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Crohn's Disease Forum

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You can use ice packs on you as long as you have some sort of cloth between you and the ice pack. Do not keep an ice pack on for more than 20 minutes at a time or you could risk getting Complex Regional Pain Syndrome - CRPS (Previously know as Reflex Sympathetic Dystrophy - RSD.)

Remember the rule for ice packs or heat packs: 20 minutes on 20 minutes off. Better to keep the packs off longer.
 
Leaving work shortly, it now 31.5c inside and it only 1.00pm.

It currently 38C outside.

Found out today the work conditioning can't be repaired and need to be completely replaced:eek2::eek2:
 
Trying to be sympathetic but... :yfaint: after dealing with ice storms, frost quakes, polar vortexes and -30deg, I'm feeling a bit jealous of your +38deg! :ytongue:
 
I completely understand Tesscorm. 38C is normally ok but it now 42C. I am currently home and trying to stop my slight heat related illness developing further. I was reading and printing emails at work to action then forgetting to action them. We decide to only open office to 1 pm as without cooling we have no cool flow. hopefully the weather will break on Friday.


We had dry thunder storms last night which started 250 fires. Currently 20 fires are out of control. The weather conditions scare me as we had temperatures like this in the week leading up to Black Saturday.

The spokenperson from the ambulance on this morning news said they treated 80 people for heat relate illness. 20 of them were children who had been lefted in locked cars
 
Kidding aside, extreme temperatures, hot or cold, can create a lot of problems!! Thankfully, we never have experience forest fires anywhere near me but the devastation they can bring is horrible! We had a bit of heatwave last summer and also had a number of children left in locked cars!! Some of which who died! Don't understand that at all!!!

I hope the heat breaks for you soon!! :)
 
We have just had thunder and rained for about 1 minute. Really large drops and the ground already dry.

Extreme temperature are bad.

We had deaths of children left cars as well.
 
Hi! I haven't been on in a while and missed the weather discussion. But, I will admit that its been gorgeous here. I love Hawaii winters!! Lots of rain, cooler nights, perfect.

On a side note, Makena has been doing very well on the Remicade. Her second treatment was last Friday and her fistula is about half the size it was before we started Remi, which is fabulous. I think we're almost there!
 
I'm so glad she's doing better.
You can keep your warm weather. :cool2:
I love my snow flakes and watching my cute husband shoveling.:ylol:
 
Last time I was in Maui was exactly 15 years ago I was pregnant with Jack and the weather was nice. It was nice going from a freezing cold rain in Seattle at the time to a nice warm rain. Didn't mind seeing my cute husband on the beach instead of all covered up
 
The weather has broken now back to mid 20c low 30c.

We decided to add to our pet collection. My youngest daughter has always wanted a snake. No we didn't get a snake. None of the adults in the house were willing to sign her license application. I wonder why:eek2:

We settled on ten tadpoles, 7 spotted marsh frogs and 3 brown tree frog. The first of the brown tree frog left the water today. He is about the size of my thumbnail.
 
We just got notice that school is cancelled for tomorrow again... too cold! This will be the third day this year. If this keeps up, we're going to have to extend the school year into the summer.

20-30C sound fabulous, Catherine!! I'm so tired of snow and cold and it's only January. Three months to go yet. We have so much snow that when I shovel the drive I have no place to put it. The snow banks are taller than me :(
 
Farmwife said:
I'm so glad she's doing better.
You can keep your warm weather. :cool2:
I love my snow flakes and watching my cute husband shoveling.:ylol:
Click to expand...

ARE YOU KIDDING ME???!!! I do all the shoveling here and I am talking snow so don't even start with me. 5 degrees f and my pipes froze and burst yesterday. Fun and games! No water! At least I have heat and my Crohnie is in remission or this could be messier than just water everywhere. Going to rip down the walls now.
 
My boys aren't even going to get an education (tho they do climb trees well) because Mother Nature can't control her temper. No school tomorrow, possibly Tuesday as well with temps at -40F.

But I will not complain. It means less exposure to all the germs, bugs, viruses, and infections at school, right? Influenza is starting up. The school nurse called last week with a heads up.

Hope your water pipes are healing well, CIC! That must be a headache...
 
upsetmom :ytongue:

Mehita: thanks! The plumbing is fixed and the walls back up...even hung the kitchen cabinets back on the walls and kitchen fully functional. My kids are going to school tomorrow...life is good!

