Last one wins PG version 2.0

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Status
Not open for further replies.
I'm here. Sometimes observing from the background is my capability. Best of luck all.
 
Good luck today, Ron! I hope they can get it all and you can be done with this stuff.

Doug, I also have intermittent FMLA at my job. It's been a lifesaver (well, a job saver anyway) for me. Being able to take time off periodically to rest and recover, I don't know what I'd do without that!
 
Anyone in the US getting affected by orange man's decision to pull out insurance coverage?
 
Madhu said:
Anyone in the US getting affected by orange man's decision to pull out insurance coverage?
Click to expand...

I don't know enough to be sure this will effect me personally, but I am very concerned over the states being able to drop out and form their own programs. Utah is exactly the state that would do this. If states have the option to drop out, then we have no guarantee that pre-existing conditions will be covered. I am very concerned about this.
 
Madhu, not personally, not yet (I have insurance through my employer, but I'd be screwed if I ever lost my job). I loathe that horrible man so, so much. And hopefully it won't pass - it made it through the House, but it still has to go through the Senate. Nobody really seems to know yet if it's going to pass or fail in the Senate. I really hope it does not pass. It's absolutely horrible that people could die in this country, in 2017, because of horrible men taking away their healthcare or making it unaffordable just because the horrible men want to become a little bit more rich. Ugh ugh ugh.
 
Cat-a-Tonic said:
Good luck today, Ron! I hope they can get it all and you can be done with this stuff.

Doug, I also have intermittent FMLA at my job. It's been a lifesaver (well, a job saver anyway) for me. Being able to take time off periodically to rest and recover, I don't know what I'd do without that!
Click to expand...

Thanks
 
That's my fear too, Doug and Cat. Our insurance is through my husband's employer. He was thinking about changing jobs, but now definitely having second thoughts. Plus I don't know if the new laws would affect us. Like Doug rightly said, I read about states taking individual decisions about coverage this morning and this creates a huge uncertainty. No idea what kind of a state NJ is! It's pathetic that we should worry about money when we have huge diseases to deal with!
 
Madhu, I agree completely. It's ridiculous and so stressful to have this stuff to worry about on top of everything else. And obviously stress isn't good for chronic illness so it's a really vicious cycle. We should just be able to focus on healing and getting into remission, but instead we have to worry so much about money and insurance and all that stuff. It's absolutely ridiculous.

I should add that my husband does not get insurance through his work, either, so it's extra stressful for me because we both rely on insurance through my job. My husband was a chef, he just quit his chef job and now he's working 2 part-time jobs (he's hoping one of his new jobs will turn into full-time). He wasn't offered insurance at his chef job, I know for sure that one of his part-time jobs won't offer insurance, and it's yet to be seen whether he'll get insurance if the other job does go to full-time. So anyway, yeah, it's all on me to make sure we have insurance. So I have that added pressure too. My life is not exactly low-stress these days!
 
Cat and Madhu - I totally understand the stress of having the chronically ill person have to work to maintain health insurance for the family. There is something not right about that.
 
I hope everybody gets better health coverage. I'm so glad to be in Canada, despite some of our silly laws, at least I have healthcare, of some kind, that I can afford. I feel sorry for you Americans having such a tough time paying medical bills. Then you have all the added uncertainty on top of it.

Best wishes to all of you folks.
 
"to charge far higher premiums for people with pre-existing conditions" - Just what we need! I really really hope the Senate makes changes atleast.
 
Life is so not boring. Today I surprised a would be burglar who walked around the side of my house, jumped over a little fence then leapt over the side of my back deck. I was sitting further down on my back deck. I saw the shadow, then Jammer ran to him and jumped on him. I said "hello?' He looked startled and asked if I was Demelzda. I said no then he asked who I was. I said I'm not Demelzda. He asked if this was number 9 I said it wasn't. Then he asked what I did for a job. I said I'm sick and he needs to leave immediately. I then went inside, messaged a friend who said call the police. So I did. About fifteen minutes later police called saying they had caught him. I went down to police station and made a statement.
 
