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maybe I could ask for an umbrella drink too! and get a heat lamp in my room and a sound scape that way I can be at the beach without having to worry about the sand! :D
 
Wish I lived closer, I would come see you and bring that drink and soundscape! My presence would be your sunlamp:dance::rof:
 
Ha ha!! lol! Come on down!

Actually the weather can be pretty bad this time of year. We say that we have two seasons Summer and February.
 
guitarjamie03 said:
Ha ha!! lol! Come on down!

Actually the weather can be pretty bad this time of year. We say that we have two seasons Summer and February.
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Anymore, it's getting like that here and all over weirdest weather. Carol said somethings afoot and I replied yeah, dogpoop!!!:ylol2:
But the seasons are all screwed up and don't know what to expect anymore!
We are having an ice storm and snow tonight. !-2 in. by morning!:blush:
 
We could dround out all of the noise of the nurses coming in a 4am when I am in a deep sleep and ask to take your vitals.. True story. I was in the hospital with my first Crohn's attack and this is what the conversation was at 4am....

Nurse: Miss Kent? Are you awake? What is your pain level this morning?

Me: My pain level is you.. you just woke me up! And I was in a deep sleep too.

Nurse: I'll come back later..

I was not happy. But I did say I was sorry later on.
 
Well Jamie, guess I'll sign off for tonight. I'll be talkin to you soon! Blessings and enjoy you retreat this weekend! Hugs!:hug::heart:
 
guitarjamie03 said:
We could dround out all of the noise of the nurses coming in a 4am when I am in a deep sleep and ask to take your vitals.. True story. I was in the hospital with my first Crohn's attack and this is what the conversation was at 4am....

Nurse: Miss Kent? Are you awake? What is your pain level this morning?

Me: My pain level is you.. you just woke me up! And I was in a deep sleep too.

Nurse: I'll come back later..

I was not happy. But I did say I was sorry later on.
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Great reply Jame! Gotta go, gettin sleepy hun! Loves!:)
 
Allie was playing the role of Boston Terrier, Seizure Dog!.Sandy had a seizure in a fee minutes after the growling. But she is fine now. Sandy got to the living room, told me Allie had keyed on her. She sat down on the couch, took of her glasses, and was prepared for when the seizure hit. Sandy is doing good now.
 
Stupid day ahead. Have to go all the way to city center just for 1 paper that they cant give me with out mi signing an other paper and even then the paper I need will be sent to me in the post instead of just given to me. Stupid system. Thing that annoys me is I have to pay nearly 8€ in bus fares. Going to the city itself isnt too bad really. So wont be winning for long today.

Oh.. and we are getting more snow.
 
The candy isle is an unkind thing, everything has gluten, nuts, some kind of oil and/or soy lecithin in it.

Also the place that draws my blood is only open on weekdays and closes at 11 a.m. I am not a morning person enough for that crap. What is wrong with these people?
 
I'm opposite.Sometimes wander into town,and nothings open yet.That's in the summer,when it's been light since 4am.At xmas,they do late night shopping,when I'm in my bed............Taking the Win for the U.K. (not you IDI)before the folks over the pond are up and about.
 
My body's chemical process is sunlight + coffee = energy.

Too little of either and I don't function at peak efficiency.

Many a time have I caught myself doing dumb things in the morning before my first cup of joe, like cracking the eggs and going to put them in the garbage instead of the pan and throwing away the shell, dumping my old coffee grounds in the sink, or filling the filter with un-ground whole beans, turning on the wrong stove burner, trying to put the milk in a cabinet instead of the fridge... yeah
 
Maybe its too much coffee thats causing the problems.

Back from the city. Noe just realized my water boiler for tea as just about to not be usable anymore. It leaks.. and if the leak gets bigger it will flood my table. :( Not really someting I wanted to invest in at this point. :(
 
InstantCoffee said:
My body's chemical process is sunlight + coffee = energy.

Too little of either and I don't function at peak efficiency.

