Reversal Aftermath

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Ita

Joined
Sep 3, 2013
Messages
32
Location
Ireland
I was wondering could you help me!? I was diagnosed with Crohns during the summer, had major surgery and some of my small bowel n a fistula removed... I had a temporary ileostomy and that has gotten reversed in november last year... I have a pain now when I eat, at the site where my ileostomy was... I also have really bad constipation the last three weeks, I have a doctors appointment friday but I was wondering would you have any advice, please! ps these are quiet close to the same symtoms I started off with... Is there stool softners I could take or anything along those lines!?
 
I can sympathise as I have a similar problem at the site of my anastomosis. Reversal took place in June 2011 and after a while I started to get a slight ache. At the 3 month follow-up appointment I must have mentioned it to the surgeon as he wrote to my GP "these may be the signs of early adhesive symptoms".

I found that wearing a wide, elasticated belt would help with the ache. Sometimes it completely disappeared for weeks but recently it is becoming more persistent. I mentioned it to my gastro consultant just before Christmas and he concluded it was purely mechanical ie. given the amount of surgery carried out there could well be some adhesions or scaring formed. He examined my abdomen and could feel a small amount of scar tissue. Nothing to worry about but he gave me the option of an MRI scan or capsule endoscopy if it would put my mind at rest.

It is certainly becoming more noticeable and seems to be worse after eating a large meal or physical exercise such as raking up leaves or driving a long distance. It is starting to feel like the stricture that was the reason for the original operation.

I'd be interested to hear what your doctor says on Friday.
 
That sounds exactly like me, it gets sore after big meals especially... I also wear those wide elasticated bands too as I think it gives me more support and it does ease the discomfort...

I could totally except it, if it was purely mechanical, and it was adhesions or scaring formed from the amount of surgery I had. I just thought the worse as its quiet similar to my initial symptoms, and that scared me a lot.

I will indeed fill you in on what he says Friday and thank you for your answer... :)
 
There is lactulose, which is insoluble sugar, which draws more water into the colon as it passes, which may make things easier for you.

It helped me many months ago before my operation as I had quite a large stricture, that eventually turned into a total blockage.

I hope it all works out for you! Best wishes!
 
I can sympathise as I have a similar problem at the site of my anastomosis. Reversal took place in June 2011 and after a while I started to get a slight ache. At the 3 month follow-up appointment I must have mentioned it to the surgeon as he wrote to my GP "these may be the signs of early adhesive symptoms".

I found that wearing a wide, elasticated belt would help with the ache. Sometimes it completely disappeared for weeks but recently it is becoming more persistent. I mentioned it to my gastro consultant just before Christmas and he concluded it was purely mechanical ie. given the amount of surgery carried out there could well be some adhesions or scaring formed. He examined my abdomen and could feel a small amount of scar tissue. Nothing to worry about but he gave me the option of an MRI scan or capsule endoscopy if it would put my mind at rest.

It is certainly becoming more noticeable and seems to be worse after eating a large meal or physical exercise such as raking up leaves or driving a long distance. It is starting to feel like the stricture that was the reason for the original operation.

I'd be interested to hear what your doctor says on Friday.



Hi highlandsrock,

Im very slow getting back to you, but I went to the doctor last Friday and he checked and pushed on my stomach and checked my back passage, he did urine and blood tests and came to the conclusion that I had bad constipation and also diagnosed me with IC which is Interstitial cystitis (inflamation of the bladder) He said its common in people with crohns! So his verdict was that I rink 3 litres of water a day and do regular exercise... and take fiber gel twice a day...
 
I am feel good now the water although is hard to drink so much has massively helped... But the IC as he called it, is still very much there... I presumed I had a kidney infection and would get treated... I havnt researched IC much yet but I'm in hospital in the next hour for my infleximab so I can ask them is there anything that could ease it... If ye have any advice on IC please feel free to let me know... Thanks xx
 

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