My painful Story

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Good luck for Saturday let us know how you get on. Shocked that they doing it on a Saturday like. Glad you've fixed your truck but be careful and take it easy
 
Woke up feeling really raw on my left side.Today is the DAY. I know my truck,ol faithful will make the trip there and back.
MRI and then I will go back through the ER to see a doctor in Royal Alec.
My brother went to a Pow Wow, and his dog had pups. So I am babysitting the mother with eight lil puppies. They are soo cute. I have their older brothers and sister outside.
One of them will be mine, the tan male...think I will name him Royal Alec lol.
Two of em ended up with funny looking tails, like pigs tails lol. They curl right up, think the cord wrapped round their tails. We call one Mrs. Piggy and the other is Babe, he is gonna be a Pig in the city today.:)
 
Last edited:
I made it, the MRI. That was kinda hard on me. Think I was blacking out(losing consciousness) and freaking out a lil bit. It is like I went to sleep for a minute and woke up wondering where I was. I wanted to scream and go running out. But I toughed it out. Did na want to trip to be for nothing.
Can na believe I had a hard time lying down in that loud tube for 10 minutes.
But it was soo packed in the ER, I didn't get to see a doctor afterwards. I waited for a few hours before I wanted to go home. I have a appt on monday,but the results will na be in for at least a week.
I was soo proud of my truck yesterday. The feeling was indescribable. The feeling of knowing that I brought my truck back to life and she runs like a dream. My ol faithful...love dat truck. Drove by K days, and we stopped for a cool drink(Non alcoholic of course) downtown. Then my friend Jay called and said my ps3 was done! The children are soo happy to play their custom ps3.
Spendin a few hours with the pups before my brother gets back from campin. Damn... I am gonna miss em...I am na gonna cry lol.
It was a good weekend.
 
I'm so happy you finally got your MRI. Now lets pray it shows something.
Sorry you have to part with the pups. At least you can keep one! Glad the kiddies got their PS3 back. They just love those games, don't they? Betcha Daddy does too!:)
 
I do love the games...But I realized something. Doing what I do is A LOT of work.
Applying updates, spoofers,changing settings, modding games, data transfers...etc.
Keeping myself busy is easier...and when I am busy. I do na dwell on pain and negative thoughts. No matter how I feel...I am always on the bright side.
Miss the puppies...they grew soo much in there time ere. That too was a lot of work...but that was another job I loved doing.:)
Doctors appt in a couple hours.
 
nativesith said:
I do love the games...But I realized something. Doing what I do is A LOT of work.
Applying updates, spoofers,changing settings, modding games, data transfers...etc.
Keeping myself busy is easier...and when I am busy. I do na dwell on pain and negative thoughts. No matter how I feel...I am always on the bright side.
Miss the puppies...they grew soo much in there time ere. That too was a lot of work...but that was another job I loved doing.:)
Doctors appt in a couple hours.
Click to expand...

Keep us posted Mikwan!
 
Mikwan

Have you tried ensure or boost? It does not contain any milk or milk products so it shouldn't bother you lactose wise. The stuff is the bomb. I know when my Crohn's acts up it helps to keep your strength up without adding to bowl issues. The biggest thing I've figured out is that YOU are responsible for your own health. Don't be content with leaving things in their hands. You might get sick of telling everyone your history over and over again but stay persistent. Our system is messed up right now and access to a physician is very difficult. I think your referral to a GI Specialist is definitely a step in the right direction. There use to be a very good one in Sylvan Lake but I cant recall his name. They are extremely hard to get into see with very long booking wait times. You will find a good doctor just stick with it.

Alberta has more then its fair share of rednecks I can feel your pain there. Having grown up in a small town (non Caucasian) its something I use to see a lot of (racism) I think most people know its not something that is tolerated but we all know it still exists.

I've lived with Crohn's for as long as I can remember but wasn't diagnosed until much later in my life. I hope you find some help soon, it can be very unpleasant at times. As a coder I know you have a high tolerant for pain and suffering :)
 
Hello harbinger,
Welcome to the forum. I just wanted to clarify that as far as I am aware Boost and Ensure both contain Whey Protein which is a milk product, so they are not dairy or milk-free. Some of them are lactose-free or low lactose, which means that they do not contain a particular milk sugar. But they still contain the dairy/milk protein, casein, which many people still react to.
 
Yesterday...still trying to wrap my head round it all.
I sat there waiting for my doctor. I could hear him talking to this lady. He was completely nice to her even going as far as giving her his number if any problems arose.
Then he arrived in the room I was patiently waiting in. He listened while I gave him and showed him my symptoms. Then he said something that shocked and surprised me.
I do not know what the FUCK is wrong with you. We did every test imaginable. I do not know where to go from here. He went on about Dr Lim and all the tests saying I was too young to be feeling like this...I interrupted him. How the hell do think I feel? I am the one who has to deal with this EVERYDAY.
I told em look I know this is frustrating. But please do not get mad at me. I feel like all doctors get mad at me when they can not figure out my problem. I show them their limitations...and they hate me for it.
Damn it. Why do na I get a phone number?
I did set up and internal specialist appt(Dr. O), and I changed my blood pressure medication with the strongest ointment ever made.
Trying not to let this get me down...it is hard. I hate doctors!
Boost/Ensure I did like em...but I have to give that up too. I was beginning to like the dairy products. I do na know what to eat anymore. Everything is being taken off my table.
 