He was banging on the cell doors in the police station while I was doing the statement.
 
Wow, Aura! I'm glad they caught him and everything turned out okay. Sounds scary! And good job Jammer for jumping on the guy!
 
Omg Kirsty. He sounds demented. So glad he was caught and you guys are safe. Good job, Jammer!
 
That is so scary Kirsty....hope you have recovered and are feeling better.
Same thing happened to me several years ago...but they never caught the guy....unfortunately my dog was at the groomers or she would have had the seat of his pants...
It's all we need with everything else going on.
Had a scope this morning....two more in another month....one of life's little joys...
Winning...
 
Sorry to hear that Ron....is it easily fixable?
Or is it going to be a ton of money to repair....
Why are these things sent to try us....
It has not stopped raining. for two days and nights...neither is is going to according to the forecast.
Oh for the wings of a dove....far far away would I roam to dry and sunny shores...
 
More mechanic work coming up for me. Mom and Dad's Dodge Journey has warped rotors in the front, it shimmies like somebody with a hula hoop as soon as you touch the brakes. This means new pads and rotors, this is the 3rd set at 42K Kilometers. 300 bucks just for the parts. I just upgraded the rear brakes with performance parts(drilled and slotted rotors and new pads). Now I need the rain to stop so I can do the job without being soaked. LOL. ... Such is life.
 
I'm sure your parents very much appreciate the help, CMACK. If that's just the cost of the parts, can you imagine how much money you have saved them (and yourself) over the years?
I've not had a good couple days, today was especially bad, but I know I'm over the worst of it. Multiple health issues at once.:eek::(:stinks:
 
I'm having a lazy day.Les is setting up a fish tank in the spare room so that we can re-locate his fish before we start the decorating.It needs to stand for a week or so before the fish are transferred.I had a disaster this morning.My usual (when younger) hair colour is brunette but over the last few years it has lightened considerbly, hahaha.Using a colourant occasionally has turned it a dirty blond.I put a darker dye on for 15mins and it turned bright copper.!!! So I put a blonde one on and now it's a light copper.I will have to call into my hairdressers on Tues.for advice,and he's going to laugh his socks off.
I know the men on this thread will be wondering what the fuss is about,but you girls will understand.I tend to be a bit obsessive about my hair.
 
I certainly understand, Carol, having gone thru a few hair disasters myself over the years. I used to color my hair too, but now because of hair health, I've let it go natural. I started with very blonde hair as a youngster, now have the dreaded dirty blonde turning light brown, with a few grey streaks that aren't as noticeable as if I had dark hair. It doesn't sound very attractive, but I've found it's grown on me. :rof:
 
Lately, when I have seen some gray whiskers when I haven't shaved and I saw domr gray hairs when my hsir wss cut.
 
Hi all sorry been late with all my updates hope all are doing well. Have a smile
 

Attachments

  • IMG_3004.JPG
    IMG_3004.JPG
    132.6 KB
I was a brunette, but now I'm all salt and pepper. My hair is being lightened so that we can do the transition to salt and pepper. I'm basically all grey now, and I'm 45.
 
Julie, you sure are pretty! So is your smile. And Kirsty, you earned all your grey hair with all you have been thru. Doug started going grey in his twenties, but once he married me, it was all downhill from there, it accelerated rapidly. :ylol::hallo3::lol2:
 
Update...I am at present sitting with a colour remover on my hair which is wrapped in plastic food wrap.(we call it cling film)It has to stay on for an hour,then rinse for 5mins,shampoo with special stuff,rinse for 5mins then repeat.I can colour again immediately and have bought a blondish colour.But if I'm happy with the after treatment colour, I won't re-colour.In fact,after this latest carry one,I will think twice about ever colouring again.Oh, the silliness of the aging.ahahaha.Talk about growing old disgracefully.
 