Many a time have I caught myself doing dumb things in the morning before my first cup of joe, like cracking the eggs and going to put them in the garbage instead of the pan and throwing away the shell, dumping my old coffee grounds in the sink, or filling the filter with un-ground whole beans, turning on the wrong stove burner, trying to put the milk in a cabinet instead of the fridge... yeah
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That's a normal day for me too and I don't drink coffee. can't blame it on that.

Sanni, I'll send you mine. rarely used.

now back to bed for me. I'll wake up in time for the final win.
 
DougUte said:
Allie was playing the role of Boston Terrier, Seizure Dog!.Sandy had a seizure in a fee minutes after the growling. But she is fine now. Sandy got to the living room, told me Allie had keyed on her. She sat down on the couch, took of her glasses, and was prepared for when the seizure hit. Sandy is doing good now.
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Thanx Doug, give her a hug!!!:heart:
 
Sweet dreams Sandy. Thanx for the water boiler. :D Haha.. Naah.. My moms taking me to get a new one after out Tai-Ji lessons today.. hopefully she will even pay for it. I have the best mom. <3
 
I burned dinner yesterday due to new drug they put me on. I was so out of it. Now I feel like I have the flu, so maybe it wasn't the drug. Getting sniffly and still so tired and feel like crap.Nauseated too. I'm not going to work.:eek:
 
I have been thinking about this .............................................. ................ time for me to win and time for you to keep very quiet.
 
Didn't burn the lunch after all.It must be getting very cold outside as I can hear cars crunching up the street.Alf is asleep so doesn't know it's time to go out.The evenings are getting lighter too.4-30pm and still ok for a while yet..........I'll take the win thanks.Idi has been quiet today,knows when he's beat eh ? That didn't take much effort.
 
scottsma said:
Didn't burn the lunch after all.It must be getting very cold outside as I can hear cars crunching up the street.Alf is asleep so doesn't know it's time to go out.The evenings are getting lighter too.4-30pm and still ok for a while yet..........I'll take the win thanks.Idi has been quiet today,knows when he's beat eh ? That didn't take much effort.
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I think he is sick. He said he threw up on word assoc. I am sick too! Getting a cold and stomach is nauseated. Maybe I'll lose a few pounds!!!
Our weather got a little bit better. Warmer and ice is gone.:hug:
 
All you sickos try and feel better soon.:ghug:

I am meeting a fellow crohnie tomorrow. Exiting. A woman I have "known" for some years who is in a very similat state as I am. Will be fun to finally meet face to face. And she is taking along her boodle puppy so its a doggy date at the same time too. :rosette1:
 
Managed to jam up the snow blower and had to finish the driveway the hard way. Stupid brown slush is impossible to clear out of the shoot. I hate gas operated machinery.

I've got my chicken frying skills down to a near science now, since it's about all I eat, have to keep it interesting.

Take 4 thinnish tenders, thawed, spread a pinch of sugar, dust with garlic, turmeric and ginger, set heat to mediumish, fry on the seasoned side 5-10 minutes depending on heat, flip, place a half slice of cheese on each piece, fry 5 more minutes.

Tomorrow I'm thinking of trying honey glazing it.
 
InstantCoffee said:
Managed to jam up the snow blower and had to finish the driveway the hard way. Stupid brown slush is impossible to clear out of the shoot. I hate gas operated machinery.

I've got my chicken frying skills down to a near science now, since it's about all I eat, have to keep it interesting.

Take 4 thinnish tenders, thawed, spread a pinch of sugar, dust with garlic, turmeric and ginger, set heat to mediumish, fry on the seasoned side 5-10 minutes depending on heat, flip, place a half slice of cheese on each piece, fry 5 more minutes.

Tomorrow I'm thinking of trying honey glazing it.
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Try pouring balsamic vinegar over them raw on cookie sheet, french onion soup [dry], sprinkle half a pkg,'evenly,then pour thousand island dressing or russian dressing over each breast and bake on 350 F for 40-45 min. Delish!!!!
 
