Everyone here us supporting you, Christi
Thank you ron i hope you and mandy are well , do you know how jennifer are doing?
Sorry.Today I feel confused. I have UC and my symptoms have been diarrhea for years. Now constipation for a month. My Gastroenterologist recommended Miralax. I am now keeping a food diary and trying the Miralax and keeping track of my bowel movements and what they are like. I am just trying to find some relief and some kind of a balance. Recently I have had constipation, stomach pain, colon pain, bloating, dry heaves, naseua and some diarrhea. I am tired of making lists..how I feel, what I do, how much I spend, where I go, what I eat and when I poop. :-(
I am so sorry to hear about your Grandpa.My Grandpa passed away before my birthday in early April so I had to help with the funeral then try and heal some myself but then my sister and her family decided that they would be moving to Washington around that same time so I was helping them with the move. I watched their baby almost everyday and helped get their trailer ready, helped with the yard sale and then my parents decided that they wanted to go to Washington to make sure they made it ok and to visit with them for a couple days up there so I went with them.
I'm alive, not exactly well because I'm still dealing with the loss of my grandpa and having some of my family move away that I saw almost everyday so there's a huge empty space in my life/heart right now.
I was also diagnosed with Osteopenia while I was gone from the forum. As if I needed another diagnosis. :ybatty:
Stay Strong and keep in touch. :heart:Thank you ron thanks to all my friends , i feel that i cant fight anymore but its nice to come and vent and i know that you understand while other people dont
Hope you feel better soon.Hi, think this here is a great idea, just alone to know we are not alone and to talk about it .. As it helps... Well i just posted my update on my thread and now its 1:48 am still sitting awake in bed and started sweating badly and hot flushes.. Me partner is snooring so my son and our dogs.. I am tired and this flare up ( since beg of april) is having massive inpackt in my life.. Just want to get back to remission to be able to dance again... It sucks
Peace and strenght xx
Sorry.I woke myself up at 4am from a dream of not being able to find a working, clean, unoccupied toilet (a dream that I often have when things are going askew) to find that my stoma bag was leaking all over the bed. I'm 73 now and I worry so much about whether, as I get older, I'm going to be able to clean up myself and the bed and the floor and my pyjamas after a leak. It's times like this that I could just sit and cry...
Madam, you are in my prayers. You are my late mother's age and I send you my regards and love.I woke myself up at 4am from a dream of not being able to find a working, clean, unoccupied toilet (a dream that I often have when things are going askew) to find that my stoma bag was leaking all over the bed. I'm 73 now and I worry so much about whether, as I get older, I'm going to be able to clean up myself and the bed and the floor and my pyjamas after a leak. It's times like this that I could just sit and cry...
I am so sorry.Thinking of all of you.
Today an old friend reached out due to a family friends son recently being diagnosed, 14 years old. Some days, like today, the bull and injustice in the world just eats me up. Not feeling very strong or hopeful tonight. Doesn't help that visiting family tends to highlight the ways crohns complicates life, even when things are improving, I don't even dream or imagine keeping up any more.
Call your doctor and let them know what is going on.I was given a prescription for Bentyl. I took 3 pills yesterday. Wierd side effects. Not taking any more Bentyl. I would never be able to drive a vehicle or make decisions while taking the Bentyl. Anyone here ever taken Bentyl ?
I am sorry that you are experiencing such discomfort. I understand how you feel. I carry a Poise Pad, a tube of Preparaton H Cream and Cottonelle Wipes in my purse at all times. I wear a Poise Pad every day /night just in case I have any leakage. I use Preparation H Cream /Ointment on my bottom to ease the irritation. And I always use Cottonelle Wipes every time I have a BM. I hope you feel better soon.My skin has been irritated and sore lately. This morning, I thought I felt a bump in my rectal area. I wear Depends and it seems like something has seeped through.
I suffer from anxiety too. I agree, it is always nice to be at home where you can relax and do things at your own pace and set your own schedule. I love my peace and quiet tooWorst panic attack I've ever experienced night before last where I couldn't talk, move, breath. Still feeling unsettled, but glad to have my trip to visit with family over and be back to sleeping in my own bed and using my own toilet! Not to mention the return of naps, and peace & quiet haha
Welcome. I am sorry you had bad results with the Remicade. I personally have been on four biologics. I am not sure which ones are anti-TNF. There is a great section in here called Treatment. You can try posting in there also. Have you talked to your doctor about the next step?Hi - newcomer to the forum. Just found out that I developed antibodies to the remicade I've been on for the past year and a half so I'm a little disappointed and somewhat nervous about other treatment options. I have moderate crohns...no surgery and not flaring but not super excited about the other anti TNF's out there. Looking for advice from others who've been in this situation.
Call your doctor.I just woke up from a nap feeling really crummy, so I took my temperature. I'm running a low grade fever. It's super hot outside and, even though our A/C is on, it's pretty warm inside, too. My abdomen is really swollen below the belly button.
Not sure if it is the same thing but I get a pain at or around the belly button sometimes and a nurse was concerned that it could be a hiatal hernia.I've been noticing a weird pain around my belly button. It's kind of crampy, too, so I took my noon dose of Bentyl. Not sure what that's about, but I just ate a small snack.
