Welcome. I am sorry you are having a rough time. You have found a good place to come.Greetings All. New to this site...been away from any form of forum well, out of feeling defeated.
10 years since I was diagnosed. Tried every med on the block...currently on Stelara. But the endless bathroom stays, horrible fatigue, high levels of pain, and battles with doctors have gotten to me. Hard getting out of bad, the house, and staying awake at work.
Expecting our first kid in a couple months, and not sure how that's going to go. Will do my best, of course.
Looking at me...you'd think the opposite. I work out A LOT (its my only respite), and try to be happy go lucky. I've got a good marriage, and live in a beautiful place.
But this disease is a terrible test of one's mental capacity.
Hope the best for youI was at the hospital from 6:20am till just before 4:30pm yesterday.I had a scope scheduled for 7:30am they did a bunch of blood tests before then after the scope I had to drink contrast and get scans done.I get the results Thursday when I see my GI.
I'm sorry Ron my prayers are with you. I've felt like that lately too. But my eating has been off too.I have had a couple of instances of incontinence lately . One was the day before i was to have my next infusion and the other one was on Sunday. I feel like I am going backwards. I had a bad time with my stomach last night. I felt a little dizzy shortly after waking up.
Everyone here cares about you.Sick of being sick. I've missed 3 weeks of work already, not sure if I'm ready to go back tomorrow. Guts don't feel right, abscess (fistula?) right next to my bung hole causing a lot of pain, in general feeling like shit. If it weren't for the wife and kids I'd have offed myself already.
Sometimes in the bathroom a lot. A lot of bloating sometimes. I haven't found anything that works on that yet. Sometimes, I wake up at four or five in the morning.Hi Ron...how are you really doing ? I've been out of touch lately. Very frustrated with everything .
Can't get my Remicade now that I've exhausted all means of getting funding. It's now 9 weeks and counting. Hoping I can stay well enough to just tell them what they can do with their poison. [emoji35]
Welcome. What medication does your doctor have you on? Maybe your doctor hasn't found the right mixture of medicine yet.Hello everyone.
I am new here.
I am strugling and feel overwhelmed.
Everyday, I keep fighting to keep it together for my child.
Her father is already deceased and all she has, is me, her ill mother.
Looking forward to a better day...
Have you contacted your doctor?Hello,
I was doing so well for a few months on entocort, bustopan and dexilant
and then the night D showed again.
It had so much pressure and so painful.
Woke up with a
Now, I am afraid.
What will happen next time that I have D?
Have you contacted your doctor?
Hi,Carol. I am better. I only have ocassional pain in my leg. I hope you feel better soon.Hello Ronroush, thank you for writting, you are so kind.
Are you feeling better?
My GI doctor’s clinic reopens
in one week. I had a friend GP look at it, and he confirmed the hernia. I have to be careful in the mean time.
Happy Holidays to all!!
I'm sorry, I've been blessed to never have had a colostomy bag. But many on this site has so hopefully you'll get some times soon. PrayersHello everyone. I have had Crohn’s Colitis for three years. I had to have a temporary colostomy seven months ago due to serious complications from a recto-vaginal fistula that could not be repaired. I do not plan to ever have it reversed as long as there is no cure for Crohn’s, which probably won’t happen in my lifetime. I am 60 years old. I have a bad discharge that is non-stop. Since the fistula has not healed, it’s from both ends. I’ve read some horror stories stemming from having a permanent colostom, but this discharge is making me miserable. Can anyone give me advise as to what I should do?
Hi cmack,I hope you are feeling better Caro. How are things going with the hernia? There are hernia belts that can help the surrounding muscle repair itself, they can sometimes help prevent surgery.
Hello Sarah,Ah, stacked by other medical issues, sums up my life as of late. I at this point try to avoid the doctors office at all cost. Not only do I leave with other medical issues that require more medication but my doctor always has this almost sad, defeated look every time he sees me... Last week was the first time he actually said to me that he feels sorry for me.. Nice to be acknowledged and all but I already get enough reminders at home at how different my life is compared to people my age.
Thanks RonHope you are better soon
Wow! You have been through a lot Tubes. I sure hope you get healed up as soon as possible. Feel free to vent if you need to as well. You have my support.Thanks Ron
I’m surprised I feel as good as I do I had a rectal stump blowout which caused severe damage to my bladder and abdomen they had to reconstruct my bladder and remove my rectum.My limited time sitting is not fun and the spasms aren’t pleasant but other than that I’m fine just really tired.