Possible fistula

[loriann]

Hey I am a newbie to this forum. I have been suffering over twelve yrs. I am curious if any of u pass suff in the urine. Thought I had kidney stones til a urologist role me they r not stones they r material from a fistula. He told me to go to a GI and I did. That was about six years ago and no luck so far.

 

[loriann]

I would like to add thru all this I always have severe pain in my back and left side bad headaches sweats diarrhea constantly and sometimes weakness to the point I can't walk. Any help would be greatly appreciated. I really need my life back. I have dour kids and they don't even know the real me
All they know is me sick. I do not eat anymore and if I do even try to eat a few bites put me in the bed. I live on nutrition drinks. Thanks

 

[Sailorluna]

I have fistulas but not a fistula to the bladder which is where you mights get matter in your urine from. I thought I had one because of a UTI that took 5 weeks to go away but after a CT scan and an MRI they decided that I did not. Have you had a CT or MRI? Have you seen a colorectal surgeon at all? What does your GI say the issue is? Do they disagree with the fistula rx?

 

[loriann]

I have not been to a surgeon only a GI. I have had colonosxopy and scans. I have been diagnosed with Crohn's and diverticulitis but no fistula. Do they show up on an MRI I am thinking maybe I needs one. Thanks

 

[DJW]

Fistulas are awful.

Are you currently on any meds?

 

[Grumbletum]

Hi Loriann. Six years, that's a long time to go with no definitive answers. I had a bowel to bladder fistula and abscess and experienced similar symptoms to you. Do you suffer from UTIs? I had them constantly and just before they decided to operate, had started to pass what looked like food or fecal matter when I was urinating.
Yes I think a CT scan or MRI would help to confirm if you have a fistula or not. I have had both and my fistula was seen on them.

 

[loriann]

No meds right now. I once took a lot of very strong antibiotics and steroids.