Abbey.....have to give up soon and go to bed.....
Good to see everyone on form....
Winning
 
I'm here now but not for long.Most of you are sleeping anyway,apart from Kirsty I expect.
Lovely mild sunny day here,so we're off out on the bikes.We've both had horrendous colds so it's the first time in a couple of weeks.Don't know if I'll manage even the slightest incline though..Sleep tight.x
 
scottsma said:
I'm here now but not for long.Most of you are sleeping anyway,apart from Kirsty I expect.
Lovely mild sunny day here,so we're off out on the bikes.We've both had horrendous colds so it's the first time in a couple of weeks.Don't know if I'll manage even the slightest incline though..Sleep tight.x
Click to expand...

Hope you feel better and enjoyed your bike ride.
 
It was an early morning here. Hubby is having surgery so we had to be here at the hospital by 5am. It's also my day for Remicade. Good thing the miserable head cold I've been stuck with is on its way out.
 
Nothing like a nice bike ride to calm the nerves and give plenty of space.....wish I could do the same Carol...would love a freedom giving bike ride in the fresh air and sunshine...if available...
Winning....
 
I'm here. This has been a nightmare week at work. One of the upper management team called me and she was saying she doesn't even know how to do her job anymore, her brain is fried and everything has changed. I told her I completely understand because I feel exactly that way too. It's been so stressful! But I'm hoping things will calm down at least somewhat in April...

Carol, that sounds lovely. I'd love to hop on my bike right about now! Hope you have a great ride.

Trysha, glad to hear that your family and friends were all safe. I can relate to that momentary panic, on Sept 11th my cousin had an office in the world trade center (but he wasn't working in the office that day, and his colleagues were also all safe, thank goodness). It's like you hold your breath and can't think until you know that your people are safe. I'm glad to hear they are.
 
I was awake Carol, Steve woke me up saying there was an earthquake. But he was dreaming it! Took me ages to get back to sleep.
 
I'm just chilling now. I did a mountain of ironing, only one shirt was mine.
 
Well its 10-40 on a beautiful sunny morning ,spring has finally sprung
 
Wow nurses let me sleep didn't come in until 6:15...but I was up at 5:30....dang my luck lol.....it's a good day I'm going home.
 
It's almost 10:30 AM here and rainy. I'm on day 2 of a headache and I had a cold last week which seems to have returned, so I'm feeling a bit grumpy. I'm also happy though, because I get to go visit my grandma. I don't think she has much time left, so every visit is precious.

I also got a new vacuum yesterday and I totally love it. :p It picks up so much dog hair! My dog sheds so much, so this is great. I feel like such a responsible adult, ha ha.

Where's Sandy lately? Sandyyyyyy! We miss you! Come back and tell us you're okay!
 
Re; America's extortionate healthcare system......Doc.to patient.* We've run every test we can think of.....and the results show,you're out of money".
 
Hah, Carol, the joke's on them - I'd be out of money well before they had run even a small fraction of the tests! :p
 
She is just being quiet. She is doing pretty good I'd say. Allie dog is not. Thursday she started severely limping. It is her left front leg. We could not find anything in her paw that should not be there, and nothing appeared to be broken. I took her to the Animal ER. They took X-rays, found nothing broken, and no dislocations, But they did find her Arthritis has spread to the left shoulder. She must have aggravated the arthritis. She is on an anti inflammatory and on a pain killer. At first she was hurting so much, she would not eat, even her cheese covered pain killer. She was breaking our hearts. Anyway now she is taking her meds. She is still limping, and is not suppose to jump on and off furniture . Just try to stop her from that!
 
Aw poor allie dog.🐶🐾 Hope she is feeling better soon Doug. 💕
Glad Sandy is ok plz give her my love n love to you to Doug 💝💞
 
I'm not ok if Allie is not, and she is definitely not. She cried for several hours after Doug got her home (in the middle of the night the night before last), disrupting sleep enoughI couldn't go to therapy. She mostly calmed down for awhile when we finally got her to take her meds, but whimpered any time her meds were close to due again. She is currently fully medicated and crying up a storm, and not eating today, as well as walking with great difficulty. I don't know what to do. I wish she could talk.
 
Aw Sandy my darling.... i know what you mean as to being not ok if allie's not. I really hope she feels much better soon and thus yourself hun. Big loves and hugs 💞💝💝💞
 
SandyUte said:
I'm not ok if Allie is not, and she is definitely not. She cried for several hours after Doug got her home (in the middle of the night the night before last), disrupting sleep enoughI couldn't go to therapy. She mostly calmed down for awhile when we finally got her to take her meds, but whimpered any time her meds were close to due again. She is currently fully medicated and crying up a storm, and not eating today, as well as walking with great difficulty. I don't know what to do. I wish she could talk.
Click to expand...
I am sorry, Sandy
 
Hi Sandy....have you heard of shark cartilage for canine arthritis.....sold as capsules or powder....may be worth a try for Allie....?
I have no personal experience to relate but have heard of some success with it from casual acquaintances.so sad to hear of her problems and hope she will soon feel better...that goes for both of you also.
 
