The first indication that something was off in my life was when I got a bartholin gland cyst. Thats the bottom end of the labia minora. I years later attribute this to crohns. But why is my crohns attacking my vaginal area. This makes no sense to me at all. The fistulas... At first they were on the but cheek now they are getting closer and closer to my vaginal opening they meaning about 4 holes. I hate examining myself. I think it makes me more depressed to see them. Some genius doctor decided to put in a seton when I was 18 and now theres really no normalcy to the area between my vagina and anus. Supposedly to make things better but really I detested that cord hanging out of my body. I wish there were a clear cut action plan to follow. I stopped eating meat however I know in my heart that the dairy and spices are the real enemy. I wish i Could stop eating it.
I'm a glutton for punishment. And believe me I get punished on the toilet. To tears some days. The inflammation caused me to be shut so tight going caused fissures... So the double f's. I hate them. My disease is in the small intestine according to my most recent colonoscopy. So what's up with my rectum going crazy sprouting tunnels and cutting my anus up? I hate this desease. I feel like people can't see my pain because I look normal. It's so embarrassing. I feel like I can't talk to my friends about it because it's gross and they won't understand. So Im here. I feel better surrounded by people who can relate. I have taken all the drab pills and am supposed to get started on humira next month. I'm hoping it will close the fistulas. The ones on my butt cheeks healed so I know they could close, will they is the question. I really just want a shot at being a normal girl. I'm rambling sorry. More to come.
I'm a glutton for punishment. And believe me I get punished on the toilet. To tears some days. The inflammation caused me to be shut so tight going caused fissures... So the double f's. I hate them. My disease is in the small intestine according to my most recent colonoscopy. So what's up with my rectum going crazy sprouting tunnels and cutting my anus up? I hate this desease. I feel like people can't see my pain because I look normal. It's so embarrassing. I feel like I can't talk to my friends about it because it's gross and they won't understand. So Im here. I feel better surrounded by people who can relate. I have taken all the drab pills and am supposed to get started on humira next month. I'm hoping it will close the fistulas. The ones on my butt cheeks healed so I know they could close, will they is the question. I really just want a shot at being a normal girl. I'm rambling sorry. More to come.
I'm so sorry you're having this much trouble 
