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penhow45 said:
HAPPY BELATED THANKSGIVING EVERYONE!!!!! I want you to know, i did go on vacation after all...and had fun...setons and all! I am thankful for the strength we all have to NEVER give up!!! We are an amzing bunch of fighters!!!!! LOVE TO ALL!!!😀😀😀
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So glad u had a great time Penhow. Thanks n love to you too 💞
 
Twice , in the last twenty four hours, I have had pain in the rectal area. Not a bad pain but I wondered if anyone else experienced this?
 
Im normal, constant joint pain and naseua. Called rhuemo 2 wks ago no answer to my message. Called back today left a message at 9am. No return call so i called again. Was told she would get back to me. Had naseua a month with no relief in pain from the aza. Guess ill see if they return my call this time.
 
Got called back. My rhuemo and gi doctors talked. They will call my insurance and see about remicade infusions every 4 weeks along with mexotrexate and folic acid. Was told to stop azathiroprine.
 
Since Dec 1-7 is IBD awareness week in the U.S. I've been posting an IBD awareness post on facebook each day for friends etc. It is more draining emotionally then I anticipated. Ready for the 8th and too stubborn to quit after making it this far!

Topics covered include:

general info for IBD awareness re: crohn's and UC
IBD and Diet
IBD Exercise, exhaustion and fatigue
The importance of support
IBD in Pediatrics.

2 days left and scrambling for ideas - anything IBD topic related anyone here thinks should be covered in the effort of raising awareness in peers and on social media? I am staying away from medications and treatments because well... it'd probably end up a dissertation with me writing it and wouldn't be fit for social media consumption lol
 
duh panda said:
Since Dec 1-7 is IBD awareness week in the U.S. I've been posting an IBD awareness post on facebook each day for friends etc. It is more draining emotionally then I anticipated. Ready for the 8th and too stubborn to quit after making it this far!

Topics covered include:

general info for IBD awareness re: crohn's and UC
IBD and Diet
IBD Exercise, exhaustion and fatigue
The importance of support
IBD in Pediatrics.

2 days left and scrambling for ideas - anything IBD topic related anyone here thinks should be covered in the effort of raising awareness in peers and on social media? I am staying away from medications and treatments because well... it'd probably end up a dissertation with me writing it and wouldn't be fit for social media consumption lol
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I changed my profile picture in Facebook for yhsy reason
 
Went to the urgent care today. Sometimes, I feel rectal/anal pain and like I couldn't empty myself. They could only examine me externally and gave me a steroid cream.
 
Digging the snowy weather but feeling overwhelmed. For whatever reason lost 10 lbs. since Thanksgiving. It took me 6 months to add those 10 lbs. I'm pissed. Disheartened. And determined to get them back... plus a couple more.

Traveling on Tuesday and not looking forward to it. I think I'm just going to pack like... 2 outfits and alternate them just so I can stop thinking so much. Airport time, flight time, followed by a 3.5 hour drive on the day I take my methotrexate injection is just... ick. So much unpredictability. Visiting with family, having mom cook for me, and whooping my grandpa's butt at cribbage is what is driving this trip. My S.O. gets his wisdom teeth pulled Monday and helping him prep food etc. because I wont be around to help is leaving me frazzled.

Next year if people want to see me at the holiday's I think i'll just tell them they have to come to me :) Now, if only I'll remember that a year from now.
 
Had our work christmas party last night. About an 1hr and half into it began feeling sick. Manage to finish it out and been so so today. Wondering if it was the 1 drink i had or the food. Havent drank with my new meds so im leaning more towards it. Hope your feeling better soon 0m3ga1. PANDA sorry to hear about the weight loss. I struggle keeping weight on now too. Use to be upper 180s now i eat all day just to stay 170 to. 175.
 
2010mustang said:
Had our work christmas party last night. About an 1hr and half into it began feeling sick. Manage to finish it out and been so so today. Wondering if it was the 1 drink i had or the food. Havent drank with my new meds so im leaning more towards it. Hope your feeling better soon 0m3ga1. PANDA sorry to hear about the weight loss. I struggle keeping weight on now too. Use to be upper 180s now i eat all day just to stay 170 to. 175.
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It may have been either or both mate. But glad your not to bad tday.. oh weight gain blinking impossible f me these days gwad look like a skeleton wearing its big brothers overcoat 😆
 
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Yesterday my intestines were so angry , today so far its okay lets hope they stay calm. I hope everyone feels better
 
Rubbish day today. Can't remember when I last had a proper meal. Weak, tired and sore. Feel like I'm wasting away. Probably up to a stone lost already.

Hope we all feel better soon.
 
Went to the bathroom a total of seven timesd yesterday. Kept me up until four. Spending a while in the bathroom this morning.
 
ronroush7 said:
My doctor has told me smaller meals and more often
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I think it's because my protein intake dropped. I aim for 5 to 7 meals and 3k calories but generally fall short of the goal by a meal or so. smaller more frequent meals is where it's at. Just such work - feels like all I do is eat or prep food :p and I know I'm not alone in that feeling!
 
2010mustang said:
As i boxed my unfushed dinner last night i reheated and ate it today. It was deffinately the alcohol. So as long as im on these meds i wont be drinking anything.
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Mustang, what are you currently taking? I know I tried some wine earlier this year with methotrexate and NEVER AGAIN. One glass felt like hitting buzzed, drunk and hung over stages all within a 2 hour span.

Hope everyone starts feeling better. I'm seriously starting to think seasons trigger something that stirs things up come winter.
 
That is my current cocktail as well. Guessing you mean Remicade :) saw you over on that other thread that you start loading doses this week. Hope it goes well for you!
 
Two forty five EST. I hope everything works out and they find out what is going on. My ride is coming at 1245 because I have to be there at one fifteen to start drinking the stuff. I have been up since seven but not able to empty myself.
 
No probs hun. Hope you get relief soon. Im doing ok thanks . Wish everyone was too . 💕💝
prayers for better health for us all 🙏🙏💗
 
Feeling allot better although i still have some pain and my stomach are burning like burning pain. Will see how i feel next week want to start yoga again. Hugs to everyone
 
Hi Christi would depend on wat u can tolarate. But u could try prune juice orange juice sometime chocolate can be laxative for some folks. ☺💕💕or of course docs could give u something maybe x
 
Mandy he did give some meds to help constipation but does not seem to work still very constipated. Yogurt used to help but nothing now i just struggle to go. I want add all of you on my friends list but doesnt look like im managing lol
 
Aw hun try the juice n see unless u have already .lol. Il try to send a friends request to you n see if that works hun. Il have to fure up my tablet so it may take a few mins lol. Xxx
 
I have added you to my friends list now Christi. I use my phone a lot n it doesn't show as much info as my tablet. So I don't always see the msgs lol. I 💖
 
I had orange juice , grape, apple lol now im trying to see for anything else i dont see prune juice in our supermarkets
 
It can be tricky sometimes it doesn't work properly. Lol. I have you showing up as my friend now on my friend list. I so I should be on yours but you may have to tick the box? I I'm not sure of things myself lol xx
 
OK good. Ye let me know how you get on. Do you know I have only just realized that you are in South Africa lol. I'm a dozy mare 😏I love the way we can talk from all over the world its great isn't it xx
 
Thanks Ron. Il be fine tho. I feel that im so lucky thats all i have to cope with compared to others. I remember how bad it is to be in a flare or just general crohns shite. Hope you are a bit better today mate 💕
 

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