Hi Trysha and Bee! Was reading forum stories waiting for someone to come on here! Mike is watching the story of the Sex Pistols band and it is too foul for me!:voodoo:
 
I guess I did remember. I wrote your address down so I will remember your surgery and will have the girls praying for you!:hug::ghug:
 
yea!! Thanks T! :)

No, sandy I havn't done much cooking lately becasue I have been so busy getting ready for this retreat. I'll be gald when things slow down again.
 
guitarjamie03 said:
yea!! Thanks T! :)

No, sandy I havn't done much cooking lately becasue I have been so busy getting ready for this retreat. I'll be gald when things slow down again.
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forgot about the retrea, and that would be such a huge responsibility. I'm glad I don't have it! I've been avoiding responsibility lately. sleep tight T!
 
I'll bet you are. my sister is having a similar surgery about the same time, but they haven't pinpointed the exact date.
 
Both of you will be in my prayers. you will be in a lot of people prayers here, that is for sure.
 
Yes, and a little more than you. at least two fistula repairs, a total hysterectomy and bladder repair. yikes!
 
you are having a fistula repair at the same time aren't you? At same time as re-section? you aren't having anything else done are you?
 
I'm going to go myself. G'night Jamie. G'night all. Hold my win for me, would ya? Trev, I hope you're feeling okay.
 
G' night Sandy and yes, they are going to remove my fistula and repair the baldder if there has been any damage to it.
 
723crossroads said:
Try pouring balsamic vinegar over them raw on cookie sheet, french onion soup [dry], sprinkle half a pkg,'evenly,then pour thousand island dressing or russian dressing over each breast and bake on 350 F for 40-45 min. Delish!!!!
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Sounds good, but onions. :shifty:
I haven't dared to try those in ages.
 
Winners here peeps.........Lovely day,crisp and sunny.Just in from 2nd walk of the day.Fish cakes and apple crumble for lunch,not on the same plate of course.Back later.Behave yourselves.Hope all you poorly peeps are ok.keep warm x
 
I don't want to keep warm, it's calling to me
snuu.jpg
 
I did the honey today, it was a good switch up, from salty/cheese to sweet/sour. Made a bit of a charred black mess of the pan but these new non-stick pans are amazing, just a dab of dish detergent and a wet paper towel takes off everything. Fried an egg to go with it for good measure, to absorb some of the flavor.
 
InstantCoffee said:
I did the honey today, it was a good switch up, from salty/cheese to sweet/sour. Made a bit of a charred black mess of the pan but these new non-stick pans are amazing, just a dab of dish detergent and a wet paper towel takes off everything. Fried an egg to go with it for good measure, to absorb some of the flavor.
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Did you read my reply to you about skipping onions and I forgot the canned peaches??? Read below
 
I want to die peacefully in my sleep like my grandfather, not screaming and yelling like the passengers in his car!!!

Your laugh for the day!!!:ylol2:
 
Hm sounds good, I'm really on edge about all fruits and veggies, most of them are no bueno, but I had some serious stuff going down from other dietary issues and believe my tolerances are better, I need to experiment a bit to see how much better, peaches aren't quite mild enough, but I'm not really sure what's mild/isn't.

I know I can have cantaloupe though, and that's a plus. I love cantaloupe.
 
InstantCoffee said:
Hm sounds good, I'm really on edge about all fruits and veggies, most of them are no bueno, but I had some serious stuff going down from other dietary issues and believe my tolerances are better, I need to experiment a bit to see how much better, peaches aren't quite mild enough, but I'm not really sure what's mild/isn't.

I know I can have cantaloupe though, and that's a plus. I love cantaloupe.
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Canned fruits are cooked, you shouldn't have trouble with them. It's the fresh or raw that give you grief! Also the skin. These have skin removed. Get the kind in it's own natural juice too.
 
What a fun day. She is the only person I know who also has short gut. Actually her crohns has been very same to mine.. just with 10 years more experience. Diagnosed same age as when I was but 10 years earlier. So I have had a bit of advantage from inproved knowlege and healt care in that time, but other then that its very much the same. Sorry.. being hyper about it, but its just a relief to meet someone that knows exactly what you talk about and how you feel.
 