Kimmidwife: thanks! I have a daughter with a weird and severe form of dyslexia. The tell me she is just shy of being a genius but she fails miserably in school. I spend the last 15 minutes every morning shoring her up for the day ahead and the first 15 minutes when she gets home putting her back together again.
 
crohnsinct said:
upsetmom :ytongue:

Mehita: thanks! The plumbing is fixed and the walls back up...even hung the kitchen cabinets back on the walls and kitchen fully functional. My kids are going to school tomorrow...life is good!

Kimmidwife: thanks! I have a daughter with a weird and severe form of dyslexia. The tell me she is just shy of being a genius but she fails miserably in school. I spend the last 15 minutes every morning shoring her up for the day ahead and the first 15 minutes when she gets home putting her back together again.
Click to expand...

:rof::rof::rof:
The motto of my life.
 
Well that was a truly awful day! Had to take the Moviprep to clear out for my colonoscopy tomorrow. Hats off to all these poor kids that have to go through that on a regular basis. Really struggled to drink the 2 litres I was supposed to (I may have given up towards the end)!!! Yuck, yuck and double yuck!!!
 
One of the advantages that I count for having had a proctocolectomy is that I will never again need to have a colonoscopy and so will NEVER again have to drink Moviprep, Golytely (surely nothing has ever been so cynically named!) or any of the other preparations.
 
Sascot said:
Well that was a truly awful day! Had to take the Moviprep to clear out for my colonoscopy tomorrow. Hats off to all these poor kids that have to go through that on a regular basis. Really struggled to drink the 2 litres I was supposed to (I may have given up towards the end)!!! Yuck, yuck and double yuck!!!
Click to expand...

Yes I'm not looking forward to getting one.......ever.

But like Susan2 said I'm thankful for Grace's g-tube. When my boy had to do clean out, he asked if he could get one.:eek: you know it must be bad.:smile:


I hope all goes well. Update when you can.
 
I know you all have been jealous of our weather here. :ylol:... now that it's warmed up a bit (20F woohoo!), the snow is back. I posted a couple of photos in my profile page under "Fun Photos".
 
20ft drift. I kid you not. Yes, it warmed up and now our snow is thick and heavy. I'd rather have -20 degrees with light flakey snow.
 
Well that's me 6 days post op. Have to say I wasn't expecting to feel as bad as I did - poor husband had to work from home 4 days instead of two. Only now starting to feel able to move better.
Ended up having my appendix out as it was attached to tubes near it, 2 polyps removed from the large bowel and biopsies of an area of inflammation. Waiting for biopsy results a week on Monday. Hope it doesn't show anything bad :eek2:.
Hate not being able to drive and get out the house! Hopefully back to normal soon.
 
:getwell: Sascot!

crohnsinct: I LOVE the cartoon you posted. I have two dyslexic kids and a dyslexic husband so I am the odd one out in the house! My son also tests with an IQ in the gifted range but is dyslexic on top of it. Currently trying to figure out how to get him into a honours math program for high school but it has an entrance test and he really struggles with written tests, even though his knowledge of the math concepts is really good. Was up to 2:30 am the other night fretting about it all. ARGH!
 
Twiggy- does canada have IEP( individualized education plans)?
You could request all written portions of the test be read aloud to him since the idea is to test math ability not reading KWIM. ;)
 
He does have an IEP but his issue is with written output not reading, my daughter's issue is with reading but not written output just to keep things interesting!!! :ybatty::ybatty::ybatty: I think they will likely allow him more time to write the test. I just get frustrated with people that confuse quick reading or good test taking skills with intellect.
 
The way the school system is set up really can be a struggle for some kids. My daughter struggled all through elementary and high school. She was never diagnosed with any type of learning disability but I always believed she would have benefited from some sort of specialized teaching??? But, tests were the worst for her... she would sometimes become incredibly overwhelmed, stressed, crying, she'd actually breakout in itchy rashes all over and, at that point, couldn't focus at all which just worsened all her fears! Inevitably, she wouldn't do well in her tests/exams which just increased her anxiety when the next text came along. :ybatty:

What finally helped her, when she was in grade 11/12, was meeting with a ped psychologist who helped teach her how to manage a 'test/exam' environments. I can't begin to tell you how much it helped!!! From that time, she has been a different person when facing tests/exams!?!? I regret waiting so long in getting that type of help... I always focused on tutors to help her better learn the material, thinking that a stronger understanding of the material would lessen her test/exam stress. I never really looked for outside help in helping her deal with the environment itself but, it was this specific help that has made a huge difference.
 
