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Hi penhow, so agree the stuff this thing can cause is the stuff of nightmares. We can but smile n live in hope :) . Take care now ..
 
ronroush7 said:
Thanks. I just got a call and they said my fecal calprotectin was normal but it seems like my urine test was lost. I go back and forth between bloating or going to the bathroom a lot with occasional bleeding. Forgive me if I am repeating myself. Can these symptoms occur from your intestines spasming? Sending prayers your way.
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that sounds like a reasonable conclusion...repeat yourself all you want...happy to listen! obviously, something isnt right...dont give up. its better to find out whats going on rather than churning it around in your head...happy thoughts!!!😀
 
Today a lot of things happened.

On the good side: I'm almost done with the first chapter of my story! This is the first step on the road to my dream of becoming a writer! I also spent the day with my father (my parents are divorced) and it was really nice to see him. I ate Italian food for dinner, yum! Oh, and my godson visited me today! We played a lot together and I was able to hold him for a long time without getting tired.

On the bad side: Today is the 3rd anniversary of my grandpa's death (R.I.P paps :) ). My boyfriend had trouble at home again and I got really sad for him. There was also a fight in my class. But the worst of all - blood appeared on the stool again.
 
-Rita- said:
Today a lot of things happened.

On the good side: I'm almost done with the first chapter of my story! This is the first step on the road to my dream of becoming a writer! I also spent the day with my father (my parents are divorced) and it was really nice to see him. I ate Italian food for dinner, yum! Oh, and my godson visited me today! We played a lot together and I was able to hold him for a long time without getting tired.

On the bad side: Today is the 3rd anniversary of my grandpa's death (R.I.P paps :) ). My boyfriend had trouble at home again and I got really sad for him. There was also a fight in my class. But the worst of all - blood appeared on the stool again.
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What kind of story are you working on? I'm also taking the time I have right now since I'm unemployed to work on writing :) about 100k words down, another 150k to go. Wishing you all the best. Reading your post is some good motivation to sit down and write today (I have been procrastinating all morning/ afternoon so far for no reason good or bad).

Seeing blood in my stool is hands down the easiest/ quickest way to throw me off during any given day. Hope it clears up quickly.
 
duh panda said:
What kind of story are you working on? I'm also taking the time I have right now since I'm unemployed to work on writing :) about 100k words down, another 150k to go. Wishing you all the best. Reading your post is some good motivation to sit down and write today (I have been procrastinating all morning/ afternoon so far for no reason good or bad).

Seeing blood in my stool is hands down the easiest/ quickest way to throw me off during any given day. Hope it clears up quickly.
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Wow, amazing to see another writer here! I'm only 2k words down at the moment because I procrastinate a lot when I'm not feeling well hahah.
My story revolves around teenagers and youth. It's the story of various teenagers that suffer from various problems related to school, life and family. Some of them are bullying victims, are sick, discriminated, put aside and their goal is to find the "right" way out of their problems. There are 8 characters/ stories being told in total. They will eventually meet and find a way out altogether. By the power of friendship and love. :ylol::ylol::ylol:
It's a bit cheesy but I'm enjoying writing it. Been working on it for 2 years and finally got the courage to pick it back up and finish it. :dusty:
 
-Rita- said:
Today a lot of things happened.

On the good side: I'm almost done with the first chapter of my story! This is the first step on the road to my dream of becoming a writer! I also spent the day with my father (my parents are divorced) and it was really nice to see him. I ate Italian food for dinner, yum! Oh, and my godson visited me today! We played a lot together and I was able to hold him for a long time without getting tired.