Don't have a lot to say except thank you everyone for holding my place/win for me. I'm getting hungry with all of the food talk and I'm going to go make myself something to eat for breakfast then probably fall back to sleep until lunch. I'm also tired of being tired, so hold my spot for me again, would ya?

That picture from Connecticut was absolutely beautiful.
 
sanni said:
What a fun day. She is the only person I know who also has short gut. Actually her crohns has been very same to mine.. just with 10 years more experience. Diagnosed same age as when I was but 10 years earlier. So I have had a bit of advantage from inproved knowlege and healt care in that time, but other then that its very much the same. Sorry.. being hyper about it, but its just a relief to meet someone that knows exactly what you talk about and how you feel.
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That is wonderful Sanni! One of the best things for Doug was meeting in person some fellow IBDers, and they will always be considered good friend. It really helps to have someone who knows how you feel, doesn't it? I'm so glad for you.
 
I'm in my own boat altogether. that's why I see my therapist on Fridays. I live in my own little world, but it really is okay, they know me here.
 
I have met lots of people with crohns. I used to be active in the local assosiation. But only a couple with as dificult a crohns as I have had or anyone ever with real short gut. In Finland there is only a hand full of people with short gut... I know since my doctor has said that and its the main hospital on Finland. So to finally meet one face to face was great. Usually if I share my storys I just shock people but now it was like talking to an equal not having to soften things up and actually having a real discussion of how society outlaws us by categorizing us in with crohns and saying we are healthy if our crohns is ok, but ignoring the fact that with about 5 foot of intestines one will have some problems.
 
InstantCoffee said:
I don't know anyone with crohns but my cousin has celiac, we have some commonalities but celiac's alone is much more flexible in general.
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Its nice to meet people with the same problems as what you have. Here they are quite good and have all sort of things for us. Like there is a one week course to learn about everything there is to learn. Its for people who have just gotten diagnosed and its a chance to meet new people with the same problems and they have lectures from doctors and surgeons and nutritionists and others who can give info for a newly diagnosed. Its usually at a spa too :D

We also have courses to go to as a couple with your spouse or a friend or sibling or parrent (who ever you want to go with). I think its great.. but once you have had crohns for 15 years there is not much new to get from those exept all the wonderfull people that attend.
 
sanni said:
Its nice to meet people with the same problems as what you have. Here they are quite good and have all sort of things for us. Like there is a one week course to learn about everything there is to learn. Its for people who have just gotten diagnosed and its a chance to meet new people with the same problems and they have lectures from doctors and surgeons and nutritionists and others who can give info for a newly diagnosed. Its usually at a spa too :D

We also have courses to go to as a couple with your spouse or a friend or sibling or parrent (who ever you want to go with). I think its great.. but once you have had crohns for 15 years there is not much new to get from those exept all the wonderfull people that attend.
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I think they offer something like that around here, at least some kind of support group meeting but I never went, I'm very anti-social for one, and when I was first diagnosed in like 05 / 06 I think it was I was more keen to hide from my condition because it seemed the more I learned the more scary things I learned could happen so I just didn't want to face it because I was doing well at the time.

Probably could have helped me deal with some of the problems I've encountered and had to figure out on my own.
 
You can still go. never too late. And atleast here some of the gatherings you can just listen.. you dont have to bee to social if it feels that way. But you never know. When you know people are in the same place as you with an illnes it might help and make you want to share and feel better in that way to get a load off and not keep it all to yourself. :hug:
 
InstantCoffee said:
I think they offer something like that around here, at least some kind of support group meeting but I never went, I'm very anti-social for one, and when I was first diagnosed in like 05 / 06 I think it was I was more keen to hide from my condition because it seemed the more I learned the more scary things I learned could happen so I just didn't want to face it because I was doing well at the time.

