Hi Susan
Thankyou for your very supportive message. I am very definately the Tracy part of our member ID! Laughs
It seems you are a success story in the making with your stoma and surgery, I hope I'll be looking back in 14 years with such a positive outcome. I am sat in anticipation of the Surgeon coming to advise whether it with be done via keyhole or open surgery. I've previously had a colostomy and reversal so have already been told by one surgeon that there may be adhesions, making keyhole more complicated. It would be great however to at least try as the recovery period is much quicker and won't have the usual incision line down my middle. It has been confirmed again that they will leave a small amount of bowel and the rectum in place, I hope this doesn't prove to be a problem in the future. Looks like the surgery will take place before the end of the month as it is marked as urgent. I haven't eaten solid food for nearly 6 months as was on Fresubin energy drinks then onto NG feed for four and a half months. When the NG failed and was vomiting so much along with chronic diarohea, I was admitted due to malnutrition. I've been in hospital for nearly seven weeks and am still here. Although apprehensive of the surgery, I am also very keen to get on with it and get my life (and my family) back on track.
Dear Tracy,
New guy here, Hi. I've been browsing for a long time but never participated because I had nothing to add to the great community here, but my situation might give you a bit of insight. I was diagnosed at age 17 with very aggressive Crohn's and spent the next three years in and out of hospital, celebrating my 18th, 19th, and 20th birthdays on a hospital bed. And all because I refused surgery. I went from a 200 pounds linebacker (American Football) to a 108 pounds nothing. I will spare you details of what I was going through, you know all of it by now. After 3 years, I agreed to the surgery, not for myself, but for my family. I had my anus, colon, and part of my small intestine removed, so I am now the proud owner of permanent ileostomy.
That was the usual part. Now, here is the sad part: my younger brother was diagnosed when he was 18, and refused surgery for 2 years. He was in and out of hospital, etc. He's been through all the medications:, some seemed to work for a while, then not. That went on for nearly 5 years, than he finally agreed to a pouch. He was ok for a while, than it clogged up. Then came more medications, more hospital, etc. He even became addicted to morphine, and is still trying to overcome it. After 12 years, his life is still ruled by the illness because he won't accept a stoma.
So, I will end with a small pearl of wisdom: surgery is not the end, it's a beginning. I went through three years of hell because I wanted to remain "whole"... don't. It's now been 21 years, I still have to take medication now and then, when it flares up, but it's ok. I work, go to the gym, enjoy the nightlife of my wonderful city, and the best part is that only my family and the people I have told know of my surgery, no one else. So please, don't worry about that. I now have a "mostly normal" life, you will too.
Best of luck my dear,
PPR