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Mehita,

Basically rest and more rest.


I feel like I have an infant again. Little short bursts of "entertainment", nap when he naps, stare at the walls, asking big brother to play with little brother so mom can take a shower. And we're only on day 4! He's getting frustrated too. I've read about kids getting depressed and I think he's heading there.

To top it off, DS has his infusion tomorrow and I have no one to watch DS #2 while we're at the hospital. I really don't want to bring him with us because it's always bright, loud and three hours, yet I'm not comfortable leaving him home either. I have calls out to the far reaches of my "village".
 
It's hard enough to balance life with one medical condition in the family--two at once sounds really hard. Hope you can find someone to stay with DS2 tomorrow, and that he's feeling better soon. How much longer does he have to rest?
 
I don't know much about concussions but would he be allowed to do (easy) puzzles? Or lego? Card games or board games (Monopoly?).

Good luck!
 
One of DS's friends came over to hang out with concussion boy - thank goodness, because we just got to the infusion center and it's PACKED. All four chairs in the group room are being used and the little guy across the way has Sponge Bob blaring.

Maya - he can only do really light thinking things. No puzzles, but we've been doing lots of Uno and Legos... until he gets a headache. Then it's back to a dark, quiet room.
 
Matt suffered with both Osgood-Schlatter’s and Sever’s Disease and I think he was in Year 6 when it first occurred. IIRC the Sever’s was worse for him as it affected both of his heels (he is a soccer player). The Osgood-Schlatter’s affected his right knee only but the pain did extend up to his hip causing pain on abduction.

With the Osgood-Schlatter’s he found exercises to be the most effective and Panadol when needed. For the Sever’s we used inserts in his soccer boots and again, Panadol when needed.

Both diseases lasted about 9-12 months and as you can probably imagine there wasn’t resolution but definite and significant improvement once the soccer season finished.

Dusty. xxx
 
What's happening with our weather. Coldest winter in 25 years. Hottest day in October since 1908. October 6th, 35C, today 18C. It dropped 10C in 3 minutes yesterday.

A control burn out of control.

I do prefer it when the fire season doesn't start in October. It going to be long hot summer.
 
Haha! Too funny!

We need to start an Outrageous things our kids do thread.

C had his iron infusion a couple days ago. He went by himself, hospital out patient (actually his gf went with him).

So I get a text after he arrived

"Hey they took my fingerprint and I panicked and made myself a privacy patient so if you need me to sign something so you can see the records I will."

WTH does this even mean?!?!

1. Why are they taking your fingerprint?

2. Why does taking your fingerprint panic you? Are you a wanted man?

3. And why does all that result in you answering no to Can we place you in the directory if any ones calls for you?

4. Lastly, why do they ask that about the directory when your just there for an iron infusion any way?

And why again are you panicked over fingerprints? Is there something you haven't told me?
 
That is crazy! Why the heck would they want his fingerprints!
I would be calling the hospital and asking about that. That is just ridiculous.
 
Some New York hospitals have a fancy new system where they scan your fingerprint to identify you. NYU Langone is one of them, I think.

:lol: Clash sounds like something my kids would do! Poor C, he must have really been freaked out!
 
I missed this before... OMG, too funny!!! (Was tough hiding the smile while reading at work! :lol:)
 
Just a little snow here but then it's not summer. Ski resort opened last weekend. Boys took their board and skis to be waxed so they are ready to go this weekend
 
Wish we would get a bit of snow, even just a couple days.
Feeling happy, in London for a show and Christmas market with Andrew. Nice to get some one on one time with him that's not a hospital appt, ha ha!
 
Have fun with your son.
Still no snow here and still loving it!
I will admit that it's hard to get in the Christmas spirit with out the snow.
 
You all can have my snow! We got 6" last weekend. Messy, yucky, and wet (although admittedly a little pretty).
 
No tree here. We have an 8 week old kitten that I'm sure is part devil.
I can just see the tree being shredded by morning.
I think I'll put one up ( fake tree) on Christmas eve and take it down the day after.
 
I think maybe you have to have walls in your living room before you put a tree up...in the middle of major house reno that of course we started the Monday after Thanksgiving! Since we are doing the reno ourselves I also haven't done any shopping or cards or decorating anywhere else in the house (too much dust).
 
Farmwife, we have a 6 month old kitten who is definitely part devil!
She just shattered a wine glass by getting on the dining table and knocking it right off :ybatty:.

Going to put the tree up tomorrow - then I'm sure we'll watch her destroy the ornaments:ylol2:.
 
E was diagnosed last year on December 18; we had a hospital admission, scopes, and 1st Remicade infusion all during the week before Christmas. Not our best holiday ever, so we've been really doing it up this year. :emot-dance: We got our tree the day after Thanksgiving, and we have tons of lights up outside. (No kitten here, but our lazy old cat did already break an ornament. :cat:)

I always leave the outside lights up until at least February. It's often dark and rainy here in the winter and the lights are so cheerful.
 