On the bad side: Today is the 3rd anniversary of my grandpa's death (R.I.P paps :) ). My boyfriend had trouble at home again and I got really sad for him. There was also a fight in my class. But the worst of all - blood appeared on the stool again.
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rita....thank you for sharing...the good and bad. it seems you are staying positive, but the blood in your stool is very telling....STRESS...its the one thing that does us all in.😞 keep writing, have a good cry..let it all out. you deserve to be happy and healthy. God bless!
 
penhow45 said:
rita....thank you for sharing...the good and bad. it seems you are staying positive, but the blood in your stool is very telling....STRESS...its the one thing that does us all in.😞 keep writing, have a good cry..let it all out. you deserve to be happy and healthy. God bless!
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Thank you for your words. I've indeed been extremely stressed this past week since I was just diagnosed with Crohn's, my grades for college are too low and I have exams next week. The blood in the stool was really scary! It was just a minor thing but it was enough to scare my whole family. Hopefully it's just a scare and not a flare.

Keep up the good spirit & God bless! :thumright:
 
-Rita- said:
Wow, amazing to see another writer here! I'm only 2k words down at the moment because I procrastinate a lot when I'm not feeling well hahah.
My story revolves around teenagers and youth. It's the story of various teenagers that suffer from various problems related to school, life and family. Some of them are bullying victims, are sick, discriminated, put aside and their goal is to find the "right" way out of their problems. There are 8 characters/ stories being told in total. They will eventually meet and find a way out altogether. By the power of friendship and love. :ylol::ylol::ylol:
It's a bit cheesy but I'm enjoying writing it. Been working on it for 2 years and finally got the courage to pick it back up and finish it. :dusty:
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Now that sounds like a story I would read! Mine is fantasy fiction, standard good vs. evil dichotomy. Hardest part is pulling the world/ characters/ plot from my head where it's been developing for over a decade and actually putting it onto the page. When I'm not feeling well even if I want to write often my attention span just can't keep up with the demands. Corticosteroids always slow my progress.

I hope you stick with it and one of these days or years(?) I get a chance to read it :)
 
duh panda said:
Now that sounds like a story I would read! Mine is fantasy fiction, standard good vs. evil dichotomy. Hardest part is pulling the world/ characters/ plot from my head where it's been developing for over a decade and actually putting it onto the page. When I'm not feeling well even if I want to write often my attention span just can't keep up with the demands. Corticosteroids always slow my progress.

I hope you stick with it and one of these days or years(?) I get a chance to read it :)
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Many teenagers suffer from these problems, especially my generation. Since many teenagers like reading, I had the idea to write a "self-help" guide showing them real life problems and how to escape them without doing crazy things like self-harm, bully others and even try to kill themselves. I wanted to show them that there are other ways, there is someone ready to help you. :):):)
My family immediately supported me and my friends said it was a great idea and remind me to write a sentence every day. I even showed the draft to my therapist while I was at the hospital and she praised me so much.

Although I've never self-harmed myself or went further from that, I've been a victim of bullying since 7th grade and am recovering from a 3 years old depression, I know how it feels and what you experience. Even thought I'm still bullied, I now have the courage to fight back and call out other bullies when they do something wrong, so I decided to create a story where this short, quiet girl protects other kids from bullies and bad people even thought she has her own problems as well and is trying to solve them. :)
 
-Rita- said:
I decided to create a story where this short, quiet girl protects other kids from bullies and bad people even thought she has her own problems as well and is trying to solve them. :)
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That, I think, is one of the best sides of humanity - our ability to support and build up one another despite our own struggles and challenges.
 
gonna try to clean a house today. just waking up, knowing i have to be somewhere at a certain time has sent me to the bathroom 3 times. BREATHE penny...BREATHE!!!!!😒
 
Finally feels like things have settled with new location/ household and starting to see more initiative in my better half and our roommate helping to get things done around the house or take over cooking meals. I hate transition periods so it's a relief to having everything settling back down and falling into place. Woke up with a fair bit of pain, but I'm holding an almost normal BMI weight for the first time since 2010, I'm very excited to keep pushing it some with exercise in rehabbing an acute meniscus tear and exceed the goals I have set for the next 3 months on that front.
 