When the GI doc did my upper endoscopy, he did not find a hiatal hernia.Not sure if it is the same thing but I get a pain at or around the belly button sometimes and a nurse was concerned that it could be a hiatal hernia.
TMI warning below!
So sorry for your issues that are going on! I am laying down now flat on my back, Last night was. Rough! Just had some prune juice and a big mug of instant coffee with a peppermint tea bag. (Coffee_tea). Drinking it right now! Helps me Fart! I know there's more than just GAS., But I've already sat on the toilet and STRAIN Too much and only get a few little_JOE TURDS. So I'm constipated to some degree. As. long as I can still Fart then I know it's not complete blockage! I also have a pretty good Rectal Prolapse,. So usually after anywhere from 20 min to an hour and a half of toilet time I have to push my butt back up there! So even if I'm empty,with this prolapse causes it to feel that you gotta bunch up there,OR a big trapped Fart!.........I am glad that I'm not alone with these Bowel Issues!
I also quite often do a SITZBATH for my sore and inflamed rear_end.
This morning has been kind of rough. My work is renovating the building and we are short on bathrooms during this phase. Sometimes, I have to walk to another part of the building
Sorry for what you guys are going through
Wish you the best.Well, today I am feeling scared. This is not because of my Ulcerative Colitis, but because I MAY have to have my thyroid removed. I have nodules that are on my thyroid and they are growing. I recently had a thyroid ultrasound. But I will get a needle biopsy in November. The decision to do surgery will be determined after the biopsy. My Endocrinologist is great, but I suffer from extreme anxiety. When a doctor uses the word "surgery" and "cancer" I get quite worried.
Thanks for listening, even though my post wasn't about my UC symptoms ( I will save that for another day ) !!!
Hope it work's out.The last 2 nights, I've gotten over 9 hours of sleep which have certainly helped. The only thing is that I meant for it to be a nap both times, so I set my alarm clock so I would get up and take my medicine and do anything necessary that I needed to do before going back to bed. I've missed taking my Bentyl 2 nights in a row at bedtime, so I have to double up on it the morning after since my symptoms get worse without it.
I'm getting my hair cut today at noon and I plan to go see my grandmother who haven't seen in over a month, which I don't like that it has been that long. I've just been so busy with work that my weekends fill up with other stuff and I have to put our visits to the side. I really want to see her today, though.
Today has been pretty good so far. I got my hair cut and I think my stylist did a GREAT job. I've been seeing her since February and she listens and does exactly what I want. I think this is the best she's ever done.Hope it work's out.
So sorryI just woke up from my nap with a "fire in the gut" and urgent need for the bathroom. I've come to the conclusion that I just cannot digest red meat. I had a free coupon for Moe's for my birthday next week and my favorite is the steak earmuff (the other meat options are not as good). Well, I'm paying dearly for it. I thought it was a coincidence last time that I had a gut ache, so I decided to try it again. Bad idea... I guess I'm not going to my grandmother's house today after all.
My stomach is off and on. I have a call into my doctor because I have been on Humira about four months now. I am down right now. My father has Alzheimer's. They just found one artery completely corroded. They are afraid if they operate something will break loose.Hi Ron
Just seen your post. Hope you start to feel better soon. I'm in the same boat after some food mistake.
Take care and rest up
ThanksSo sorry to hear that Ron. My partners Grandad has Alzheimer's too and it's got to the stage now where he his not recognising us anymore. I really feel for you, it's so tough on those around them.
I'm still really off this morning. If I was at home I'd just rest all day on the sofa but I'm gonna have to try to put a brave face on as I don't want to spoil the last day of the holiday. I'm lucky that we're on summer break right now so I've got plenty of time off to rest.
Sending my support to you Ron, hope you're feeling better soon and that your Dad is ok.
I am sorry. Sending support and prayers.Really depressed and sad, the though that I would be dead by now without medicines and that I have my whole life with this shit is just unbearable. I'm 23 years old almost all my peers get to enjoy life and not have to buy medical insurance among other things.
Have you had surgery for the hernia? Have you discussed with your doctor about what the Flagyl is doing to you? He might need to switch medicines on you.It's hard to see so many people dealing with similar things an everyone is just as unhappy an in pain everyday like me. I don't have Crohn's or IBS but I have a rectovaginal fistula and an ileostomy with a huge para hernia. I have had 11 surgeries so far in a yr an 5 mo. This last one was a gracilis muscle flap. An I had that 2 mo. Ago an an passing stool an blood everyday. I'm on Flagyl an Cipro. An the Flagyl is so bad it makes me feel worst then the actual problems I'm going threw. I'm on pain meds everyday an see a pain management clinic once a mo. I hate meds I just want to be off them all already. I haven't been able to find a support group other then this that has similar cases. It's ruining my marriage an makes me so depressed everyday. I read the book The Secret an it has helped me with trying to be positive an sending out positive energy really good book. I also read the bible to help with my marriage. Everyday is a new day an today I'm going to be happy no matter what. I have been up trying to clean it's really hard but I told myself to take as many breaks as i need to. I am 37 an it breaks my heart to see so many young people in there 20s having to deal with such a huge medical condition that effects our quality of life. Bob marley said " you never know how strong you are until being strong is your only choice". An I would have to agree with him. I have been doing so much research about these medical conditions an it has helped with how i eat now an other good info. i hope everyone has a blessed day an trys their best to stay positive.