How are you feeling today?

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

ronroush7 said:
Should I invest in some OTC anti-diarrhea medicine?
Click to expand...
It's worth looking around for generic or cheaper versions, with the same ingredients as Imodium. I use a lot of the stuff and, here in Australia, I get a tablet version called "Diareze"which is much cheaper.
 
Duh panda glad your colon is sparkling at the mo. Good news hun ☺ Ron i think imodium is a good plan, i use similar all the time n does help.☺
Christi hope the meds change helps get you feeling much better. 💕
Eridon hope you are doing well ☺
Love n hugs to all 💕💋
 
Im ok thanks Ron. Weary as per usual but not to bad otherwise. I am in work today then i have 9days off ,i can really do with the rest iv worked solid since last sept. So due some me time i think ☺.
Susan2 is right look for the cheapest generic alternative ask at your chemist, they will advise you on a good cheaper version. Take care my friend 💕
 
Fissures are a literal pain in the ass today. I expected this what with deciding to eat several foods in the past 48 hours that I generally avoid/ save for special occasions. Smart move was to stick to one, but I'm all in when it comes to life soo... yeah and now I'm just feeling sassy about it. But the kicker is... when the fissures are active I get to bump up my greenery/ fiber a bit until they settle. :D
 
So i went to my GI today started pred again its for 2months, bp meds , nausea meds, syrup for stomach as i cant go, still on my normal meds also. Have to be back in April. Made an appointment at internal meds they want to see me in July they picked up something i dont know what. Tomorrow its psyciatrist starting new meds there also. My blood work looks normal so many test im just tired for all these test ughhh
 
Aw hun it's a nightmare isn't it, but necessary to get you as well as possible. Hang in there hun big hugs n love to you Christi 💕💕💋💋
 
So the spyciatrist could not start me on new meds coz all my blood were rejected and had to do the process all over again
 
I have to back in a month again both my arms are blue they cant find veins anymore one arm were only air ughhh i hate this every appoimtment are test all over again if it could only come to a point now. I just cant any more next week its hosp again. I just feel like giving up but i know i cant
 
Sending support and all that good stuff your way Christi <3

Last couple days have been, erratic. Met with doc Monday and am thinking of remission as a legit potential for my future for the first time in ages. Surgery as a possibility for treating is officially, completely back off the table and I have been riding that high all week. Its a bit unnerving to allow all that hope back in, I don't want to be closer then I've ever been just to see it slip back away but I'm excited for the possibility too.

Getting to see my partner's reaction to hearing excellent medical news for the first time in the 7 years he has known me for - just no words for it other then gratitude and pure joy. I am so thankful for him and his level head, cuz I know mine has been scrambled ever since Monday as I'm trying to process this possibility as a part of my reality.
 
Long week and feeling it. I have an appointment next week and I need to speak to my doctor regarding my fistula. It's painful and gross. When I asked for a prescription cream the last time he refused. Why I have no idea, but I'm going to push for it this time. The OTC stuff just irritates everything and makes it worse.
 
Hey Duh panda, that is brilliant news hun, I hope that this possibility becomes reality. Good luck and fingers crossed 💕💕

Sagette hope the doctor helps you feel better soon, sending hugs 💗

Ron hope you feel better soon, hugs 💖
 
Did not sleep well - some drunk girl broke in, tried to climb into bed w/ my partner and I then apologized profusely when asked wth she was doing - only to leave behind a nice pair of boots and beat up phone... the boots aren't even in my size. It's going to be a long monday!
 
duh panda said:
Did not sleep well - some drunk girl broke in, tried to climb into bed w/ my partner and I then apologized profusely when asked wth she was doing - only to leave behind a nice pair of boots and beat up phone... the boots aren't even in my size. It's going to be a long monday!
Click to expand...
I am so sorry. Hope the rest of the day is better.
 
Knock on wood, I'm feeling pretty good today. I started my "after prednisone" diet yesterday though, so we'll see how I'm doing after a few days.
 
duh panda said:
Did not sleep well - some drunk girl broke in, tried to climb into bed w/ my partner and I then apologized profusely when asked wth she was doing - only to leave behind a nice pair of boots and beat up phone... the boots aren't even in my size. It's going to be a long monday!
Click to expand...


Oh my!
 
Omg duh, how that must have shook u up.:hug:
Shame about the boots tho ☺ xx

Sagette glad your feeling good. Hope you do well with the diet. Best wishes 💕💕
 
fuzzy butterfly said:
Omg duh, how that must have shook u up.:hug:
Shame about the boots tho ☺ xx]

I was pretty dazed and confused at first, but more shook up as the day went on. Was so disappointed the boots didn't fit. Feeling much better about it today - so glad the 29th is only every 4 years, because I think it's my equivalent to Friday the 13th.