Yay, GI Jane! I'm glad you're going home today! Hospitals suck, don't they? I wish you a safe journey on your way home :hug:

Aww, Sandy. Sorry to hear that Allie the dog is not well. I hope the pain subsides and she'd feel better soon. It's heart-wrenching to hear animals whimpering ;_;

Hey Cat, sorry to hear that you've come down with a cold. I hope you're doing better today? As for the vacuum cleaner, I can't help but to agree with you that it feels good to clean things up. I find that I have to clean up my room every now and then. It's nice to put everything away and see a nice empty desk. Ah, nothing beats the feeling of being like a responsible adult XD

Hope everyone is doing well! :D
 
Trysha said:
Hi Sandy....have you heard of shark cartilage for canine arthritis.....sold as capsules or powder....may be worth a try for Allie....?
I have no personal experience to relate but have heard of some success with it from casual acquaintances.so sad to hear of her problems and hope she will soon feel better...that goes for both of you also.
Click to expand...

I was just checking this out. They contain glucosamine and chrondroitin. Both are known for treatment of joint disease. I am going to check out Pets Mart and see what they carry.

Thanks for the info, Trysha.
 
Re; Allie,sending gentle hugs to her and her worried family.All of us pet people know how stressful and upsetting it is when they're sick.There's a little place in my heart that is aching for you all.x
 
Aww, big hugs to Allie! I hope she feels a lot better very soon. It's so difficult when our animals aren't feeling well. Big hugs to you too, Doug and Sandy.

I was just at the compounding pharmacy yesterday to pick up my refill of LDN, and the lady in front of me was getting some medicine for her cat. I didn't catch the name of the med, but she said her cat is 22 years old! Wow!

Thanks CYY, my cold is improving and I'm doing better today than yesterday. Yesterday was hard all around, I had a pretty rough visit with my grandma. She's got dementia (seems to be moderate Alzheimer's and she's heading in the direction of severe Alzheimer's, she's just starting to lose her words). She was extremely agitated yesterday and wanted to run away from her facility. Eventually she calmed down, but it was very stressful. Dementia really sucks.
 
I understand there are three different levels in the facility where my father is. Independent living,those who aren't too bad with Alzheimer's and then the worse which is where my father is. I agree , Cat. I hate Alzheimer's.
 
It is really hard to watch a loved one struggling with dementia. I sadly have seen it before in my family. They say that they don't even realize what is happening in some cases. Maybe not knowing you have dementia is better. I really feel for all of those affected by these terrible diseases of the mind.
 
Cmack, that's true, my grandma feels that there's nothing wrong with her. Yesterday she was yelling at some other ladies in her facility and making faces at them (I was told that making faces means she's losing her words so that's really frustrating). But when the other ladies told her to knock it off, she yelled, "I'm normal!" She feels like she's truly normal and fine and doesn't understand why we put her in "prison" (memory care facility, but in her mind it's prison).

Ron, yeah, my grandma is in a memory care unit at an assisted living facility right now, but she needs to go to a proper nursing home soon. Her dementia is progressing pretty quickly. It's really sad. I'm sorry about your father, I know you've talked about him before and I know you've had a hard time with his Alzheimer's too. It really sucks.
 
You know what doesn't suck?... We all have each other to talk to. :) I appreciate everybody and all the kind words we have for one another. We are not alone. United we stand divided we fall.
 
Hugs to everyone. I'm too exhausted today. Had a very long walk. Ready to jump into bed
 
Feeling weary with the travel to and from the rehab programme.
The programme itself is ok...very carefully supervised one on one and at the slightest hesitation they stop me from doing anything....very annoying since I am capable of getting on with things after a brief pause....
I will be glad to get back to normal,gym with a more relaxed supervision....hopefully.
Two more weeks to go....
Hope you will all be feeling better this coming week and that it won't snow or rain....
The sun will come out tomorrow....
 
Hi Trysha, hang in there hun not long left now... 💕

Hi all hoping to find you all well today, if not feel better very soon. 💖💞

I am going to pick up baby Jaxon soon, the sun is shining so we may get to the park, he enjoys a little swing now ☺

You all take care now you hear :ghug:
 
So I'm having skin issues. Anybody else here have horrible skin while on pred? If so, did you find anything that helped? I've been trying various products and some seem to work better than others, but nothing really makes my skin nice again. My skin is super cleansed and moisturized now, but I'm still getting zits, especially when I taper. I'm 37 so pimples are not a good look on me! (Not that they're a good look on anybody, but you know what I mean, I should have left pimples behind in my teenage years.) I'm getting pimples on my scalp and neck too which is gross and annoying. Anybody have any suggestions for me?
 
Hey Cat,

I found that drinking more water helped me to a moderate degree (2L per day is my minimum). I still get some pimples in the same areas as you, it just seems to be less of them. That's weird as I have never taken pred. I have had topical steroids for eczema before. I have the exact same problem areas except my back is prone to pimples as well.

I am 38 and I also thought it was strange for this type of thing at my age. Keep me informed, I'm looking for help with this as well. I would go to see a dermatologist but it is hard to get in and a very long drive to the nearest one. My GP is on holidays for a month or so as well so that kind of sucks.
 
Had my barium swallow this morning. I don't think there is anything major going on. My wife went to minute clinic. She has pnuemonia.
 
Status
Not open for further replies.

Similar threads

L
The decision : On Biologics or Not
Replies
18
Views
3K
NeverBeenEasier
N
A
What would you do?
Replies
22
Views
2K
Delta_hippo
D
valleysangel92
Hello Old Friends
Replies
1
Views
312
my little penguin
my little penguin
K
This has destroyed my life.
Replies
27
Views
3K
kephra
K
Crohn2357
GUT STERILIZATION FOR CROHN’S DISEASE (THEORETICAL CURE)
Replies
2
Views
1K
cheka
C

Latest posts

Back
Top