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hey Ron , great that your meds have been approved , and I hope they sort out the cancer out asap , sending positive thoughts for you and my prayers
 
Juulez, I loved your heating pad pic. :) and yes, it's frustrating when the losing things, etc. starts, but I can't say much, I do it all the time myself. :frown: The other day in my rush to get things ready, I apparently put an empty can of dog food in the fridge with a foil "lid." I'm starting to wonder if I have dementia myself, eeek!
My appointment today was not the heart monitor, but getting set up with an overnight oxymetry test, the heart monitor gets put on tomorrow, I got discombobulated. Well, at least I showed up at the right time!
Cat, it is one of the well known signs of Alzheimer's and dementia, being obsessed with time and date because it is so hard for these patients to keep track of it. My mom kept asking what day it was from the moment she got up, as usual. My sis packed her meds in a med sorter (wayyyyyyyyyyyyyyy smaller than mine, I'm jealous) along with names and pictures of each med, and mom asked several times if she took her meds then would compare the day of week against her pill sorter. She is trying so hard to hang on to her memory. But she asked this several times, usually about 3-5 minutes apart in the morning until she could really remember. She's definitely aware she has memory problems, but doesn't realize the extent of it. She also keeps telling me she hears better than most people her age (NOT) and won't wear her hearing aids, then gets frustrated with me when she thinks I don't hear something right, but it was her not hearing it right in the first place. At least she didn't wet her pants today, and showered without a problem. Actually, a much smoother day. My mom also has been losing words more, but not making faces yet. She used to value her alone time but has been sticking to me like glue, I think she is afraid to be alone because she gets lost. (Also why she doesn't wander.) We have to leave a light on in the bathroom so she doesn't try to wander in one of the other rooms looking for the bathroom. But a much better day. Yay!
 
Sandy, I didn't know that, about the obsession with time and date being a common symptom of Alzheimer's/dementia. I learn new things from the forum every day! It's odd what symptoms are common, like until my grandma was put into a memory care facility, I didn't know that it was a common delusion that the person thinks they're moving soon. My grandma does this, she thinks she's moving (she's not), so she packs up all her things. She told me once she thought she was being moved to a storage closet and that she'd have to sleep on a cot in there. Um, no, I don't know where she got that idea! But the staff at her facility told us that many of the residents will pack their things regularly because they think they're moving. They said that some people pack and unpack their things every single day.

The bladder incontinence seems to be a common thing with dementia, too. My grandma has had so many issues with urinary incontinence lately, she wets herself regularly even though we make sure she has plenty of pads and diapers.

Yeah, the thing with my grandma making faces is pretty bad. She has some "enemies" in her facility (they don't seem to mind her, but she hates them for seemingly no reason). At our last visit, she was extremely agitated at first, and then she saw her enemies and started making faces at them. When they reasonably said that they weren't doing nor saying anything to her, she yelled, "I'm normal!" The sad part is, she really believes she's normal.

I hope the visit continues to go as well as possible! Take care of yourself.
 
Hey Sandy and Cat. (I have not had the chance to tell Sandy about this yet." This morning I was in the bathroom when my mother-in-law managed to push the door open while I was on the toilet. NICE.
 
Sorry to hear you are having a bad time Juulez and hope you will soon feel a bit better
Sandy...glad your day was better than yesterday...
Doug..I won't tell Sandy what you said......
Carol...thanks for the thought...I can't believe what's happening either.....like someone throwing chunks of ice at me...giving me the shivers....
It will be nice when the sun comes to stay....today was cold,pouring rain like someone was spraying from a fast moving hose.....
The sun will come out...tomorrow...
 
Enjoy the moment folks, we only get the present.....wish I could go back to the past.. independent living. Sure would be nice. Such is life. C'est la vie in French.
 
I've been AWOL in posting lately but certainly observing. Struggling enough to contact my GI. Labs are in the normal range except the B12 I always struggle with. Tested at 190 of 1000. Small wonder I struggle with thoughts. 😠 one meal a day (yesterday was a hot dog) good thing there's tomorrow. I'm sorry (too much to name everyone who needs support) so I'm sending support to all. Here's to a better tomorrow.
 