Hope you're well! :hug:
Click to expand...
 
Hi duh . Im doing ok , i think, who blooming knows with this disease, 😕
Glad you are feeling a bit more settled after that ordeal hun. Take care n keep as well as you can 💕💕💋💋
 
Ron hope you feel better soon. I still have fevers ughhh it wont stop my arm is sore since yesterday but feels worse today, still have pain and what not
 
Aw christi . I wish you could get to feel much better hun. I have read somewhere that fevers can be a part of crohns. So that maybe why you can shake them. Google fevers and crohns n see just what it says.
Love Mandy 💕💕💕
 
had pain during the night , im sore this morning and tender to touch even lifting my leg are sore. Eating last night a few bites i have to run to the bathroom
 
Ron, nothing ventured nothing gained unless one is willing to try. I hope this one goes better for you than the Remicade. Remicade ruined my winter, was at my remote cabin for the afternoon, heart racing, out breath together with joint pain in my spine. All these things I used to enjoy doing I simply want to avoid now. Frustrating, but one must keep on going.
 
Any ideas on how to feel better my stomach are so sore and im so swollen feel like exploding took lactulose syrup now and been to toilet allot today im not feeling well
 
Christi, I hope you feel better soon. Bufford, Remicade caused a lesion in my scalp which I eventually had to have surgery for.
 
Aw christi. You are having a rough time hun. Im sorry you cant get some relief from the meds. Big hugs . I really wish i could help you feel better . Them docs need to pull their fingers out n get you sorted out. So you can get some relief. So annoyed they arent helping you enough hun . 💕💕💋💋
 
Thanks Ron , Mandy i dont know what to do anymore i didnt get much sleep im in pain im so swelled up its not even funny , i cant even bent its sore. I cant get relieve from my meds and im still on pred it doesnt help nothing helps i have so many meds to drink in the morning why doesnt it help. Im so sorry for venting but all of this is making me more depressed. By bum are so sore from going im starting to bleed. I dont want to get admited again. Why cant i just live a normal life , why do i have to suffer like this
 
Ron i dont know when thats going to happen , i just want this to end i cant live like this and everyday i try not get myself down but its only getting worse i dont feel better today. Cant they see the meds are not working , i need to see my other doctor. Ughhhh now im crying again so sorry for venting
 
Hi Christi. Please dont be sorry for venting hun,its no bloody wonder you are ...you are having a really bad time.
Idont know if you have any cream you can use on your bum ie sudocreme,vasaline or similar you can use inbetween going to the loo,to help the soreness. Do you pass wind regularly as im wondering if the bloating maybe related to that if you dont.
I will see if i can find out what other things could be causing the bloating,and let you know if i come up with anything to explain it and help you.
Im so sorry that you are going thro this hun. Love n hugs 💕:hug:
 
Mandy im now having diarrhea , yes i have some vaseline that i could use. I dont know why im so swelled when having diarrhea and going so much. And the pain is horrible took some pain killers again but not helping. Its useless taking anything. Ron i saw another doc last month as the one i normally see where busy with scopes
 
Hi ok hun il see what i can find out for you. Im getting ready for work now,but will get back to you as soon as i can. Hope i can find what might be causing this for you. :hug:💕
 
Christi - So sorry to see things are still a major struggle right now and you're not seeing any relief. When I'm really bloated and things are going haywire and struggling with active fissures and bleeding after each b.m. I have found coconut oil helpful (can be formed into a suppository of sorts and inserted which coats the rectum and helped to ease bm's some). Also, if you have not already, switching to using baby wipes instead of TP or even taking the time for a sitz bath after may really help soothe things as much as they can be soothed. It won't take any of it away, but hopefully might help make the days a bit more bearable until docs stop dragging their feet and can get you onto a treatment plan that works better for you.

When bloating is a major issue for me I find diet manipulation an effective means of reducing the strain it places on the gut. A gassy gut is agony with active Crohn's. It may be worth looking into what are gas causing foods and try cutting out any you may be currently eating to potentially reduce discomfort and pain levels.

Other then that - have they looked into a possible bacterial overgrowth in the small intestine? I'd never had it mentioned to me as a potential cause for bloating, pain and IBD symptoms until a new GI I just started working with the past few months. I didn't ask her for details, because my focus is on balancing out meds first, but it might be worth bringing up with your GI and testing for.