-Rita- said:
Many teenagers suffer from these problems, especially my generation. Since many teenagers like reading, I had the idea to write a "self-help" guide showing them real life problems and how to escape them without doing crazy things like self-harm, bully others and even try to kill themselves. I wanted to show them that there are other ways, there is someone ready to help you. :):):)
My family immediately supported me and my friends said it was a great idea and remind me to write a sentence every day. I even showed the draft to my therapist while I was at the hospital and she praised me so much.

Although I've never self-harmed myself or went further from that, I've been a victim of bullying since 7th grade and am recovering from a 3 years old depression, I know how it feels and what you experience. Even thought I'm still bullied, I now have the courage to fight back and call out other bullies when they do something wrong, so I decided to create a story where this short, quiet girl protects other kids from bullies and bad people even thought she has her own problems as well and is trying to solve them. :)
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in real life too, never ever give in to bullying. I was bullied by another doctoral candidate some 3 years back, and I have given it back to him. My grades are very good as opposed to his poor ones and I have reminded him every time since, and now he fears me. :) He has recently suffered from a heart attack and you never know when justice would come knocking. :) Fight for your rights and in the process if harshness is required, use that please.
 
Today was an eventful day.

On the good side: I've finished the first chapter of my story! My mother found a chocolate made with lactose free milk which was awesome and tastes really good! My aunt and my uncle came to visit me today as well. My English test went really well, I hope I can get an A! I'm 1kg fatter ahahah, yay, I'm tired of being called anoretic when it's not my fault! I was allowed to start searching for a summer job by my parents, I either want to work in a cafe or at the beach helping the tourists.

On the bad side: I've been feeling a lot of pain since this morning on either side of my abdomen and on my hip and back. My vision gets blurry and I even had a short panic attack. I hope this is not a flare since I was just recently diagnosed and don't want to go back to the hospital. I did commit some wrong doings and ate fast food, which can probably be the cause of this pain and my mother already punished me because of it. I guess I caught a cold - the doctor said it would be normal because I'm really weak now. I hate colds uuugh....

On another note: I miss doing exercise... The weather got colder and my winter clothes aren't cute hahah. My birthday is next week - but I have the week filled with tests, ugh, I guess I should go study but again, I'm not feeling well to do it. My sibling came to me and talked with me about the time I was hospitalized and how he was dealing with the situation of me being sick. He says it's being hard for him but he'll do his best to help me be healthy and not go back to "the hell hole" or he'll cry and miss me to death (cute!).
 
smt said:
in real life too, never ever give in to bullying. I was bullied by another doctoral candidate some 3 years back, and I have given it back to him. My grades are very good as opposed to his poor ones and I have reminded him every time since, and now he fears me. :) He has recently suffered from a heart attack and you never know when justice would come knocking. :) Fight for your rights and in the process if harshness is required, use that please.
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I really hate bullying and I hate people who bully others. People still bully me in my class and bully my friends but this time I don't stand back and I actually reply to them. They call me names and annoy me on purpose. I shouldn't get mad because it may cause my medicine not to work correctly I try to avoid them but they keep buzzing around and annoying me on purpose to get a reaction from me. Yesterday I had to raise my voice because of them even thought the problem wasn't with me and felt sick. I know this will go on for a long time but I'm not afraid of them and if there's need to cross slap someone, I will gladly do it.
 
Aw bless your bro, yep it is not just hard on us. This affects our family n friends too..
Omg i know how that feels with folk thinking that you have some kinda eating disorder. Even tho iv been dxd for 3 n a half yrs , i still get u need to eat more. Argh!!! It does not matter what i eat i can seem to gain any more weight. At 8 stone ish for ages, shiuld be about 9 1/2 to 10 stone but hey ho im alive so deal with it is what i say these days .. Best of luck n best wishes take care x
 
Oh rita bullys should be whipped. May be they are jealous coz u are awesome. You deal with stuff they cant imagine.. Stay strong hun xx
 
Something is going on, weird pain keeps appearing and I don't know why. This is really scary. It gets better when I take my medicine but sometimes it's annoying and I need to get up and move around to let it pass. My back is the worst. Could this possibly be side effects from something?

