Night Sweats Anyone?

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Momof2EW

Momof2EW

Joined
Sep 25, 2010
Messages
314
I know this may just not seem like the situation for everyone that has Crohn's or IBD issues.... but I have been waking up the past week or so with horrible night sweats?! I sometimes wont for a few nights and then they will reoccur. I sleep comfortable and with a fan on, so Im not to sure.

Could it be just because of my steroid side effects? I hate it though, waking up once and twice in the middle of the night to change my shirt isnt to exciting.

Please tell me Im not alone or what could be the cause....

Thanks so much:)
Newbie,
Elise

:ybiggrin:
 
HI there, yes, Prednisone in the higher doses really soaked me at times. It will go away once you taper off. I also am in the perimenapausal stages too so at least I save money on my heating bills :rof:. Make sure you drink alot more water. When we have night sweats and D, we lose alot of water. :hang:. Is it every night for you and what dosage are you on?
 
I get night sweats when I'm flaring. I get both hot and cold sweats, but either way, I wake up absolutely soaked when I'm in a flare. I have read someone else say that they sleep on a towel so that their sheets don't get soaked through when they have night sweats, that sounds like a good idea. Good luck!
 
Pen said:
HI there, yes, Prednisone in the higher doses really soaked me at times. It will go away once you taper off. I also am in the perimenapausal stages too so at least I save money on my heating bills :rof:. Make sure you drink alot more water. When we have night sweats and D, we lose alot of water. :hang:. Is it every night for you and what dosage are you on?
Click to expand...

Im on 20mg in the am and 20mg in the evening. And thanks for your reply!

And for the most recent poster i think the towel idea is something i should try as well!

Thanks y'all:)
 
Oh yes I can relate! I woke up in the middle of last night soaked. Don't know if it's the flare or the prednisone but its terrible. May try the towel idea.
 
Elise, how come they have you taking 20 mg at night? Pred is known to cause insomnia, and I think most of us take the full dose first thing in the morning so that the "wired" feeling is somewhat gone by bedtime. If I were you I would check with the doctor to see if the full 40 mg could be taken in the morning. I'm currently on Entocort, which is milder than pred, and they still told me to take the full dose first thing in the morning so that I can avoid insomnia.
 
I wear cotton nighties and it helps to absorb the sweat...ew, I know but I wash my nighties often ;) 20mg is the level we are safe at, usually once we taper down past that, some symptoms cna come back, hope you are ok!
 
misterquin said:
Oh yes I can relate! I woke up in the middle of last night soaked. Don't know if it's the flare or the prednisone but its terrible. May try the towel idea.
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See i thought maybe it was a flare with me but its just the sweats really. .. the other night i had real bad leg pains but the past two nights its just been sweating.
 
Cat-a-Tonic said:
Elise, how come they have you taking 20 mg at night? Pred is known to cause insomnia, and I think most of us take the full dose first thing in the morning so that the "wired" feeling is somewhat gone by bedtime. If I were you I would check with the doctor to see if the full 40 mg could be taken in the morning. I'm currently on Entocort, which is milder than pred, and they still told me to take the full dose first thing in the morning so that I can avoid insomnia.
Click to expand...

Hey im pretty sure the doctor has me doing the 20 in the evening because when i don't space it out my side effects start to reoccur... i start twitching, my jaw locks up on one side and my leg and arm pain kick in real bad. So he said to take 20 in the am and 20 in the pm. It seems to help though because when i did the total, 40 in the am by the afternoon i felt horrible.
At night i take ambien to help me sleep, i think if i didn't have that i would probably be up for a good bit, but the ambien does fine with my sleeping.
 
Pen said:
I wear cotton nighties and it helps to absorb the sweat...ew, I know but I wash my nighties often ;) 20mg is the level we are safe at, usually once we taper down past that, some symptoms cna come back, hope you are ok!
Click to expand...

I would sweat horrible if i wore cotton nighties, lol. I just sleep in shorts and tshirts. And i have also heard well... experienced the under 20mg on the pred because the last time i got done to 15mg i was back in the hospital with leg, arm, back pains. I was like a 80yr old ladt with horrible arthritis problems. They then had me on an IV with 180 mg through that. So i've been pretty high on pred and came back down as well. I just hope when he drops them again i don't flare up again.
 
Hey,
Yes, you're NOT alone :)
I am on prednisone too, and have been waking up drinched and just like "oh.. yuck... ew... *doesn't want to move*" . I have this issue that seems to happen every night, but takes a break for a night or two here and there.
But before all of this, and before i was dx with crohn's, i would sweat the same way, and would be drinched... the first few times it happened it had me wondering if someone poured water on me, or if i had pee'd. (doing a quick smell test, i knew it wasn't pee. lol!)

