sorry for the long message and I rant ...but my view
First let me say Im a engineer (network) there are 7 layers to the OSI network layer.. when something breaks you start at the bottom and work your way it. Ive found with this nasty disease, people are all over the place looking and try to fix things.. Docs are doing all these studies, etc DNA etc instead of focusing on the basics first... (good bacteria and yeast levels) to me all these studies etc are useless. We all are sick the meds just turn things off, and mask what you have. Its not working as we are all still sick...and more people get it each day... I choose a different way. In the network work we have a saying--- all the server people always say its the network..The network so called is always the problem... We laugh and say its the network until proven Innocent.. 90 percent of the time its the server.
So for me Im sure someone will bash what I have to say as I have a didnt look and spin on this.. And its worked for me.. NO DOC could tell me crap.. other then what meds to take drugs, to suppress my immune system.,, what drugs to bring down inflammation. To me I started at the bottom.. yeah you have all these problems.. if you look everyone seems to get worse over time or have to change to another med... even with the meds look all over here .. SINUS, migraines , SKIN rashes.. hemorrhoids..depression etc etc.. Many will say ahhhh what does that have to do with crohns.. Your sinus and gut are connected who ever doesnt want to believe that so be it.. Bacteria, yeast live in you NOSE,,, your skin EARS , SINUS and GUT.. Your sinus is your first line of defense in your breathing area.. Your mouth second.. gut third - bacteria and yeast can get out of wack in any of these.
If you have nasal drip... iyou have a problem if these bad bacteria or yeast in it just re infecting your self.. Docs focus on bacteria here and NEVER fungus.. with the MAYO clinic stating that over 90 percent of sinus related problems are due to FUNGUS... yet when you go to the ENT they NEVER look or treat that way... Talk to a holistic doc they have the opposite approach.. yeast then bacteria..at times... Ive been going to the ENT since 6 years old im 41... ive had steroids.... in haler s told to take sinus meds... spring allergy pills etc .. I got the migraines , sinus head aches etc my whole life... never any answers takes these pills..
All these pills NSAIDS - ibuprofen cause yeast to over grow,,, mess up your stomach lining.. but help you... they mask the symptoms. Same with steroids-- they shrink inflammation but make yeast worse... I looked into my whole body over two years ago.. I jumped on the FORUM and also studied what everyone chatted about all there problems... symptoms there meds... what supplements -- I got some great tips.. But I researched every little thing.. Im an ass.. i know that.. For me there was alot of basics over looked. Until my stomach failed and ASS fistula etc infection I dug deep..I also crossed checked the candida forum..arthritus( we know arthriuts is bacteria or maybe yeast in the body-- the body attacks itself giving you the problems ..they just dont know which ones..theres trillions.. etc.. many have similar things
I researched all these tests the docs do on crohns.. I then also researched intolerance's allergies etc. I found almost no one reacts at the allergy office..( this place is used for at best instant allergy) Most come back here with nothing reactive yet they know deep down they dont feel right eating something or they flare when they do.. yet the allergy doc says oh im so sorry... we didnt find anything make a food journal... which to me was a bunch of bullsh*t.
I looked into food gluten , digestion ...sugars starches... all very hard to digest. and if your lining is gone or you have leaky gut... Which any doc you ask will laugh in your face... One they cant tell or see if you have no lining... all they can do is see inflammation and infection..they dont know you have leaky gut unless they find a hole.. ..and treat for that with meds to turn off the body from attacking the area or give you stuff to lower the inflammation..or repair it..Does it work hell yeah... do people feel better YEAH yes.. but it doesnt address the problem..
SO you eat a food you dont know bothers you... you get inflammation , but your pill lowers inflammation..You eat a food that causes a problem your taken a pill to turn off that reaction... The basics we know is that your colon is infected due to bacteria getting in.. Sure that happens.. I know for my self I had HIGH clostridia bacteria ( theres many strains) you may not know but lactobacillus GG eats away at this type.. But I also had high makers for yeast/fungus... Your balance should be 80 percent bacteria a mix and soup mainly good bacteria , and some bad we all have them living in us.. the rest should be 20 percent yeast.. Yeast is a hidden marker NO doc looks at .. Ask your doc about it. they will laugh in your face.. Or say --ONLY a immune compromised person has yeast over growth.. BULL SH*T....DO the research.. I did my self.. Every person with ADHD, mental problems, immune diseases(theres many) , and what we have-al of us on here.. is one has HIGH yeast and high clostrida strains mainly..