I've also been eating a ton of fruit lately. I began eating two apples a day.Today I ate three! Oh, and I make sure to take the skin out like you all suggested. I haven't been eating any dairy besides lactose free milk and vegetable butter. I miss eating my favorite food (I was told it was really bad for me :( ). I hope I'm keeping my diet well and regulated.
 
KimboHiggs said:
Currently on the bathroom floor burning up badly in agony :'(
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Hope it passes soon so you can get comfy in a better place and rest. I'm with Ron and Mandy on going into the ER if you have someone to help you there - or call in for ambulance transport if you don't have someone to assist.

It is hard to know where the line is - when to go in and when to not go in - but crippling pain is something that should at the very least be treated, and if necessary explored. I figure, if it takes me to the floor and lasts over 15 mins. then it deserves my attention and care which includes contacting your medical team and pursuing necessary treatment until they get back to you. That's pretty much what guides my decisions now when facing varying levels or intensity of pain on such a regular basis.

Let us know how you're doing when up to it.
 
Hi guys so I started throwing up quite violently then after that more pain hit and a round of diarrhoea... I seem to be ok ish now like I've got out the worst of it... If anymore bad cramps strike again I will make a call and see what they suggest!! Thanks for your support guys it's so nice to have you guys :)
 
KimboHiggs said:
Hi guys so I started throwing up quite violently then after that more pain hit and a round of diarrhoea... I seem to be ok ish now like I've got out the worst of it... If anymore bad cramps strike again I will make a call and see what they suggest!! Thanks for your support guys it's so nice to have you guys :)
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Hi Kimbo glad ur a bit better hun, but plz dont suffer unduly get help if u need to . You are welcome anytime you need us we are here. Tho some of us maybe asleep due to time zones 😯x
 
Last edited:
Nembie here
At work getting ready for the day. Started Pentasa this past weekend and tried to muster through the spasms it caused, took hysycomine for spasms, and not feeling so hot. Dr put me on 1000mg for the Crohn's mild they say. See if I can back it down to 500 mg. Skipped the dose last night to see what happens and woke up this morning not so bad, nausea and some cramping , and took the 500 dose to see how that goes. See what happens while here at work. This stuff is hit or miss and sucks!
Hope all your day goes good for all of you.
 
Hi and welcome sorry you need to be here mind . Not sure if trying to change dosage so soon is wise , please check that with your doc. I know some meds can be abit rough till they settle down, and you dont want to end up in a bad flare. 😨 just advice of course what you do is up to you. Best wishes ☺
 
Quite exhausted. Have this week filled with tests and barely have time to concentrate on my actual life. Pain intensified because of the nerves and anxiety. Have a huge headache, can't think straight. I need to rest but not even that they allow me to do. Study, study, study! Jesus. :(
 
Aw Rita sorry things are abit rough right now hun 😦 hang in there n you can have a moan to us when you need to , its what we do n share a laugh now n then too ☺ love n best wishes take care x
 
My stomach never blinking shuts up it talks more than i do lol. Ye i get days like that too no movement for a couple of days sometimes . Then other days well !! You dont wana know 😨 ...
 
happy to report...i saw my surgeon and my pain IS justified! i have 3 setons...1 is through the muscle. doc says all looks good. no infection, but isnt able to say how long they will have to stay in. thank you LORD for pulling me out of this darkness!!!😃
 
mandyk said:
My stomach never blinking shuts up it talks more than i do lol. Ye i get days like that too no movement for a couple of days sometimes . Then other days well !! You dont wana know 😨 ...
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I'm home alone majority of the week - my digestive tract and I have regular discussions, maybe they're more like debates or arguments - either way, we talk and it answers more often then not. Insanity at its finest?

Although, jokes aside for me I can usually count on there being more noise when thing's aren't moving or are on the slow side then when everything is frequent.
 