End of last week was spent in ER/ urgent care being infused with antibiotics, fluids and anti-inflammatories for a sneaky sneaky infection that made its way into my bladder tissues. I'm still a bit put-off by how far the infection got without showing any symptoms - no pain, no urgency, just a bit of an uptick in fatigue over the last week. Then BAM so much blood it was impossible to ignore something wasn't right. But, proud of my partner and I for going in and seeking medical help in the form of IV to speed things along in getting on top of it. A small consolation prize to experience a moment of maturity ;) I'm hoping to get out for a walk today, but am utterly exhausted still so it may be another nap, Parks & Rec watching, pajama wearing day here.
 
Christi said:
Thank you Mandy
Click to expand...

Hi Christi, I have Googled, what causes a swollen belly with crohn's disease. If you Google that and scroll down to the 3rd one down to www.emaxhealth.com. It may be able to help you suss out why and how to help you with it. Hope its of use to you hun. :heart:
Oh it's created a link so just press on the highlighted bit. I it should take you there. :thumleft:. I just tried it but don't take you to right page so stick with what I first said. Xx
 
Mandy thank you it was helpfull. Duh panda im sorry you are struggling now. I did cut out some food. They didnt check for any infection in my intestines. I dont know what the zits bath is? I have cream and vaseline that does help soothe my bum after bm.
 
Hi Christi, I hope it gave you some ideas as to what might be going on hun, and maybe some things that you can ask your doctor about, to see if you can get some well deserved relief.
Love and hugs 💕💕:hug:
 
Christi said:
Mandy thank you it was helpfull. Duh panda im sorry you are struggling now. I did cut out some food. They didnt check for any infection in my intestines. I dont know what the zits bath is? I have cream and vaseline that does help soothe my bum after bm.
Click to expand...

Sitz bath is a shallow (2-3 inch), warm bath without any irritants like soap or bubble bath. Usually not used for longer then 10-15 minutes at a time. It can be a bit inconvenient to always be getting undressed/ redressed, but there are some bowls/ tubs marketed that fit over the toilet and can make the whole process easier. The idea is to boost blood flow to traumatized tissue to speed up healing, as well as reducing inflammation and irritation.
 
duh panda said:
Sitz bath is a shallow (2-3 inch), warm bath without any irritants like soap or bubble bath. Usually not used for longer then 10-15 minutes at a time. It can be a bit inconvenient to always be getting undressed/ redressed, but there are some bowls/ tubs marketed that fit over the toilet and can make the whole process easier. The idea is to boost blood flow to traumatized tissue to speed up healing, as well as reducing inflammation and irritation.
Click to expand...
I usually did it on the toilet . The warm water was nice.
 
Mandy it was of great help and i will mention a few things at my doctor. So its basic warm water without anything. I also drink some epsom salt in my coffee just the point of a knife. I will try the zits bath
 
Im feeling like crap today. Been up being sick since 4am and the runs at the same time. Ucky !! Hope its just a bug or food poisoning.Feel shaky n weak. Dont want it to be crohns starting to kick off again. I dont think it is but ??. Going to rest n not eat solids today n see how i go...
Hope everyone else has as good a day as you can. Love n best wishes.
 
Aw Mandy, hope it passes and is just a bug!

Thinking of all you magnificent courageous people today, and hoping the best for the cards you're holding.

Feeling okay - not great, but had a follow up this morning and infections are responding well to treatments so should be back to seeing a bit more energy soon.
 
Hi folks, just to say I'm feeling somewhat better than before. I am thinking it might have been food poisoning, from what I don't know but I've sure purged it out lol.
Thanks for the support and wish you all the very best of everything. You all so deserve it. Love n hugs 💕💕
I've just realized that today is 2 yrs since I had my ileostomy done, mmmmmm not quite how I'd have liked to celebrate that but anyhow :drink::dusty::dance::highfive:
Still gotta celebrate 2 yrs with out any pain in the guts right!! 😁
 
I am grateful that you are not having any pain in the gut, Mandy. My father just got moved up to memory care in the nursing home he is in. All three of his kids are chipping in the price until his military benefits kick in. There is a gentleman who has taken my dad in under his wings and knocked 600 dollars off the cost. :)
 