I think maybe you have to have walls in your living room before you put a tree up...in the middle of major house reno that of course we started the Monday after Thanksgiving! Since we are doing the reno ourselves I also haven't done any shopping or cards or decorating anywhere else in the house (too much dust).

Oh man--you're brave! Sounds like a major project!
 
No Christmas tree here. Our house is too small and we also have a kitty who would not leave it alone... We have lit our Hanukkah lights this week though :).
 
Oh man--you're brave! Sounds like a major project!

Well it wasn't supposed to be but it was like the book "if you give a mouse a cookie".

Let's repair this wall.
If we do that wall rePair this bookcase
Rip it out I never liked it
If we rip that one out have to rip the other out
Oops have to repair those walls
No floor under bookcase
Original wall a mess because of water damage
Repair gutters
Patch wood floor
Rip up rug
Sand and finish floor
Can't put ugly chairs in new room
Paint and reupholster 6 old chairs

House built in 1835 so lots of little surprises.

Tree will go up christmas eve the latest
 
Trees been up about a week. Most of the shopping done. Stockings are full.

My DD helped put up and decorate the tree last week. Of you ever want C out of your hair just mention bring the tree and ornaments out. He picked up an extra work shift just to avoid that holiday magic! Doesn't mind opening the presents though!
 
Our tree is up and most shopping done and wrapped! Andrew loves Christmas so took him to London and went to the Winter Wonderland. I love all the lights, it's always sad when they get taken down in January!
 
Finally got a tree and our kitten is very interested in chewing on it (of course).
We looked it up and apparently Christmas trees are mildly toxic to cats and
dogs :ybatty:.

It's going to be a fun christmas :eek:.
 
No tree yet. Have to wait for a friend with a truck. Shopping is done, minus the calendars I always make for the grandparents. Now to sweat while we enjoy the holiday activities. It was 83 degrees today!
 
Tree went up the weekend after Thanksgiving. Shopping is finished minus some delays from Amazon. All that's left is cookies!
 
You people have to stop! I am freaking out! Still no sign of Christmas in my house and only a smattering of gifts bought! I a going to log off the forum until after Christmas! :eek:utahere:
 
Ha CIC, you still have me beat.:ack: I haven't even got gifts yet. No tree, no gifts, no decorations yet.
I swear I love Christmas but the no snow is killing the drive to get anything done.
My kids start Christmas break on Friday. I guess I'll get into the spirit then!


On a funny note,
Have y'all seen those blow up Christmas figures, like the 10 foot kind of Santa, reindeer and snowmen?
I pulled into a fancy subdivision yesterday and saw a bunch on a law and thought to myself they looked so gaudy:ack: Pulled closer and realized it was my mom's house.:rof:
 
Got a message from the high school this AM that a student made threats on social media earlier this morning and that police were going to be in the schools and having a presence. They said the student wasn't going to be in school today. Even though DS wasn't feeling great (again), he felt he had to go to school so no one would think it was him. Just another thing for kids (and parents) to worry about.

Nausea woke him up last night around midnight. He was up for 45 minutes, took a Zofran, and went back to bed. I have to get through my scope today and then call his GI again. DS and I were quite the pair last night!
 
Aw poor kiddo. Did the Zofran help? Nausea shouldn't be waking him up at night, I would definitely call his GI.

Farmwife - :rof: So funny!!
 
Aren't we all a bunch of busy little beavers! :D

FW - LOL! I have the opposite problem with my outdoor decorations - we have none, which wouldn't necessarily be outrageous except for the fact that I LOVE them and my husband is an electrician!!! :ymad: I've been asking for years that he spend some time to put up lights... for me, for the kids, for the spirit of the season, etc. and he just always puts it off! I've threatened (and, swear, I will do it one day!) to hire those Christmas light services to come do it for me! (I did actually look into it last year but the cost was like $700! :eek: -- cudn't bring myself to pay! :() BTW, pdx, I wish everyone left their lights on till Feb!! I think they look so pretty! It should be a 'all winter' tradition, not just for Christmas!

And, I do have the tree up and house decorated and a fair bit of my shopping done! :ytongue: I hosted a christmas party this past weekend so had a decorating deadline to meet! :lol:
 
Our neighborhood goes all out for holidays. We have a few decorations for Halloween but none for Christmas. My husband and ladders just don't mix. Fingers crossed we get our tree tonight! Then it will feel more like Christmas.
 
cat nip.jpg

Catnip infused ornaments (sure to please!): For those moments when you think: “I really wish the cat would spend MORE time knocking the ornaments off the tree.”
 
I think that....never! Our kitten knocked off five ornaments and broke one today. Have no idea how to keep her away from the tree :ybatty:!
 