So back to your food intolerance thing bacteria and YEAST-- no one wants to talk about what influences your gut.. many of the meds in crohns make yeast grow like crazy.. Yeast live in the tract just like bacteria.. they live along the lining.. they can go bad or pathogenic and root like a tree.. bacteria can get in.. same with food and food proteins.. you can google this.. No doc will tell you this or say this.. The colon test cant show this its all microscopic
Food , bacteria , yeast... The first thing I did was decided to look here. I decided to document my life in testing... My first base was using the best lab in the USA
http://www.greatplainslaboratory.com/home/eng/full_oat.asp (OAT TEST) which looks at the by products that bad bacteria release in the urine as well as yeast.... look at the sample report on there SITE... this showed for me MASSIVE yeast problems and HIGH clostridia strains) yes a bacteria problem
I also did there COMP STOOL test....This test is a thousands times better then any hospital test.. or local lab test.. At Your hospital..they only look for a handfull of BAD bacteria , and parisites.. this one---looks at 92 strains of bacteria, 48 yeast ( no doc or hospital does) 22 parasites
http://www.greatplainslaboratory.com/home/eng/stool.asp
I Got my base here.....this test also tells you if your good bacteria is low... and if your producing FATTY chain acids,,, looks at your PH.. If you dont have good bacteria you cant produce fatty chain acids which protect you...
My ph was off.. chain fatty acids low...Bad bacteria nd yeast love and love in a bad PH ... and good bacteria can not live in this... tthis labs also has have inflammation results etc.. MIne were high....YEAST high.. some markers for bad bacteria..yes bacteria and LOW good bacteria
At the same time I did this .....I researched all the crohns tests ,, colitis , IBS , gluten celiac.. I found you can be intolerant to gluten and no doc can tell you this...if you test negative for celiac... I found you have to genetic test for HLA DQ... I did ( 4 genes for me) gluten protein can look like to the body canidda as the protein is similar..if your immune system is a wreck it cant tell...
I found that almost EVERY person is reactive to ASCA or AMCA both yeasts.... more people with crohns are ACSA.. ASCA is = bakers brewers yeast.... AMCA is candida yeast..
both yeast can grow out of control in your body....leave out your bread...if you dont have good bacteria.. it cant block this action... there was even an article on YAHOO this year where a man who never drank went to the hospital felt bad and had symptoms he was drunk..the hospital laughed at him until he came back... after running advanced tests they found he had yeast fermenting his gut making alcohol.
For me this test I found almost every doc does not run(LABCORP IBD EXPANDED PANEL)... and when they do they dont do much with it (IBD EXPANDED PANEL) google it LABCROP TEST tests 5 antibodies each mean something.. FOR me I was AMCA.. AMCA = candida I WAS HIGH well my markers from the great plans test also showed this....NO GI looked for this and they dont.. they will laugh in your face. I also had ALCA another antibody this is SUGAR... sugars are MILK GRAINS, STARCHES they all digest as sugar...
I looked at what feeds bad bacteria SUGARS... same with yeast... SUGARS so I removed almost ALL.. for 6 months.. I retested and my levels went down ... ?????
I then addressed whats the deal with my food... I never reacted at the allergy office.. most people look and find cheap IGG testing when they go further..this testing is a joke... .. i read and found this is not good.. So i found the best testing ELSIA/ACT bio they test IGG IGM IGA tcell and immune complex all at the same time they test.... I had potato come back, milk ,butter, bacteria in all milk products, yogurt /cheese. Buckwheat collard green and strange APPLE.. I removed all these...But I had already done that.. AS I removed milk , grains, starches from my diet they are sugars..
I then read in research you can have many different reaction Blood reactions with many different antibodies IGA , IGE ,IGM etc like above but they all mean something , past infection current infection , instant allergy etc. I also learned you can have to types of reaction no doc will tell you....a blood reaction and a gut reaction..... So I did the
www.entrolab.com fecal testing I did them all
My gut was a mess , I reacted to SOY, GRAINS ,gluten, rice corn, potatos, milk some nuts. I said dam what can I eat .. sh*t nothing... ah low starch veggies , meats fish, chicken duck... low starch--- peppers califlower , bok choy, asparagus , celery ,salad , onions garlic etc etc google low starch veggies.
