Last one wins PG version 2.0

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Status
Not open for further replies.
Oh wow, Mandy, 20! That seems like a ripe old age! I never had a dog before, so I don't really have any experience with how long dogs live. I did have a cat growing up, she lived to be 18. Mostly I had a lot of gerbils, hamsters, etc as a child so I know very well how long they live (unfortunately not very long). I guess I'm a bit freaked out because my last pet was a hedgehog, and he only lived to be 3 (normal lifespan anywhere between 3 and 8 years). I was sad that he went so young, I don't want my other pets to follow suit! Hopefully I'll still have my cat and dog for many years to come.

Aura, I will definitely take and post some photos from the corgi picnic! I'm taking a break at work right now, but tonight when I get home I can also post a photo of my dog with her birthday cake (she looks SO happy in the photo!). The picnic is on the 24th so I'll post photos that evening or the next day. :)

Scottsma, my best friend from childhood loves pugs! She has a pug named Yoda, which seems like a very appropriate name for a pug. :p She even dresses him up for Halloween!
 
Oh yeah, and as Sandy said (once again we posted at the same time, ha ha), my cat also had crystals in her urine. She's been on the expensive prescription-only food for a few years now and has been fine since. We even got her one of those automatic self-scooping litter boxes so that she's got a fresh litter box every time she goes - she loves it. Hah, I don't have kids so I spend a lot of money on my pets! :p Winning?
 
I took a nap after the chiropractor. Our dog was laying up on the couch. I woke up at one point . My head was laying on my dog and he was not complaining
 
Hey Ron,Cat, lord bless them,animals never complain and give unconditional love.They are truly wonderful wee souls 🐶🐰🐱🐦🐗
 
Okay, here is my dog yesterday on her 8th birthday, about to get her cake (only 1/4th of the cake because it was big!). Obviously she is a very happy pooch. :)

SMallIMG_3905.jpg
 
Still miss my beautiful super intelligent miniature French poodle but sometimes visit her in the pet cemetery.she had a beautiful black curly coat.
Much to my dismay the orthopedist did not allow the steroid injection because he said it has
Obviously not worked so it was pointless to continue.and also I had a bursitis of the joint and a tendinitis of the calf muscle...all very swollen and painful to the touch.He said there is now a choice of surgery or do nothing..my choice...Hobsons choice really.
Since the bone is necrotic and deteriorating it has to be surgery....he said I was on his priority list.lots of pain in the meantime but I have found turmeric curcumen and black pepper is better than Tylenol for the pain.....one capsule 1000mg a day.Thank you Carol for the black pepper tip.
So with the GI surgeries three years running now the fourth year changes direction to limb(s)......it's getting harder to live.
I have been grateful and most fortunate to have very good physicians and surgeons .
Just wish it was not a continuing saga.
The ear nose throat guy was less than impressive....I was in and out of his office within ten minutes.
He decided he knows better than the radiologists interpretation of the MRI and CT scans
and said insignificant details sometimes turn up on these scans so he is not doing anything about it.
I know my neurologist was waiting to hear hiis opinion,also my GP...so it's not over yet and I have that feeling I will be sent elsewhere...I don't have the energy for differences of opinion..
Next week I see the GI...and know that scopes are on the schedule...he has been waiting for things to heal.
The next day will be my GP and then hopefully a lull with all these appointments...
This afternoon I spent on the beach..I don't have a cell phone so was safe from all intrusions.
It was a balmy sunshiny day...lovely.
Now it's time for bed..
Be well Everyone
Winning.........
 
Trysha said:
Still miss my beautiful super intelligent miniature French poodle but sometimes visit her in the pet cemetery.she had a beautiful black curly coat.
Much to my dismay the orthopedist did not allow the steroid injection because he said it has
Obviously not worked so it was pointless to continue.and also I had a bursitis of the joint and a tendinitis of the calf muscle...all very swollen and painful to the touch.He said there is now a choice of surgery or do nothing..my choice...Hobsons choice really.
Since the bone is necrotic and deteriorating it has to be surgery....he said I was on his priority list.lots of pain in the meantime but I have found turmeric curcumen and black pepper is better than Tylenol for the pain.....one capsule 1000mg a day.Thank you Carol for the black pepper tip.
So with the GI surgeries three years running now the fourth year changes direction to limb(s)......it's getting harder to live.
I have been grateful and most fortunate to have very good physicians and surgeons .
Just wish it was not a continuing saga.
The ear nose throat guy was less than impressive....I was in and out of his office within ten minutes.
He decided he knows better than the radiologists interpretation of the MRI and CT scans
and said insignificant details sometimes turn up on these scans so he is not doing anything about it.
I know my neurologist was waiting to hear hiis opinion,also my GP...so it's not over yet and I have that feeling I will be sent elsewhere...I don't have the energy for differences of opinion..
Next week I see the GI...and know that scopes are on the schedule...he has been waiting for things to heal.
The next day will be my GP and then hopefully a lull with all these appointments...
This afternoon I spent on the beach..I don't have a cell phone so was safe from all intrusions.
It was a balmy sunshiny day...lovely.
Now it's time for bed..
Be well Everyone
Winning.........
Click to expand...
The best to you, Trysha
 
What a lovely picture Cat...such a lovely dog with a very attractive smile...almost human
 
Trysha, we are here for you. It's so not easy some days. We will do what we can to help you through this. Just let us know if you need something specific like a distraction, or comfort or a laugh.