Mine turned out darker blond than normal. My husband thought he did something wrong as he helps me color it now since the last hair dresser hurt my neck. I'm liking it something different. What worries me is I'm thinning which the doctor mentioned the other day. Said its because of nutrient being out of wack. It's getting me nervous. Eating 6 small meals here now with protein in each one.....kind of really tired of eating but definitely don't want to lose my hair it's pretty long.
 
Talked to my father today. He thinks i am my brother. He also thinks he has thtee sons and five daughters.
 
I'm back to blonde and gorgeous .I will never go through that palaver again.
The weather here is dismal .Cold,windy and grey.7c.
I'm desperate now to get into my summer gear,but it looks like it might be a week or so.It's going to be a short summer.
 
Ron, my grandma has been similar lately with her dementia. She was confused as to how my dad is related to her, and he told her that he's her son. She asked, "My son from which batch?" Um, she only had one "batch" of kids so that was confusing. We think she's getting mixed up about grandkids, she might be thinking that her grandkids are another "batch" of her own kids? I don't know. Her mind is going downhill fast. I'm sorry to hear that your father is similarly confused. Dementia is so hard to deal with.

On the subject of hair - I started going grey at 29, a few months before my first flare-up. I was coloring it for years (I'm a brunette and was going slightly darker than my natural color), but I stopped coloring my hair last year. My hair got so brittle and was breaking a lot, and then when I got put on pred it also started falling out a bit more. So to try to salvage my hair, I stopped coloring it. That seems to have helped, it's not as brittle as it was and it isn't falling out as much as it was. So I'm content to live with a few streaks of grey for the time being.
 
I use to have dark brown hair. In my 20's I had a white streak show up in my hair. It showed up about the same time I started to have Crohn's symptoms and I have wondered about that being the cause. I am almost 54 now and my brown hair is now few and far between. Mostly Gray and White.
 
I don't know what the fashion is in the States,but over here way-out hair colour has taken off in a big way (as have nail bars).Hair is now any shade you like,whether or not it suits you or your of an age where it looks cute,or whether or not your hair is in good condition.Red,blue,green,purple,orange,mostly on people who should know better.And they've usually got "bad" tattoos as well.

THOUGHT FOR THE DAY.......I like the fact that as you age your eyesight deteriorates at the same rate as your face,so you don't notice.
 
Carol, yes, that's quite trendy here too. I used to dye my hair funky colors - purple, bright red, etc - way back in high school, so I guess I got all that out of my system as I really have no desire to dye my hair an unnatural shade like that nowadays. But yes, even a friend of mine who is otherwise fairly "normal" in dress and hairstyle and never dyed her hair before, ever, now has teal blue hair. I just can't see that happening for me, I'm no longer a 90's punky teenager and it seems like such a 90's punky thing to do. :p Although my niece tells me that the 90's trends are coming back right now (eek!). Hopefully those trends go away very soon, the 90's were not so cute.

Hah, that reminds me of a story about when I was 18ish and dyed my hair purple. A friend of mine had a baby and this baby was about 6 months old. The baby had only ever seen me with normal brown hair, so one day I showed up to my friend's house with purple hair. And the baby thought it was absolutely hysterical! :p You know when a baby giggles, it's infectious and absolutely adorable (and I don't even like babies!). So the baby would erupt into hilarious giggles every time she caught a glimpse of my hair. That was pretty much it for me, being laughed at by a 6 month old was enough for me to stop dyeing my hair weird colors. (I don't keep in touch with that friend anymore, but I see that we have some mutual friends on facebook, and that baby is a teenager herself now - and she's dyed her own hair funky colors! Hah!)
 
