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I want to sleep through the night please.

I pushed the send button and hadn't finished typing that how tired I am. I wish pain didn't make one so tired.
 
I don't sleep through as when I wake up I have to test my blood sugars then eat lollies, drink a milk drink to get sugars up to avoid hypos. If I am in hypo then I have to stay awake longer until hypo has been resolved. That's why I'm tired.
 
Big hugs sweetheart.If I could wish your pain away, I would.
Have a nice warm bath and a warm drink and a hot water bottle.
Do you have hot water bottles in NZ.?
 
That's good.Soon you'll have a puppy to hug, too.
I hope today's a rest day for you.
I've just got my PJs on.End of the day for me.TV and then bed,and I must say it looks mighty inviting.....Night night all.x
 
fuzzy butterfly said:
Hi all iv been issued with moviprep orange bowel prep. Has anyone used this (as i havent b4). Hoping its not as bad as kleenprep i had last time 😨.
💕
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My prep last week was Suprep. It was suppose to be Grape flavored, and I think I tasted something like grape soda, but it was awful. I wonder if it would have been better without the flavoring. :stinks:
 
ronroush7 said:
If so, when does it take effect? I am going for the Prometheus tomorrow.
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Not quite sure, Ron. We are seeing the GI in a couple of days. I will be sure to ask him. Also, the article mentions that it's only for Remicade. I'm assuming you are on Humira now. Sorry Ron.
 
Hope you're doing okay, Mandy. Been thinking about you. 💛
I finally managed to tear myself away from the bathroom to get to the doc. He's pretty sure I not only have a UTI, but that it has spread to my kidneys. I'm now on double the normal dose of Cipro for UTI, plus a numbing agent. He also wants me to see a urologist to get to the bottom of why I'm having so many. Had blood in my urine today. Can't wait for the meds to kick in.
 
My project where I'm giving away a bunch of scarves is coming along nicely. I have 5 scarves made so far. Although I had to take a day off of crocheting yesterday - on Saturday, the hubby drove me down to the Chicago suburbs for some shopping, and it's about a 2.5 hour drive each way, so I made one scarf on the way down and one on the way home. But then I got a painful knot in my back/shoulder so I had to take a day off from making scarves! Today things feel much better so I think I will start on a new scarf when I get home tonight. I got some new yarn (it was on sale and they also let me use 2 coupons, score!) so I haven't even decided which colors I'm going to use yet. I guess I'll surprise myself! :p
 
When I was buying cranberry supplements today, I went past the craft/sewing/yarn and needlework section and was totally tempted to buy yarn to do the same as you, totally had you on my mind. But I know how much I finish projects (not) and drew myself away. Probably a good thing (at least until I learn how to finish what I start, have a few projects in the closet).
 
Sandy, I have a ton of unfinished projects! So many that I got a dry-erase board to put in my craft room (yes, I have a whole room for that) with a list of my ongoing projects on the board so that I don't forget what I'm working on. :p There are at least 8 or 10 things written on there at any given time. There's no shame in having ongoing projects, as long as you don't get overwhelmed or become a hoarder or anything like that. I think that's just normal human behavior or maybe a sign of a good creative mind. :)
 
If it makes you feel better, here's a list of my current/ongoing projects:

Sew a patchwork quilt for my cousin's baby

Crochet a scarf and hat and maybe mittens for my uncle

Sew some mittens out of old sweaters for my nieces (I saw it on Pinterest, ha ha)

Sew some study pillows (they have pockets for books & pens) for my nieces (I also saw that on Pinterest)

Crochet as many scarves as I can and give them away once the weather turns colder / at xmas time

Sewing - add better pockets to a few pairs of pants (I have to wear "business appropriate" trousers to work, and womens' trousers never have proper back pockets, so when I buy new pants for work I always go in and add back pockets)

Sewing - I have a vintage dress which is really tight in the hips area but fits otherwise, so I'm going to cut the skirt part off and turn it into a cute top with a peplum

Sewing - I bought a weird vintage sailor outfit at an estate sale and I'm going to shorten the skirt, remove the sleeves, take it in, etc in an attempt to make it cute

Sewing - I have a faux fur coat that I also got at an estate sale, it is too large so I'm attempting to take it in and make it fit better. I had started on that but I screwed up part of it so I need to rip out those stitches and patch a small hole and try again (sewing is a constant learning process even if you've been doing it for years!)
 