-Rita- said:
Something is going on, weird pain keeps appearing and I don't know why. This is really scary. It gets better when I take my medicine but sometimes it's annoying and I need to get up and move around to let it pass. My back is the worst. Could this possibly be side effects from something?

I've also been eating a ton of fruit lately. I began eating two apples a day.Today I ate three! Oh, and I make sure to take the skin out like you all suggested. I haven't been eating any dairy besides lactose free milk and vegetable butter. I miss eating my favorite food (I was told it was really bad for me :( ). I hope I'm keeping my diet well and regulated.
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Keep the fresh food intake to a minimum. To much fiber can actually be causing your pain.
 
penhow45 said:
its so good to have a sense of humor!!!!😀😀😀😀😀
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Humor keeps me alive mate. Without it i would probable have gone to the dark places more times than i have. So ☺☺☺is my motto nowadays. Laughter is the best medicine they say, so i say ok i will get me some of that then, does it come on prescription 😂
 
mandyk said:
Humor keeps me alive mate. Without it i would probable have gone to the dark places more times than i have. So ☺☺☺is my motto nowadays. Laughter is the best medicine they say, so i say ok i will get me some of that then, does it come on prescription 😂
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Lol this is fantastic! Seriously making my afternoon Mandy :)
 
Well im glad to cheer you up mate. Im bloody depressed now 😂 guna have to take more of my laughter pills i think 😆 now !! Only kidding im delerious so blooming tired iv got match sticks holding my eyes open 👀 😨
 
mandyk said:
Well im glad to cheer you up mate. Im bloody depressed now 😂 guna have to take more of my laughter pills i think 😆 now !! Only kidding im delerious so blooming tired iv got match sticks holding my eyes open 👀 😨
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Match sticks sound mighty uncomfortable, I suggest taping them open ;)

Hope you get to rest up soon, delirious can be highly enjoyable in its own strange way, but personally I'm pretty partial to waking up and that feeling of everything being reset.
 
Mmm tape ye probably less painfull ☺ mite try that tmoz when my lamps 👀 are going out 😃
Ye waking is good but getting outa bed takes me a while, wake up stiff as a board. That could be due the the fact that i can be a bit of a plank at times 😀
 
duh panda said:
Match sticks sound mighty uncomfortable, I suggest taping them open ;)

Hope you get to rest up soon, delirious can be highly enjoyable in its own strange way, but personally I'm pretty partial to waking up and that feeling of everything being reset.
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:)

2
 
I tried blueberries in a smoothie since it's been about 6 months since giving them a try and when things aren't terrible they are generally tolerated in small blended quantities. Needless to say, today's a bit... blue. It would seem I'm a little quick to rush the blueberry front.
 
did too much yesterday...ended up taking my best frien to the V A. he had hernia surgery wednesday and has developed pneumonia. i was happy to be there for him, but today i hurt. hope you all are enjoying your day.😀
 
Aw penhow. You help a friend n end up hurting yourself. Bless you for helping n hope you feel better soon. Also hope your friend does too. 💕
 
Does anyone have any suggestions of questions I should ask or what kind of testing I should ask to be done? I have my appointment on Wednesday with a specialist and its a different one then I went to last year, I want answers and I want to know what the heck is going on with me deep down inside I really feel like its crohns but I don't really even know what kind of questions I should ask..
 