Last edited:
So sorry Wikman! Seems like everyone is having tough times with their Dr.s. I hope you can find someone who can help you now. I will keep you in my thoughts and prayers.:hug:
 
Really did na expect any thing like dat...IDK. But the neurologist office phoned and said he needs to see me on Aug 13. Think he found something.
 
Hi Mikwan, been reading your thread. Sorry you're going through so much, hope you get an answer, living in pain and discomfort isn't the way. Good luck and hugs!
 
nativesith said:
Really did na expect any thing like dat...IDK. But the neurologist office phoned and said he needs to see me on Aug 13. Think he found something.
Click to expand...

Sometimes they just like to go over the results in person....l hope that's the case..:ghug:
 
Just sending my support and thoughts your way and really hope they did find something so you at least have some answers as to why you are feeling so horrble! May God be with you.:hug:
 
For days I ave been trying to empty my stomach with laxative...finally got fed up and jus had a milkshake. EVERYTHING came out. But another dilemma. Do I ingest milk and scratch myself. Or do I use it as a laxative? Seems like the ointment is working...I can feel it burn the sores. But they are almost gone. Think I am allergic to dairy:(.
Seems like the reserves are going crazy. Couple weeks ago one of my cousins went out(Something he never did in ten years)...he was stabbed and he died. Last night...my uncle and his sons were stopped by the Rcmp. Trying to understand why they killed my cousin. Shot em... WHY! They shot and killed(3 shots in the chest?!)my youngest cousin in front of his father.
I really can not understand why...they could na ave shot em in the arms or legs? If he was white...he would still be alive. Now we must fear for our lives when getting pulled over by the Rcmp?
 
Hi Mikwan,
I am so sorry for what is happening there with the shootings etc... We live in dangerous times and you have to beware of the police now too. They have gotten a lot more aggressive than they used to be. I was thinking about your rash and now I wonder if maybe you have Shingles???Have you been looked at for that? I would avoid the dairy if it causes you these problems. You don't want to make your inflammation worse inside. Take Miralax if you need a laxative. It works great. God bless and sorry for your loss again!:(:(:(
 
Hi glad you got your appt ok and hopefully they'll find out the cause soon. Keep us posted I sorry to hear about the shootings and your cousin:( I know feeling just found two people died a school friend took her own life by hanging herself :( still shocked and can't believe it and my dad's auntie Jean died last month but only found out today so pretty annoyed we never got told. Apparently someone told one the lads to pass message on to us but they never did. Thinking of you big hugs :(
 
Rcmp killed my cousin and shot and wounded his oldest brother too. Thank Creator he is in stable condition. Over a routine traffic stop?!
I know a excellent Lawyer who specializes in native criminal cases, especially ones like this.
My family will get justice with his help.
 
My stomach is hurtin...but today I feel a different pain. My family and I do na know how to deal with this.
http://www.edmontonsun.com/2013/08/...cer-shoot-two-men-kill-one-near-ma-me-o-beach

Would ve been different if he was killed by someone else or he died of natural causes. He died for being Native. My uncle taught me to fear RCMP...if we saw em we were told to RUN the other way. That is what all native males are taught right from when they can walk. That is why^^^^. I wish we lived in a fairy tale word...but we do na. I hate it:( Yesterday...I had to go into town for a few things we needed. When I got to the hiway I broke down. I thought of my cousin and the blood on the road. RCMP ere to serve n protect....WHO? Wadda joke. Must bury my cousin in three days(Buried 3 other family members in the past month?! When will it END!)....wake starts today. In a community that is tore up....who will police our police? This is the Wild West...I know that now. Gotta get a gun.:yfrown:
 
Yes, not a bad idea Mikwam! You have a right to defend yourself. You are guilty of anything other than that! Too bad the Gov't is buying all the ammo.
Gee, I wonder why?
 
buying and carrying a gun will only give a cop who confronts you a reason to shoot you. OR get you put away for killing a cop. The government is not buying all the ammo, US citizens are doing that and hoarding it and trying to sell it on the internet for more money. And Mikwam lives in Canada, not the U.S. Canada already has gun control laws in place.
 
Past few days were the hardest days of my life. I went to the wake for two nights.
No one in my family recognized me. I had to tell em who I was, and they all do not use my english name. They all know me as Mikwan some even shorten it...like a grunt lol. Our nicknames sound soo gutteral.lol. Everyone freaked out and demanded to know what had happened. I had to retell my story again and again...reliving it all over n over. Now my stomach feels like I have a stab wound. It is unbearable when I cough or some pressure is put on it. But it will na get the best of me.
I am still kickin lol.
Then hearin the story for myself.
I understand some people's stand against guns...but if you are na native. Then you have no idea what THIS is like. I have been threatened and I seen em beat my family in front of my eyes even as a child....all for nothing. All of my family that night on the road were UNARMED...that cop could na use his taser...or at the very least fire a warning shot?
My gun is really na for killing people...it is for providing for my HUGE family, Elders and keepin my rights alive...and the rights of my sons. No one can tell us how we can live. We will hunt like my father, grandfather, and great grandfathers did.
I want to become like one with my gun...and work my way up to a Bow.
Last night of the wake is tonight...followed by the funeral on Friday.
I am having a hard time letting dis go...letting my cousin go.
Still can na believe what happened to him. My cousin Lance...he was jus like my lil brother. Damn it!
I did get a deer on the way back...my hunting has begun.
 