Not liking "projects" at the moment. Finishing is an issue as I always seem to come up with more to add to the list. MRI yesterday. Yep - still claustrophobic. 😧
 
Shanen said:
Not liking "projects" at the moment. Finishing is an issue as I always seem to come up with more to add to the list. MRI yesterday. Yep - still claustrophobic. ��
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Hope you get the results you're hoping for Shanen.
 
I must have the least creative mind ever.I have never had the slightest inclination to be creative.I sew buttons on badly,and I use wunda web to stick hems up.I do make a pie every week,if that counts ? But cooking is just a means of keeping hubby fed and healthy.
I always cook (for him) from scratch.I have a totally different diet to him.I'm a good cleaner,but if I had enough money I would pay somebody.(and probably clean up before they came) I guess we're all different as the crohnie mantra goes.
The girl in our newsagent has been planning a trip to Australia for months with her fella.Due to go in a month or so.Her fella has colitis and was hospitalised last night.On a drip and very sick.Hol.cancelled.I feel so sorry for them.
 
Scottsma, I am totally un-creative in the kitchen, I'm a terrible cook. I get excited when I make a meal that tastes like food and doesn't poison everyone. :p So that definitely counts as you being creative! My mind works well with sewing and crocheting, but put some cooking ingredients in front of me and I will totally give up and order a pizza. Ha!

Fortunately I'm married to a chef. Unfortunately, since he works long hours in a kitchen all day long, the last thing he wants to do when he gets home is cook me a meal. :p I'm on low-FODMAP right now anyway, so like you said my diet and his are quite different at the moment. I've been having pretty simple meals, like fish and rice, or rice and fish. ;) That's as creative as I get in the kitchen, is which type of fish should I have with my rice.

If you want to learn to sew, here's my recommendation. Go to garage sales or thrift stores and buy clothes that are cheap but have potential. Like, the pattern is really cute but maybe the dress is a few sizes too large, or would look really cute if it wasn't long-sleeved, etc. Look for the potential and don't pay a lot of money, those are the key points. Take it home and try to alter it yourself - if you succeed, you've got a cute new outfit that is now custom-made, and you only paid a few bucks for it. If you fail, you didn't waste very much money, and you hopefully learned some things about what went wrong and what you might try next time. That's how I do it, and I've had plenty of failures and learned a lot and continue to learn each time I sew. I've got some really cute rags in my fail bag, ha ha, but I'm not out a lot of money and I gained valuable experience. And I do also have a lot of successes, really cute outfits that I altered myself and get tons of compliments on. My favorite dress cost me 75 cents at a garage sale - it had these big poofy sleeves and it was too long. So I cut about 6 inches off the bottom, hemmed it, removed the sleeves and hemmed the raw edges where the sleeves were. It's gorgeous, fits me wonderfully, and nobody would know that I paid less than a dollar and spent about an hour altering it.
 
Thank you for you advice, but really Cat,I DON'T WANT TO SEW !!! hahaha
I don't want to make pies either.I don't want to clean.I just want to read my book and ride my bike.And have a moan with my crohnie family.
 
I won't even begin to tell you, (couldn't if I want to, it's too numerous), a list of my projects. I have multiple projects in multiple categories. I've finished a few. Enough said. (Cooking is about the same, though I think I would have been a great cook by now if I hadn't had my stroke.)
Off to the store again for a birthday present. I've got to stay away from the craft area. (I've got to keep telling myself that there too.)
 
scottsma said:
Thank you for you advice, but really Cat,I DON'T WANT TO SEW !!! hahaha
I don't want to make pies either.I don't want to clean.I just want to read my book and ride my bike.And have a moan with my crohnie family.
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It's funny, I want to cook and clean, just can't to my satisfaction. :ylol2:
 
scottsma said:
Thank you for you advice, but really Cat,I DON'T WANT TO SEW !!! hahaha
I don't want to make pies either.I don't want to clean.I just want to read my book and ride my bike.And have a moan with my crohnie family.
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I enjoy reading
 
MandyHope you got through the day alright.I was thinking about you.x:poo: :thumleft:




thought you were having your colonoscopy,my mistake.Now I'll have to think of you again next week......I should of realised when you were feeding the meter.I think they'd have something to say if you had to excuse yourself halfway through the procedure hahaha.The mind boggles.:rof::rof::rof:
 
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:p Ha ha ha. :p Fair enough! I want to read and ride my bicycle as well (not at the same time though). And I want to sew and crochet and clean (I love having a clean house) and exercise and walk and kayak and ice skate. And do basically everything except cook! :p ;) Ha ha.

