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Crohn's Disease Forum

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Bleh! I am in pain since Friday afternoon. First I thought it was something I ate, then I thought it was bloating from something I ate, then I thought I could just sleep and get better. Third day in a row, bloody diarrhea, and pain. My next injection is tomorrow and my next appointment is February 20th. Lets hope I will not end up in ER earlier
 
Feeling like crap. Lower right abdominal pain, so much so that I have to lay back in my chair as far as possible because any bending makes it worse. To top it off one of our dogs got loose last night and ran to our barn and I got to hear it kill one of our barn cats. Not a good sound.

Good news is that I have a new GI and we are set for colonoscopy this Friday and I had blood work and CT Scan last week so he can see where I am at. The CT Results were not good with a lot of inflammation in the small intestine near the ileocecal valve. Also have stranding of the adjacent mesenteric fat and several reacticve mesenteric lymph nodes. Hopefully we can get a new concoction going for medication to relieve me of this inflammation and pain.
 
Getting back on track here. After a month-long flare after starting Remicade, things settled down and a CT scan showed reduced inflammation and no sign of fistula. GI is going really well, but I've been developing some peripheral neuropathy in my left arm. My GI doc freaked out and had me cancel my first maintenance dose of remi this week, but then told me to reschedule when I met with her today. She now thinks it's probably unrelated nerve impingement. I was a actually able to get a same-day appointment with my primary, who agreed that a neurology consult makes sense. Baby steps forward, but this tingling and numbness is for the birds...
 
Felling pretty good actually.

Humira is working well and enjoying life.
Still have the odd bout of the big D but it does not bother me any more.
 
Not really sure how I'm feeling. Had an MRI Wednesday thinking it'd come up pretty normal - at least nothing unusual. There's been a bit more pain and it seems to have shifted but has remained in the range of what I've considered normal over the years.

Got the call on results today and knew it wasn't exactly good when the nurse asked how I was feeling, twice, after I first responded I was feeling ok - nothing out of the ordinary or having changed since our appointment the week before.

Well, turns out despite feeling a decrease in pain since summer after switching to Entyvio and MTX Crohn's runs rampant and there is fluid build-up outside of the intestines in the abdominal cavity of unknown origins. Starting with a round of 2 different anti-biotics; hopefully it's just some underlying infection.

Certainly frustrated as this sets back plans to move back to CO (had plane ticket ready and everything), scared out of my mind and trying to keep from thinking about the possibilities if it is not an infection, but glad I've got people beside me and a Dr. who has never thrown in the towel despite my inconsistencies in whether I would continue under her care or finally be able to manage and switch my care fully over to CO practitioners.
 
New to the forum so this is a first post for me. Feeling pretty great actually, just got over a cold and classes have been a joke so far this semester so fairly easy life at the moment. That's probably going to change soon, but I'll just enjoy this while it lasts.
 
In the ER earlier this week. Doc said no blockage but I beg to differ. At least a partial. Eyes playing tricks on me, and very nauseous. I know there is better days ahead, but I don't know when. Hope to start 6MP next week. A low point right now, though.
 
In the ER earlier this week. Doc said no blockage but I beg to differ. At least a partial. Eyes playing tricks on me, and very nauseous. I know there is better days ahead, but I don't know when. Hope to start 6MP next week. A low point right now, though.
 
New to the forum so this is a first post for me. Feeling pretty great actually, just got over a cold and classes have been a joke so far this semester so fairly easy life at the moment. That's probably going to change soon, but I'll just enjoy this while it lasts.

Welcome to the forum. Good to see some happy people here. :)
 
In the ER earlier this week. Doc said no blockage but I beg to differ. At least a partial. Eyes playing tricks on me, and very nauseous. I know there is better days ahead, but I don't know when. Hope to start 6MP next week. A low point right now, though.

Did they run any tests to check for a blockage?
 