I'm glad you were at the beach. I'm going to send a link to news on our weather today. I live near Te Horo beach road.

The lower North Island is being hit by a blast of heavy rain that's caused flooding, slips and road chaos.
http://www.stuff.co.nz/national/843...as-bad-weather-hits-Wellington?cid=app-iPhone
 
I agree, I love the corgi's obvious joy on his face. He's one of the cuter corgis I have seen. Absolutely adorable.
Interesting tips for the pain Trysha (and Carol). My bone from the foot to the big toe was left "spongy" due to an infection after surgery a few years ago. I've been trying to avoid another surgery myself, as I know the first surgery left me in worse shape in the long run. Also, instead of just shortening the bone and placing three screws in it, this time it will have to be a total joint replacement. On top of that, anything involving the foot is scary for me as I have diabetes, and if there is a (medical) complication to be had, I seem to get it.
Well, no fish caught today. We went first to the lake where we had such good luck a couple of weeks ago but the forest service was there in full hasmat type suits spraying trees (presumably for a beetle infestation that is known in trees in those parts). So down the road we went to another beautiful little lake. No fish caught, but it was beautiful. Cold, but beautiful. Pictures coming later, but I have a cold and am tired (more than usual). G'night all you lovely people!
 
Stay safe and well all. Last camping trip of the season here. Beautiful but cold nights/mornings. Bitter sweet. GP only allows acetominophen as I'm allergic to the rest. Useless in my opinion but do as we must. Pets are family. Be as well as can be all
 
Today may have been the last day fishing trip of the season for us as the high mountains are getting too cold, even during the day. There was light snow on the ground in some places when we were up in the Uintah Mountains today.
 
SandyUte said:
We had an American Eskimo (dog) that lived until he was 18. Different dog breeds all have different life expectancies too.

Kirsty, cats are very prone to developing crystals in the kidneys which, in turn, causes them to stop using the litter box so well. Diet can have a huge impact on it, and believe it or not, fish products is a major contributor. It has been years since we were in that position, but we had to buy a very expensive "prescription" cat food for awhile. You might want to Google what to feed your cat and see if that helps. Hopefully, kitty will be ok. (We went back to a good regular cat food after awhile because the Rx food I think was mostly gimmick for vets and manufacturer to make money. )
Were off to another non reality day. Our freezer is full of all the fish we can use, so it is only catch and release today. Doug informed me that tomorrow we've got to get back to reality. :rof:
Click to expand...

Why ??? :dusty:
 
My crohnie family are suffering so much that I'm never going to whinge ever again.
I am so lucky to have you all,but I'm incredibley sad for all your pain.
We all have friends or aquaintences who whine at the least thing.In future I'm going to tell them to walk a mile in your shoes......big hugs.
 
Cat's corgi shows gratitude with attitude,integrity,ie not jumping up to snatch the food,great happiness
You do this for me? Pour moi? finally great anticipation of good things to come and no disappointments.
A reflection of a good and caring owner....I wouldn't mind a piece of that cake
Kirsty thank you for those kind thoughts...I could use a dozen fresh eggs...please.......
Thanks to Ron,Sandy,Doug,Shanen and Carol,for the helpful sentiments.
It's great to have such a caring and supportive family and a technology that binds us all into a caring community.
Our weather is beginning to cool at night but balmy days,have to make the most of receding summer and embrace the coolness and mellow fruitfulness of Autumn.
For two weeks now we have not been able to open our windows during the day because of maintenance work on the building's exterior..which is white.All air conditioners had to be removed from windows.Fortunately there is a shopping centre nearby so I would go to the local supermarket and freeze before returning to the apartment.
The building is being retrofitted with climate control for each individual apartments.
Mostly I am very comfortable as things are and don't really care for air conditioning in the unit.A central system will be better.
Now I am determined to make a positive approach to life and leave all negatives behind
I might write a poem......
Be well Everyone...

Winning.....
Trysha
 
I don't know what's wrong with me lately, but I'm getting really emotional reading everyones posts....Not the "change" that's for sure.Had that after my hysterical-ectomy when I was 41.
I need to see a therapist,nothing to do with my emotions though.Today I bought another book.I think I've bought at least four since the last time I mentioned my problem.Last week I also bought a monkey.Well a chimp to be precise.It's a life size baby.An automaton.It moves its mouth and eyes and reaches out with it's arms for a hug.And it does baby chimp ooo ooo ooos.I just couldn't bear to walk away from it.
Les is no help at all.He just lets me do as I please.
 
scottsma said:
I don't know what's wrong with me lately, but I'm getting really emotional reading everyones posts....Not the "change" that's for sure.Had that after my hysterical-ectomy when I was 41.
I need to see a therapist,nothing to do with my emotions though.Today I bought another book.I think I've bought at least four since the last time I mentioned my problem.Last week I also bought a monkey.Well a chimp to be precise.It's a life size baby.An automaton.It moves its mouth and eyes and reaches out with it's arms for a hug.And it does baby chimp ooo ooo ooos.I just couldn't bear to walk away from it.
Les is no help at all.He just lets me do as I please.
Click to expand...
Sometimes, when my Crohns is acting up I can get emotional. Best to you.
 