I thought Mandy said her prep day wasn't until next week? I think she said she was picking up her prep and instructions yesterday/today but not actually going through that wonderful fun for a few more days at least. I could be wrong. Mandy, whenever your prep day is, hang in there!
 
Cat-a-Tonic said:
:p Ha ha ha. [emoji14] Fair enough! I want to read and ride my bicycle as well (not at the same time though). And I want to sew and crochet and clean (I love having a clean house) and exercise and walk and kayak and ice skate. And do basically everything except cook! [emoji14] ;) Ha ha.

I thought Mandy said her prep day wasn't until next week? I think she said she was picking up her prep and instructions yesterday/today but not actually going through that wonderful fun for a few more days at least. I could be wrong. Mandy, whenever your prep day is, hang in there!
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Amen, Mandy
 
Madhu said:
Not quite sure, Ron. We are seeing the GI in a couple of days. I will be sure to ask him. Also, the article mentions that it's only for Remicade. I'm assuming you are on Humira now. Sorry Ron.
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Yeah. Janssen would have nothing to do with Humira. Now if it was AbbVie offering it, then that would be cool.
 
I got my results back for azathioprine or imuran
6TGN/RBC = 101 pmol/8x10e8 RBC
6MMP/RBC = 2676
6MMP/6TGN = 26.6

IBD therapeutic range 235-450
Solid organ transplant 100-450
6TGN if above 235 is ok for IBD management
6MMP if above 5700 is bad news
If rate of 6MMP to 6TGN is greater than 20 therapeutic concentrations of 6 TGN may not be achieved with a dose increase
 
Aura said:
I got my results back for azathioprine or imuran
6TGN/RBC = 101 pmol/8x10e8 RBC
6MMP/RBC = 2676
6MMP/6TGN = 26.6

IBD therapeutic range 235-450
Solid organ transplant 100-450
6TGN if above 235 is ok for IBD management
6MMP if above 5700 is bad news
If rate of 6MMP to 6TGN is greater than 20 therapeutic concentrations of 6 TGN may not be achieved with a dose increase
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I don't know what any of that means Kirsty but I hope it's good..:thumleft::rosette2:
 
Does that mean therapeutic levels may not be able to achieved even with a dose increase for you K? Sending hugs.
I overdid a little yesterday, by the time we got home from celebrating foster kiddos birthday, I felt horrible, with the added benefit of feeling like there was a golf ball stuck under my ribs with pain radiating to my side. Part of that may be I forgot to take the numbing med at lunchtime, ran errands in the afternoon and forgot my water in addition, then didn't bring it (the numbing med) with me for the evening in the mad rush to get out of the house. I didn't get tempted even by the crafts this time in my errands in the afternoon. However, at the pet store when buying Allie's food for sensitive tummies, the kittens were tempting me greatly (along with a pocket parrot that was sad and lonely but out of my price range). I bought Allie a coat and a hoodie for future fishing trips instead.:)
 
Sandy, it's looking that way. I just got to get the humira result but it looks as though there will be changes to my crohns meds.
 
SandyUte said:
Does that mean therapeutic levels may not be able to achieved even with a dose increase for you K? Sending hugs.
I overdid a little yesterday, by the time we got home from celebrating foster kiddos birthday, I felt horrible, with the added benefit of feeling like there was a golf ball stuck under my ribs with pain radiating to my side. Part of that may be I forgot to take the numbing med at lunchtime, ran errands in the afternoon and forgot my water in addition, then didn't bring it (the numbing med) with me for the evening in the mad rush to get out of the house. I didn't get tempted even by the crafts this time in my errands in the afternoon. However, at the pet store when buying Allie's food for sensitive tummies, the kittens were tempting me greatly (along with a pocket parrot that was sad and lonely but out of my price range). I bought Allie a coat and a hoodie for future fishing trips instead.:)
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Well Sandy,you silly billy.At least you know that you were at least some way responsible for feeling poorly.Don't be in such a rush....:rosette2:
 
Arrrgggghhhhhhh! I just got a call from the doc's office that ran my urine culture, and I'm shocked, it's not grown out any bacteria! I asked should I keep taking the antibiotic then, and she told me yes...
 