Been doing well overall but today has been a little rotten... literally. I really don't drink milk and I haven't for quite a while. Not sure what got into me today but a couple glasses today just sounded good. Big mistake! :stinks:
 
Had some blood in my stool the last couple of days. The doctor wants some blood work and then wants to see me. One day it was red. Today it was orange.

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Having pain from my mouth to my stomach. As soon as I woke up I was in tears. Been 16 months flaring and two ifliximab infusions in and I feel like I'm never going to get better. Was thinking of speaking to doc about antidepressant but then think the only reason I'm down a lot now is because of my crohns. Once I'm better, I'll feel myself again. Just depressing.
 
Oh dear...why the long wait to start Remicade may I ask ? Hopefully it will soon kick in and get you back to being yourself again. Just pamper yourself and let your body heal.
Why not check with your doc about an antidepressant ? Do what you can to feel better...and don't be ashamed . I too have been down that road of feeling I'd never get better . Now I take pain pills ..antidepressants...whatever it takes to make me feel good .
 
GI tried me on humira and methotrexate first and they didn't work. Im still on methotrexate for some reason. Think I just feel as a mental health professional I should know how to deal with depression without drugs but I might mention it to doc
 
Go in for an MRI tomorrow to see whether or not some fluid build-up in the abdomen has decreased/ gone away, have dropped 7 lbs. in 9 days sooo... fingers crossed it's just from that being treated and the fluid going away.

First day in over 2 weeks I can tolerate wearing jeans again (although we'll see how long that lasts, usually a couple hours and I'm so over it and back into something soft and roomy).

Kinda frustrating that Crohn's seems to be flaring worse then ever, but it would make a bit more sense if it's been due to a string of fungal/ bacterial infections the past 6 months that like to play hide and go seek while showing minimal to no infection symptoms. Oh the joys of the immune suppressed.
 
Well, MRI wasn't as good as it could be or bad as it's been. Doesn't look like fluid is due to an abscess and there was a 25% decrease following the antibiotics. Bumping pred. back to 20mg and another round of antibiotics with instruction to get to the ER if seeing the fever rise to 101 or pain increases for interveneous treatment.

Meet with doc. next Tuesday with another MRI in a couple weeks to follow up. Good thing the MRI techs aren't half bad to look at ;) and it's a bit fun to dress up in scrubs for an afternoon now and then.

Sounds a bit dire, but I think the luck and well wishes certainly helps! Not as bad as it could be and a bit of a relief to still be looking like crohn's/ immune complications more then any other cause - THIS I can be patient for and deal.
 
I am going to doctor tomorrow. I have seen blood in my stool three times in the last week. Because of going to the bathroom numerous times I didn't get to bed until a little after three thirty. I kept falling asleep this afternoon.

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Been doing well overall but today has been a little rotten... literally. I really don't drink milk and I haven't for quite a while. Not sure what got into me today but a couple glasses today just sounded good. Big mistake! :stinks:

Yeah, today I ate Pringle Potato Chips......big mistake for me too :duh::duh:
 
Having pain from my mouth to my stomach. As soon as I woke up I was in tears. Been 16 months flaring and two ifliximab infusions in and I feel like I'm never going to get better. Was thinking of speaking to doc about antidepressant but then think the only reason I'm down a lot now is because of my crohns. Once I'm better, I'll feel myself again. Just depressing.

If you are thinking about depression it wouldn't hurt to mention it to your doctor. I suffer from Major Depressive Disorder and recently I was having some feelings that I thought "oh, no big deal". Well, they soon started to become a big deal. PS: Don't ever have a Primary Care Physician prescribe you any medication for depression, go to a Psychiatrist, because Psychiatrists will monitor you a lot better. Well, I am no doctor, so don't take this as medical advice.....just sharing some personal experiences with you that I have had. :Flower:
 
Well, MRI wasn't as good as it could be or bad as it's been. Doesn't look like fluid is due to an abscess and there was a 25% decrease following the antibiotics. Bumping pred. back to 20mg and another round of antibiotics with instruction to get to the ER if seeing the fever rise to 101 or pain increases for interveneous treatment.

