- Joined
- Mar 13, 2011
- Messages
- 133
Hi All, I have crohns diagnosed 2011. took 2 years to get diagnosis. I was already on Remicade for psoriasis when diagnosed. So they continued to keep me on that as my treatment. 2 months ago I was in such pain in the abdomen, pressure and bloating. It started to move to low part of back and then left side of my ribcage area was the worst. I refused to eat as it would be so painfull after 2 bites. I was loosing weight and eating only soft foods. My Gastro had me take a SIBO test which was a 19 out of 20 so he put me on a 10 day antibiotic dose, taking 2 pills a day. I felt great by day 5 . NO PAIN. I could eat, even had a bit of energy and fosus. Its been 1 week now since my last antibiotic and I am in "sloth" mode. Its my term for not just tired, but where you are weak, can't focus and Can't get out of bed. I even took a nap after taking providgal in the mornings (used for sleep for those with narcolepsy and insomnia) Providigial is like a wonder drug for me, better then adderal because it doesn't zap you then 5 hours later you crash. But for the first time in months I am back to taking naps.
Its been 9 weeks since remicade and I have no crohns symtoms. I journal because memory has become poor last two years. I noticed I was tired and still had pain after Remicade, never been in remission since diagnosed in 2011.
I have read that in the UK they treat crohns as a autoimmune response NOT and autoimmune disorder. Many people who do not live in the U.S. get treated with antibiotics to boost their body and are in remission for lengths at a time. I have tried EVERYTHING for treatment and now seeing a neuro and MRI on thursday cuz I am loosing my mind. I have become agoraphobic w crohnic anxiety, which I was always on the go and never experienced anxiety, let alone panic attacks. I have been ill so long its odd to be out and being social. Plus what do I talk about? I don't do anything but sleep, educate myself and see specialists and treatments, they dont understand either becaause they say you look better then ever (lost 50lbs) I am on low side of weight now. But my memory and foggy brain makes me feel stupid :confused2: and I am an educated woman. Then when I do have a good day about 1 or 2 days a month, alert and feeling good then another back to pain and sadness. I look bipolor. So I do whats safe and stay at home though I hate every moment of it. I am loosing myself and starting to wonder why is it I feel BETTER on antibiotics and worse on Remicade? Anyone else feel better after antibiotics? :ghug:
Ps. :tongue: Brintellix is a new anxiety drug and it works great no negative or anger and even when I am in bed I dont cry. Haven't has anxiety fear or tears since on it because I know many feel the same way emotionaly.
Its been 9 weeks since remicade and I have no crohns symtoms. I journal because memory has become poor last two years. I noticed I was tired and still had pain after Remicade, never been in remission since diagnosed in 2011.
I have read that in the UK they treat crohns as a autoimmune response NOT and autoimmune disorder. Many people who do not live in the U.S. get treated with antibiotics to boost their body and are in remission for lengths at a time. I have tried EVERYTHING for treatment and now seeing a neuro and MRI on thursday cuz I am loosing my mind. I have become agoraphobic w crohnic anxiety, which I was always on the go and never experienced anxiety, let alone panic attacks. I have been ill so long its odd to be out and being social. Plus what do I talk about? I don't do anything but sleep, educate myself and see specialists and treatments, they dont understand either becaause they say you look better then ever (lost 50lbs) I am on low side of weight now. But my memory and foggy brain makes me feel stupid :confused2: and I am an educated woman. Then when I do have a good day about 1 or 2 days a month, alert and feeling good then another back to pain and sadness. I look bipolor. So I do whats safe and stay at home though I hate every moment of it. I am loosing myself and starting to wonder why is it I feel BETTER on antibiotics and worse on Remicade? Anyone else feel better after antibiotics? :ghug:
Ps. :tongue: Brintellix is a new anxiety drug and it works great no negative or anger and even when I am in bed I dont cry. Haven't has anxiety fear or tears since on it because I know many feel the same way emotionaly.