Arrrgggghhhhhhh again, since I got my notebook, when i use my phone, i keep accidentally pressing the post quick reply button and instead of the go advanced button so post prematurely. At any rate, the implication is that I have a kidney infection. I made an appointment with the nephrologist who followed me before. I don't understand it, I have all the signs of a bladder infection as well.
 
scottsma said:
Well Sandy,you silly billy.At least you know that you were at least some way responsible for feeling poorly.Don't be in such a rush....:rosette2:
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Everything with me is a rush, it seems, as I'm always behind from feeling poorly. (I think I'm also getting my mom's dementia.) Foster kiddo liked his pressies, though.
 
SandyUte said:
Arrrgggghhhhhhh again, since I got my notebook, when i use my phone, i keep accidentally pressing the post quick reply button and instead of the go advanced button so post prematurely. At any rate, the implication is that I have a kidney infection. I made an appointment with the nephrologist who followed me before. I don't understand it, I have all the signs of a bladder infection as well.
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Hoping and praying the best for you, Sandy.
 
Oh Sandy, you must feel horrible with that kind of infection. Really rooting for you here, dear!
 
Well, hubby's GI appointment went well today. The word remission is still in our lives, thank God! I asked him about the new testing I shared the other day and he said yes! Janssen is testing Remicade patients for free, he hoped that it would be in effect in a few months.

Wish they do this for other drugs also. Or atleast cover Prometheus with insurance.
 
Hi Carol...things are a bit iffy right now and I have been waiting till I could add something
Positive on the forum......and.how are you a doing of today?
In addition to GI issues yet to be resolved ....the Orthopedic surgeon has given me a date for which he says is urgent surgery on my knee...Being admitted to hospital October 25th.Depressing.....
He needs to remove a piece of necrotic bone and do a partial knee replacement as he tells it.
It's important to be grateful that things can be repaired and made workable again...so trying to stay upbeat and get on with life.
Others are so much worse off ....
Kirsty and Mandy.Sandy .Cat....how are you all....including Doug and Ron..
Madhu good your news was a positive....
Now the Autumn is beginning to advance the air is cooler and damper..".the season of mists and mellow fruitfulness ". is upon us.
The building manager left an artistically arranged heap of lovely golden delicious apples
at their peak for eating...at first I wondered if I could take one ..and did...after reasoning that's what they are there for...and I was right...she said they were for sharing and would bring more......so crisp and delicious ..
So I have to find something positive to contribute to this day.....
Cheers Everyone!
 
Trysha, just because others might be worse off, that doesn't negate what you're going through. You are still suffering, in pain, need support. We're here for you so vent if you need to, it doesn't have to be positivity all the time! (As a champion complainer, I know this first-hand.)

If you want some positivity, though, here's what I'm able to come up with today. It's almost the weekend and it's almost October, which is one of the best months if you ask me. It's when the leaves turn color and it's when Halloween is, which is the best holiday. What other time of year can you decorate with skeletons and bats and it's totally acceptable? It's also one of the few times of year when you don't need to turn on the air conditioning nor the heat, but if you get chilly it's so cozy to cuddle up with a blanket and a mug of tea. It's the perfect time of year for bonfires, as well, and roasting marshmallows. Yum! :)
 
It's just starting Spring here and all the bluebells are flowering in my garden. Later today (it's 3:30 am) I'll plant Silver Beet, spring onions, capsicums in the garden. Tomorrow evening I should have updated photos of our puppy.
 
Not sleeping again K.,? I don't know how you manage to stay cheerful.
Trysha,I agree with Cat.You don't have to be positive all the time.I know you'll be anxious about your op. but what's the alternative ? If you don't go ahead with it you'll never know.And don't forget we're (ALL) doing the London Marathon next year.Training starts in the new year,no chickening out,any of you.
 
You are so right Carol...there is no other option...except to let it get worse...
Cat...thank for your kind words...
Kirsty your garden description sounds so lovely and something to look forward too...I love hot fresh cooked beets....
Now looking forward to the London Marathon next year...have to get my trainers into practise.....
Cold and wet here today but will brave a walk this afternoon with my Winnie Sou'wester...
Winning.......
 