I get extremely emotional as well when I'm flaring. There's some sort of scientific reason why, I read somewhere once that IBD'ers have much different gut bacteria than the non-IBD population, and that when you combine that with inflammation, it somehow affects how the brain responds to serotonin. I don't understand it at all but there's a legit scientific reason why we get depressed and emotional. So don't feel bad, it's just apparently part of who we are. Or at least part of our gut bacteria.

Thank you for the kind words about my dog! She was super happy, we had just had a walk, which is her 2nd favorite thing. Food is her very favorite thing, so she was having a good time, hence the big smile. :) My hubby tried a bit of the cake out of curiosity and he said it actually was pretty good. The packaging said it was a carrot and peanut butter cake. My dog loved it, she scarfed it down and made sure to get every crumb.
 
scottsma said:
My crohnie family are suffering so much that I'm never going to whinge ever again.
I am so lucky to have you all,but I'm incredibley sad for all your pain.
We all have friends or aquaintences who whine at the least thing.In future I'm going to tell them to walk a mile in your shoes......big hugs.
Click to expand...

Every person's pains are just that - their own. What is difficult for one person might not be for another and vice versa. You have such a tender, beautiful soul and that (plus your own issues, which aren't easy) is what is making life difficult for you, I'm sure, right now. Don't worry about (to use British spelling) whinging when you need to. It's ok. (We all know I do an excellent job at it! And that is my excuse and I'm sticking to it! ) Plus what Cat said made sense.
I also forgot to mention that Thursday we went to see "Sully." I was looking forward to the scene where he took off his shirt to help a cold passenger, but it wasn't in the movie. I expected more from the movie after local reviews, but still, it was fascinating because of the real life experiences and it still had me on the edge of my seat. I understand the FAA didn't look too kindly on it though, and I understand why.
 
SandyUte said:
Every person's pains are just that - their own. What is difficult for one person might not be for another and vice versa. You have such a tender, beautiful soul and that (plus your own issues, which aren't easy) is what is making life difficult for you, I'm sure, right now. Don't worry about (to use British spelling) whinging when you need to. It's ok. (We all know I do an excellent job at it! And that is my excuse and I'm sticking to it! ) Plus what Cat said made sense.
I also forgot to mention that Thursday we went to see "Sully." I was looking forward to the scene where he took off his shirt to help a cold passenger, but it wasn't in the movie. I expected more from the movie after local reviews, but still, it was fascinating because of the real life experiences and it still had me on the edge of my seat. I understand the FAA didn't look too kindly on it though, and I understand why.
Click to expand...
My wife and I want to see that movie but haven't made it yet.
 
Sandy did they include the reunion of a father and son both of whom had been separated in the rescue.Each thought the other had not made it and it was most touching to see them tightly hugging and weeping when they were reunited.
There can be nothing like real life drama as it is happening...quite spellbinding.
Movies can be good but nothing replaces real life .
I expect the fish are glad that you have stored your fishing gear for winter....word soon gets around in the animal world.
Kirsty hope you are feeling better....all that rain won't help you though.
Thanks for the info...it is awesome to see Natures wrath descending.
Carol....feel better soon
Shanen you seem to be going through a bad time...feel better
That goes for everyone else...Doug,Ron,Cat and Mandy take care
It's a dark gloomy rainy black clouded sky...just the venue for writing a thriller...
At least it's a bit cooler...
Winning.....
 
Hi everyone. We went to watch Sully today and really liked it. Can't even imagine how they would have felt on the plane when they brace for impact. We then went to our downtown street fair but it was crazy crowded. Now awaiting dinner delivery from an Indian restaurant :)
 
Yes, Trysha, they did include father and son reunion. I'll bet it would have been better in real life, but just knowing that really happened, it was quite touching.
 
Hi all sorry that things are rough for some of you at the moment. I really hope that things improve fast for you. Its a hard disease to cope with at the best of times. Even harder when flares are in play. If i could id take your pains from you and bear them myself.
Feel better soon everyone sending massive hugs and loads of love n best wishes. 💙💖💕💜💝💛💗💚💋💋💋💋💋:ghug: :ghug:
 
Sandy.....a tender beautiful soul am I ? I had to smile at that,and I know a few people who would be astounded at that description of me.
Maybe I have a flare lurking that's making me emotional,I have had a few "off" days this week,and this morning was a bad start.But really,you all struggle each day far worse than I do.I usually rally round by late morning......Going to have a walk along the quay/river later.It's a nice day and there's toilets,hahaha
 
Me too, big hugs to everybody!

I'm doing better every day. This flare is definitely on the way out. I am having 2-3 formed stools per day! I haven't had d in over a week! It's wonderful. I've gained back 5 lbs of the 17 I had lost. I'm sticking to low-FODMAP and as of today I've tapered down to 15 mg of prednisone. My energy and stamina are returning - yesterday I *almost* got my 10,000 steps in (I had 9,718 steps!). Today my goal is to get to that elusive 10,000. So far so good, It's not even noon and I'm at 4,747 steps already. Took my dog on a nice walk, saw lots of butterflies and saved a toad and a caterpillar (they were both on the bike path so I shooed them off into the grass so they wouldn't get squished). I'm still feeling okay so I'm going to attempt some yard work in a little bit - there are some weeds that need to be pulled and some hedges to be trimmed. I think I can do it! It's a beautiful sunny day and I'm actually feeling well, it's wonderful. I'm trying to do something once a week which I've dubbed self-care Sundays - doing nice things for myself, whether that means buying myself chocolate or flowers, or just getting outdoors and getting some vitamin D and walking in, whatever I feel I need that day. (I did buy myself chocolate and flowers before going on the walk!) I hope everyone else is able to do something nice for themselves today, too. Everyone have a wonderful self-care Sunday!
 