Meet with doc. next Tuesday with another MRI in a couple weeks to follow up. Good thing the MRI techs aren't half bad to look at ;) and it's a bit fun to dress up in scrubs for an afternoon now and then.

Sounds a bit dire, but I think the luck and well wishes certainly helps! Not as bad as it could be and a bit of a relief to still be looking like crohn's/ immune complications more then any other cause - THIS I can be patient for and deal.

Yeah, I had Physical Therapist once who was not bad to look at either, and I got a great neck massage from him during every visit :lol: ( I have arthritis in my neck, VERY limited mobility in my neck ).
 
I am going to doctor tomorrow. I have seen blood in my stool three times in the last week. Because of going to the bathroom numerous times I didn't get to bed until a little after three thirty. I kept falling asleep this afternoon.

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I am glad you are getting in to see your doc. :hang:
 
I did not know where to ask this. But my cousin has colon cancer and I would like to know if crohns/Ulcerative colitis and colon cancer can be connected to each other on any way?
She HAS had terrible diabetes since she was a child.
 
I have read the risk of getting colon cancer is somewhat higher with IBD 's
We must be careful and have regular scopes done ..that way if anything does arise it could be taken care of early.
 
I did not know where to ask this. But my cousin has colon cancer and I would like to know if crohns/Ulcerative colitis and colon cancer can be connected to each other on any way?
She HAS had terrible diabetes since she was a child.

I believe so.

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I did not know where to ask this. But my cousin has colon cancer and I would like to know if crohns/Ulcerative colitis and colon cancer can be connected to each other on any way?
She HAS had terrible diabetes since she was a child.

I'm sure it would be ok for you to start a thread on this in the General IBD forum. If you put something like "IBD and colon cancer" in the thread title, you should get some good advice from people on the forum.

Is this a recent diagnosis for your cousin?
 
I often post on here when things are low, which for the last few years seems to be where things rest.

But when I think of this forum I think of it as a place of hope, love, compassion, education and growth.

Crohn's and UC are both very unforgiving diseases, almost a decade later and I still struggle to comprehend the full scope of challenges faced. When I think of Crohn's I think of fear, pain, surgery, hospitals, nausea, depression, anger, frustration, isolation, exhaustion, needles, medication, fading hope, the unknown, and so on.

Currently, feeling absolutely lost while waiting to gain more information regarding current circumstances and determine a complete plan of action; but smiling through it all. It's okay to not be okay as long as we're not giving up!

Love to all of your bellies!
 
I think we all feel lost at times. ..every day is a struggle. Many people with good health just don't realize it's the most prized possession ! Keep smiling !😌
 
Uh oh ! Having issues ? I can't tell you when constipation was ever a problem for me..if so it has been a long long time. The other problem however is not fun at all.
I am having bad days lately...had Remicade yesterday. Hoping it kicks in soon .
Overjoyed that I am retired and usually home and close to a bathroom. I light a scented candle and have reading material on hand...makes for a more pleasant stay.:lol:
 
Today I am constipated and I hate it. I have been pushing all day to go to the bathroom. My hemorrhoids are terribly miserable. And I am so bloated that I feel like a balloon that is ready to explode. My stomach is gurgling too. My Ulcerative Colitis has taken over my entire life. I'm tired.
 
My sister is retired now and is spending 3 months in Arizona where I live. She and her husband are busy almost every day site-seeing, traveling, going to sports events and parades and art festivals. I have been invited to a lot of these activities but I have had to decline. There is much for me to consider before I can commit to an activity/outing .How long will I have to stand up? How far will I have to walk? Will I be out in the direct sunlight? How long is the drive to get there? And, yes, then the most important question......will a bathroom be nearby? I have been able to meet up with her and my Auntie for coffee at a coffee shop, also one day we went to some Thrift Stores. Then we have played Scrabble and went out to eat. Oh, we went to Costco twice. I hate having my choices limited because of my arthritis and my anxiety and my colon disease. It makes me mad. But most of all it makes me sad. Like I said above.....I am tired.
 