I'm glad you said something Carol, I was about to ask where you were Trysha. And Cat is correct, we are all here, through thick and thin. After all, that is what family is here for, and are we not all IBD family? (Though I was just adopted as an orphan child :wink:). At they very least, we are as I used to call it, the "looney club," though some of us are more looney than others.:ybatty::ybiggrin::ytongue::joker: (I was speaking for myself here.)
If you all want a good laugh, I had a phone call from my clinic this morning where they left a message (I was in the bathroom :biggrin:) to call regarding, what I heard to say my "count," and to call back right away. I thought "great (not), they found something seriously wrong after all," esp since they wanted me too call right back. It turned out they we calling regarding my "account" as there was an error that needed to be corrected. :rof::rof::rof: All paid in full once again.
Last night ended up lovely (not) as I ended up with a bad migraine again. Meds helped make it tolerable and I just might have to go back to the pet store to help me feel the rest of the way better. 🙄
 
Kirst, when do you get your puppy again? I want to make sure I'm there when you bring her home so I can dognap her.
I also love bluebells.
 
Puppy goes to vet today for first jab and checkup. Then we can pick her up in a couple of weeks.
 
Puppppppyyyyyyyyyy! I will be the getaway driver for Sandy because I want puppy snuggles.

Sandy, I had something kinda similar happen. I've been waiting for my GI to let me know whether or not I can try LDN. He wanted to research it first and he's very thorough so it's now been 2 weeks that he's researching it. I sent him an email last week asking if he's made a decision yet, no response to my email yet. Then, today, my phone chirped to say I have an email and it was from my medical team! Eek, I got so nervous, what was he going to say??? ...Turns out it was an automated reminder because I haven't gotten my flu shot yet. Ughhhh. So *still* no answer about LDN. I'll just keep on waiting I guess.

(I am getting my flu shot in 2 weeks so that email wasn't even necessary, either, ugh.)
 
Bit of good news here today. I already get to donate some of the scarves I've made! At work, there's going to be a silent auction and all the money from it gets donated to charity. Last year, I donated one scarf to the silent auction. I wasn't sure if anyone would want to bid on a scarf or not which is why I only did one. But, several people wanted it and there ended up being a bidding war for it! (That was a nice ego boost.) So, this year I'm going to donate 3 scarves to the silent auction. I'm going to pick 3 very different ones so hopefully they'll each attract a nice little crowd of bidders and will make some money for the charity.
 
I went to get my blood draw for the Prometheus test today. Had an appointment at 1:30 p.m. at the main office of my G.I., not the office I usually go to. I arrived and was told to go 2 doors down the hall to the lab. I did that, signed in and sat down. The lab was about 15 minutes late. They got to me and had no idea how to handle this test! They ended up calling her boss, finding out I should have been given a kit for them to use to mail the specimen to Prometheus Labs, in CA. Since I did not have a kit, the lab tech went over to the G.I. office and found out that the Nurse there had been looking for me! All this time I was at the lab office 2 doors down. Anyway I did get my blood draw. But with this test it has been a comedy of errors.

Took over 1 hour of my time to do a simple blood draw.
 
I love fall. Cool mornings and evenings make for great colors on the foliage and I love snuggling with the kitties and a blanket on the couch. I'd much prefer the freshness and flowers of spring though as the thought of six months of cold and snow is so dreary. Cat, you can drive and I'll snuggle the new puppy to keep it safe. 😉MRI was "good" minus the prednisone damage to the bone density. Onto the orthopedist next week along with a flu shot jab. What else would I do with myself without appointments?? Scrubbing walls and cleaning closets tomorrow for the open house this weekend. Guess that will occupy my time nicely. Got a fence to paint if I find myself with some idle hands. :)
 
I share your painRon, literally. I'm just about to take some pain meds as I'm over feeling it
 
My humira result is 6.5 at trough levels. It's less than 7 so not that effective for ibd management.
 
Bone density scan today and results not too good, last time they told me i had the bone density of a 90 year old woman, and now its worse, dont you just love crohns and all its problems, hope everyone is doing ok.
 
Hey Trev, it's a shit of a disease! Great to hear from you, sorry about your boned density.
 
Not sure when I'm next in Naki, it's supposed to be November. But the owners have just sold the business, so I need to see if new owners will continue with my contract or not.
 