Hi all just a quick pop in...
Been a busy week and my brain is fried.
Had baby jaxon today n he is so upto mischief that i cant keep up...
Feel better soon those who arent feeling to good. Keep well those that are...
:ghug:💞💕💝
 
Doug, I think my illness is what caused the change in my hair, too. My mother and I have basically the same hair - same color, same texture (very fine, not at all thick). Around her late 40s/early 50s or so, my mother started going grey and her hair started going from straight to wavy. That same thing happened with me, but 20 years earlier than it did with my mother. I started going grey and my stick-straight hair now has quite a bit of wave to it. The wave I like, because it makes my fine and thin hair look thicker and like there's more of it. But the grey not so much. And it's very odd to me that my hair is following the same pattern as my mother, but decades earlier. It seems too much of a coincidence that I got sick right around the same time that my hair started changing. So that's my guess anyway.
 
Oh, Ron, that's gotta hurt! I hope there's a chance it can be reversed. As to the dementia subject, my mother recognizes all of her kids at this point, but had difficulties with knowing who her grandkids are for quite some time. This was about three years back, (before most people noticed significant problems) I remember showing her a picture and commenting on who it was and she had no idea it was her granddaughter. I think that was a bad day for then.
Mandy, I sure wish you had more energy (as I know a lot of you do).
Today not good day for me health wise (again), had third migraine aura in four days plus never ending actual headache at some level or another, heart racing every time I even take a few steps (think its triggering migraines), Allie is not well, limping badly from arthritis, crying a lot from hurting but won't let me give her her shot right now (tried to yesterday but must have hit a nerve before needle went all the way in and now she won't let me get near her if she even suspects and I can't hide it). Will try again later tonight if I can get her a little calmer. Tomorrow I have doc appointment with kidney doc, Thursday I get a root canal (because I over flossed in area where food gets stuck), Friday is follow up with ENT about my cough. The one good thing is I went back on an anti depressant a bit ago because of events of late and it seems to be really kicking the past couple days, even when I'm in rough shape physically.
Oh, and Allie just let me give het her shot. Yay! And Doug and I just got good news about when he can retire realistically. Yay! (I'll let him tell you more.):dance::dance::dance:
 
Happiest of birthdays Shanen. :hug:
20170508_184909_zps1nrtoysh.png
 
Yes, I'm the household electrician too. Our oven crapped the bed(again)so I'll be putting in a new one. It is built into the cabinetry so that should be fun. :) Then who knows what's next. Oh yeah mow the lawn. Sigh. Sorry to be whiny but there just aren't enough hours in the day.
 
Sandy , I hope you feel better soon. Cmack, my dog loves to play tug of war with his ball.
 
13hrs ahead of me Trev. I'm up and about (10am) but don't have much to talk about.
Hope you're feeling OK,or amazing even.
Mandy,great to see you kidda.
Sandy,I don't know what to say,but sending hugs.
 
Sandy, I hope you're doing better today, and yay for Doug hopefully being able to retire reasonably soon! I would love to be able to retire someday, I know I can be really frugal, and I'm darn well going to take social security the instant I'm able to (if it's even still a thing that exists in 25ish years), so if I can just get my debts paid off and save like crazy then it may happen someday for me. I hope!

As for dementia, I'm pretty lucky that my grandma still recognizes me. She doesn't always remember how I'm related to her, and she doesn't always remember my name, but she always (so far) remembers that I'm her person. I'm thankful for that. She doesn't remember most of her grandkids most of the time - she has erased my brother and most of my cousins from her memories for the most part, it seems, but I'm still recognized when I go to see her. And sometimes she even remembers the details of who I am - at a recent visit I walked into her facility and she saw me and said, "Oh, my grandddaughter is here!" That was really nice. But I'm spoiled a bit in that regard because she does not remember most of her grandkids very well or at all (and there are only 6 of us grandkids total).

Trev must be 19 hours ahead of me - Carol, it looks like you're 6 hours ahead of me. It says that you wrote your post at 4 AM my time and you said it was 10 AM your time. So it must be 8 PM now where you are and where Trev is... ugh, math, numbers...it's 9 AM tomorrow? Am I close?

When I went to Japan, they were 14 hours ahead of my time zone. That was not a fun jet lag to deal with, really threw me for a loop!
 