out hospital a week, had blood transfusion and all the usual stuff and now having blood in my stools and I'm pretty sure gastritis...after infliximab and methotrexate on friday. Mood has improved though, think that's because Im sleeping better and I found out im going to be an aunty for the first time :dance:
 
out hospital a week, had blood transfusion and all the usual stuff and now having blood in my stools and I'm pretty sure gastritis...after infliximab and methotrexate on friday. Mood has improved though, think that's because Im sleeping better and I found out im going to be an aunty for the first time :dance:

I'm so happy for you! Not for the things in the first part of your post, obviously, but I love being an aunty, and hope you will too. :smile: And sleeping well makessuch a big difference for me as well, I feel terrible when I've not slept well. I just hope you can get the physical symptoms sorted soon. Take care.
 
I'm feeling ok. I'm trying to find the right painkillers for me, the ones I'm taking just aren't enough anymore. At the moment I'm struggling to make my prescriptions last as long as they're supposed to. My doctor usually lets me have them early if I run out, but she can't just keep on doing that. She's helping me try out others, but then each one takes a while to try out, then I have to wait for the follow up appointment to tell her it's not working. :frown:

My attempts to gain weight are getting better, mainly because I no longer have to have the doctor weigh me every week with the threat of admitting me to hospital if I've not gained. I am gaining, but very slowly and with fluctuations.
 
Like UnXmas, I'm having a rough time gaining weight. Its like one step forward, two back.
I had a rough weekend, spent Friday night completely bloated and some pain. Not helped by stress, knowing they were shutting down the water in my building on sat for maintenance for four hours. I was tired on Sat evening, but managed to do something. Then Sunday, cooked a wonderful dinner but just before I ate, started getting bloated and pain.
Today, I feel tired and a bit annoyed that my weekend was destroyed (again), but planning on going to the gym after work - I need muscle!!
 
Well, I want to gain proper muscle weight, not just weight alone.

Plus, the exercise helps my digestion, sleep and appetite so its win win. I'm not in the gym to lose calories so I worked with a personal trainer to get a programme that is concentrating on muscle fitness rather than how-many-calories-am-I-burning.

That, and I have to take on 120g of whey protein per day as I have protein losing enteropathy.

Some days, balancing everything is all the exercise I need :ytongue:
 
My son appears to feel better than he has since being diagnosed in 3/13, but it's really hurting him to have a bowl movement. It's 15 minutes of his day, but by the look on his face when he comes out of the bathroom, it must be pretty bad and he feels tired for an hour or so after.
 
Well, I want to gain proper muscle weight, not just weight alone.

Plus, the exercise helps my digestion, sleep and appetite so its win win. I'm not in the gym to lose calories so I worked with a personal trainer to get a programme that is concentrating on muscle fitness rather than how-many-calories-am-I-burning.

That, and I have to take on 120g of whey protein per day as I have protein losing enteropathy.

Some days, balancing everything is all the exercise I need :ytongue:

I do make sure I go for a walk every day, not because I want muscle (I'm female, btw, I think that can make weight-related goals different), just to make sure my body keeps moving. I have physiotherapy too. It's all just stretching. I don't think slow walking and stretching burn too many calories, so I guess I am using exercise in a similar way to how you use the gym, to try and be healthy while gaining weight. But I am very, very underweight.
 
Hi, kikig, I'm a woman who is trying to gain muscle (because my case of Crohns is mild, I'm also having a hard time losing the fat I want to lose too...) I was very fatigued this weekend and didn't get any workouts in. Plus DLS messed with my sleep, I don't think I can make it to taekwondo tonight.
 
In other news, as for how I'm feeling:

Rolls up in the office like, what up, I'm hoarding all the acetaminophen in the first aid kit.
 