Buried my 30 year old cousin Lance on Friday. That was the hardest death in my family that we have dealt with. No one knows how to deal with a loss that was brought on by those that are suppose to serve and protect us. Really seems backwards. Being on Alberta hiways everyday...honestly scares me and my family.
During that whole time my stomach was BAD. I could barely eat and it felt like a throbbing stab wound. Now I am well rested and feeling better. I can still feel pain...but it does na feel like a stabbing pain anymore.
Told my whole family I am sick...but it will NEVER get the best of me.
Hai hai.
Mikwan.:)
 
I became soo angry since that time...angry at the world...at rcmp and now at my brother. My real family informed me of what he has been doing . Badmouthing me...trying to make it seem like he is a computer tech. He is doing nothing but working against me. How could he do that?! Then he comes here and acts all two faced with me. I told em how hard all of this year has been on me. Basically telling my family I am a drug addict. Creator help me na to hate my brother...I wanna do bad things to em.
Ever since that incident my eyes have opened...and I hate what I am seeing.:(
WHY! How the hell could he do that to me! I never treated him like that. I only wanted the best for him. Fighting a war within myself everyday and now this. Can na let the negativity win. Seems like my worst enemy is my brother.
 
nativesith said:
I became soo angry since that time...angry at the world...at rcmp and now at my brother. My real family informed me of what he has been doing . Badmouthing me...trying to make it seem like he is a computer tech. He is doing nothing but working against me. How could he do that?! Then he comes here and acts all two faced with me. I told em how hard all of this year has been on me. Basically telling my family I am a drug addict. Creator help me na to hate my brother...I wanna do bad things to em.
Ever since that incident my eyes have opened...and I hate what I am seeing.:(
WHY! How the hell could he do that to me! I never treated him like that. I only wanted the best for him. Fighting a war within myself everyday and now this. Can na let the negativity win. Seems like my worst enemy is my brother.
Click to expand...

People will always let you down~ creator never will. Cling to Him right now and ask Him to take away your anger and pain in His time. :hug:So sorry you are suffering so!:(
 
Learned long ago...I can na control others.
My brother was always a disappointment. I can na let em bring me down anymore.
I ave a appt tomorrow with the neurologist. I am going to concentrate on that.
After weeks of pinchin pennies, grinding rivots, and twisting wrenches...my truck is almost complete.:) That makes me happy. Soo much rust damage on the driver side that my uncle and I jus finished repairing. Feel soo sore...but I also feel proud of a job well done. Jus a few minor things now.
I can make it safely to Edmonton tomorrow. Creator has granted me what I needed...hai hai.
 
That's right, don't lose your joy! Keep thinking postive thoughts and trust your Creator and He will see you through. Let me know how the Dr.s goes tomorrow.:)
 
Limped my way in to that medical centre to be told what I ear too often. Nothing was found. He talked about my back saying he could na see any problems. I thought at that very moment...dear lord my back is killing me. He did notice my limp and how my skin looked. He said the body reacts badly when one loses weight in a short amount of time. I replied I was well aware of that, but why did I lose that weight. What is happening to me? Told em how the pain felt with it worsening when I cough. In the end it was all the same. A major letdown...
I ave become too used to this...I expect it. I did drop by Dr. Warner's office where I ave a appt tomorrow.
Also seen two rear end collision happen by my truck. Glass and metal flew round. Even spilling some in my truck box. Scared me...seen two fords die on the hiway...a mustang(A Pony died!) and a explorer. Seems like my F150 is blessed by the Creator.
Doctors...I am na better because of any doctor. I am better by the choices I made with help from you all. I feel a stabbing like pain...constantly...but it will na keep me down. I am going to tell Warner that my job hunt begins...and I need her help getting through it. Really need something for the pain and something to help me sleep. when I say stab wound I mean STAB WOUND. When I lie down it is hard getting comfortable...used to like sleeping on my side. Now I have to fight myself from doing that.
I seen a couple of friends from my ol college...they could na recognize me and when they did they could na believe THIS is still going on unanswered.
 
No ...and I jus remember asking Warner to do that. Thanks for reminding me. I even remember something about a scope to tie up hemorrhoids. Also I feel like the stabbing pain could be inflammation...has to be.
 
Make sure you ask to do the dummy pill camera first as l've read about a few people who have had the real camera stuck.
 
Sorry you never got the answers you need :( seems like they all the same and good luck for tomoz keep us posted. They need to do something before something bad happens. Can't believe how long you have suffered yet they can't find anything wrong. It's a joke can't believe how these people got they jobs. They not doctors!!!
 