Sascot,
Sending healing hugs! Hope you feel better quick!
Twiggy and Tess I know what you mean. One of my other daughters has a form of dyslexia as well. She is very very smart! but it makes life hard. It is one of the reasons we are homeschooling.
 
I hope your recovery is going well Sascot??

Sending luck and healing thoughts your way! :ghug:

Dusty. xxx
 
Thanks for asking. Ended up back in hospital on Tuesday. Had bad rectal bleeding so had an emergency colonoscopy (the blood had cleared me out!). They had to inject the polyp wound site with adrenaline and cauterize the area. Wasn't much fun plus sedation wore off halfway through :yfaint:. Overnight stay again but back home now. Hopefully that's it all done now. Time to get back to normal!
 
Oh my!!! :eek: That sounds horrible! Poor you! Glad you're back home and hope there are no more bumps. :ghug:
 
Good grief! :ghug:

I hope the road to recovery is smooth from here on in. Good luck!

Dusty. xxx
 
Yikes Sascot! That doesn't sound fun at all! Hope it is smooth sailing from here on out!

To all you moms of dyslexics...my 10 year old dyslexic was doing homework yesterday and was to lazy to turn her paper around to write right side up. So she wrote her name with the paper upside down and wrote with beautiful penmanship! Dyslexics are notorious for poor handwriting and my daughter takes the cake. We thought it was funny so she did the whole spelling work sheet that way with the same results. Today she came home and announced she can read upside down also and that it was actually easier. Wonder if we stumbled on something scientific here.....
 
After having braces on for 2 years they're finally coming off today but my daughter is devastated .

Last night she noticed a brown spot on her front tooth. l told her it could the glue....:confused2:.It doesn't look like a cavity

I've read some peoples teeth get stained once the braces come off because they didn't brush their teeth properly. Anyone have any experience with braces coming off.
 
Usually they are white spots, calcification that are under or near the brace line. My younger son has one from his braces. They don't go away. If it is a cavity it can be filled and not look any different from the rest of the tooth. Could be anything. Hope it is something easily taken care of and she can smile her pretty braceless smile.
 
Sarah had braces but had no staining issues when they were removed.

I hope whatever it is isn’t permanent but I’m sure whatever it is it can be fixed?? Was it not obvious when the dentist took the braces off?

Dusty. xxx
 
I'll let you know what happens, right now l've got one very upset teenager..:lol:..She wasn't this upset when she was dx with crohn's.

Dusty they're coming off at lunchtime.
 
I had a brown spot on a tooth once and it turned out to just be a stain from tea...looked like a cavity for sure to me. Tell her not to freak until the braces come off and she gets a good thorough cleaning....I know easier said than done with a teen girl!

Congrats on getting the braces off!
 
We saw the dentist today as well.

Good news is the brown spot on her front tooth was only a stain that came off easily .....bad news she needs 5 surface fillings on her back teeth. Her last check up with the dentist was only 6 months ago, l can't believe she needs 5 fillings.:confused2:

Anyway her teeth look perfect and she can't stop smiling.:D
 
Fab news about the stain! :dusty::dusty::dusty:

Not so fab about the fillings. :voodoo:

Fab about the smile though! :biggrin: :biggrin: :biggrin:

Dusty. xxx
 
Great news about the stain coming off....love a smiling teen!!!

We put so much $$ into DD mouth, I told her that she can break both arms falling down but don't EVER let anything happen to those teeth!! Lol!!
 
Quote: "So mom, ya know when you go pee and you don't realize you have to poop...well that just happened"

ERGH! Trying to get a sample for a fc test from my constipated child. Mine as well request an audience with the pope!
 
Gmama said:
Great news about the stain coming off....love a smiling teen!!!

We put so much $$ into DD mouth, I told her that she can break both arms falling down but don't EVER let anything happen to those teeth!! Lol!!
Click to expand...