Let's figure out this time thing write date and time it is 502eastern time I'm in Florida USA so we can compare based on eastern time it is the 9 of may I wonder if this will work
Julie
 
Sandy let the cat out of the bag! We met with the retirement office yesterday to discuss my options for taking my retirement. My employer has a basic pension program, which these days is a rare thing. I have my 30 years in so I can take the basic retirement pension anytime. What I learned is this. With my 401(k) it is allowed to take distributions at age 55, instead of at age 59 1/2. There are two requirements that need to be met to take distributions early. 1. You must work at least 1 day in the year of your 55th b-day. 2. Your last employer must be the one with the 401(k) plan. I turn 55 in 2018.

With the pension and the 401(k) I will be able to replace me take home pay. So why work any more at a place you are so tired of being at? The program we have allows us to use accumulated sick leave to purchase health insurance. I have enough sick leave to keep me insured until age 65. Sandy is already approved for Medicare A and B. We just need to change her to Medicare C, which includes prescription coverage. She is eligible for it. So we should be good on health insurance.

Anyway, I will be able to retire next January. We even have a date picked out, January 16th, 2018. It is only 9 months away.
 
Juulez, it's just about 5 PM central standard US time here. And I know that it's 7 AM in Tokyo right now. Those are about the only time zones I know!

Doug, wow, to retire at 55! That sounds like a dream come true and I bet you can't wait! My boss has been off of work for 3 months recovering from major surgery, her first day back was today, and now she's talking about retiring too. :p She got a taste of it from being off of work and she liked it. Everybody I know who is retired seems to really be enjoying themselves. I'm only 37 so I have a ways to go yet and I won't get a pension, so I'll probably have to wait until I'm 62 and can start collecting social security. It seems like such a way off. I want to somehow be independently wealthy so that I can retire and become a lady of leisure.

Like, you know all those silly cartoons and movies where the person has a long-lost great uncle or whatever who dies and leaves them a haunted castle and they have to spend one night in it? I need that to happen, ha ha. I will gladly spend a night, week, year in a haunted castle and then sell it and use the money to live off of. My childhood prepared me for that to happen and it just didn't happen for me, hmph!
 
Congrats Doug....retirement is really hard for me. I wasn't ready for it at all. I enjoyed being a work and around people, it's a lot more lonely being retired.
 
The difference is that I am soooooo ready for it. I could retire today if it was possible. 30 years in one place is a lot, and I am tired of the politics in the office going on. Most of the people I was close to at work have retired for some time.
 
DougUte said:
The difference is that I am soooooo ready for it. I could retire today if it was possible. 30 years in one place is a lot, and I am tired of the politics in the office going on. Most of the people I was close to at work have retired for some time.
Click to expand...

Good for you Doug, I'm happy for you and Sandy. My father just retired in December, he is 68. He finally got sick of the workplace politics as well.

Now he enjoys being outside doing the things he loves, mainly gardening and home improvement projects. We plan on going out to get some firewood soon and do a little target practice as well. Then again we could go fishing...:ysmile:
 
I'm so amazed that this can really happen! Doug has needed a break for a long time. Between taking care of me, his Crohn's disease, and working I could see life starting to really take a toll on him. We went to this meeting with the retirement people expecting Doug would need to work until until he could have access to his 401(k) which we originally understood to be at 59-1/2, five years away. To realise it is just mere months away is, well, we are pinching ourselves.
As to time zones, I have a little app on my smart phone that keeps a little display of preprogrammed time areas such as London, New Zealand -, the areas around the US (which is easy if you know whether you are east coast time, central, etc.,), BC, etc. --- so I already keep track of all of you. :rof: I even have an app that shows weather and earthquake areas throughout the world. (Did you ever feel like you were being watched? :rof: :rof: :rof:)
Thought I would point out that it is after 6 pm Wednesday in NZ while barely after midnight Monday here. Weird, huh? (Really only 20 hours difference, but this time of night -- it's technically Tuesday, but haven't been to bed yet so Monday in my mind:eek2:.)
 
