Also. I was told to change around some so you don't develop scar tissue.
Are you on a liquid diet? I hope you get some relief soon. Does your doctor know what is going on right now?I'm 19 and on Humira, have been for 2 years. I find it works best done on the abdomin. I switch sides every times. I do mine weekly. Though they worked great for the first year, I've been so ill for the second. I haven't eaten in 3 days, I've been to the bathroom 10 times already today. I just want this to be over. My past 5 years have been hell and I'm never going to be happy
No I'm not on a liquid diet, I wouldn't know where or how to start. Yes my doctor is aware, but they don't do anything but book me an appointment and I just have to sit and wait. If it gets real bad I go to emergency obviously, but they don't do much but give me pain relief.Are you on a liquid diet? I hope you get some relief soon. Does your doctor know what is going on right now?
Humira worked great on me until I became allergic. It works so well on so many I pray it works on you.No I'm not on a liquid diet, I wouldn't know where or how to start. Yes my doctor is aware, but they don't do anything but book me an appointment and I just have to sit and wait. If it gets real bad I go to emergency obviously, but they don't do much but give me pain relief.
Tomorrow I'm getting a 3 hour infusion for Remicade, my doctor thinks it might work better than Humira on a higher dosage. I also have an ultra sound and an MRI coming up. I recently had a colonoscopy and my results came back that I'd be needing a sigmoid colostomy. I'm so drained. This disease is ruining my life and there's nothing I can do but sit and wait...
After 2 years in a humira it doesn't seem it's working. So changing to Remicade.Humira worked great on me until I became allergic. It works so well on so many I pray it works on you.
I do a lot of smoothies it helps with calming down my runs. More cheese helps. If find that diet makes a huge difference to me. If I have oils or dairy it is bad. Create a food diary and only change one change at a time. Take care kiddo.
It's been about 5 years since I had to be admitted but the 15 or so years before that I practically lived at the hospital with stays averaging 6 to 8 weeks at a time then be out for 2 or 3 days and then back in the hospital for another month.I wasn't allowed out of my bed for pretty much all of my stay seeing I was hooked up to a lot of stuff but hospital wifi has improved a lot in 5 years so that was a plus.Looking forward to actually sleeping tonight.Hi Tubes,
Must be nice to be back home. I always felt like I was in jail or something while in the hospital. Hope you feel better.
Wishing you well,
I think that too. That's why I like my battle plan on what's going to happen next. What does this sneaky enemy going to do next.Thanks y'all I will look at crohns like being in war,everyone gets knocked down a few times in life but you still get back up onto your two feet again. Thanks guys.
That's right Fuzz. I couldn't agree more. Been there before. As soon as you are no fun anymore you get dropped like a dirty shirt. I learned quick who the real friends were.Me too... what a set of wimps . Guess you find your true friends when things like that happen.
Well i say they were not worthy of your friendship in that case.
Yep me too bud... still you will have real friends here. Well in virtual reality lolThat's right Fuzz. I couldn't agree more. Been there before. As soon as you are no fun anymore you get dropped like a dirty shirt. I learned quick who the real friends were.
AgreeYep me too bud... still you will have real friends here. Well in virtual reality lol
But seriously we are here for you always and we do understand exactly how you feel as we have /are going through the same. Iv been in remission for just short of 3yrs but i sure as hell is hot remember how bad it can be. Keep smiling my friend :hug:
Accupuncture is weekly for me and I don't get the swelling in my legs I used to get.I tried to get into a pain clinic that are so backlogged they wouldn't even make me an appt. I'm contemplating finding a acupressurist as I can't do the acupuncture any more. Maybe hot stone massage if I can find one safe to handle spinal injury people too.
I have never once... heard about a pain specialist. Are you meaning to tell me that thise times of agony... they could of been avoided? Or helped?!4ever,
No I saw a pain specialist when I was in the hospital. Pain clinic will be similar. It makes a big difference once you see the pain specialists. A nurse of mine suggested it to me. I hope you tell them how bad it hurts and where because they will help you better. Make a list of your pains and when and how they affect your life. Then you won't forget anything when you get there.
I will check into it for sure. Most magnesiums will cause the runs with me but if it's easier it's worth a shot for sure.GI Jane,
Have you ever tried magnesium bisglycinate supplements? The epsom salts are high in magnesium and as I understand it that(and the heat) is what helps with the aches and pains. My chiropractor suggested the Metagenics brand and she said we are almost all deficient in this. It regulates calcium levels and deposits that can be in your joints. It makes a lot of my aches and pains go away from taking it. It helped my father as well. Maybe ask if it jives with your meds. It's called Metagenics "Mag Glycinate" and says, "Helps to maintain proper muscle function and tissue formation" on the bottle.
Just a thought,
P.S. It is one of the most easily absorbed types of magnesium. Not all magnesium supplements are so easily absorbed.