I think this is hilarious as T (my crohnie's twin) broke both his arms bike riding with our family friends in August!!!! All I could think during the 14 hour wait to set them (they needed to knock T out because they were worried about shock) and the follow up the next day at the children's hospital to make sure the left didn't need a pin was "Thank God for health care....and that it wasn't his TEETH!!!" LOL!!!:ylol:

---Right arm was casted for 4 weeks and left 9....finished the summer and began school with them....you'd never guess now....AND he wants to try freestyle skiing like he saw in the Olympics....you know where three girls in a row broke/dislocated something.....
 
This is awful but I was laughing so hard... I was talking to Jack about a news article about marijuana e-cigarettes being found in schools. He tells me "I don't do anything except shoot up on remicade but it's only once ever 8 weeks so I've got it under control"
 
Got this sent to me today, it made me smile. Thought I would share.
Rest Your Mind

I know you have been laying awake at night wondering why baby diapers have brand names such as "Luvs," "Huggies," and "Pampers," while undergarments for old people are called "Depends."

Well here is the low down on the whole thing.

When babies crap in their pants, people are still gonna Luv'em, Hug'em and Pamper' em. When old people crap in their pants, it "Depends" on who's in the will!

Glad I got that straightened out so you can rest your mind.
 
Just a small 'worry' vent...:( S was home all weekend and all was good but just called me to say he feels absolutely horrible, throat is killing him, said he feels like he's dying :eek: Said he felt feverish last night and had some chills. And stressing because he has an exam tomorrow! He's not usually much of a complainer so must really be feeling lousy. :( He's going to go to a walk in clinic... Ugghh, hate that he's away right now and really fighting the urge to just get in car and go over there! I know it's just a cold/strep?? and I can usually control my 'panic' when I can SEE him, but so much harder when I'm depending on his call or text to know how he is! :( :ymad: :ybatty:
 
Tested positive for strep. :( And now has prescription for penicillan. :(

At least his exam was deferred for a week so he's coming home...
 
{HUGS} and warm wishes for you and your lad, Tess. :ghug:

Thank goodness he is coming home! I well know the worry of dealing with things over the phone and there truly is nothing better than eyeballing our babies!

Thinking of you. :heart:

Dusty. xxx
 
#lestweforget #ANZACday

The sun rising on the dawn service in our town today…

10259731_10152438823906289_4955629861557369467_n.jpg

Dusty.
poppy.gif
 
Ok my bubble builder did not mention I could get the wine faucet...I mean it is obvious no bubble would be complete without it!
 
That last one CIC had my husband laughing all the way out to the barn.

He ain't stupid enough to mention my weight gain.:rof:
 
Someone’s having a birthday today…Catherine! :dusty::dusty::dusty:

A great big Happy Birthday to you!

cons.gif


I hope it is a fab one! Dusty. :heart::heart::heart:
 
Thank you all for your birthday wishes. The day started well. Still too young to be the mother of a 18 year old.

The day has gone downhill from there. My husband doctor give him a referral to a diabetes specialist. A referral that he wouldn't give at end of last year. The appointment is not until the end of July. His blood sugar is sitting at the 20. For my American friends normal blood sugar is below 7.5 non fasting.

The doctor's great suggestion was he retire and look after himself. I love for him to retire about my wages are just not enough to support 5 people.



Thanks for listening.
 
Good heavens Catherine! :ghug: I hope he can be see sooner than that! :(

Is the GP doing something about the blood sugar in the meantime?!

Dusty. xxx
 
Hi DustyKat,

No change in meds.

Diabex 1,000 1.5 twice day
Diamicron 60mg MR SR 60 2 tablets morning
Lipitor 40 mg 1 daily
Trajenta 5 mg 1 daily

He has been doing exercise program in case study for a unv student. The student supervisor was so concern at the reading today she rang the gp. They won't let him exercise due to his age if the blood sugar reading is over 20. The reading only dropped 1 in hour.

This gp won't give copies of results at the referral says:

Serum glucose

13.2 nmol/L (4.0-6.0)

Date. Hba1C%. HbA1c nmol/mol
11/04/12. 10.1 --- 87
17/10/12. 10.9 --- 96
19/06/13. 8.7. --- 72
14/01/14. 11.5. --- 115
2/05/14. 10.6 --- 92

How the hell was this ever considered controlled :ybatty::ybatty:
 

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