I've been experimenting lately. I use diffrent types of fabric covers to cover up with. and wear pj's that air can circulate to the body. it seems to help a tiny bit. but it's far from being perfected. lol!
 
I would sweat horrible if i wore cotton nighties, lol
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I understand this. I found cotton is a cooler material and less binding that shorts...and I am sensitive to synthetic material. I have cotton everything, and it really helps me. I sweat big time in any other material. WE are all different in everything :lol:
 
Happens to me whether I'm on or off Pred. I hate it. Make sure you have a good mattress cover (I have an awesome waterproof one) or all that sweat is soaking into your mattress. EEEEwwwww!
 
:medal1:
Momoftwo

Hi just read your post and just like all the other posts thought I'd reassure you that your not on your own , iv woken up many nights drenched in sweat, wether that's in a flare on meds, not on meds etc:blush:
As stated by others, iv got a mattress protector, bcos as stated before imagine if you haven't that sweats going right into your mattress:stinks:

And iv taken to going to bed hmmmm naked!!!!!!:eek:
I too wake up wondering if iv had an accident on times but no!!!!! It's the sweats !!!

Sorry I haven't got an answer to get rid of it, but just to reassure you that you are certainly not on your own:ghug:
 
Thanks to the recent posters :) I already have a mattress cover so that problem is handled. Im just glad Im not the only one, ha.

Thanks you all! Hugs!
 
I'm not on Pred, but I am on Entocort. My sweats are off and on...I link it to an upsoming flare/stress...everyone is different but either way..you're not alone!
 
I'll wake up with night sweats occasionally even if I'm not on Prednisone. It might be the disease itself causing it, too. Body temperature changes while sleeping and Crohn's, being an autoimmune disease, could make your body temperature fluctuate even more, so that wouldn't surprise me.
 
4peace said:
I'm not on Pred, but I am on Entocort. My sweats are off and on...I link it to an upsoming flare/stress...everyone is different but either way..you're not alone!
Click to expand...

Mine are the same way! Its just nice to know that I am not alone, I was starting to get worried with the dern sweats, lol.

:ylol:
 
effdee said:
I'll wake up with night sweats occasionally even if I'm not on Prednisone. It might be the disease itself causing it, too. Body temperature changes while sleeping and Crohn's, being an autoimmune disease, could make your body temperature fluctuate even more, so that wouldn't surprise me.
Click to expand...

I know now that pred has alot to do with it by reading up on the side effects, but yes as you said it could also have alot to do with the Crohn's and it being an autoimmune disease as well. Either way... its nice to know that Im not the only one getting the bed wet at night! :lol:
 
I don't get night sweats, but on the higher doses of pred once I start sweating I don't stop. There have been a few days where I've had to change my shirt a couple of times.
 
vonfunk said:
I don't get night sweats, but on the higher doses of pred once I start sweating I don't stop. There have been a few days where I've had to change my shirt a couple of times.
Click to expand...

I've had to do that sometimes during the day if I get to amped up on the pred, I can't stand all the sweating... but I deal with it because I have to I guess. :)
 
When I get them, they are really bad. Sometimes I wake up in the middle of the night and my sheets are literally drenched in sweat. The clothes that I'm wearing to bed are drenched, and I either have to find a new pillow or turn it over. Sometimes I'll even have to take a shower in the middle of the night because it feels disgusting to go back to bed when you've sweat that much. Then I'll have to put a dry towel over the area of the bed that is soaked so I can sleep somewhat comfortably. So yea, I've been there.

I've researched it and night sweats are a sign of infection. And, not to scare anyone, but the two infections most commonly associated with night sweats are Tuburculosis, and lymphoma. I've been on Remi the last 7 or 8 years and now on Humira. Maybe I'm being paranoid, but still very scary. They can also be a sign of withdrawl.
 
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Poppysocks said:
When I get them, they are really bad. Sometimes I wake up in the middle of the night and my sheets are literally drenched in sweat. The clothes that I'm wearing to bed are drenched, and I either have to find a new pillow or turn it over. Sometimes I'll even have to take a shower in the middle of the night because it feels disgusting to go back to bed when you've sweat that much. Then I'll have to put a dry towel over the area of the bed that is soaked so I can sleep somewhat comfortably. So yea, I've been there.

I've researched it and night sweats are a sign of infection. And, not to scare anyone, but the two infections most commonly associated with night sweats are Tuburculosis, and lymphoma. I've been on Remi the last 7 or 8 years and now on Humira. Maybe I'm being paranoid, but still very scary. They can also be a sign of withdrawl.
Click to expand...


That's very imformative! I wouldn't have thought it could be a sign of infection . I've been okay for the past 4 or 5 nights with the sweats. Mine aren't that extreme, but its good to know what to watch for if they got worse .

Thanks for the reply:)
 

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