Really wish any doctor I meet could do something. They are all afraid of me...since they can na help me. They avoid me, ridicule me, judge me...
I was half way to Edmonton when I received a call from the doctors office canceling my appt. This make four times she has done his to me.
I felt relief since I was on the way...then I was crushed. IDK what to do anymore...I am doing my part. Almost out of all my medication. I do na want to go to the ER! Jus pawned my tools for nothing. They will torture me there. I am soo alone is dis...there is no way out. None that I can see. Wish this pain would go away.
Have to be strong now ...more than EVER.
 
I really wished I had some solid answers for you Mikwan! I can't imagine how you must feel right now. But please know we all care about you and want the best outcome for you. Try to keep moving on and forward and keep trying to get help. Maybe somewhere else now? Try another clinic a little further away?
You just can't give up now. We all support you!:ghug: :)
 
I feel Bad. I feel like I am losing a battle for my life .... makes me feel like I have nothing to lose. I do na care about any doctor. They do not want to see me...I feel the same. Sick of them making me sicker...that is all they did. Adalat XL, Diovan,Naproxen, Diary Products, Ibuprofen...it made me feel worse.
Power of the human mind is wondrous...I have become soo strong. I am able to take Mind racking pain day to day.
But how long can I do that for? I eat very lil now like a bird...it is na because I do na want to. Western medicine has failed me...they gave up on ME. I am going to a Chinese Herbalist next. I know that will produce positive results.
This is what happened to my uncle and every other Indian that has a stomach issue. We beg n cry for help...only to be told...THIS IS YOUR LIFE NOW...DEAL WITH IT INDIAN. I can na change to world...wish I could.
Fixing a laptop I almost made enough to get my tools back. I need those...truck is running great. At the very least I can count on her.:)
Love my ol ford with EVERYTHING I got. Wish I could buy the tires I seen yesterday.
 
Last edited:
I really hope the chinese meds work for you. Anyone there have access to cannabis oil? Made from cannabis?? It is very powerful and takes pain away and has been know to cure crohns. Please look it up online
dixiebotanicals.com/products/...il-supplement/
 
Last edited:
I will try that. IDK what it is now...maybe taking all the native medicine is really working.
But I feel almost NORMAL today. Used the bathroom and that went normal. Even my limp has settled down. I try na to ingest any dairy but..it is hard. Especially when that seems to be the only thing that empty s my stomach.
Feels weird feeling like dis...been soo long. I do na want this feeling to stop.
 
Thank the Creator! I wake up with a slight pain in my back....but my stomach seems to be all right. My appetite is BACK! As long as I stay away from dairy and gluten I seem to be doing better. When I put pressure on my stomach...then I feel it.
But I feel better than I did in a long time.:)
 
Great news :) keep taking the native medicine will it cure you tho?! Sorry probs a silly question but I don't know anything about it
 
I know now it was all these Blood pressure medications. Ever since I was Dxed with HBP ...all medications made me feel like crap. Now I think I am working em out of my system.
I would wake and take that bloody thing and it all went downhill from there. I been through soo many medications for my blood pressure,,,this is like the 6th one?!
They gave me constipation/diarrhea,Pain in stomach,Swollen joints,Hot/cold feelings,rashes,decreased appetite,malaze,etc.
How could any doctor give medication like that and na realize what it did to me?
I could ve died in January...that is when it became REALLY bad.
This took me outta the game for YEARS. I had to figure it out?!
I thought the doctors were helping me....turns out since 2004(When I was diagnosed with High Blood Pressure)I have been getting poisoned because of it.
I remember saying MANY times"I do na wanna take these...they make me feel like crap" Then a doctor would always say..."You will die if you do not take these everyday."
Feel soo angry and mistreated. Not just for like a few months...but a lifetime of this kind of treatment. They treat me like I am a monster.:(
I do na trust ANY doctor...and I know I never will again.
Bloody quacks...almost killed me.
 
Last edited:
Mikwan, you must be allergic to them because I am on 2 different ones and they don't bother me. If I don't take them my B/P is too high and that can cause a stroke. Please keep an eye on yours and try taking some natural alternatives for high blood pressure like Garlique and there are others supposed to help. Blood pressure too high can cause many problems. Please take care of yourself. There are other meds too for B/P. Maybe try a different kind?? :) I'm just concerned about you not taking anything! Hugs ! T:)
 
Do you take probiotics? when you take all the meds it kills all the good bacteria and you need that probiotic. I just figured this problem to be mine. Just a thought. Also want to say sorry about your cuz. My bro a t the age of 15 got beat by cops he had to have staples on his head they thought he was a grown man cuz he's tall the reason is my brother ran. He's half indian. My mom always thought this was the reason.
 
maria said:
Do you take probiotics? when you take all the meds it kills all the good bacteria and you need that probiotic. I just figured this problem to be mine. Just a thought. Also want to say sorry about your cuz. My bro a t the age of 15 got beat by cops he had to have staples on his head they thought he was a grown man cuz he's tall the reason is my brother ran. He's half indian. My mom always thought this was the reason.
Click to expand...

His meds were mostly for Blood pressure not antibiotics.
 