I read good bacteria eat these... there like fertilizer.. well First I had no good bacteria.. so i flooded my body with it.. RENEW LIFE 50 billion free of milk grains starch , soy rice potato etc... I eat all these foods I felt better... but all of a sudden flare flare flare... I felt like crap , my system was dumping globs of mucus.. I felt bad ...migraines then my eye turned read ,, then itched... skin rash on fingers.. I siad what the hell...It was like someone was dumping a glass of water out my ass. many of these foods were antifungal and also when BACTRIA die or yeast die your system flushes.. my kidneys hurt and my system was oveloaded and dumping everthing my stool changed to green then yellow then normal again
I stuck with it and looked up which of the foods were more low starch fiber and bulking ones..to help the water POOs... I stuck with it.... slowly got better.. I started getting head aches from hell..muscle craps... sure low magnesium.. added that in.. I thought my head was going to explode.. I began dumping lots of mucus.. over time it lessened.. I re tested the IBD EXPANDED panel.... my numbers lowered more.. I said wow...I read that when bacteria nd yeast die they release mycotoxins and give you all these muscle pain.. migraines etc etc
As time went on ,,,, I talked with the lab at great plans they were great they told me from my report and explained everything .. they said I needed to up my protective bacteria...kill several bad strains and lower yeast.. they said what your doing is good...not many stick to it like that... The report told me what killed with with a natural product and or antibiotics.. they lady basically with out telling me told me go for the natural ones.. I did.. as time went on I got better... I ate these foods for breakfast lunch and dinner... I took glutamine( helps gut lining) ...I tossed all my supplements and bought ones that were free of all these foods vit d3, soy free.. b complex krill oil and flax oil..
I began to retest the IBD EXPANDED PANEL every 4 to 6 months.... every time I went the numbers got better and better its now 2 years...my numbers are great.... I retested the great plains lab.... my good bacteria is double... I now produce fatty chian acids my ph is normal... and NO yeast.. in stool... some markers are still in urine.. I continue to work on it...clostrida strains(bacteria) are under control now
I plan to retest the ELISA act with in the next two months...and then the enterolab,, At the same time I have changed my gut bacteria make up... it is all different now... CLOSTRIDA strains are lower good strains are HIGH... I can eat all the fiber want and no problems..
I also did the america gut project ....6 months ago I got my results and I have LOW bacteria - in strains that cause inflammation now.. I also have a stain that deals with eating mucus HIGHER then the avg person... it is also a strain that protects the barrier of your gut shown in research the avg person has 3 to 5 percent.. *****immune disease people have a low level.. I have 13 percent... to me Ive done something successful ..... I feel great I have no issues and all my heath problems started to slowly go away back pain , side pain migraines , sinus problems nasal drip and hemorrhoids.. bye bye
I also did alot with spraying antifungals in my nose while doing this..as I stated above that if you have stuff in your sinus you can re infect your self.. today my sinus are clear..
I feel good etc....maybe Im a bad example ... but I looked at the basics first - instead of meds..at times you have no choice i understnad that...maybe i got to mine early before it got deep... maybe... I understand this may not work for all , but you may want to look into it..
*****my analogy is like this.... if you have a room with roaches... and you close the door.. and you tape the door... you then pull the circuit breaker on the power... and dont use the room.. You still have roaches.
to me that is the treatment we get.. turning off the immune system , anti inflammatory pills are the tape...
to me address the basics first its not easy for everyone.. another ****analogy is like this for me.... WW2 you storm the beach in Normandy the germans are the bad bacteria and yeast.. you send waves and waves of troops ... probiotics (USA troops ) many die... you dont give up... at some point you break the lines ... and kill the germans( yeast and troops)sad you loose alot of good guys(probiotics the germans are all still across Europe-- over time you weed out and hunt and kill all the germans( bacteria and yeast)you break there defenses and supply lines... youll get all most all of them over time.. ( the pathogenic- yeast and bacteria ( left over the poplulation finally come around and get under control... and everything is back to normal.. Life is good.. you let your guard down... Eating bad lots of sugars etc you start to have problems.( you dont treat the people well(bacteria) they begin to up rise
As well why not nuke eveyone take them out ??? to me thats antibiotics.. you nuke you kill everyone ... good troops and bad troops.. whats left.. the weeds(yeast) and sick populations of people( good bacteria) the yeast will win and the populations limp on... they live but cant over come. they have kids ( new bacteria ) but there born with defects... You need to clean the area... and bring in a new people... seeds(people-probitics) and grow a new population.. and maybe you can start over years down the road..It takes time for the population to come back....
and some times you need to do it NUKe them all...
Thats just my take.... and so far is working for me.....