Cat-a-Tonic said:
Me too, big hugs to everybody!

I'm doing better every day. This flare is definitely on the way out. I am having 2-3 formed stools per day! I haven't had d in over a week! It's wonderful. I've gained back 5 lbs of the 17 I had lost. I'm sticking to low-FODMAP and as of today I've tapered down to 15 mg of prednisone. My energy and stamina are returning - yesterday I *almost* got my 10,000 steps in (I had 9,718 steps!). Today my goal is to get to that elusive 10,000. So far so good, It's not even noon and I'm at 4,747 steps already. Took my dog on a nice walk, saw lots of butterflies and saved a toad and a caterpillar (they were both on the bike path so I shooed them off into the grass so they wouldn't get squished). I'm still feeling okay so I'm going to attempt some yard work in a little bit - there are some weeds that need to be pulled and some hedges to be trimmed. I think I can do it! It's a beautiful sunny day and I'm actually feeling well, it's wonderful. I'm trying to do something once a week which I've dubbed self-care Sundays - doing nice things for myself, whether that means buying myself chocolate or flowers, or just getting outdoors and getting some vitamin D and walking in, whatever I feel I need that day. (I did buy myself chocolate and flowers before going on the walk!) I hope everyone else is able to do something nice for themselves today, too. Everyone have a wonderful self-care Sunday!
Click to expand...
Great to hear, Cat.
 
Cat,I can feel your happiness and relief,but please don't do to much to soon.You sound like us,rescuing wildlife from the road.My hubby has been known to stop the car for a caterpillar.I've got many stories like that.....well we all need help sometimes eh.?
 
I am definitely not doing too much too soon. I'm listening very carefully to my body and taking lots of breaks. I did part of the yard work and then came indoors to cool off and drink some water (I know full well how important hydration is, especially in a flare!). I know that it isn't a big deal if I don't finish the yard work, and I'm pleased with the work I accomplished already, so I'm not pushing myself. I'm going to rest as long as I need and then get back outside if I can and finish it - if not, no sweat. I have a restful evening planned, too. I have a new Lego set, and I'm still working on finishing a new crocheted blanket, and there is a football game on tonight (American football, my favorite team the Green Bay Packers versus our rival, the Minnesota Vikings) so I will be on the couch building Legos and crocheting and watching the game.

Aw, you and your husband sound like very good people! I always rescue caterpillars when I see them. This was not on a road with cars, it was a path for bicycles and walking only (no motorized vehicles allowed), but the toad and caterpillar still could have easily been squished by a cyclist or walker, so it was a no-brainer to move them off of the path and out of harm's way. On that note, I got bit by some mosquitoes just now when I was out doing the yard work, so I hope my little toad friend is off eating lots of mosquitoes!
 
Update: Finished the yard work! Really tired now but feel accomplished. I trimmed the hedges, and just at the end as I was sweeping the sidewalk, that's when my body started telling me I was done. So I quickly finished the sweeping and came back indoors. Phew! It was hard work but I am so happy I was able to do it. And now I can rest for the rest of the day.
 
Think it goes with the territory Carol...it affects me that way and I really am a stoic when it comes to pain and other indescribable symptoms...trying not to think about it right now
but not looking forward to the GI appointment this week.......nuff said....
Hope you will regain your happy buoyant self with your expressions we all enjoy....and appreciate so much.
Cat..good to see you are feeling better...don't be overdoing things.
Now we are enjoying the early changes from summer to Autumn...it is a lovely time of year and there was the most spectacular sunset this evening,the beauty was breathtaking.
The sky scape was vermilion clouds on a background of Cambridge blue.,it was early evening and the daylight was morphing into light darkness.

What is this life if full of care..We have no time to stand and stare.......
No time to see in broad daylight
Streams full of stars,like skies at night..
No time to turn at Beauty's glance
And watch her feet,how they can dance.... ( WHDavies)

Good health and happiness to all of us..

Winning.....
 
Cat, I'm from Minnesota and hoping for a good game tonight also but I think we're both hoping for different outcomes.:dance: Glad you're feeling better and able to accomplish so much. It sure is a nice feeling of satisfaction after a productive day.:)
 
DougUte said:
Cat, I know a yard that could use your help! Glad your getting better.
Click to expand...

I thought the same thing, Doug. :rof:

Had a nice quiet day. Stayed home from church so I wouldn't give anyone my cold, and so I could rest, doing much better after sleeping in. Stayed in pajamas all day, it was nice.

Carol, I knew you wouldn't think of yourself as a tender soul, but that doesn't mean you aren't a tough cookie at the same time. You have just the right combination, and in the appropriate areas.

Glad you are doing so much better Cat, you had a bit of a rough spell. We watched our (American) football yesterday, but it was just college ball. Our Utes won (of course:ybiggrin:).

Feel better all of you who aren't feeling well.
 
Hey Cat so glad your on the mend. Well done on the yard work...mmm i really must do mine n the car needs washing.☺

Nice one Ron hope you enjoy the food when you use the voucher ☺

Love to all 💜💛💚
 
Shanen, congrats on your team winning! I don't know what happened with the Packers, I went to bed after the 3rd quarter because they were just playing so badly. The Vikings' rookie QB looked better than Rodgers out there!