IDK what happened everything was goin good til last night I had some chicken Mashed potatoes. My uncle convinced my Ma to go out and pick some berries one last time. They came home with a lot of saskatoons and crab apples. I had a apple...then it got bad again...pressure n pain. Woke up needing to use the bathroom, URGENTLY. I woke me up at 5oo am...could na go back to sleep.
I was on Dairy products with Proboitics before...before I found out I am allergic to dairy.
I did harvest and consume my garden a few days ago...that was my breakfast for a while. I would wake up go in my front yard(Where one could smell the sweetgrass growing all round me)and I would eat like a big ol bear.
Cops n Indians...jus as bad in Bc as in Alberta...I know all aboot that.
I love the land(especially in Bc)...idk aboot the people lol.
I love you all, thanks for being ere for me...can na thank you all enough. Brings a tear to my eye.
I know I will get through this. But I honestly feel like the BP is Poison...I feel like my body is cleaning itself out. I feel better now I do not take Diovan,norvasc, crestor,Adalat XL...there was more I can na remember. Felt every side effect of the meds.
Every doctor would give em to me and then be bewildered as to what is happening to me...can they na put two n two together? Look at the pill they jus prescribed and then look at my symptoms...all the side effects?! Did the job of a doctor for too long now.
 
Keep on fighting we are here for you your stronger than you think can't you get your blood pressure tablets changed? Keep an eye on it and hope you feel better soon. Continue with the native medicine as well
 
I want to...but it is like everything is making it worse. Now I remember I had taken some of the laxative yesterday. It worked...but now I feel pretty bad. Stomach is empty...feel the pain in my left again.Throbbin/stabbing...Why is all my meds doing this to me.
Ran out of painkillers...Warner canceled..she will na be in til next month.
Really have to stay strong now. That was the last words I heard from the doctor...take the BP meds and the laxatives. They are really starting to scare me. Feeling hot with cold feet.Pain in side :(.
 
nativesith said:
IDK what happened everything was goin good til last night I had some chicken Mashed potatoes. My uncle convinced my Ma to go out and pick some berries one last time. They came home with a lot of saskatoons and crab apples. I had a apple...then it got bad again...pressure n pain. Woke up needing to use the bathroom, URGENTLY. I woke me up at 5oo am...could na go back to sleep.
I was on Dairy products with Proboitics before...before I found out I am allergic to dairy.
I did harvest and consume my garden a few days ago...that was my breakfast for a while. I would wake up go in my front yard(Where one could smell the sweetgrass growing all round me)and I would eat like a big ol bear.
Cops n Indians...jus as bad in Bc as in Alberta...I know all aboot that.
I love the land(especially in Bc)...idk aboot the people lol.
I love you all, thanks for being ere for me...can na thank you all enough. Brings a tear to my eye.
I know I will get through this. But I honestly feel like the BP is Poison...I feel like my body is cleaning itself out. I feel better now I do not take Diovan,norvasc, crestor,Adalat XL...there was more I can na remember. Felt every side effect of the meds.
Every doctor would give em to me and then be bewildered as to what is happening to me...can they na put two n two together? Look at the pill they jus prescribed and then look at my symptoms...all the side effects?! Did the job of a doctor for too long now.
Click to expand...

Apples are bad for you with crohns. Especially if they aren't peeled. But crab apples are the worst. thjey gave me diarrhea all the time when I was a kid. You really have to watch not eating fruit till you are in remission. I can eat watermellon and cantalope. But other than that, just bananas too.Be very careful not to eat anything spicy and red sauce from tomatoes. they can really cause some problems too. Maybe you should try the SCD diet and see if it works for you. Just Google it and it tells you what you can and cannot eat.:)
 
nativesith said:
I want to...but it is like everything is making it worse. Now I remember I had taken some of the laxative yesterday. It worked...but now I feel pretty bad. Stomach is empty...feel the pain in my left again.Throbbin/stabbing...Why is all my meds doing this to me.
Ran out of painkillers...Warner canceled..she will na be in til next month.
Really have to stay strong now. That was the last words I heard from the doctor...take the BP meds and the laxatives. They are really starting to scare me. Feeling hot with cold feet.Pain in side :(.
Click to expand...

I wonder too if taking an antidepressant would help you with your pain. It did me immensely. I am on Citraprolam and it is very inexpensive and has me feeling better in many ways. i know you don't like modern medicine, but give it a shot and see how much better you might feel. Don't read the side affects. Wait and see if you notice any.
 
Stay strong sending hugs and positive vibes your way. If only you could get an appointment sooner next month is ages away when your not well :( sorry I can't help any more but if this next appt doesn't go how you want or you don't get treated I would seriously go further a field for treatment coz you've suffered long enough and it won't get better on its own. Big hugs to you. Yeah try antidepressants see whether they help
 
How do you like dem apples?
That hurt soo much...I can still feel it. It messed me up all day.
IDK aboot antidepressants? I feel like more pills adds fuel to the fire. I really look up side effects now. Seems like my body is really sensitive now. To hot/cold, to food. My whole life I have felt to sensitive...like I could cry at any moment even now.
 
nativesith said:
How do you like dem apples?
That hurt soo much...I can still feel it. It messed me up all day.
IDK aboot antidepressants? I feel like more pills adds fuel to the fire. I really look up side effects now. Seems like my body is really sensitive now. To hot/cold, to food. My whole life I have felt to sensitive...like I could cry at any moment even now.
Click to expand...