Probably could have helped me deal with some of the problems I've encountered and had to figure out on my own.
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We're really glad you joined us on this thread! Nice to see new faces who can share with us their own perspective!!!:rosette2:
 
Thanks. I know it's kind of backwards sounding but I wasn't interested in learning until I found a way to start getting myself better, because I thought it was just kind of hopeless in the past and if the doctors couldn't help me no one could, until I learned about things like naturopathic views and stuff and started looking at diet and when I finally got my diet straightened out a few months back, well ever since I've felt better than I have in a long time, it seems a lifetime away the last time I was this healthy.

Now that I'm doing well I want to preserve that feeling so I've been looking to bulletproof my knowledge and prevent new issues, but also to share what I've learned along the way so hopefully I can prevent someone else from doing it the hard way like I did.
 
It's great you found the answers that helped you. Maybe you should create a thread under "Success stories". People love hearing what worked for others.:thumleft:
 
Maybe I will, unfortunately my success isn't something everyone can replicate, because my tolerance of lactose which I understand to be uncommon has allowed me to switch a ketogenic diet and basically eliminate all things that bother me for a pure fats and protein diet.

"Allowed" could probably be interchanged with "forced" :ylol: But I don't regret it so I'll stick with allowed.
 
InstantCoffee said:
Maybe I will, unfortunately my success isn't something everyone can replicate, because my tolerance of lactose which I understand to be uncommon has allowed me to switch a ketogenic diet and basically eliminate all things that bother me for a pure fats and protein diet.

"Allowed" could probably be interchanged with "forced" :ylol: But I don't regret it so I'll stick with allowed.
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There is a paleolithic diet on here somewhere that some are on and with great success. You must be the same. I can tolerate dairy as well. It seems to be the raw veg and tomatoes and oily foods etc... that get to me. I don't have celiac disease either. But still, anything you can add that might help someone is worth the effort!!!
 
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InstantCoffee said:
Maybe I will, unfortunately my success isn't something everyone can replicate, because my tolerance of lactose which I understand to be uncommon has allowed me to switch a ketogenic diet and basically eliminate all things that bother me for a pure fats and protein diet.

"Allowed" could probably be interchanged with "forced" :ylol: But I don't regret it so I'll stick with allowed.
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I've heard many times about ketogenic diets in epilepsy web sites and forums (I'm epileptic and my husband has crohns) but never paid much attention to it. you have me very interested now . . .
 
Where is everyone? On a cruise with Dee???
Hope she's having fun! Talk to ya all tmoro! I win! Hi GJ! Hi Trysh! Hi Trev!
I know you'll be on later!:biggrin::heart::heart::heart:
 
Went through the ordeal by fire today and had the initial dose of Remicade.
Great relief to get it over with and very straightforward--no problems with it and
hope it continues that way.
So its time to win.......
 
SandyUte said:
I've heard many times about ketogenic diets in epilepsy web sites and forums (I'm epileptic and my husband has crohns) but never paid much attention to it. you have me very interested now . . .
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Yup it was originally a treatment for epilepsy but it's gained steam in bodybuilding because it lets you hit your caloric needs (assuming you eat a lot of food you normally wouldn't ) and still remain lean.
http://forum.bodybuilding.com/showthread.php?t=132598293
Very long, but informative thread on it. I think Wikipedia has a good explanation of how it effects epilepsy, I don't remember if the thread goes into depth on it as it's not the goal of the topic.

It does require a high level of commitment however, basically 10-30 days with no sugar to convert to a ketogenic metabolism effectively. I'm not sure if I have or not, I never did a full sugar fast but I don't have some of the symptoms of low sugar during the transition phase like a low energy funk that they describe. I guess if you want to be certain there's pH strips you can test urine with or something but I haven't felt the need to be certain :lol2:
3E. How to Know You're Under Ketosis

When the body is under a ketogenic metabolism, you will exhale gaseous acetone and excrete acetone thru the urine.

Acetone is said to have a "fruity" smell, so if your breath or urine smells somewhat like fruit then you're under ketosis. Many people also report a metallic taste in their mouths when under ketosis.

There are also ketostix available at any pharmacy with which to test yourself for ketosis.
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Basically I only intend to stay on it until, hopefully, my gut mends itself enough to tolerate some fruits/veggies and I can go paleo.
 
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