It must be pain -time.Mine started last night at eight.Above my waistline (or where it used to be hahaha) and right round my back and sides.I had a restless night but it has eased a bit now.I've never had pain in that area before.No gall bladder,so it's not that.
 
Shanen, you're in Minnesota, right? Are the leaves already changing color there? The leaves here in south central Wisconsin have just started changing on some of the trees. Most trees are still green or mostly green, but there's the occasional tree that's already all red and orange, very pretty in spots but not even close to peak yet. I'm with you on not looking forward to winter, apparently the farmer's almanac is saying we're supposed to have a nice fall but then a colder and snowier winter than usual. Yuck! My arthritis does not like cold and snowy, so it might be a rough few months for me. However, there's also that old wives tale about how you can tell how bad a winter is going to be based on the stripes on a wooly bear caterpillar. I've seen lots of wooly bears while out walking my dog lately, and their stripes seem totally average width to me this year. So that gives me some hope that winter will be pretty standard and not worse than usual.

Sorry to hear a lot of you guys are in pain! I hope relief comes quickly for everyone.
 
Cat-a-Tonic said:
Shanen, you're in Minnesota, right? Are the leaves already changing color there? The leaves here in south central Wisconsin have just started changing on some of the trees. Most trees are still green or mostly green, but there's the occasional tree that's already all red and orange, very pretty in spots but not even close to peak yet. I'm with you on not looking forward to winter, apparently the farmer's almanac is saying we're supposed to have a nice fall but then a colder and snowier winter than usual. Yuck! My arthritis does not like cold and snowy, so it might be a rough few months for me. However, there's also that old wives tale about how you can tell how bad a winter is going to be based on the stripes on a wooly bear caterpillar. I've seen lots of wooly bears while out walking my dog lately, and their stripes seem totally average width to me this year. So that gives me some hope that winter will be pretty standard and not worse than usual.

Sorry to hear a lot of you guys are in pain! I hope relief comes quickly for everyone.
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Noticed recently that the leaves are falling in Virginia.
 
Totally sucks that many of you are not in good health. Hope you all bounce back soon. Rooting for you! xo
 
Hmm, I'm having some LLQ pains this afternoon, so add me to the pain club today. I did cheat on my low-FODMAP diet this morning (I had a bun with cheese baked into it for breakfast - BUT, I've eaten that same thing last week with no ill effects) and I also took cold medicine as I still have a lingering cold. Gluten doesn't seem to be an issue for me, so it's either the cheese or the cold meds (or both?) that are causing this. Oh, and it's also "that time of the month" so that may also be throwing a wrench into the works. Not fun when you don't know what exactly the trigger is.

But I did donate my 3 scarves to the charity auction today so I did my good deed. I was slightly sneaky about it, too. The president of my company is a fan of a certain sports team from a neighboring state. I just happened to have a scarf in my stash with the colors of that team (I swear, total coincidence) so I made sure to enter that scarf as I know she'll bid on that one. There's also a scarf in colors from a local sports team which should draw some interest, and there's a plain blue but very cute infinity scarf that I crocheted (I seriously was considering keeping the blue one for myself, and honestly if it doesn't get a lot of bids I might bid on it myself!). So, all 3 scarves should get bids, even if I'm bidding on one myself, ha ha. :p

Edit: I should clarify that the cold meds were Tylenol-based, so not NSAIDs and theoretically therefore belly-friendly. But sometimes my belly doesn't even like Tylenol, so it could be that.
 
Some leaves are still green but there is a lot of golden yellows and oranges. Sounds like paper rustling as they blow down the street. Take it easy all and hope the pain is manageable.
 
Well, the good news is, I figured out the trigger for my pain. Ugh. I have been keeping a food & symptom journal, so I looked in it to see if I had missed anything food-wise that might have caused this. No, but I did see the trigger, and had a total "duh" moment. I tapered my pred this morning! So clearly my body hates that. I was on 10 mg for the past 5 or 6 days, and today I tried going down to 7.5 mg. Clearly my body didn't like that, that has got to be the answer as I felt this same pain when I tried going from 40 mg down to 30 (that failed hard, I had to go back up to 40 for a bit and then go from 40 to 35, that worked much better tapering by 5 mg than by 10).

