Very anxious and exhausted with Crohn's - please help!

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Joined
May 15, 2014
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Hi everyone,
This is my first time on a Crohn's forum. So far, I have been trying to deal with my Crohn's alone, and advice for people who are going through the same thing would be so helpful.
After 2yrs of trying to control my disease through diet and supplements alone, I have recently had to start Pentasa.
After 3mths on it, I am still experiencing regular flares and overwhelming fatigue. Not sleepiness but every muscle in my body feels so weak, especially thigh muscles, that it aches and is a massive effort to walk up stairs. I also feeling faint and dizzy sometimes too, and like my heart is beating faster than usual.
I am training to be a yoga teacher, but struggling to go to anything but the most gentle classes, and am exhausted after demonstrating when teaching a class myself.
Does this sound like a Crohn's symptom? I am waiting for more blood results, but all levels were normal a couple of months ago. I am also very anxious at the moment, so any advice would be so, so appreciated!
 
Hi and welcome. Glad you found us. This disease is very difficult to fight on your own.
I battle fatigue all the time. One thing my GI has stressed is proper hydration. Please make sure you are drinking enough.
Hope you feel better soon.
 
Hi everyone,
Not sleepiness but every muscle in my body feels so weak, especially thigh muscles, that it aches and is a massive effort to walk up stairs. I also feeling faint and dizzy sometimes too, and like my heart is beating faster than usual.

Welcome!

I felt like that too when I had pretty bad anemia. Hopefully you'll get those blood results soon and you can move towards correcting whatever is making you feel that crappy (no pun intended :ylol2:).
 
Thank you everyone for your welcomes and support. I do wonder if the medication itself can cause fatigue, but my specialist says he has never heard of it as a side effect. I'm on a Pentasa 4g per day. Does anyone know if there are other drugs in the family as Pentasa that might not cause such exhaustion? Take care everyone. Look after yourselves lots!
 

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