Shanen said:
I've been AWOL in posting lately but certainly observing. Struggling enough to contact my GI. Labs are in the normal range except the B12 I always struggle with. Tested at 190 of 1000. Small wonder I struggle with thoughts. 😠 one meal a day (yesterday was a hot dog) good thing there's tomorrow. I'm sorry (too much to name everyone who needs support) so I'm sending support to all. Here's to a better tomorrow.
Click to expand...

Thanks bud. I, for one, appreciate the struggle. :hug:
 
Shanen said:
I've been AWOL in posting lately but certainly observing. Struggling enough to contact my GI. Labs are in the normal range except the B12 I always struggle with. Tested at 190 of 1000. Small wonder I struggle with thoughts. 😠 one meal a day (yesterday was a hot dog) good thing there's tomorrow. I'm sorry (too much to name everyone who needs support) so I'm sending support to all. Here's to a better tomorrow.
Click to expand...
Good to see you. Sending support to all.
 
I'm so sorry CMACK! You are a person who is good at lifting others up, I hope that gives you some comfort. Trysha, obviously I was just being hopeful regarding your kidney stones, but obviously I was wrong. Very, very sorry you have time deal with that on top of everything. Julie, you're obviously going thru tough times as are so many. I hope you know you have friends here. Regarding my mom trying to walk in on Doug, she actually told me she did this, she forgot, temporarily, others use the bathroom and was very embarrassed she did this. Cat, my mom thought her move would be a walk in the park but hates it, feels like she was tricked into it somewhat, and I know doesn't think of that as her home now, never will. Doesn't call it her prison, but does have her own place (individual apartment as opposed to care center) and my little sis taking care of her several hours most days. Another thing dementia people can do is hide money in strange places because they think everyone is trying to steal their things. A lot of paranoia involved. Very sad, really. I remember my sis who died from breast cancer that spread to het brain several years ago had money hidden between pipes in her dark, dank basement that was more like a crawl space than a basement. It was lucky it was found before sold and new owners got the cash - quite a bit.
CMACK, what's going on with you that is hard right now? Is it health giving you a hard time if I may ask?
Hugs to all. :ghug:
 
Shanen, just saw you there. Sorry you are going thru so much too. You are right, just about everyone is struggling. Hang in there you lovely soul!
 
Thank you Sand and gang. So many are struggling with deeper issues. They need support lots more. I'm mostly independent, just hit a dark spot I'm trying (and will) get through.
 
Hi Sandy,

Thanks for asking. Looking after mom and dad. It's a bit hard some days. I'm the free maintenance manager.

I do eat quite a bit though, so maybe we are even. :)
 
Having my mom around just a couple days, I understand, even if your parents are perfectly normal mentally. I hope you know your have friends here too.
 
Hi all..sending support,love,hugs and best wishes to everyone . I really hope things improve for you all very soon. :ghug: 💖💕💞💝
 
Hi I've been in the background. Had remicade on Tuesday. Wednesday was recovering. Now I have an acute respiratory infection got antibiotics and steroids. So feeling a bit poorly.
 
Hi Kirsty,sorry to hear that you're sick sweetheart.I hope you're snuggled up in bed and asleep.Take care.
 
Cmack, sending you a big hug. I hope today is a better day.

Sandy, yes, my grandma hides money too and has been paranoid for years about people stealing from her! She used to insist that my aunt stole money from my grandpa (he'd just roll his eyes when she said this so he clearly didn't believe it, and she's since made up with my aunt). She also insisted that a maintenance worker at their condo would come in and steal money and things. My grandpa also said that was untrue. Fortunately, now she's in a facility and my uncle has financial power of attorney over her, so she is given a small cash allowance by him and has her checkbook, but she no longer has larger amounts of money that she's paranoid about. Yet she's still worried about things being stolen, so she'll still hide things that have any value at all (the TV remote is usually hidden in her purse).

Ron, that's too bad. My grandma doesn't recognize her own clothes, she thinks that they belong to a lady who lived in her room previously. She'll wear them, but she insists that they aren't hers. They are hers though so it's perplexing that she doesn't understand that.

CYY, I'm sorry to hear it, I hope you feel better soon. I'm not feeling well myself, I've got a really bad cold. So I'm joining you in feeling yucky today.
 
Chiming in here while sitting in a class to qualify me to teach it (Fire service related training)...the instructor, while very knowledgeable, goes on...and on.....and on....and on.....supposed to go through a 1 hour class in about 30 minutes as we are all familiar with the basic material and topics.....he is on slide 11 of 59...started class 15 minutes ao at least!!!!! sigh.....going to be a loooooong morning...he has 3 more courses to go over!
 