We put up a gate all around the tree this year because of our puppy! :lol: We bought a 3-piece gate to block the puppy into certain rooms/areas... ended up using it as a gate blocking the tree! :D
 
This morning I caught my puppy (she's 5 yrs old) delicately unwrapping a box of chocolates in a corner, which I had put under the tree last night.
 
I think that....never! Our kitten knocked off five ornaments and broke one today. Have no idea how to keep her away from the tree :ybatty:!

Orange peels? Supposedly they don't like the citrus scent. Our cat just came home yesterday after a 6 night vet stay for urinary blockages.
 
My kids are playing a new game on their phones. It is a Family Feud style game. category came up last night:

Things parents say to their kids

My girls yelled out, "let me see your poop"

I guess they didn't poll IBD kids because that wasn't one of them.
 
yep, I'm getting them too. I don't mind ads in theory--something needs to pay for the forum's servers--but the ads seem to be slowing things down a lot, and some are showing up inside of posts, which doesn't seem right.
 
They were there last night, but gone this morning. They were pretty powerful and hard to ignore, weren't they. Very distracting.
 
Omgosh! No one hit the powerball lottery and the jackpot is up to $1.3 billion!!!!!

New game! What would you do with your winnings?

My family would if ofcourse make a donation to the girls' hospital and CCFA but also open a residential school for special needs kids and adults. It would have horses, a farm, a performing arts center, pool and the best food possible!

Your turns!
 
What is the amount that taxes take off of the lottery winnings? Here in Canada lottery winnings are tax free.

I'd donate some to charity, set some folks up for life and retire. Not sure what I'd do for a hobby / sideline once I retired. I'd keep my occupatiobal credentials and memberships up to date and perhaps work pro bono or on an expense only basis for a few hours a month.
 
a few hours a month.

:rof: YES! We wouldn't want to over do it!

Taxes...50% is a safe bet. But here is the thing. With this lottery you only get the 1.3 billion if you agree to take payments each year until the $1.3 is reached. They have a lump sum cash payment option but then the jackpot is reduced. With the current jackpot the lump sum is $806 million...:boring: NOT!
 
Yep,of course take care of the family, set up a charitable foundation, would love to give grants for crohn's research and never fly commercial again!
 
I would love to open a pain clinic for kids here as there's none in Scotland. Donate some to charity and go on a relaxing holiday somewhere sunny. We have had about 2 days of sunshine since November!
 
OMGosh, I don't even know where I'd start... :ywow:

Absolutely take care of family, friends, definitely some charities and crohns research, I'd travel, volunteer and am not sure how I would fill my days otherwise but I'm sure it would be a fun and interesting challenge!... ;)
 
I'd buy a larger home...my forever home. I'd pay off all of our debt and buy lots of clothes/shoes. I have several friends/family members that I'd like to set up comfortably. Definitely do some traveling! I'd probably give to charities pretty freely because doing for others makes me feel good. And I'd never have to worry about medical debt again!!
 
I think we'd want to put the money towards a cure for AS! Also some money to Crohn's and Gastroparesis ;).

And I'd love to travel and go somewhere warm!
 
Let's see
Money towards
Polycystuc kidney disease
JSpA
Crohn
Gastroparesis
Food allergies
Asthma
So just a few things
 
1.3 billion oh boy would i splash that around to a few folks n charities . To be free of debt n have my family n friends ok for life. That would be amazing. Id arrange to fly you all to a beautiful destination so we could all meet in person and have a wonderful carefree time. . ☺
 
Sort my family out donate a bit to the bluecross and migraine clinic/ouchuk some to crohns research and the rest is for me to fulfill my dream of relocating to Durban bar that I'm just gonna get saving have won the health lottery twice though lol ☺
 
k did an open water swim today and it was very difficult. The course was 2km out and back. They were told the tide would assist them on the away out and return would be neutral or slightly assistance.

The event is listing as experience open water swimmers only with lower age limit of 16.

They normally pull out swimmers who will take longer than 90 mins to Finish. K was swimming with a older male swimmer, he asked her whether though the tide was really strong she agree it was. He check his watch, told her he was pulling out as they had already being swimming for 70 mins and were a long way from the turning mark.

K managed to catch one her team mates and they manage to complete the swim together. It was an amazing proformance by both girls:dance::dance:

:shifty:the tide was not giving any assistance on the way out:ywow:
 
Hi Catherine, so pleased that your daughter completed the swim. Well done to her what a star she is :dance: a great achievement 💖
 
i read your message to o and she said,"she is amazing! Way to go k! Kicking some man butt!" I may have cleaned that up for the forum😉
 
K was very happy to finish. 4kms total time 1 hr 47mins. First 2km approximately 1 hr 20 mins, return approximately 27 mins
 
Totally unrelated but I got a job!!!
Freaking me out slightly as I haven't worked for 17 years. Still can't believe they actually hired me, lol. Part time travel money consultant starting next month 😀
 

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