Then believe me, antidepressants would help. That is how I always was too!
Side affects even if one in a million people have one, they have to list it. Even though it most likely will not affect you! Seriously, don't read them till you see how they affect you. Unless of course you break out in hives or something like that!!!:)
 
I will try to ask for em...but I do na know how long it will be before I go in...my ma n uncle were trying to make me go in earlier. But I told em today is usually my busiest day for computers/laptops. My ma is worried aboot me....my uncle said I am the strongest man in our family.
Ma even seen my brother while she went to town yesterday. She asked em why he would say all those things aboot me. He could na say anything but listen. She told em I am sick...yet I still do EVERYTHING for this family. I take care of my family, my sisters family and my Ma. My brother can na even care for his own daughter, he even kept that from us til she was 5 years old.
My ma told em I loved him always...and he does that to me.
She told em to stop his badmouthing and to stop making me do free work for him.
Gotta try to make money today ...so many bills overdue. Collection agency is on me.
Love my Ma...she went to the reserve doctor. Many there remembered and asked how I was doing. She told em I was better...but na because of any doctor. She told everyone their that the high blood pressure made it all worse. They poisoned me...lost over 100lbs...still is happening. IDK how to stop the loss. When I eat more it gets all worse. But now...I feel since I changed the meds that I can deal with it better. But EVERYONE was shocked and mad...friends and strangers. Now everyone round ere will do their homework before taking what is prescribed.
 
Last edited:
I wish you nothing but the best Wikmna but I donot see how Blood pressure meds can make you lose weight. I don't know anyone that has happened to. Crohns can make you lose weight, it can make you very sick and in pain and get rashes. I think you may be blaming the wrong thing for youer symptoms. I take many meds and they don't do anything bad to me.
 
Have they reassessed your BP meds since the weight loss? It's very possible you don't need them anymore. Do you have an automatic cuff at home you can use or a pharmacy locally that takes it for free. Monitor and log it yourself at the same time several times a day for 2 weeks and see what the results are.

My cousin lost 1/2 of herself literally during cancer treatment and one thing they never bothered to reevaluate was her BP meds. She started having all sorts of problems and on one of many trips to the ER from passing out I asked her about it in front of the ER doctor. She ended up totally off of them.
 
I know something very serious and life threatening has and is happening to me. January was really bad,pain was almost that bad the past few days. I know now that certain medications make it worse. Fact is the doctors are all clueless as to what it happening to me. They do I I lost a lot of weight real fast(skin hangs in some areas and there is stretch marks). They know I have HBP(Which I still have that requires medication) and arterius. Bad hemmeriods, colon polyp..etc. I feel like something is seriously wrong...this is na normal.
But I am strong...it will na take me er stop me from doing what I have to.
Next? Internal specialist Dr Ave. Sept 10th.I prey she finds what is holding me back.
I thank and luv you all my friends.
 
nativesith said:
I know something very serious and life threatening has and is happening to me. January was really bad,pain was almost that bad the past few days. I know now that certain medications make it worse. Fact is the doctors are all clueless as to what it happening to me. They do I I lost a lot of weight real fast(skin hangs in some areas and there is stretch marks). They know I have HBP(Which I still have that requires medication) and arterius. Bad hemmeriods, colon polyp..etc. I feel like something is seriously wrong...this is na normal.
But I am strong...it will na take me er stop me from doing what I have to.
Next? Internal specialist Dr Ave. Sept 10th.I prey she finds what is holding me back.
I thank and luv you all my friends.
Click to expand...

Crohn's can make you lose alot of weight and very fast Mikwan. Have you read all the stories on here about people losing so much weight?Crohn's can cause terrible pain as well and arthritis. Please try not to worry as this can make it much worse, Stress is a killer. I'm so glad you are seeing someone new finally. Try keeping a diary of everything that happens to you everyday and then give it to the Dr. when you go so she can see your symptoms. Hoping for a great miracle!:)
 
I lost many things in my life...more than jus weight. I do na know how to deal with much of dis.I try to live a somewhat normal life. Most of my days are hard...like today. Seems like n matter what I eat it causes pain. I find myself scared of food and it effects on me.
Weight thing...getting to me. Everyone is soo nice now. It is like society treats me better.
I get stared at every time I leave to house....guess I look good. But those same people treated me the exact opposite when I was even a lil bit overweight.
It makes it all harder when even I have to look twice at myself in the mirror....hardly recognize myself anymore. I am the opposite of my self I was last year.
I will take a pic later. See ya my friends :).
 
yes, send an updated picture. It is nice to put a face to your words. You are still a mystery to those doctors....
 