I hope you're done now Lisa! We used to have to sit thru various yearly classes and training to requalify for doing foster care each year, including CPR and first aid, and behavior classes There is nothing worse than sitting thru a class you know backwards and forwards year after year. The kind of instructor you described (slow) makes me want to go slap him/her to get them going. Of course, you never can. Hope it was an o.k. class in the end.
 
SandyUte said:
I hope you're done now Lisa! We used to have to sit thru various yearly classes and training to requalify for doing foster care each year, including CPR and first aid, and behavior classes There is nothing worse than sitting thru a class you know backwards and forwards year after year. The kind of instructor you described (slow) makes me want to go slap him/her to get them going. Of course, you never can. Hope it was an o.k. class in the end.
Click to expand...

First class is over...on to the second.....which should have been done 15 minutes ago and we are on slide 6 of 89.....:drink: is what I want to do right now hahaha.....

we are supposed to go through 4 - 1 hour classes this morning.....haha good luck...although a lynching may be in order soon - we are all co-workers in this class, with a few supervisors.....I've already made comments about leaving my duct tape at home darn it!

The topics are good ones, just when you are doing an instructor authorization you don't actually teach the course, you go over the major points as we already know the basics of this stuff!
 
Hey Carol, I am trying my best. My bedroom is nice and warm. Using the heater for the first tune tonight.
 
Aura said:
Hey Carol, I am trying my best. My bedroom is nice and warm. Using the heater for the first tune tonight.
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Do you want me to pop over and take Jammer for a run on the beach ?
Oh.if only I could.I see you're awake during the night again.Since I posted earlier we've been on an eight mile bike ride,with stops at the lake for coffee,and again at what's known as The Quarry,loads of ducks and geese and birds song.Just perfect.I feel blessed.Or I did until hubby's front tyre burst with a hell of a bang.If there'd been people around,they would have hit the deck,that's for sure.Un-mendable, so we had to walk the last few miles home.
Well,I could have left him and cycled home,but he's my mechanic and my darling,so I walked with him.And I didn't whinge once.

How're the hens doing K.,?.....Feel better soon.I'm going to Tesco tomorrow if you want shopping.:ghug:
 
Glad you are enjoying better weather and getting outdoors.

The hens have stopped laying now. Not enough daylight hours to get eggs.

I'll try and get back to sleep. Body aches and coughing hurts.
 
Feel better soon Kirsty. Big hugs n love 💕💕💕

Cat hope you get rid of that cold soon. Big hugs n love to you too 💕💕

Keep on keeping on every one its the only way...☺☺💞💕💖💝
 
Carol if your going tesco would mind picking me a few bits up too please. I need bread milk butter sugar and oh ye loo rolls :wink:
 
Sandy....sorry to hear of the trials you are currently experiencing with your mom and hope things improve for you soon.
I am a lot stronger than I used to be and feel more able to tolerate the slings and arrows of outrageous fortune....just have a different road to travel at the moment but not nearly so hard as some of you on this forum.
cmac how are you and what's happening....can't have one of our brightest sparks fading....
sending you some energy..inspiration and lots of prayers....life is not an easy proposition at times.
Juulez hope you are feeling a wee bit better......you too Carol.
Shanen sorry to hear you are also in the under the weather clan and hope you can soon climb back out of it.
Kirsty and Cat....feel better soon.
It must be the weather causing all this. But soon the April showers will bring forth fragrant May flowers and gentle sunshine to cheer us all.
My missing parcel from the UK finally appeared in my mailbox today.....hooray!
Winning....
 
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SandyUte said:
Shanen, just saw you there. Sorry you are going thru so much too. You are right, just about everyone is struggling. Hang in there you lovely soul!
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Brain fog and fatigue are daily battles. I manage until the weekend and then Saturday is for rest. No choice. Sunday is for laundry, cleaning etc. Feeling terribly unproductive but marching on. Oh the joys of Crohn's.
 
Sweet are the uses of adversity
Which like the toad ugly and venomous
Wears,yet, a precious jewel in his head.
And this our life exempt from public haunt
Finds tongues in trees
Books in the running brooks
Sermons in stones
And good in everything.
I would not change it.
Shakespeare....As You Like It.
 