Been 7 weeks since my ostomy. Feeling great. Think I've worked out the kinks with the bag, but I've been hitting the gym, put on 15 lbs, and no longer have fatigue.

Wish I had done this years ago.
 
Sully, That is awesome! Hope you keep making strides.

My mom coaxed me into a Jane Fonda workout this afternoon - seeing as I'm still in full flare and always struggling with weight loss it was refreshing! Certainly needing to rest after (hence chilling on the forum right now) but feeling more alert then I usually do in the afternoons. Oh the joys of a workout whatever it may be.

I've gotta say there's just something about those leotards and tube socks that can't be beat which make it so easy to play a little, be ridiculous and not feel quiet so serious or bogged down with medical stuff.
 
Hi, kikig, I'm a woman who is trying to gain muscle (because my case of Crohns is mild, I'm also having a hard time losing the fat I want to lose too...) I was very fatigued this weekend and didn't get any workouts in. Plus DLS messed with my sleep, I don't think I can make it to taekwondo tonight.

Also female, weight 46kgs, BMI of 16 (quite badly underweight). Its difficult! Some evenings I am so beat after work and preparing a dinner, I just sprawl on the sofa, and I have come to accept some days are just like that.

When I go to the gym, I have a 30min workout on the treadmill - its a hill climbing programme to build leg muscle, then maybe some 5kg weight exercises and I'm done. I keep the routine short so its all over pretty quick. :ylol:

Made it to the gym last night, so I feel better today but hormonal, which means my reactions to food and stress are going to be unpredictable.
Oh well
 
My bmi was 10 last year, at my lowest. It's about 12 or 13 now I think.
Focus on the fact that it's improving, rather than what it is, and don't worry that the improvement is slow. As with dieting, a slow, steady improvement is much more sustainable than a rapid increase or decrease.
 
I think my BMI is about 28. I'm trying to bring it down but I haven't been feeling well enough to work out in a while. I'm surprised that I'm not losing more because I'm not eating much.
 
I gained 0.5kg in the last week, which for me is a huge amount. Why is my weight so random? I never know what it's going to do next. And I'm worrying that half a kilo could disappear again just as easily.
 
My bmi was 10 last year, at my lowest. It's about 12 or 13 now I think.

Wow ! I won't even say what MY "bmi" is, but it is really high. I have been battling I obesity off and on for 30 years in my adult life. Lowest weight has been 129 when I was 20 years old. Highest has been 232, later on in my adult life. Lost 30 pds last year ( wasn't trying to, but I did). I have already gained 7 pounds back because my appetite is back....ahhhhhh. I am 177 now. In 2010 I was around 154 and that was a perfect weight for me....a normal weight for me. I would like to be around THAT weight again someday. Wierd thing is that I eat a lot of sugary foods and my glucose level is always 100 or under ( wierd) Well every Specialist I go to takes my blood, so I am sure that if something was wrong thy would tell me.

Going to my old Gastroenterologist this Wednesday. He is no longer on my Insurance plan, so I am just going to pay cash for this one visit. I value his opinion. I don't know if this is unethical, but I want to talk to him about my new Gastroenterologist and my colonoscopy last year and my medicine advice. I don't know if I can talk to one doctor about another doctor, but I will NOT be returning to the new Gastroenterologist that I went to last year because I don't like him.

Sorry this is so.long.
Thanks for listening.
 
Are you trying to lose weight at the moment, Ann Morgan?

I think it should be fine to ask one doctor's opinion of another doctor. It will be up to your old gastroenterologist to decide whether or not to answer and what to say. I don't know if it's the same in the US, but here doctors from different hospitals have often met each other, and not just the ones in the local area; I have specialists in London and my local doctors have met them at conferences etc. And some of my doctors love being rude about other doctors! So I would just go ahead and ask; whether it's ethical or not will be up to your old doctor, as what you find out will be at his discretion.
 