Doug and Sandy, no problem, my rate for doing yard work is $1000 per hour! ;) Just let me know when you want me to come over! Ha ha.

I didn't get my 10,000 steps in yesterday, I "only" made it to 8,700 (which is not bad at all). And since I did yard work, I think that counts as it was a lot of exertion, so I feel satisfied with what I was able to do yesterday. Even without 10,000 steps I am still winning! :)
 
My yard work n car washing has gone outa the window.. cant muster the energy today oh well it can wait ☺
Least im winning here...for now !!!😃 haha...
 
Thought for the day........The worlds termites outweigh the worlds humans by 10 to 1.

What I want to know is who felt the need to count them.
Winning
 
And I would be interested in the method used for counting the termites Carol
Sitting outside the gym ,just finished the programme...now where's my ride?
Sitting and waiting and waiting and sitting......wish I was a knitter or a crocheteer..
Enjoying the balmy weather...lovely sunshine and fresh air..close to Lake Ontario reflecting a perfect blue sky...
Winning.....
 
Ron, my Packers lost too. Ugh. I have tickets to see a game in November on my birthday, so I hope they win then!

Trysha, I love to crochet. It's not too hard to learn, and I'm sure there are videos on youtube to show you how to knit or crochet. I'm not very good, I mostly can just crochet in straight lines, so mainly I make things like scarves and blankets. :p I like it, though. It's something I can do even when I'm not feeling well and don't have much energy. It makes me feel productive and worthwhile, and when I'm done I have a nice scarf or blanket that I can either keep or gift to someone. And, it's so cozy in winter to be working on a blanket. When I have a blanket that's halfway done, I can use it to warm my lap while I'm working on it. So cozy! :)
 
Guys whos teams lost better luck next time... my team lost to im hoping we all can win next time☺☺
 
Cat I think I've mentioned that my mam-in law was a great crocheter,and as well as shawls and blankets,she would do berets and bags and baby stuff.She once crocheted me a peach coloured mini dress,when they were high fashion,back in the day.Also a blck poncho which I wore a lot, with black kinky boots.Ah,those were the days.
Trysha,,,,are you getting anything positive from your gym sessions ?
 
Scottsma, ponchos are coming back into style! I bought myself one online and I got a sewing pattern to make another, just because I wanted to (it seemed cozy and I'm very into cozy right now). Then I saw in the store that there are suddenly a ton of ponchos! Apparently I'm a trendsetter and didn't know it. I might not wear kinky boots with mine though! ;)

I'm very into shawls right now too. I don't think those are in style at the moment but I don't care. I made myself a crocheted soft pink & grey shawl, and I have yarn to make a black & turquoise shawl as soon as I'm done with my current blanket. I think I'm also going to make my grandma a shawl for xmas and I got some tan/beige yarn for that. There's a large window in her room so I imagine it might get cold in there in the winter.

Hmph, I'm a bit grumpy. I wanted to take a walk outdoors this afternoon - it was sunny and gorgeous all morning, but now there are dark storm clouds rolling in and predictions of rain for all afternoon & evening. So no walk for me, at least not outside. The weather is also ruining my weekend plans - the hubby and I were planning to go to the corgi picnic on Saturday, but now they're predicting rain for that day as well. No good! But we're turning it into something positive. I've been wanting to go to Ikea and get a few things (the closest store is 2.5 hours away), so we're now planning a little road trip to do some shopping there. So, no corgis, but yay shopping! :)

I also feel like I'm coming down with a cold! My throat has been sore all day and now I'm getting sniffly too. I hope it's just allergies or the weather, but I suspect it's a cold - steroids always lower my immune system, and I'm still on pred. Bleh!
 
I'll be fine, it's nothing compared to the flare I've been in, it's just annoying more than anything else. I have plenty of broth at home anyway from being on low-FODMAP, so I'm pretty well set! It's just not my day (or week, month, year...).
 
Aw Cat hope its not a cold. Plenty of vit c is good for keeping colds at bay i also have a small sip of vinegar to help with a
Sore throat ...(if you can drink it) it is a natural antiseptic..☺
 
The other day I got my bloods done. The nurse was saying that her and her colleague were discussing the point that there are not many 90 year old women with tattoos, yet. But when I turn 90 there will be a lot more women at 90 with tattoos. Then she went to a rest home to collect bloods. She got talking to this woman who was 89 and they got talking tattoos. This woman had one. She asked the nurse if she would like to see it. The nurse said yes. At the top of her shoulder was a tattoo of a cat. The nurse commented how good it looked, that it looked fresh. The nurse then asked when she had it done. The woman replied, two months ago. When asked why she got it done, the woman replied that she had always wanted one, it was on her bucket list. She thought she should get it done sooner rather than later. Her daughter took her to get it done, her daughter was not impressed, apparently. But they lady kept saying to the nurse, never say never! The woman then said to the nurse, if you want to see a 90 year old with a tattoo come back in January after my birthday.