Juulez said:
Let's figure out this time thing write date and time it is 502eastern time I'm in Florida USA so we can compare based on eastern time it is the 9 of may I wonder if this will work
Julie
Click to expand...

6.17pm here wed 10th
 
GI Jane said:
Congrats Doug....retirement is really hard for me. I wasn't ready for it at all. I enjoyed being a work and around people, it's a lot more lonely being retired.
Click to expand...

Like Doug, I hated the politics of an office job (was a legal sec for many, many years), then sold real estate which I absolutely LOVED but was starting to have failing health, then ended up on disability (SSI). There was a time when I was pretty much house bound because of seizures, not able to drive, and not within walking distance of public transportation, so stayed home almost all the time while Doug worked ten hour days. I hated it! People really are social beings. Then, finally able to drive again, a few years back after getting several blood clots in the lungs, i ended up on oxygen 24/7 for almost a year and found it hard to get out again. That is why I am so grateful for you good people here. I hope you find/ are finding the same sense of community I have here. I know it's not the same as people you can actually see and talk to, but it has been a lifeline for me at times. :hug:
 
My hubby worked from 11yrs old in his fathers woodyard chopping,sawing and stacking wood.When he was able to drive he was out delivering wood.He was still working there when we met.After we married he was self-employed and worked all hours of the day and night.Me with him, until we had our son.Christmas,Easter and weekends while others were having fun,he worked.It was just what he was used to and couldn't relax.Now he's retired.He did struggle for a while,but now he's enjoying it,and me too of course.In fact he says he doesn't know how he had time to go to work.
 
I've just come out of Waikato hospital. I'm here working for a week. But had sudden onset of pain ULQ flushing then vomiting and big D. Full body sweat dripping off me. I went in ambulance. WBC, neutrophils, platelets all high. I got fluids anti nausea buscopan and Imodium. I feel like shit!
 
Humira Buddy! I am so sorry you are not feeling well. I really hope you start feeling better.
 
Aura, that sounds horrendous. :( I really hope things calm down soon!

Sandy, you mentioned keeping an eye on earthquake areas - when I was in Japan last year, there was an earthquake on Kyushu (the small southwestern island). At the time I was on Honshu, the big island (where Tokyo and Kyoto are, I was in Kyoto at the time), so I was hundreds of miles away on a different island, and the earthquake happened in the middle of the night, so I didn't feel a thing as I was sleeping and had no idea that there even was an earthquake. But of course middle of the night in Japan is middle of the day for the US, so everybody at home saw "earthquake in Japan" on the news and I woke up to tons of freaked out "are you okay????" messages on my facebook. :p I guess nobody bothered to look up where Kyoto is in relation to where Kyushu is, ha ha.
 
Aura said:
I've just come out of Waikato hospital. I'm here working for a week. But had sudden onset of pain ULQ flushing then vomiting and big D. Full body sweat dripping off me. I went in ambulance. WBC, neutrophils, platelets all high. I got fluids anti nausea buscopan and Imodium. I feel like shit!
Click to expand...

Get well soon, I hope things improve for you.
 
I'm resting in bed today. On a liquid diet. So far so good. No more episodes. Fingers and legs are crossed [emoji16]
 
Status
Not open for further replies.

Similar threads

L
The decision : On Biologics or Not
Replies
18
Views
3K
NeverBeenEasier
N
A
What would you do?
Replies
22
Views
2K
Delta_hippo
D
valleysangel92
Hello Old Friends
Replies
1
Views
338
my little penguin
my little penguin
K
This has destroyed my life.
Replies
27
Views
3K
kephra
K
Crohn2357
GUT STERILIZATION FOR CROHN’S DISEASE (THEORETICAL CURE)
Replies
2
Views
1K
cheka
C

Latest posts

Back
Top