Ok here goes some you may know btw or had done .
Feacal calprotectin test
ct / mir scan
Colonoscopy
As regards testing they can help see whats going on.
Ask them if they will do all or as many tests etc as possible as you cannot carry on the way things are , that you have suffered enough .
Also what meds/op's are possible to help you.
If they try stalling tactics. Just say excuse me but if it was you ,would you want people fobbing you off ??
Be firm n state your case. Dont be rude just stand your ground politely.
Ask if any meds are going to affect you in any that will make things worse as some can do.
I cant think of anything more at this point. Best wishes n good luck 💕
 
mandyk said:
Ok here goes some you may know btw or had done .
Feacal calprotectin test
ct / mir scan
Colonoscopy
As regards testing they can help see wwhats going on.
Ask them if they will do all or as many tests etc as possible as you cannot carry on the way things are , that you have suffered enough .
Also what meds/op's are possible to help you.
If they try stalling tactics. Just say excuse me but if it was you ,would you want people fobbing you off ??
Be firm n state your case. Dont be rude just stand your ground politely.
Ask if any meds are going to affect you in any that will make things worse as some can do.
I cant think of anything more at this point. Best wishes n good luck 💕
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what mandyk said!!!!😀😀😀😀😀
 
Last weekend was awesome. I didn't go out, I didn't dress up, but I also stayed up later then usual and was able to do so while maintaining decent conversation. Its been a while since joints, gut and energy levels all cooperated in tandem. I took full advantage of the upswing - but have been out of it and making payments for it all week.

I don't usually mess up or miss medications - this week my recollection/ memory is so unreliable I still cant remember if I did or did not take my prednisone Sunday, I just know that possibility didn't enter my mind till I was lying down for the night and by early morning I was puking, shaking and dizzy in a way that is not my usual in the slightest. Thankful dose is low.

I don't usually slip on my eating schedule - this week I can't even seem to be getting adequate liquids and I'm not feeling hungry like I've grown to expect.

Naps have made their return. Along with falling asleep by 8:00 pm and waking up wired at 3 a.m.

Today I am napping away, taking it easy and trying to place as much into the reserve tank as possible to go all out and maybe, just maybe i'll make it to 9:00 tomorrow night and enjoy the full day.

Because tomorrow is my birthday! Hands down my FAVORITE DAY OF THE YEAR. And I've got plans to see through - plans centered (mostly) around delicious foods and time spent with the people I love. I hope, no matter how far I age, my excitement about birthdays never fades.
 
ronroush7 said:
I had sweet potatoes that were already made up from the store and I think they are messing my stomach up.
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Ron what are we to do with your tummy . I hope youve threatened it with me if it dont behave. Just tell it il come over n sort it out good style if it dont stop giving you bother. 😨 That might make it behave coz im sure it wont wana deal with me 😁
Seriously tho i really hope you can get some relief on that one my friend. 💖💋
 
been slacking this past week. too much going on!! (most of it not good either) BUT,i am up and showered. going to put last week behind me and start fresh! Humira injection today...i hope it helps. after 4 years of bi-weekly injections, i think im becoming immune. it seems to wear off after day 9.LOVE to all!!!😀😀😀
 
penhow45 said:
been slacking this past week. too much going on!! (most of it not good either) BUT,i am up and showered. going to put last week behind me and start fresh! Humira injection today...i hope it helps. after 4 years of bi-weekly injections, i think im becoming immune. it seems to wear off after day 9.LOVE to all!!!😀😀😀
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Can I ask how long you have been on the Humira?
 
penhow45 said:
oh, HAPPY HAPPY day of birth duh panda!!!!!!!😀
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Thank you!

And thank you to everyone else <3

It turned out to be a wonderful day; celebrations extended well into the weekend! I think my favorite part was getting to make/ bake my own pumpkin pie since my significant other focused on cleaning up and was a very attentive sous chef. Love cooking without a care.

Hope you all are off to great starts for your week.
 
ronroush7 said:
Ask your doctor about it's effectiveness considering the draining fistulas.
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hey ronroush, thanks for the advice. doc is considering increasing the frequency of the humira and adding 6-mercaptipurine....once the abscesses have drained. im not big on the later drug...isnt it for chemo??? seems quite harsh on my body. 😒
 
ronroush7 said:
I don't know much about it either but I believe the internet said it was used for lymphoma.
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hmm...thats similar to what i have read. im going to try NOT to take it.(unless theres something they arent telling me.) i would think the risks would outweigh the benefits.
 

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