So remember never say never
 
Nope! I will never be a knitter or crochet person....my sisters are the family experts.,and I'm one of the family academics....bookworm....etc.
Thank you for the support Cat...and take care with that cold.they have a propensity to develop into other unpleasant things.
Carol...the gym is my go to instrument for keeping fit as I can ..and I really miss it if unable to go three times a week...Monday,Wednesday and Friday.
It stabilizes my BP,and strengthens the bones and makes me feel better for going.
It is also good to have the social interaction...I am one of the " healthier" ones going...
Many are worse off than me.
I had this vague notion it would keep me out of hospital.........??
The docs especially the anesthetists are very pleased about it and say I will need less anesthesia because of the optimized lung capacity.....didn't know that...
Recovery rates are also improved.....
So I just gotta keep going to the gym,........
Another hot sunny day ....pale blue skies....balmy and calming...
Winning....
 
Trysha, you're definitely onto something there. Specifically for IBD, I read a study somewhere that said that regular exercisers tend to have fewer flares, and that the flares tend to be shorter and less severe. So it actually should help keep you out of the hospital to some extent!

Full disclosure, I'm a regular exerciser when I'm in remission, but it didn't keep me out of the hospital for this flare and it was the most severe flare I've ever had, so I guess exercise didn't save me this time. Can't win them all I guess! I am looking forward to getting back into the gym myself - I love to lift weights (and bicycle and kayak and ice skate!). Right now all I can do is some walking, so I've been walking as much as I can. With this cold, though, I am going to have to rest up for a bit and temporarily cut back on the walking. Hmph, oh well. That will give me more time to crochet. ;)
 
Cat-a-Tonic said:
Trysha, you're definitely onto something there. Specifically for IBD, I read a study somewhere that said that regular exercisers tend to have fewer flares, and that the flares tend to be shorter and less severe. So it actually should help keep you out of the hospital to some extent!

Full disclosure, I'm a regular exerciser when I'm in remission, but it didn't keep me out of the hospital for this flare and it was the most severe flare I've ever had, so I guess exercise didn't save me this time. Can't win them all I guess! I am looking forward to getting back into the gym myself - I love to lift weights (and bicycle and kayak and ice skate!). Right now all I can do is some walking, so I've been walking as much as I can. With this cold, though, I am going to have to rest up for a bit and temporarily cut back on the walking. Hmph, oh well. That will give me more time to crochet. ;)
Click to expand...
I have gotten out of it and should get back. A couple of years ago, I was doing the elliptical and my gi was pleased.
 
My doctor's office called and said my iron and b12 were normal but I haven't heard about the Prometheus yet.
 
Cat I never made it past the third quarter either. It was past my bedtime. Gone are my late nights as it makes it too hard to get up in the morning for work. I used to read until the early morning hours but even that puts me to sleep these days. Now I pop in here to for my news and entertainment. 😊
 
I agree with being active helps with IBD. Chronic fatigue,interestingly,can make it difficult. I find I can go to a certain point and just hit the wall and I am done.
 
Chronic fatigue is usually my biggest problem with my crohn's. I wish I had more energy to exercise, and sometime more time for it.

Ron, the nurse at my G.I. office called me today and informed me my insurance will not cover the cost of the prometheus test. The company that conducts the test has told her that the cost of the test will be $250.00 at the most. The cost is based on income level. Probably will be about $175.00 out of pocket. Now we need to arrange the logistics of where the blood draw is to be taken.
 
DougUte said:
Chronic fatigue is usually my biggest problem with my crohn's. I wish I had more energy to exercise, and sometime more time for it.

Ron, the nurse at my G.I. office called me today and informed me my insurance will not cover the cost of the prometheus test. The company that conducts the test has told her that the cost of the test will be $250.00 at the most. The cost is based on income level. Probably will be about $175.00 out of pocket. Now we need to arrange the logistics of where the blood draw is to be taken.
Click to expand...
I am sorry it is so much.
 
ronroush7 said:
I am sorry it is so much.
Click to expand...

It seems that we always have high out of pocket medical expenses in one way or another, usually in co-pays for medicines (even with good insurance).
I also very much believe the exercise is good for keeping the flares down. Imagine how many flares would have occurred without the exercise? I'm sure it helps, well, things moving better. But, it's a vicious cycle, no energy to exercise, more flares, more flares, less energy for exercise.
Dave, good to see you again. How's life treating you?
 
Does being on your feet all day moving n shifting heavy stuff,rushing round like a looney and then doing housework count as exercise. If it dont im done for cause iv no energy for anything else 😕
Hope everyone has a good day/night. Big hugs n love 💖💕:ghug:
 
I think we owe it to ourselves to keep as well and fit as we can.Of course there are times when it's hard enough to just get through the day.I know I get respect from friends and the medical profession for trying.Of course,if I was honest,and I am,I'd like to just sit here, alternating between the forum and reading my books.Maybe someone to cook healthy meals for me and do my hair and ironing,the list is endless but you get my drift.
The thing is,once you stop doing stuff,it's really hard to get started again.

PS. Please don't think I'm having a go at those of you who are unable to exercise,who don't have time or don't want to.I'm really not.I just meant I,personally feel better for making an effort......Oh.shut up Carol,here's a spade.dig yourself in deeper why don't you.:sign0085:
 
Last edited:
scottsma said:
I think we owe it to ourselves to keep as well and fit as we can.Of course there are times when it's hard enough to just get through the day.I know I get respect from friends and the medical profession for trying.Of course,if I was honest,and I am,I'd like to just sit here, alternating between the forum and reading my books.Maybe someone to cook healthy meals for me and do my hair and ironing,the list is endless but you get my drift.
The thing is,once you stop doing stuff,it's really hard to get started again.
Click to expand...
I love to read.
 