Today is less than wonderful. I was doing better up until travelling to Chicago over the weekend. I started feeling sicker the day after I arrived. I'm home now, feeling crampy, gurgling in my intestines. Last night and the night before I was having joint aches again, which seem to be better today. I've gone to the bathroom three times this morning, all solid but urgent. Kinda fatty? Oil in the toilet. Some mucus but not as much.
 
Not a good start to the day, but I battled on and I had a good day (up to now!). It's going to be a busy week so I hope I am up to it.

If you had a crystal ball, would you use it?
 
Feeling sucky, running to the bathroom a ton to pass mostly mucus(with blood). Decided to call my doctor to find the office is closed until Monday. Ugh.
 
Grumpy. I think I'm PMSing. So I'm also playing the fun game of "intestinal cramps or uterus cramps?" Really gassy today. Had no BMs yesterday, finally made myself go this morning, a couple of blobs of mucus were along for the ride. Can I just go home and curl up with my cat?
 
Oh that really blows. :(. Any of the rest of you ladies find symptoms increase while pmsing? I always have increased joint pain and diarrhea right before my period starts. :|
 
Still planning to attempt a Couch to 10K session today. I ran my first mile since my maybe-flare started yesterday, so I'm trying to figure out where to start. Maybe Week 3? Any time I can shave off will help get me ready for my races.
 
Reading through this latest string of posts makes me feel so at home! Hadn't had a period for years until January. Never felt so confused by something that is supposed to be so normal. With crohn's symptoms I generally feel like: WhatUp! I got this. With cramps and having a period I'm like :yfaint: what... what is this? Is it crohn's getting worse? oh, no? This is normal? wonderful.
 
Okay, I ate an Arby's Ruben Sandwich for dinner tonight and that is not something I am supposed to eat. Ugh. Also ate Rice Krispie Treats. Ugh. So, I am bloating and having acid reflux. My own fault, but the sandwich and treats tasted great. I get so tired of eating boring, flavorless food.

Anyhow, saw my old Gastroenterologist today to get a second opinion about some things that my new Gastroenterologist said. My new doctor said to discontinue my Lialda. My old doctor said to keep taking it every day. I love my old doctor and I trust him. I will start taking my Lialda again tomorrow. My old doctor is not on my Insurance plan, so I paid cash for my appointment today. He wants me to give a stool sample for a c-diff test. Since he is not on my Insurance plan he wrote some paperwork to give to my Primary Care Physician so that my PCP can order the test and so my Insurance plan will pay for it.

I am never going back to new Gastroenterologist. I can see my old Gastroenterologist once a year and just pay cash for the appointment. I just had a colonoscopy last year, so I should not need another one for a while.

New doctor did colonoscopy last year, so I have those results. And new doctor will give me a Lialda prescription and arrange the c-diff test. So it looks like everything that needs to be taken care of is being done.

Boy, a person really needs to self-advocate regarding their healthcare or things may never get done. I want to make the best choices I can for my colon ( and my acid reflux).

Thanks for listening.
Oh, yeah, my paperwork said to lose weight and exercise ! Ahhhhhhhh!
 
I'm going to go ahead and say as of 9:30 this morning, I feel phenomenal.
Why? Who knows.
Maybe it's because I'm getting back to running and I'm feeling well enough to go back to martial arts and that's putting me in a good mood?
Maybe it's because I'm now two weeks on Pentasa and I'm starting to feel relief?
Maybe it's that I just bumped up my Effexor dose, because I was still suffering from minor panic?
I don't know, and I don't know how long it will last. But I'm just going to have my own little party right now.

All I'm feeling is a little bit of low cramping that could very well be the start of my period. WHO CARES. :dusty:
 
Son is feeling great. EXCEPT when he goes. It hurts and he feels tired after. GI seems totally disinterested.
 
Soooooo tired.
This morning I dropped my daughter at school, went to the supermarket, went to the doctor to get a prescription, did some light cleaning, had lunch in front of the TV, more cleaning, picked daughter up from school, had some friends round, went to pick up other daughter from nursery, and got back home exhausted. All trips done by bicycle, my legs were aching so much today.
I want to go back to work, but I can't even get through a normal day without work!