So I only tried tapering by 2.5 mg today and failed hard again. Very discouraged, actually sitting here at my desk trying not to cry. I tried calling my GI but was put on hold for ages, so I emailed him instead. I'm going back up to 10 mg, obviously, but not really sure where to go from there. I'm hoping they make pred in 1 mg increments, so maybe I could try going from 10 to 9 to 8, etc. I now have a headache because shifting my pred dosage too much gives me headaches. Ugh, I just want to go home and cry, I might go home from work a couple hours early. Really upset and just ugh.
 
37d25b806464f0829b40fe2d3d0e0053.jpg
. Updated puppy pics
 
Hi folks... hope you are all good. Im ok and my GI says depending on colo results he may order a scan to follow, he says i may have some active disease that im not having any signs of that is possibly causing the weight loss. So we will have to see if anything shows up.
Big hugs to all,love n best wishes too 💞💝 :ghug:
 
fuzzy butterfly said:
Hi folks... hope you are all good. Im ok and my GI says depending on colo results he may order a scan to follow, he says i may have some active disease that im not having any signs of that is possibly causing the weight loss. So we will have to see if anything shows up.
Big hugs to all,love n best wishes too 💞💝 :ghug:
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I hope the best for you , Mandy.
 
Cheers Ron..only one more full day to bowel prep 😯 oh well it has to be done, though why it cant taste better i dont know!!
.last day at work till next thus im off monday anyhow but 3days off for bowel prep is crazy. 1day to start it 1day to have colo n 1day at home incase i still have the runs. Good job i have holidays left i can use so i dont lose money...
☺💕
 
Kirsty how gorgeous those pups are.I'm not an envious person at all,but I make an exception.I know I could go and get another pup tomorrow,but after 50 yrs and 8 dogs (had 3 and 4 at a time ) those days are gone for me.That's my biggest regret of getting old (er).Head has to rule heart now.You'll have soooooo much fun and unconditional love.
 
I could do with that Carol. This flare is wearing me down. I can't sleep due to pain and I've had six tramadol today. Every side hurts. So I'm looking forward to having puppy in the house.
 
fuzzy butterfly said:
Cheers Ron..only one more full day to bowel prep 😯 oh well it has to be done, though why it cant taste better i dont know!!
.last day at work till next thus im off monday anyhow but 3days off for bowel prep is crazy. 1day to start it 1day to have colo n 1day at home incase i still have the runs. Good job i have holidays left i can use so i dont lose money...
☺💕
Click to expand...
Yeah
 
I would just love one of those puppies Kirsty..can't anymore...living in apartment is not optimal for pets especially doggies...sorry you are having such problems still and hope the puppies will be a good distraction...feel better soon
Apples latest update has been driving me crazy....first no internet connection...then no mail
Have now spent nearly two days sorting it and it's working for Internet ...a bit iffy for mail
My desktop and iPod touch have not been affected thank goodness.....it was just the iPad...my constant companion for hospital stays and bad days at home.
With a hospital stay looming up I felt a bit panicky without my iPad.....
I also have a Samsung ...slightly smaller than iPad but works very well...it's new so I have yet to get around all its features...so I do have these devices other than the iPad.
Prefer the iPad....
Anyone else had any problems with the latest update...
Winning.......
 
My I phone just got updated yesterday. But I use my chromebook for internet access. I will check out my phone and let you know.
 
It bugs me that Apple can mess up our systems with their updates etc..and no warnings or explanations.
The house bound need these things to work well....it saves their sanity in bleak moments.
 
DougUte said:
My I phone just got updated yesterday. But I use my chromebook for internet access. I will check out my phone and let you know.
Click to expand...

Trysha

My phone is working fine. Had one app that froze and had to be updated, but everything is fine.
 
That's good to know Doug, thanks. Today I was in bed most of the day. I did make puppy a bed out of two old cushions.
a4914b1cdfb87c7723d5128560b23ea0.jpg
 
The puppy bed looks lovely Kirsty. You are clever. Soon be time for puppy cuddles 🐶.

Love n hugs to all 💕:ghug:
 
Kirsty have you got a cage ? I mean for when he needs to be left while still a baby.Put his bed in it and leave the door open.Put a cover over it and encourage him to use it as his space.After a few days close the door for a little while when you're in the room.It really is worth it.Alfie didn't have one,but they weren't popular then.You can even put it by your bed,so he doesn't get into mischief on the few occasions you actually sleep.

Feel better soon
 
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