Me too Ron.I'm also addicted to buying them unfortunately.Hubs and I were at the local weekend market on Saturday,and got separated.He just made his way to the book stall,and there I was.......If I don't buy one for myself (or two) I buy one for him,that I think he'll enjoy. hahaha
 
DougUte said:
Chronic fatigue is usually my biggest problem with my crohn's. I wish I had more energy to exercise, and sometime more time for it.

Ron, the nurse at my G.I. office called me today and informed me my insurance will not cover the cost of the prometheus test. The company that conducts the test has told her that the cost of the test will be $250.00 at the most. The cost is based on income level. Probably will be about $175.00 out of pocket. Now we need to arrange the logistics of where the blood draw is to be taken.
Click to expand...
We have done the prometheus test twice so far, and each time paid $250. As you said, it is based on the income. If income>60000 per annum, we pay $250. Otherwise, $175 I think. I hate that the insurance doesn't cover this test. Apparently it's experimental. I can never understand how they think!
 
Madhu said:
We have done the prometheus test twice so far, and each time paid $250. As you said, it is based on the income. If income>60000 per annum, we pay $250. Otherwise, $175 I think. I hate that the insurance doesn't cover this test. Apparently it's experimental. I can never understand how they think!
Click to expand...
I am retired and just had the test done. Not looking forward to the bill.
 
I had the Prometheus test done while I was in the hospital. They mentioned the possibility of the test to me, I said I'd prefer it not be done because I know insurance doesn't usually cover it. Well, they did it anyway! Not super happy about that. I'm also not looking forward to that bill, ugh.
 
I've been on humira for 5 years 5 months now. I'm waiting to see how much is in my blood, along with azathioprine. How long have you all been on humira? Were you on it with aza or imuran or methotrexate? Can you all lease share your results with me? I'm interested in length of time on drug and levels in our blood.
 
I have been on it at least five months. At least once a week, I still have bad episodes with the Crohns Disease. I had the Prometheus test done last week. I think they are going to use it to see if I need to go weekly instead of every two weeks
 
Currently we are not funded for long term weekly injections. The only other funded drug is remicade. It's one of the downsides of living in a country with only 4 million and being at the bottom of the world.
 
I'm not on Humira, they just wanted to see what the Prometheus test might show when I was in the hospital (apparently it didn't show anything worthwhile). Am currently on pred and Lialda, hoping my GI will let me try LDN.
 
scottsma said:
I think we owe it to ourselves to keep as well and fit as we can.Of course there are times when it's hard enough to just get through the day.I know I get respect from friends and the medical profession for trying.Of course,if I was honest,and I am,I'd like to just sit here, alternating between the forum and reading my books.Maybe someone to cook healthy meals for me and do my hair and ironing,the list is endless but you get my drift.
The thing is,once you stop doing stuff,it's really hard to get started again.

PS. Please don't think I'm having a go at those of you who are unable to exercise,who don't have time or don't want to.I'm really not.I just meant I,personally feel better for making an effort......Oh.shut up Carol,here's a spade.dig yourself in deeper why don't you.:sign0085:
Click to expand...

:rof: :rof: :rof: Speaking as one of the ones that doesn't exercise as much as others, I agree with everything you said. We still owe it to ourselves to do as much as possible for ourselves, it's just that some peoples "as much as possible" is different from others.
 
Me, I breathe in and out on a regular basis. With walks on beach. Hence getting a puppy. This means I will have a good reason for going for a walk.
 
Also speaking of blood levels for medications, etc., my neurologist did a blood level for my seizure medication well over three weeks ago (since everything just goes through me and I see whole tablets in my stools) and I was to call and get results after two weeks. I started calling for results a week ago yesterday, and even left an email explaining that I don't feel quite right, but no answers. I almost always get a voicemail (except one time they had a substitute nurse in his office who promised I would get a reply by that night), and the voicemail message states for patients not to leave multiple messages. Well if they would just return their calls, nobody would have to leave multiple messages! I'm not happy.:mad2:

I'm also having difficulty with my left eye (extremely blurry, spots in vision in that eye that go out of focus more than others). I've had questionable problems with it where I had to go to the eye doctor every six months for awhile to follow something they saw amiss near my macula, but they recently changed it back to once a year as it seemed stable. The times I've had the most problems with my eyes is when I have had TIAs, but not having other symptoms, so don't know whether to call the eye doctor or go the ER.:sign0085: I can't have problems right now. I'm the designated driver for Doug's colonoscopy Thursday.
 
Good luck, Sandy! I hope all is okay. Will be thinking happy thoughts for you tomorrow morning.

Aura, PUPPY!! :D I can't tell from your post whether you've already gotten a puppy or are getting one? Either way, I think we need a photo! What kind of puppy?
 
Aura said:
I've been on humira for 5 years 5 months now. I'm waiting to see how much is in my blood, along with azathioprine. How long have you all been on humira? Were you on it with aza or imuran or methotrexate? Can you all lease share your results with me? I'm interested in length of time on drug and levels in our blood.
Click to expand...


I have been on Humira since June 2011. 5 years 3 months. I have not been on it in combination with other meds like aza, imuran, or methotrexate. I will let you know my levels when I get it done.
 