Is anyone else like this?

Good night!
 
Soooooo tired.
This morning I dropped my daughter at school, went to the supermarket, went to the doctor to get a prescription, did some light cleaning, had lunch in front of the TV, more cleaning, picked daughter up from school, had some friends round, went to pick up other daughter from nursery, and got back home exhausted. All trips done by bicycle, my legs were aching so much today.
I want to go back to work, but I can't even get through a normal day without work!

Is anyone else like this?

Good night!

I am tired/exhausted/fatigued all the time ?8
 
:thumbdown:Feeling worried, I think I an starting to have bad side effects from humira. I already had to stop Aza, mp6 and methotrexate for the same reason.
 
Soooooo tired.
This morning I dropped my daughter at school, went to the supermarket, went to the doctor to get a prescription, did some light cleaning, had lunch in front of the TV, more cleaning, picked daughter up from school, had some friends round, went to pick up other daughter from nursery, and got back home exhausted. All trips done by bicycle, my legs were aching so much today.
I want to go back to work, but I can't even get through a normal day without work!

Is anyone else like this?

Good night!

I'm not like that. I couldn't do a fraction of that! You must have loads of energy even to attempt that, never mind actually finishing it all. You're doing great! Just make you don't push yourself too much.

I posted this the other day on the Extreme Fatigue thread ( http://www.crohnsforum.com/showthread.php?t=57159&page=11 ) :

I can do more when it's things where I can plan my own schedule. So I walk my dog every day, and have family come to visit, etc. But I walk my dog at the time I have most energy. I'm a morning person, so I get up early, wait for my meds to kick in, then go out, maybe for fifteen minutes, maybe longer, but if I get tired (or any other symptom gets too much) I come home and rest. And it's ok having family round, because I still nap during the day when I need to, eat when I feel most able, etc.

But when I have to do things at a set time, it's exhausting and I get nervous whenever I have things scheduled coming up - hospital appointments, usually. Then they might coincide with the time I desperately need sleep, and it's awful.

It's been a few years since I last had what came close to a normal life - university, forcing myself to have a social life - and there's no way I could do half that now. But even back then, the evenings were the worst, I'd literally be crying with exhaustion because I just wanted to go to bed but made myself go for nights out instead.
 
UnXmas that is me too. I don't like things being planned and I prefer the mornings over the afternoons. It is usually a case of getting through the evening (cooking a meal, getting the children to bed) and then crashing.

Still, I can do alot more than I could even 6 months ago, but yes if I overdo things then I really pay for it the next few days. Unfortunately overdoing things still seems to be just trying to have a normal day! I know what you mean about crying from exhaustion, I was on Wednesday evening. By last night (Thursday) I was feeling really ill just from tiredness. I hope I get a lie-in on Saturday morning.
The only social activity I have is choir once a week , and that stops at a friendly time of 21.00. I am so pleased with myself that I can already do that. It's a lovely bunch of people and we have a laugh and usually hit the wrong notes.
And now I need to clean the rest of the house because my sister is coming to visit (I usually need a good reason to do it properly).

I hope you and everyone else is having a good day.

ps we had a partial solar eclipse today (80%) and I was expecting it to get a bit darker than it did. I didn't really notice any difference to any other foggy day here!
 
Soooooo tired.
This morning I dropped my daughter at school, went to the supermarket, went to the doctor to get a prescription, did some light cleaning, had lunch in front of the TV, more cleaning, picked daughter up from school, had some friends round, went to pick up other daughter from nursery, and got back home exhausted. All trips done by bicycle, my legs were aching so much today.
I want to go back to work, but I can't even get through a normal day without work!

Is anyone else like this?

Good night!