Wow...lots going on. Hello to everyone,even Carol. As for me since I last checked in,been hospitalized twice for obstructions. Stricturing around the resection site. Went without remicade due to insurance for 14 weeks. Fistulas drainng extra heavy and stinky. Not to mention all the non crohn's stuff...
 
Hi dave13,

I'm sorry to hear of all the trouble bud. I hope you can heal up and feel a little better each day. I know the feeling of being sick like that. You can talk any time, I'll listen.


Keep in touch,

cmack
 
Well,all things considered,I feel I am doing well. The shaming thing of honesty is I have to be strict with my diet. I have swayed a bit recently. I know we are all different and the SCD works for me. It is most prominent with my fistulas. The better I adhere to the SCD,the less drainage as well as stink. I also have fewer blockages and trips to the ER. Hmmm....

And yes,the non crohn's stuff. Good thing stress has no affect on us....:ybatty:
 
Have Dave great to hear from you, sorry for the crap you going through. Day by day mate
 
dave13 said:
Wow...lots going on. Hello to everyone,even Carol. As for me since I last checked in,been hospitalized twice for obstructions. Stricturing around the resection site. Went without remicade due to insurance for 14 weeks. Fistulas drainng extra heavy and stinky. Not to mention all the non crohn's stuff...
Click to expand...

Because you've been sick I will overlook your remark,re: my good self....THIS TIME !!! :ymad:......... Regerdless,I hope you feel better soon though.:ghug:
 
I wondered what was going on with you Dave.
Yesterday was not my favorite day, but today is a new day. And Mandy, I'd be happy to pick up your little list of items if it weren't for that little pond between us. Hope you haven't run out of toilet paper aka loo rolls yet.
 
I hope everybody has a nice weekend. If I'm not around, it means I'm resting and trying to kick this nasty cold.
 
Cmack hope you r doin a bit better. I don't know what's bothering you but we are here for you gentle hug and thank you everyone for the wonderful support and thoughts julie
 
Hi (on LOW, tee hee) to everyone from here too. Might not be around much for next few days as have lot to do including going niece's wedding and reception, making sure futon gets pulled up from downstairs again (long story again), but we get one night without mom around (another long story). Hope you all have a good weekend too.
 
I fixed an old junk weed eater today. All it needed was a little plastic welding and a carburetor tune up. Nice score beside the trash bin. :) I love when I can fix something that others call junk.
 
Hi all...hope those feeling ropey feel better very soon,hugs n love 💕💕

Sandy try not to over tire yourself hun but enjoy the wedding ☺💝

Love n best wishes to every one :ghug: 💞
 
Hi peeps, I'm back after taking some folic acid this morning :D

Sorry to hear about your hospitalisations, Dave. I hope you get well soon!

Hey Cat, I hope your cold has gotten better :hug:

As for everyone else who is not doing so well, I hope that tomorrow will be a better day for you all :ghug:

Stay strong! ᕙ(⇀‸↼‶)ᕗ
 
Thanks for being your kind and happy self CYY. Under the circumstances you've got every right to be a cry baby,but your the opposite to that.You're an inspiration to us all.
 
Cmack, that's great that you were able to fix something that would have been junk otherwise! I love doing stuff like that (I love repurposing old clothes, either tailoring them to fit me and be cuter, or making something new out of them, like making mittens out of an old sweater). And since it's earth day today, that is awesome and timely! Good job, buddy!

Sandy, I'm stealing your win. Your move! ;)
 
Cat-a-Tonic said:
Cmack, that's great that you were able to fix something that would have been junk otherwise! I love doing stuff like that (I love repurposing old clothes, either tailoring them to fit me and be cuter, or making something new out of them, like making mittens out of an old sweater). And since it's earth day today, that is awesome and timely! Good job, buddy!

Sandy, I'm stealing your win. Your move! ;)
Click to expand...

I actually got two weed eaters at the same time. I got the nicest one running and I am going to use the other one to make a motorized scooter, I have wanted one for ages. I agree it is fun to repurpose/recycle or fix things. I'm just a big kid. :)
 
Happiness is the meaning and purpose of life,,the whole aim and end of human existence
Aristotle

Glad to hear you are feeling well right now...goes for me also....enjoy it while it lasts ...it can be fleeting...
 
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