She is a Cavoodle or Cavapoo in USA. Too young to pick up yet. In a few weeks
 
Aww! She is lovely Kirsty......
Reading of some who are charged for the Prometheus test according to their income
absolutely appals me..I am speechless ......also the test is very overpriced...
What does income have to do with the price of a lab test.....after all you don't get charged
for a pound of butter or litre of milk according to income.....
In Ontario seniors and some other patients are covered by the government programme for most prescriptions although some essential dermatological preps needed for skin cancers are not covered and can be very costly and unaffordable.
Feel better soon Everyone..
Winning.....
 
Cute puppy! So tiny! :D

Trysha, maybe it's because I live in the US and everything related to medical stuff is expensive here, I guess I'm just used to it. Even with insurance it's still pricey, my 5-day hospitalization looks like it'll be about $2,500 after insurance. My elemental drinks weren't covered by insurance when I was doing EEN so that cost me over $600 out of pocket. So honestly, tacking the prometheus test onto those costs, it sucks but it's also expected. It's so expensive to be sick in this country. With a chronic illness, I've just come to expect that I'll always have some amount of medical debt. That's just how it is here. It sucks.

On a happier note, I feel like I'm recovering from my cold already. I've been horking up a lot of mucus today and the pressure in my ears has somewhat relieved itself, and I'm not coughing as much and my throat feels a lot better. I have more energy today, too, feeling less run-down. So that's good, sometimes it takes me weeks to get over a cold but it's seeming like this one will be a matter of just days and not weeks.
 
Jammer was only four weeks old when photo was taken.

Cat I'm glad you're getting over cold. The insurance side of things seems unfair. It must be real challenging for you.
 
Yeah, it sucks financially but I think it'll be okay in the long run. I have a vague but I think realistic financial plan - first, make it a priority to pay down my credit card and medical debt. Then hopefully in a year or so when those debts are lower, I can buy myself a newer car (current car is nearly 16 years old, with almost 200,000 miles on the odometer - I do have some money saved which is earmarked for a newer car, so I shouldn't have too much debt when I do buy a car). When that's paid off, we can focus on paying off hubby's student loan - we have 6 years left on those payments. Fortunately I have no student loan, I went to a cheap college and my parents helped pay for the vast majority of my schooling. And we have about 9 years left on our mortgage, so after hubby's student loan we can focus on paying off the house.

So, in 9 years, even if I still have medical debt and credit card debt, at least we won't have the student loan and mortgage to worry about anymore and then can focus on paying off whatever else, and can hopefully save a bunch of money to maybe retire someday! I'm 36, I'll be 45 years old in 9 years, so that's not bad at all for having the house paid off at that age. And those are our big debts. It seems daunting right now because we currently do have a lot of debt, but I think we can do it. I'm extremely frugal - most of my clothes come from thrift shops or garage sales, sometimes I even sew my clothes myself. I'm going to make my car last as long as I can, and the hubby just got a great deal on buying my grandmother's car which should last him for hopefully many years to come. (We had enough in savings to fully pay off that car right away, so no car payments there.) Our house is small & humble which means the mortgage payments are not bad at all - our mortgage payments are actually cheaper per month than rent was when we were renting an apartment. We hardly ever go out to eat - and being on low-FODMAP, I don't know that I even could eat at many restaurants right now anyway, it's much cheaper and safer to cook all my meals at home. So yeah, I'm not an extravagant spender by any means, and I think we can get these debts paid off one by one. That's the plan, anyway!
 
Cat-a-Tonic said:
Cute puppy! So tiny! :D

Trysha, maybe it's because I live in the US and everything related to medical stuff is expensive here, I guess I'm just used to it. Even with insurance it's still pricey, my 5-day hospitalization looks like it'll be about $2,500 after insurance. My elemental drinks weren't covered by insurance when I was doing EEN so that cost me over $600 out of pocket. So honestly, tacking the prometheus test onto those costs, it sucks but it's also expected. It's so expensive to be sick in this country. With a chronic illness, I've just come to expect that I'll always have some amount of medical debt. That's just how it is here. It sucks.
Click to expand...

The cost of the Prometheus test could be a lot worse. That $250.00 bill is after applying for a payment assistance program. Without that, the bill would be about $2,500.00.

Cat is right, the $250.00 bill is nothing, really. My colonoscopy tomorrow is costing me about $1,300.00 out of pocket because my deductible has not been met on my insurance.
 
DougUte said:
The cost of the Prometheus test could be a lot worse. That $250.00 bill is after applying for a payment assistance program. Without that, the bill would be about $2,500.00.

Cat is right, the $250.00 bill is nothing, really. My colonoscopy tomorrow is costing me about $1,300.00 out of pocket because my deductible has not been met on my insurance.
Click to expand...
I am sorry, Doug, for the expense. Cat, I am glad your cold is better. Just got done at the vet. Our dog has diarrhea.
 
Status
Not open for further replies.

Similar threads

L
The decision : On Biologics or Not
Replies
18
Views
3K
NeverBeenEasier
N
A
What would you do?
Replies
22
Views
2K
Delta_hippo
D
valleysangel92
Hello Old Friends
Replies
1
Views
312
my little penguin
my little penguin
K
This has destroyed my life.
Replies
27
Views
3K
kephra
K
Crohn2357
GUT STERILIZATION FOR CROHN’S DISEASE (THEORETICAL CURE)
Replies
2
Views
1K
cheka
C

Latest posts

Back
Top