Holy crap... All those trips by bike!? No wonder you're tired. I'd be exhausted too..assuming I'd get it accomplished. :blush:
 
I ate proper foods yesterday, so today ( so far) my tummy is feeling alright. I stayed home yesterday and so all of the foods I ate were prepared at home. If I prepare foods at home I know what the ingredients are in the foods. I drank my smoothie, ate cereal and milk, and ate a sandwich yesterday. I have not had a bowel movement yet today, so that is nice because a lot of days I am going to the bathroom several times a day. My trigger is grease and fat in foods, these foods give me terrible diarrhea. And, believe it or not, I cannot eat vegetables or fruits ! Well the only fruit I can eat is bananas. The only vegetable I can eat is potatoes. Unfortunately when I go out of my home I sometimes like to eat food with FLAVOR, but will have to pay the price : - (

Thanks for listening. I hope everyones tummies have a great weekend! : - )
 
I have passed out 3 times since last night. DH has me sanctioned to the couch. My fall last night, broke my tail bone-luckily we have a fluffy, comfy couch.
 
Holy crap... All those trips by bike!? No wonder you're tired. I'd be exhausted too..assuming I'd get it accomplished. :blush:


:lol2::lol2::lol2:

I have an electric bike, there is no way I could do it otherwise. And there is not much choice: I have no car, and public transport is good but the bike is quicker. And my bike waits for me and does not follow a timetable so I do not have to worry if I have to do a toilet dash.
 
I ate proper foods yesterday, so today ( so far) my tummy is feeling alright. I stayed home yesterday and so all of the foods I ate were prepared at home. If I prepare foods at home I know what the ingredients are in the foods. I drank my smoothie, ate cereal and milk, and ate a sandwich yesterday. I have not had a bowel movement yet today, so that is nice because a lot of days I am going to the bathroom several times a day. My trigger is grease and fat in foods, these foods give me terrible diarrhea. And, believe it or not, I cannot eat vegetables or fruits ! Well the only fruit I can eat is bananas. The only vegetable I can eat is potatoes. Unfortunately when I go out of my home I sometimes like to eat food with FLAVOR, but will have to pay the price : - (

Thanks for listening. I hope everyones tummies have a great weekend! : - )

Is it the fibre in fruits and vegetables that gives you problems? (If you also have trouble with whole grain cereals, nuts and seeds it's probably the fibre.) If it is,
have you tried avocados? They're a fruit that's as easy to digest as bananas. Stewed fruit and tinned fruit (except pineapple), and smooth vegetable soup may be ok too. And if you're ok with skinless potatoes, try sweet potatoes, swede, butternut squash and carrots, but cook them really well and then mash them.

What sort of thing do you order when you eat out? There must be dishes you can eat safely, or at least ones where you can pick out the unsafe foods and still have a good meal.
 
:lol2::lol2::lol2:

I have an electric bike, there is no way I could do it otherwise. And there is not much choice: I have no car, and public transport is good but the bike is quicker. And my bike waits for me and does not follow a timetable so I do not have to worry if I have to do a toilet dash.


Ohhh ok. That's still a lot. Although I don't feel nearly so lazy and unproductive now. :redface:
 
It's been a good day, my sister is staying here for a few days, the children love her even if the younger one calls her Granny and not Auntie. We have been busy potting on vegetables inside and planting a few things in the garden. We had a little walk around the neighbourhood this afternoon to show my sister around.

If only this fatigue would go away, I don't know why it is suddenly so much worse (is it really because I lowered my Asacol dose?). Even a cola did not give me a boost. At least today the fatigue gave me more of an appetite - sometimes it makes me feel nauseous.

Have a good day/good night everyone. Monday tomorrow -aarrgghhhh!
 
How did I manage to lose 1.2kg overnight? I'm seeing my doctor today and she'll probably weigh me; where did that 1.2kg go?! It's not too bad, as for the past week or so I'd gained around a kilogram, which is very fast weight gain for me. Is it water retention or something that causes such major fluctuations? I couldn't have burned off 1.2kg of fat (or muscle, since I don't have fat) in one day could I?
 

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