I am starting a REAL journal...:).
I was going to take the pic...when I noticed my laptop was in a bad state. Here I fix Pc's/Laptops...I was ignoring my own while doing others for weeks. Jus trying my cam made it overheat. So I must do my own today.
Woke up feeling bad ...nauseous. I puked up mostly spit with a bit of blood ...kinda freaked me out. Took a pantoparozle and I am feeling better.
Pic later...
 
nativesith said:
I am starting a REAL journal...:).
I was going to take the pic...when I noticed my laptop was in a bad state. Here I fix Pc's/Laptops...I was ignoring my own while doing others for weeks. Jus trying my cam made it overheat. So I must do my own today.
Woke up feeling bad ...nauseous. I puked up mostly spit with a bit of blood ...kinda freaked me out. Took a pantoparozle and I am feeling better.
Pic later...
Click to expand...

May you feel better soon Mikwan! I Look forward to the picture! If you could make it your avatar on here!!!:)
 
Felt good the past couple days, jus upset stomach when ever I try to eat.
Wake up feelin kicked in the ribs. I also notice I become sore way too easy. Fixing computers , I get sore. Typing...I get sore. No matter what I do with my hands...I get sore.
Moving round...I get sore....wish that would stop. Does na take very much to make me tired and sore.j Marijuana is helping...I have been using it more with the advice of my UncleGary(Who is also feelin a lil better).
Felt good til I seen blood in the bathroom first thing. Maybe pushing myself too hard...but it is almost school time...and my kids need more. I did buy em new Walmart shoes, which made me feel proud and sad(Sad I could na do more). They are sweet nikimos(kids) that do na ask for much, they appreciate what they have.
Computers still actin up,,,overheats when I try to take a pic(Maybe a sign?). It is soo embarrassing to have no soo good Pc's/laptops when I am a Comp tech. Every time I fix someone's computer...it is always way better than any I have. Need to update...but my bills.
I always feel anxious...like I will na see another day. Like my sub conscious is telling me to live my life NOW, like it is my last.
I want to go see my Uncle Larry....to get pictures of his family (My couisn who was shot). I want to do Something for em....maybe a Huge picture....as a gift to him and his family(With a pic of me and mine).
Love you all, my internet fam :).
 
That sounds like a very fine gift Mikwan.
I am sorry again for what you are going through and have to endure everyday.
It is a great gift and sacrifice to buy your children new shoes. I remember how hard it was for my parents trying to buy us clothes and shoes for school when we were young. We were so excited to get anything new!:dance: So many children today are so spoiled and have no appreciation for anything.:( Your children are learning the gift of appreciation by not getting too much. It is so sweet you care so much about them and their feelings. I'm certain they love you very much.:kiss:
We all should live everyday as if it were our last, it could be. We don't know. Everyday is a gift!:hug:
 
I'm so glad you are seeing someone new soon she hopefully will be able to tell you what is wrong with you. Fingers crossed and plz let us know we are all here for you and are worried. Ulcerative colitis can also make you lose weight in such a short space amount of time. They are the same symptoms as crohn's apart from crohn's is anywhere from mouth to anus and colitis affects only large bowel. I lost 2 stone in a matter of months went down to 5 stone from my normal weight of 7 stone. Good luck make sure you write everything down what has been happening to you over the yrs/months. It will help her with your diagnosis. I pray that you find out sooner rather than later before serious things happen to you
 
Trying to put a bit of weight on ...IDK how it is going. Felt as I usually do in the morning ...sore. Tried to use the bathroom and seen blood. Felt bloated and like i need to go all day. No laxtive works like dairy...had to. I have a bit of a rash on my ribs now...but the bloated feelin has settled. Always need something to counter act something or rather.
Need to make a bit more for my kids.
 
Aren't you avoiding dairy now? Really try to and get some Lactade and take it first if you have to have some. It's supposed to counteract the affects of dairy if you are allergic. Hope you feel well enough to eat. Try some rice in chickem broth, maybe boiled chicken. Hope you have a great appointment!:)
 
What is going on?
Myself?
yesterday was a really bad day, it was one of my worst. Made me cry for a couple hours. I had to go into town and that is when the pain started....bad. I found myself in public trying na to cry. Kept sayin keep it together...do na cry! to myself. When I got back home ...no one was there. I became scared.
People came by to pick up/pay me for Pc stuff while I tried to keep it all together. When Cher got home she wanted to call the ambulance, but I would na let her.
Feel better than I did yesterday, but dear creator....that was scary.
Pain in worse now ...in the front of my stomach. Seen blood yesterday n the day before. I did have a movement yesterday n the day before.
It is like everyday I get up n poison myself with blood pressure pills. I have no choice, I want to stop takin em. I want this all to stop, so I can live a half ass normal life. Got a job offer...but now I do na know if I can do it. I prey it all goes well...my family needs it...I need it. I still have the same clothes as when I weighed 100 - 150 lbs heavier. My clothes are way too baggy...look like a rapper lol.
I am determined to take a pic today, however that may take a lil bit. A process of using a actual camera(Remember those ah the good ol days)then transfer that to usb/laptop/upload,yadda yadda.
Later my friends.
 
