Remicade and still flare ups please help

[Jyeager]

Hi, please help i want to give up on life and everything so bad i cant take it. Im receiving 5mg per kg remicade every 8 weeks and have been for a year now. I still have inflamation in my intestines and some days its so bad i cant stand it. It takes forever to see my GI doctor and nothing seems to get resolved. If i call they tell me if im in that much pain go to the hospital so i do. Im starting to be treated as if im drug seeking but im really not i feel so hopeless. I had a bowel resectioning 2 years ago and remicade for a year. I keep getting flare ups and the run around of "just go to the hospital", my medical debt is ridiculous and ive seem so many doctors i dont know what to do anymore or how to approach this problem. I cant live like this i want to give up so bad please i need advice and support im so depressed and lost please.

 

[Lisa]

Are you only on Remicade? It sounds like you should possibly be either on a higher dose of Remicade and/or additional medication(s). If your doctor won't listen to you, it may be time to look for another GI who will.

What kind of symptoms other than pain do you have?

 

[chrisnsteph1022]

You're on a low dose of Remi. Could they increase it to 10mg/kg? They had to do that recently for me. Unfortunately, it's not working, either. But it's worth a shot. Do you not have insurance?

 

[EthanPSU]

Remicade just didn't work for my. I went a year on it till I was taken off. Maybe it just doesn't work for you

 

[crazycanuck]

First step is a new doctor.

If your still getting symptoms you should be on more than just remicade. You can also have your dosage doubled as was said and you can also go every 7 weeks. Don't give up and you'll find a solution. New drugs are coming out constantly and if Remicade doesn't work then try and try again with new things. You'll get there, hang in there.

 

[scoutfinch]

I agree with the suggestion to find a new doctor who will listen and treat your disease appropriately.

 

[Earnellzwifey]

I am also on a low dose of remicade. I have been on It nearly a year and I am still symptomatic. My rheumy put on if another problem. Now that they confirmed CD, my gi said they will have to increase my dose and prob get every 6 weeks instead of every 8. I always crash bad the last 2 wks before my next dose.

Definitely sounds like time to get a new GI. Hope you have found relief.

 

[moogie]

I'm on a big dose of remi and I go every 6 weeks. I also have other medicine to control the occasional flare ups.

Don't give up but do as was suggested here find a real doctor not a cracker jack one.

Good luck.