Hello everyone my name is Mia and have recently been diagnosed with Crohn's I first starting having severe symptoms back in August, it later turned out that I had perianal abscesses and a fistula formation after 4 operations a seton was finally put in place and is still in place, i had yet to be diagnosed when this happened, I saw various surgeons and doctors and Crohn's was eventually suggested, they did all the procedures to see if I had Crohn's such as sigmoidoscopy and Mir scans, and was diagnosed January this year, it has been really overwhelming to deal with, I have tried to remain positive which has worked very well for me and I have not dwelt too much on having a 'life long disease' however after having an Mri recently it has shown that the inflammation has got worse in my small intestine and colon, I am currently taking 75mg of azathioprine and 9mg of the budesonide steroid and have been told that I am going to have to change my treatment to a biological one such as infliximab, I have heard very good things about this drug and am hoping it will work well for, I have had to quit school and my job as Crohn's has completely taken up all my time. I am not really sure why I am writing this I am just hoping for some support from people who really understand what I am going through as my parents can only understand to a certain extent, although they are very supportive which I am thankful for, I would love some replies just so I feel I am not alone which I sometimes stuggle with

Thanks in advance Mia x
 
Hi. You will find lots of support here. I am glad you are being positivet. I hope you have great success with infliximab.
 
ronroush7 said:
I am grateful that you are not having any pain in the gut, Mandy. My father just got moved up to memory care in the nursing home he is in. All three of his kids are chipping in the price until his military benefits kick in. There is a gentleman who has taken my dad in under his wings and knocked 600 dollars off the cost. :)
Click to expand...

Hi Ron.Thanks mate. Im doing ok so far today. So going in to work. God bless that gentleman what a star he is. That must be a great help to you and your family.☺💕💕
 
miarosa said:
Hello everyone my name is Mia and have recently been diagnosed with Crohn's I first starting having severe symptoms back in August, it later turned out that I had perianal abscesses and a fistula formation after 4 operations a seton was finally put in place and is still in place, i had yet to be diagnosed when this happened, I saw various surgeons and doctors and Crohn's was eventually suggested, they did all the procedures to see if I had Crohn's such as sigmoidoscopy and Mir scans, and was diagnosed January this year, it has been really overwhelming to deal with, I have tried to remain positive which has worked very well for me and I have not dwelt too much on having a 'life long disease' however after having an Mri recently it has shown that the inflammation has got worse in my small intestine and colon, I am currently taking 75mg of azathioprine and 9mg of the budesonide steroid and have been told that I am going to have to change my treatment to a biological one such as infliximab, I have heard very good things about this drug and am hoping it will work well for, I have had to quit school and my job as Crohn's has completely taken up all my time. I am not really sure why I am writing this I am just hoping for some support from people who really understand what I am going through as my parents can only understand to a certain extent, although they are very supportive which I am thankful for, I would love some replies just so I feel I am not alone which I sometimes stuggle with

Thanks in advance Mia x
Click to expand...

Hi and welcome Miarosa. Sorry for your need to be here tho. I hope the infliximab does the trick for you.It really is good if its what suits you. I was on it for a while but it didnt work for me,typical of my luck...most people do very well on it.
Best wishes and please let us know how you get on. Take care 💕💕
 
Hi mandy im sorry you are sick but im also glad you feel better and its nothing in the gut sorry i didnt see this earlier :). duh panda im happy the meds are working and that you will be up and running in no time and everyday goes better. Ron im happy that there is someone that could help it makes things easier for you and your family. Mia welcome to the forum you will find allot of support here as we all understand. Support to all my friend hugs
 
Thanks Christi. ye only one day of it thank goodness. I hate being sick. I can handle aches pains n the runs but sick na i dont like it at all. 😔
Hope you are doing better my lovely. 💕💋

Ron i feel you there mate. Im blooming knackered today. Yesterday took it outa me somewhat!! 😯
Hope you get to rest up n recharge your batteries my friend. 💕
Love n hugs to all my friends here 💞:ghug:
 
Im very happy Mandy being sick is a horror of its own. Im doing the best i can feel a little better but im still sore. I read your son got engaged and i just want to say congratulations :) im so happy for you and that there will be baby soon :)
 
Hi my sweetheart. Thank you so much for the congratulations. I cant wait 😆
I so glad you are feeling a bit better and hope you continue to do so. You really do deserve a break from all the agony. Im praying that things get much better for you hun. 🙏
💚💛💜💋💋
 
Feeling okay. Just wish I wasn't so beat by the end of the week that I had some pep when Saturday rolls around.
 

Similar threads

valleysangel92
Hello Old Friends
Replies
1
Views
264
my little penguin
my little penguin
thike1966
Hotel Crohn's Forever, The Return Of The Fistula
Replies
0
Views
509
thike1966
thike1966
L
How to travel overseas with 1 year of Skyrizi? let's brainstorm
Replies
13
Views
3K
nofun
N
R
Nearly 4.5 years in with Crohn's.
Replies
2
Views
1K
ras96mg
R
A
What would you do?
Replies
22
Views
2K
Delta_hippo
D

Latest posts

Back
Top