You know I completely understand what that type of discrimination does to a person. It makes you feel like you are wrong as a human on some deep level. It makes you vulnerable and completely reliant on a person to be decent and compassionate and do the right thing. When you are already sick, to fight it is too much sometimes. I was a chronic psychiatric patient in the late eighties and early nineties. Once the new SSRI medication came out, I no longer needed hospitalization and built a life for myself. My arms are deeply scarred however and when medical professionals see them, many will treat me in a punishing way and they do not treat me seriously. I can tell the instant they look at me if they are going to he like that. I'm hoping my doctor can get me booked for surgery so that I don't have to go through the ER. I believe I will die in there if I have to go because treatment will he denied. I went by ambulance for sepsis, but didn't know it. They said it was a panic attack and didn't even bother with blood tests. It's pretty shifty. Just want you to know I understand how deeply that affects a person. I'm so sorry you are going through this with certain awful awful "people".
 
It is a bad situation...I feel like I do na wanna go there. To a hospital...
IDK...feel really bad today. Pain is bad, worse than yesterday. I barely slept...lot of blood...black movements.
I think I am going to have to go in.
 
I did na go in ...:(
Had soo much work to do. Instead...I let my hair down. I thought might as well have a beer and see how that makes me feel. I had a few and got past the pain, I could still feel it. But it helped kill it.Stopped bleeding.
Like pourin whiskey on a wound...it does help.
IDK how to feel about it all. Seems like I need something to help me through days like dis. I can na do this everyday...I know. But it has been so long since I did this. My health was the reason I stopped drinking like 10 years ago.
Made the irritability settle,which I am sure made my family is happy.
Going to see a doctor at the reserve health centre tomorrow, when it is open.
 
Maybe you could call the doctor that prescribed those heart meds and tell him what is going on. They have lots of different kinds of heart medications to find the one that works for you. If it is making you bleed and hurt so bad, you need something else!!! I personally I think one to two beers a day is good... no more than that though :).

hope it gets better soon.
 
Stopped the BP meds...
The Beer helped...it helped the pain. I stopped bleeding soon after.
Feel way better now.
But the BP...I have tried soo many, Trying a new one...really does na sound too fun to me.
I will see what happens with the internal specialist on the 10th and hopefully see a doctor soon after.
 
I hope you find a BP tablet that works.

I know how frustrating that can be, my husband had tried so many tablets before they found one that worked for him.

Good luck:hug:
 
There was a great storm a few days ago...hail were golf ball sized. I was sittin in my truck when it began...first one sounded like a baseball hitting my truck. It sounded bad so I stopped and looked round the truck. Then the downpour came...it destroyed alot of windshields...mine was ok. Did put a lot of lil dents in it. It killed nearly all the plants round my house....all the native medicine is drying up. It got beat right down to the ground. I have been trying to salvage what I can. I know that helped more than any med I have tried. Couple days til my app...do na really expect too much outta that.
We will see how it goes. Pain is kinda manageable now.
 
so glad they got you off of that BP med. OMG!!!!!!!
Wow, I have heard about hail that big but never have seen it... must have been quite a site. sorry it destroyed your plants.

take care my friend.
 
Gettin ready for my appt today...Dr Al a internal specialist who is really a cancer specialist...kinda freakin me out. The name of the doc...I was told it was Av...now I find out it is Al. I know I asked the person who informed me of this appt to spell the name out(Knew it sounded weird). Why would they tell me the wrong name?
Cancer...thinkin it could be my lung...my left. Makes sense? IDK...it feels like it is one the bottom of my left lung. When I wake up it always feels bad...I notice I wheeze more. During the day my breathing is controlled..but at night I guess I go hard(Wife says I snore like crazy such much she gets worried and it keeps her up). My stomach...it is like it gets effected by it some days(Some more than others).
Yesterday I felt good, almost normal...that is gone today...I feel bad.
 
I am still trying to wrap my head round it all...but Dr. Au( It was Au na Av er Al lol soo much confusion).
I did make it and I explained to her how I felt. I went over the whole ordeal once again.
She pulled up ALL the ol test results. I told her how doctors told me I had a heart attack...she looked at the ECGs and said that was na true?!
I was told by three different doctors that I suffered a heart attack last year in May.
She did say something was definitely up with my stomach. No test proved it but the one when I was deficient in B12. I was anemic from losing too much blood from the hemorrhoids. I became constipated with diarrhea. My stomach is inflamed...and the acid had na let it heal. I must take a proton inhibitor EVERY day for three months...and the pain should go away. That with another procedure to correct the hemorrhoids once again. She also ordered blood work and a stress test.
All of that...and she checked my blood pressure and it was normal...I did na even take any BP meds for over a week now.
I have a appt with Warner tommorrow. I want to ask for a B12 injection and a colonoscopy(Can na believe I am sayin dat) to check my stomach and do the hemmeriods. This time I feel I have more knowledge and experience to make it work out this time. Last time the hemmoriods were done I was in bad shape and constipated...that is why they opened up again. It will be with a different surgeon this time, as I have no faith at all in the last one.
We will see how it goes tomorrow.
 

Similar threads

A
Am I crazy?
Replies
1
Views
896
Opieshuffle13
O
D
My IBD history
Replies
1
Views
342
valleysangel92
valleysangel92
C
GI says he is 99% sure I have chron’s
Replies
23
Views
3K
Bespectacledberries
B
K
This has destroyed my life.
Replies
27
Views
2K
kephra
K
T
My sideffects!!!
Replies
5
Views
1K
Tippie
T

Latest posts

Back
Top